Search results for query: TTTS
- Order by date
-
Hearing Loss and Severe Tinnitus — From Loving Life to Suicidal in 2 Months
Are you noticing any TTTS symptoms? Any fluttering, thumping, or itching in your ear? Burning is sometimes a symptom of trigeminal nerve sensitization that stems from middle ear involvement.- haha ear go eeee
- Post #427
- Forum: Introduce Yourself
-
@gameover I had the test in the past twice with no issues. I wasn't having any issues before the...
...had the test in the past twice with no issues. I wasn't having any issues before the test. My worse ear felt full after but the burning didn't set in until 2 days later. My jaw/ear made a snapping sound the same day it started as well so I'm unsure what's causing it. It is def aggravated by...- Ngo13
- Profile post comment
-
@RunningMan it's persistent, burning pain. I think it may be related to by TTTS. I can't tell if...
@RunningMan it's persistent, burning pain. I think it may be related to by TTTS. I can't tell if it's from sound or my jaw or what. It lasts awhile, dies down and then somehow gets triggered again.- Ngo13
- Profile post comment
-
@MiaVIL - have they ruled out myclonus or TTTS ear spasms?
@MiaVIL - have they ruled out myclonus or TTTS ear spasms?- DeanD
- Profile post comment
-
Cannabidiol (CBD) — Epidiolex
That's what I'm thinking too! Given that all 11 patients of Noreña and Fournier's follow-up study had TTTS symptoms with their noxacusis, I'd say there's a majority of us who have these middle ear symptoms that perpetuates the pain. What are the recommended treatments for trigeminal neuralgia...- haha ear go eeee
- Post #98
- Forum: Alternative Treatments
-
Debrox + Musicals = Hyperacusis x Tinnitus
...and I guess I’m doing better than before, but as you can imagine the improvement isn’t gigantic. Here’s the rundown of my current symptoms: TTTS: This happens in reaction to things like plates and silverware, sometimes the shower. Usually it only happens when I’m exposed to the noise, but if...- ahlisa
- Thread
- Replies: 1
- Forum: Introduce Yourself
-
My tinnitus started over 20 years ago also, and just slowly got worse over the years where white...
...masked it, but it suddenly intensified to a new level in Feb 2022, which quickly become distressing causing anxiety, depression, and greater insomnia. Not much change in tinnitus since, but now TTTS and hyperacusis. I would take the previous 20 years of tinnitus over the last 18 months...- RunningMan
- Profile post comment
-
Hi msintros, was wondering how you are doing? I seem to have the same symptoms as you, looks...
Hi msintros, was wondering how you are doing? I seem to have the same symptoms as you, looks like a classic case of TTTS. I'm currently in therapy for it, to calm down my chronically hyperstimulated nervous system. But sectioning one of the muscles in my middle ear (the Tensor Tympani) has now...- Colvis
- Profile post
-
Hearing Loss and Severe Tinnitus — From Loving Life to Suicidal in 2 Months
...energy to do so, and if we move to some sticks, I need to consider the needs of my family, too. So not easy at all. I am really not sure about TTTS. Thumping in the right ear has happened to me maybe three times since the injury, never in the left ear. I vaguely recall I could have had this...- gameover
- Post #416
- Forum: Introduce Yourself
-
Hearing Loss and Severe Tinnitus — From Loving Life to Suicidal in 2 Months
That does sounds like Tensor Tympani Myoclonus Syndrome (TTTS), which is a type of Middle Ear Myoclonus (MEM). It can react to sounds, to movement, touching face, and spontaneously. I experience it to each of those occasionally. I first experienced it once about 18 months ago (in response to...- RunningMan
- Post #413
- Forum: Introduce Yourself
-
Hearing Loss and Severe Tinnitus — From Loving Life to Suicidal in 2 Months
...with he things that you love (with your hobby cars etc.). Don't let this stop you; don't let tinnitus win. I strongly believe that you have TTTS. If so, this should settle down in the next year, and your tinnitus should be less intrusive or bothersome. Protect your ears from excessively loud...- Buddy123
- Post #412
- Forum: Introduce Yourself
-
Hearing Loss and Severe Tinnitus — From Loving Life to Suicidal in 2 Months
...in my right ear. It lasted a couple of minutes and seemed to go away after I changed my position in bed. I do not know what it is? TTTS? I am terribly sad about this, and especially sad when I think about my wife or children. But not quite as anxious or panicked as I used to be in the past...- gameover
- Post #411
- Forum: Introduce Yourself
-
Ear Throbbing to Sounds → Tonic Tensor Tympani Syndrome (TTTS)?
...10 mg doses over time. Zolpidem helps me get back to sleep. Anxiety has no effect on my tinnitus, but it may play a part in triggering the spontaneous TTTS type of MEM. Fortunately, it hasn't been too bad. It happened for a while this morning but stopped in less than an hour of occasional...- RunningMan
- Post #7
- Forum: Introduce Yourself
-
Random Onset of New Kind of Ear Spasms / TTTS — Any Suggestions?
I have the TTTS type of MEM, sometimes to voices, where it will flutter more frequently, and other times spontaneously without sound stimulus, where it might be a single flutter thump every 30 seconds or so, which it's doing right now. I don't think it's continued for more than an hour at any...- RunningMan
- Post #20
- Forum: Support
-
I've had neck pain for 2 years since developing TTTS and it prevented me from exercising for a...
I've had neck pain for 2 years since developing TTTS and it prevented me from exercising for a long time. It's fantastic to be back at gym.- Subjarna
- Profile post
-
Ear Throbbing to Sounds → Tonic Tensor Tympani Syndrome (TTTS)?
I usually leave my bedroom window open and the ambient sounds mask it, or I leave the air conditioner on. It’s been a bit worse these days but I’m managing it well. I don’t let it bother me too much, the TTTS has been bothering me quite a bit more. Wish you all the best!- RacWolley
- Post #6
- Forum: Introduce Yourself
-
D
Random Onset of New Kind of Ear Spasms / TTTS — Any Suggestions?
About my TTTS (the reaction type), it is more or less the same as it was when it began 2 years ago along with my tinnitus. However, it has its good and bad periods where it will decide not to spasm every time with those sounds you described. But as I said above, I pretty much habituated to it... -
Suicidal
...going. It seems worse every day (whether this is really true or just due to anxiety is unknown). I cannot calm myself down no matter what. My TTTS is back (now this one is most definitely due to anxiety). The torture never ends. I don’t see an end in sight. I don’t want it to keep getting... -
Random Onset of New Kind of Ear Spasms / TTTS — Any Suggestions?
I’ve had this. It’s a bit scary, yeah. I first started having TTTS a year ago when my tinnitus also began. Several months ago I had several episodes of both of my ears fluttering like butterfly wings for a full 10 seconds or so. It has happened only 3 times in total, though. I also had an... -
Ear Throbbing to Sounds → Tonic Tensor Tympani Syndrome (TTTS)?
...temporary for you too. Anxiety definitely plays a role. I managed to get my anxiety under control today and I feel like it’s helped? I’ve had TTTS symptoms for over a year I guess, but I don’t remember noticing them too often, hoping it subsides back to that state. Best of luck and I wish...- RacWolley
- Post #4
- Forum: Introduce Yourself
-
Ear Throbbing to Sounds → Tonic Tensor Tympani Syndrome (TTTS)?
...lol. I actually recently responded to a thread describing my own situation regarding my inner ear muscle spasms which I believe may also be TTTS. From what I’ve read online, the condition indeed seems to be an anxiety-based one. My anxiety has been pretty bad these last few months due to...- BobbieJay-1954
- Post #3
- Forum: Introduce Yourself
-
Ear Throbbing to Sounds → Tonic Tensor Tympani Syndrome (TTTS)?
I first experienced a sound stimulated TTTS ear drum fluttering about a year and a half ago in my left ear, and it didn't happen again for well over a year. So, I assumed it was just a one time fluke. Then, I started experiencing it again in my left ear, which was about two to three months ago...- RunningMan
- Post #2
- Forum: Introduce Yourself
-
Ear Throbbing to Sounds → Tonic Tensor Tympani Syndrome (TTTS)?
...my tinnitus went down I did continue to use my headphones albeit at a much lower sound level, never caused a tinnitus spike. I have read about TTTS (Tonic Tensor Tympani Syndrome) and I believe I have it. Prior to my current episode with it I did use my headphones for a bit longer, though...- RacWolley
- Thread
- Replies: 6
- Forum: Introduce Yourself
-
Tinnitus Absolutely Does Get Better — Most People Just Don't Come Back to Tell About It!
I’m so sorry you are suffering. I totally understand. My tinnitus came on during a period of intense work anxiety. I have worked very hard to reduce my stress. Even if it’s not helping my tinnitus, it helps me deal with it better.. -
Tinnitus Absolutely Does Get Better — Most People Just Don't Come Back to Tell About It!
...multiple tone/sound tinnitus. Anyway, as far as the thread and tinnitus absolutely getting better, in over 20 years, my tinnitus has only gotten considerably worse, and in that time, I can add additional hearing loss, ETD spontaneous clicking, TTTS/MEM, hyperacusis, and insomnia to the mix.- RunningMan
- Post #83
- Forum: Support
-
I have a little of that going on, sometimes some spontaneous clicking, not to be confused with...
I have a little of that going on, sometimes some spontaneous clicking, not to be confused with the TTTS flutter/thumps. But it seems like a minor issue for me compared to tinnitus, hyperacusis, and TTTS.- RunningMan
- Profile post comment
-
D
Hearing Loss and Severe Tinnitus — From Loving Life to Suicidal in 2 Months
Alright, thanks for your report! That explains a lot about that Myriam woman... It is apparent that no one is an expert for these conditions. Literally no one on this Earth. I really can't think of ailments that are more untouched by medical science than ear stuff. I think that if you don't...- DimLeb
- Post #403
- Forum: Introduce Yourself
-
Hearing Loss and Severe Tinnitus — From Loving Life to Suicidal in 2 Months
...She is very much a TRT practitioner, who trained under Jastreboff, and as such it's the direction things are taken. She diagnosed me with TTTS. I have no thumping but a continuous loud buzzing which can change in pitch and intensity through sleep. She also said hearing aids would not help me...- DeanD
- Post #399
- Forum: Introduce Yourself
-
D
Hearing Loss and Severe Tinnitus — From Loving Life to Suicidal in 2 Months
...for replying. I understand the others, but I'm not sure how the buzzing oscillating tinnitus noise could be caused by the muscle(s) that cause TTTS. As very correctly a poster here said, those sounds are usually rumbling. Anyway, it sucks whatever it is. Yeah, supposedly there is that...- DimLeb
- Post #398
- Forum: Introduce Yourself
-
Hearing Loss and Severe Tinnitus — From Loving Life to Suicidal in 2 Months
I can see TTTS causing rumbling sounds. I can even create the sounds myself by flexing my tensor tympani muscle, but I really do not see how it would cause high frequency tinnitus.- kingsfan
- Post #396
- Forum: Introduce Yourself
-
D
Random Onset of New Kind of Ear Spasms / TTTS — Any Suggestions?
...setting and the voice being directed towards the ear, or else there is no fluttering. It's really distressing and feels like the ear is gonna burst or something. My guess is that this is TTTS (not Middle Ear Myoclonus). I can plug this very ear to stop that fluttering, not the other one, though. -
Hearing Loss and Severe Tinnitus — From Loving Life to Suicidal in 2 Months
...its ups and downs. My condition was caused by acoustic shock (low flying military jet); the symptoms that I described to her was classic TTTS (buzzing oscillating tinnitus noise , unilateral, mild headaches, fluttering of the ear drum, distorted sounds, feeling like a nerve or muscle...- Buddy123
- Post #395
- Forum: Introduce Yourself
-
@Mo8409 During hyperacusis in recent weeks, I never experienced any reactivity. I've never...
...experienced any reactivity. I've never seemed to experience any change in my tinnitus due to the environmental sounds, masking sounds, etc. My TTTS also doesn't appear to have improved any, which started up not long before the hyperacusis, and I read about an association between those as well.- RunningMan
- Profile post comment
-
Random Onset of New Kind of Ear Spasms / TTTS — Any Suggestions?
...eardrum was still fluttering to the speaking. Then I removed the earplug and put it in my right ear. That stopped by left eardrum from fluttering. I repeated that test in each ear again, and sure enough, putting the earplug in my right ear stopped the sound stimulated TTTS flutter in my left ear.- RunningMan
- Post #16
- Forum: Support
-
Hearing Loss and Severe Tinnitus — From Loving Life to Suicidal in 2 Months
...there to say it is a good life, but it is better. As I did mention, my hyperacusis is notably better. By the way, I can't say I understand TTTS. Nobody diagnosed me with it. What are the signs one has it, or what can be used to exclude it? By the way, I am scheduled to try hearing aids...- gameover
- Post #394
- Forum: Introduce Yourself
-
Mine cycles between single tone squeal, hiss, and even a broken staticy hiss every day or two...
...between single tone squeal, hiss, and even a broken staticy hiss every day or two. it's been doing this for 18 months - can't say anything has changed over time with the tinnitus, just the more recent developments of hyperacusis and TTTS. The piercing squeal is the worst of the tinnitus sounds.- RunningMan
- Profile post comment
