Search results for query: TTTS

...I read your cause of tinnitus as "Acoustic Trauma", but was there a definitive noise incident? I have also read about Myriam Westcott from some TTTS/MEM threads. I happen to have similar symptoms for 2 years since it all began: mild tinnitus with its up and down periods, TTTS reacting to...

...work on this subject for 28 years; Finally, I discovered someone who truly understood my condition and symptoms. She diagnosed my condition as TTTS/Acoustic Shock. She said that my cochlear is not damaged. My tensor tympanic muscle is malfunctioning and reacting to normal sounds. She said...

...connected. The tensor and levatoe veil palatini muscles open the Eustachian tube. I developed Eustachian tube dysfunction along with my TTTS and hyperacusis. Before the acoustic trauma I could control my Eustachian tube and hold it open on command, and then when I talked, it temporarily...

I agree. I've had issues with my Eustachian tubes for years. When I was a kid, I had constant middle ear infections, so much so that I needed to get ear tubes. My ear that got the most frequent infections, my right one, has the middle ear noxacusis in it. So it's really interesting to see who...

...came across a story where the individual developed Patulous Eustachian Tube before developing pain hyperacusis. Arnaud Norena also mentions that TTTS can cause issues with the Eustachian Tube. All of this makes me wonder to what extent this contributes to some of the symptoms we experience...

Yeah it definitely seems like the muscles are all activated/tense - which I think is also causing this slight reduction/dampening of my hearing. Glad you’re getting better! I can certainly relate with the ups and down (physically and emotionally). Going from optimism as you said, to feeling...

...Lots of people have this, it's because the muscles in the ear are pressing on the trigeminal nerve so your whole face/head might respond. TTTS is characterized by the thumping/fluttering but I think what we have is just the same muscles going into a bit of a protective spasm as they...

...all day. I have been trying my best to avoid loud noise and using earplugs/noise cancelling headphones when exposed. I did see a lot about the TTTS but can’t quite determine if that’s what I’ve got as other people seem to have things like fluttering and experience change when exposed to...

...fading away in a short time if I feel any. But it concerns me as these conditions can worsen. In the last couple months, I'm experiencing the TTTS eardrum fluttering, sometimes in response to someone speaking (so it will flutter quite a bit) and sometimes spontaneously without a sound...

I’ve been looking into TTTS. How would you describe the feeling of that? As I’m not really sensitive to loud noise (unless it’s very loud or high pitched, as I’m defensive due to my tinnitus - but not because it causes pain etc.). At the moment, sound doesn’t seem to affect the fullness. If...

I have TTTS too & I believe the fullness may be the tensor tympani stuck in tension mode. I've noticed it worsens with loud noise, & very, very slowly gets better with a quiet environment. Maybe some extra ear protection would help? Cheers, Maddy

...as bad as it was in the beginning, but it never went away, no. I suspect some type of chronic inflammation is at play, maybe in part due to TTTS. Thank you for the hope though. I'm 19 months in and it hasn't really improved the way I was hoping yet. I am getting better at managing it though.

Sorry, I was referring to many mild case newcomers. After all this is what the thread was kind of about. I completely understand your situation and maybe I’ll soon be there too.

...if it's because of the antihistamines. It very well could also be because I've had multiple loud noise exposures this week and I've noticed my TTTS is a bit worse. Just in case they are causing this spike, are there any antihistamines that aren't ototoxic? Do we know the specific dosage of...

And don't forget TTTS, noxacusis, reactive tinnitus, insomnia, and depression. After over 20 years of tinnitus, I've found it's just gotten worse over the last 18 months, even within the last month! The anxiety doesn't get better as things worsen - they're all linked. The sympathetic nervous...

Do you still experience ttts?

Do you still experience ttts?

Yeah, that clicking sounds the same, although when it happens with me randomly, it might do it a few times quickly, but then that's it for days or longer, so that one doesn't really bother me either since it is quite brief and occurs so seldomly. Even the sound stimulated fluttering/thumps have...

...to the cracks my Eustachian tubes do when I swallow. So yeah... Thinking about that, I got an impressively wide range of clicks and thumps lol. TTTS reacting to short sounds in relative quietness in both ears, spontaneous thumps/MEM some days of the week in right ear, cracks when I shallow...

...voluntarily reproduce in each ear. I believe in my case, it is Eustachian tube and peritubal muscles. These other sounds that I think are MEM/TTTS are more fluttery/thumpy in nature, and I can't voluntarily reproduce. By the perceived sound of them, and sometimes responding to external...

...me, between the reacting spasms and the spontaneous, are almost the same, but the spontaneous feel kind of deeper, while the reacting (normal TTTS) is more "clickier" and a bit more outside. Each ear has a bit of variation as well. All in all, it sucks big time. I've read somewhere that ear...

Some people have success with muscle relaxers for TTTS/MEM. From what I've seen, side effects of surgery are the muscles reattaching (so not successful), new/worse tinnitus and new/worse hyperacusis or sound sensitivity. It seems to me like a true last resort.

TTTS is a type of MEM. But you are correct there is another muscle (stapedius muscle) that can be involved that is not TTTS. But the sensation I get with no sound stimulus is identical to the sensation I get from sound stimulus. The flutter in response to some sounds has been rare and was in...

hi, i saw ur comments from 2017 on ttts. how is it now and what was the cause? what were ur intitial symptoms and did u have hyperacusis?

...which scared the f*ck outta me. I agree that it's more like MEM at this point. Note that I also have the type that is reacting to those sounds (TTTS) in both ears since almost the beginning of my tinnitus, and it also seems to be a bit worse these last days - thumping more easily and to more...

I believe ear fluttering in the absence of sound is more MEM than TTTS. I think they are related but may involve different muscles.

After weeks, I'm still experiencing this TTTS ear fluttering at some point most days without a sound stimulus that initially would cause it when I first experienced it. It has even done it once when waking in the middle of the night (just white noise type sounds playing) and sometimes after I...

My experience of pain hyperacusis is primarily a burning sensation in my ear. Sometimes I will also have the sensation of a needle or something sharper pricking my ear (this has on occasion been a sensation more intense than pricking as well). My face has also had an altered sensation that I...

I don't really have the mental or emotional energy to re-type my entire story, so I'll refer you to my introductory post HERE which describes how my symptoms began and developed. Anyway, for the past couple weeks, I've been noticing that the same symptoms I have in my right ear (fullness...

Ahh, I'm in the opposite situation. First of all, I didn't have any trauma or infection, I believe my tinnitus and TTTS is idiopathic/inherited most probably. I've been having the usual TTTS reacting to short, clicky sounds, kitchenware, some vowels, scratching my face, ending a sentence etc in...

...was in particular reactive tinnitus (reacting to anything) and loudness hyperacusis. In addition to this I had long spells with ear fullness, TTTS, and nerve pain in my face. From LDN Research Trust: Low Dose Naltrexone binds to the endorphin receptors for about 1 – 1/2 hours, and the...

...system in the current models of pain hyperacusis. When you say you still experience increased hyperacusis, is that loudness hyperacusis? Or does your pain hyperacusis activate more easily after the med wears off? Also, did/do you have TTTS, & how did/does the med affect this? Thanks! Maddy

@Mymlan, not sure if you're still around, but I forgot to ask, did you ever experience TTTS (Tonic Tensor Tympani Syndrome), & if so, what was your experience with that like? Cheers, Maddy

...better, sometimes worse. I've had a middle ear inspection but they didn't see anything out of the ordinary. I'm pretty sure that I have TTTS, but no ENT has diagnosed me with it yet. And I've seen about ten ENTs now. After reading your stories, and after having spoken to yet another ENT last...

Why do you consider this @haha ear go eeee? Is this in relation to TTTS? For most people TTTS is temporary, though it may last for quite some time before it dampens or disappears. TTTS is also commonly aggravated by anxiety and fear of noise/worsening.

Well, noone knows for certain, but yeah, that is in the Norena model - the possible spread to the inner ear. I have TTTS, & my symptoms developed after acoustic shock, so middle ear noxacusis makes a lot of sense in my case. However, I believe I may have pain stemming from inner ear receptors...

Ugh, so frustrating that the ENT couldn't just help you out! Are you thinking of trying the steroid? Honestly, after going back just now & re-reading parts of the Norena article, I might be tempted to! Though I know there's a whole host of negative side effects associated with it. I too went...

I have not yet. The ENT gave me Methylprednisolone, which I have yet to take. I have heard that one should see a neurotologist for TTTS and they are more likely to prescribe the muscle relaxers. I definitely want to try them still. I reread the Norena paper and from what I understood, the...

Thanks so much for sharing @Mymlan! I wonder, did you also experience burning pain in your ears & TTTS symptoms (e.g., ear fullness, sensation of fluttering in the ear(s) )? And how were you with artificial audio - was it a problem for you or were you okay with it? Congrats again on your...

Curious to know whether you have started a muscle relaxant yet, & if so, how it's going? I've been thinking of trialing one myself. On another note, I wonder whether Westcott's belief that TTTS does no damage to the ears might not be a bit outdated considering the Norena model?

...sounds/situations. The most common ones are the fan of my PC, the TV even at low volumes and playing white/pink/brown/any color of noise. · TTTS: This hasn't really been an issue, except for two seperate afternoons after HBOT and sometimes one or two ticks very incidentally. Possible causes...

I have had just a few instances of TTTS flutter in my left ear over the last 18 months, when my tinnitus intensity increased significantly, and the flutter was always in response to a speaking voice (real or on computer). When audio was paused, TTTS stopped. Last Monday, I experienced this...