Search results for query: Myoclonus

Hey I have the same middle ear myoclonus in both ears but mostly in my right ear. I've had it for about six months, is yours 24/7? I've tried muscle relaxers but they don't help. As far as I know they do need to cut the eardrum in order to access the muscles and like you this scares me too...

Just a little update. Doctor has prescribed muscle relaxers, which greatly helped reduce my issues. I've been diagnosed with inner ear myoclonus. The doctor is a little concerned that I may possibly have MS, so I've been scheduled for an MRI. I stopped taking the muscle relaxers (I did not...

...window reinforcement... instead of plugging. I'll still like to know why stapedial resection was carried out because I read so much about ''myoclonus'' resections from a decade ago I'm wondering if Silverstein is closing the missing link between ''hyperacusis'' and ''myoclonus'' with this...

Two acoustic traumas this year, first from dentist drill, next I went through a door's glass (a long story). My tinnitus is 2-3x worse than before and has stayed that way for months. I want to die, why should I live anymore?

Sometime when I speak I feel a fly in my ear. I don't know if I have Tensor Tympani Syndrome, middle ear myoclonus or both, how I know? Is better feel this all my life or is better cut?

Yes that does make sense. I want to ask you some questions about this. I'll message you directly.

Are there any other accounts about these procedures for people with hyperacusis? Any type of surgery worries me but catastrophic hyperacusis has tortured me for almost half a decade now. That said, I’ve also recovered a ton, so I’m not sure if it’s justified unless I have another severe setback...

I wonder if you have stapedial myoclonus like me? The pulsatile sounds seem like they might be that. Do yours synchronize with your heartbeat or are they independent of that? If they go along with your heart beat, same rate and close in proximity, then that is something else related to blood...

Is your pulsatile tinnitus constant and match your heartbeat? I've also noticed as of late, I'm hearing my heartbeat more in my opposite good ear and I've been hearing a weird whoosing type flowing sound that seems to occur when I move my head to quickly in bed, or get up. I'm thinking it's...

I'm going through Stapedial Myoclonus/Dysacusis in my right ear at the moment. A Weber Test revealed that my right ear is having conductive hearing loss. Attached is my hearing test results. My regular hearing on the right also seems to be "not so good". I recently found out that my right ear...

Do you think Stapedial Myoclonus/Dysacusis can be caused by this? Especially when one seems to have neck/jaw issues?

...the tensor tympani and stapedius. The only thing he told me was the effectiveness of the surgery being only a majority of the time because sometimes a third muscle is responsible sometimes for the myoclonus. I will be getting the surgery when I get the money or insurance that will cover it.

...diagnosed me with Myo some seven or so years ago. It took me many years to find an ENT specialist (neuro-otologist) in my area w/ myoclonus middle ear experience. Both my ENT and neuro confirmed seeing my ear drums spasm during examination. I too have followed the threads of Lib, JoeM...

...on the H network and found these two threads, but japongus is much more informed than me about this. http://www.chat-hyperacusis.net/post/failed-surgeries-1076268?highlight=surgery http://www.chat-hyperacusis.net/post/relief-from-tensor-tympani-myoclonus-after-surgery-2417302?highlight=surgery

@Wolfears I know normally the ears can kind of protect themself from shouting by tightening the ear muscles etc but I have severe ear myoclonus so I'm afraid my ear muscles don't do their job.. they just spasm randomly and cause hyperacusis... And patulous eustachian tubes make the sound...

...day because my spike is so unbearably and painfully loud my ears are on fire and my hyperacusis doesn't let me even mask it.. got severe myoclonus probably because of the stress... I know oxidative stress etc is very bad for the ears I wonder how much (irreversible?) damage this crying and...

It's probably middle ear myoclonus. I have the same vibration feeling in my right ear.

...naming a cluster of symptoms as a specific disease seems to often hinder its proper study. I did see a paper implicating Middle Ear Myoclonus in Menierre's particular cluster of symptoms. The same paper also described visible inflammatory changes of the inner ear tissue when the tympanic...

Thank you. I’m taking a legal case here and not only that he dismissed my problem but he obviously has his wires crossed! His opinion counts in front of court and obviously he has provided faulse information. I think I have every right to challenge his decision.

Which would seem to illustrate escalation of an untreated primary disease process. Is this not our fundamental issue?

It is. Its also a presentation of myoclonus in that its a spasming muscle in action. Myo=muscle, clonus=spasm (rhythmic contraction). I've had symptoms consistent with Tensor tympani over-activity but sound as a trigger for it tends not to be there. That's one reason I wonder if its actually...

...facebook Hyperacusis sufferers group Ben Levy for now after a few weeks postop doesn't seem to be doing well but its too early to tell. I'm wondering if he has myoclonus or something, and I don't know how to tackle the situation. And again, everyone else with pure hyperacusis is happy with...

Medical doctors are very little help for some reason... I don't quite understand why yet.

...become a new best friend of many. Billie you have given me pause and hope about my life. My T may or may not be a result of my middle ear myoclonus. I will have surgery jn two weeks to cut the muscles/tendons. The T may get worse but having your powerful message and p oisitive outlook, I...

...about exactly what I've been experiencing off and on over the past month or so. Lately though as it has turned into a more broad-movement myoclonus though, it's more that the convulsions in my ear that sync-up with the rhythm of motors and things(more percussive instead of tonal now). Like...

When I drink alcohol, depending on how much I drink, the distortions become less noticeable. Like if I get tipsy for example, then music sounds better and the reactive tinnitus becomes less noticeable.

It was under my impression that if the ear drum is tensed during the tympanometry measurements and reacts to sound something would show up. Decreased/increased compliance perhaps?

My dad had ablation surgery three times for his arrhythmia (it's a family issue, his mother had it as well). First two times the arrhythmia came back eventually, the third time he switched doctors and it worked (the new one was one of the top doctors for ablation surgery in the country). He...

...many days when this is prevalent, particularly short sharp, high sounds like a light switch or even the press of computer keys. Some papers I've seen associate it with stapedial myoclonus, others just call it part of hyperacusis (which itself is a symptom, not a diagnosis as many seem to think).

...surgeries as implanting the cochlear implants etc., but it isn't able to solve the problems with seemingly "silly" thing as middle ear myoclonus (At least in my case the doctors weren't able to help me, and I know several similar stories of the people from my country, they have the same bad...

...The muscle tissue can absorb from outside pretty well. The eardrum does need to be moved to allow access, simply put its the only viable way in. Doing so allows the muscles to be seen, and the myoclonus to be identified. I think the lifting of the drum is the least of the issues involved.

...that. Perhaps since it is a CNS depressant it suppresses the problem some. I have tinnitus but its not nearly as bad as yours, but I never noticed alcohol helping it any. Just one week ago another problem started for me, what I think is middle ear myoclonus. I wonder if alcohol would affect that.

...If I didn't use one of my remedies it would probably stay 24/7. I try to nip it in the bud as soon as I get it. I never heard of stapedial myoclonus. I goggled it and it sounds like that is what I might have. What kind of doctor gave you that diagnosis? I saw 3 ENT's and was not given a...

...near my nose and ears. I have had this for 1.5 years. I have been to a lot of ENT, no one could really heal me. I'm not sure this is Myoclonus (As some people cut all the tendons and still hear this crunchy noise). Even healthy people have stapedius contraction when they are about to talk...

I knew I shouldn't have gone, my doctor said she wouldn't treat my palatal myoclonus without going to an MRI. So I had to go, but I knew in my gut it would be a disaster.

What is the thumping like? For me, with (suspected) Stapedial Myoclonus, my right ear reacts to some sounds with some sort of high frequency distortion. Ever since this started, I've noticed that my right ear also doesn't hear some high frequency sounds as well as my left.

As you are describing it, it could be anything. It could eustachian tube pressure, or some middle ear muscle playing up, plus some inflammation. I bet no doctor will be able to tell. Actually, the way middle ear muscles work is not fully understood.

...the muscles that link to the tendons which spasm and pull on your ossicles that cause the ear drum fluttering. Botox can help with palatal myoclonus. I've had my tendons cut in both ears, and in fact, the left ear's TT regrew twice. But now I believe I have some form of palatal or e-tube...

Out of curiosity, has your eustachian tube been evaluated?

...muscles ablated, which did not stop the clicking and did result in a year of food tasting funny. Have tried Botox for possible palatial myoclonus-without success. Recently had a temporal bone CT scan which showed no evidence of superior semicircular canal dehiscence. I’m considering...

...I can’t help but find it curious. It almost feels like a game to see if I can make it slow down. I’ve read posts about middle ear myoclonus (MEM) and tonic tensor tympani syndrome (TTTS), and I know they can occur after acoustic shock. Could it be one of those? I did experience a physical...

...really is hell. I was actually on Clonazepam recently for a month per the neurologist but am weaning off now because it didn't work for my myoclonus (really sorry to hear it had such a negative effect on you!). The L-Theanine stopped being effective shortly after my post, and then when I ran...

...and then I hope to worsen the already pathetic questions on the hyperacusis questionnaire, the ones that don't differentiate between myoclonus and hyperacusis, and in all this time couldn't even hypothesise about the involvement of middle ear muscles or a wiggy stapes or compressed nerves and...

I'm glad my tinnitus isn't loud enough to ruin my life. I can totally understand how it feels though. My myoclonus was really bad a few weeks ago. That and the tinnitus combined was horrible. Then my heart got stuck in ventricular tachycardia and I had to get defibrillated. So many problems all...

...an otologist not an ENT. Option#2: if the sound is like a typewriter in you ear? Then it's tensor tympani muscle spasm aka tensor tympani myoclonus. I had this for months when I was super stressed about my tinnitus. Thinking about your ears causes muscles spasms which sound like a thumping...

Hi, I am new to this forum and would like to share something I've found that temporarily relieves the noise/sensation. Firstly, I have myoclonus in my right ear only. 24/7. I have had days of relief then sudden onset. I am starting a diary to analyse why. BUT I do find looking straight sharply...

...When I get up they are gone. I hear them 1-2 times during the day when I'm awake. Why do I hear them always upon waking up? Is this Pulsating tinnitus or myoclonus ? I really hope it goes away and doesn't get worse. I've been monitoring my blood pressure and it's never above 130/90. Please help

My thoughts and prayers are with you sonicboom2000. If it is myoclonus you have it can go away on its own.If not botox injections can help for a few months and people have had these muscles cut as a last resort. This can lead to hearing your voice a bit louder or being conscious of hearing...

...with @volsung37. My pulsatile tinnitus DID NOT start that way, and has not been like that at all. So, he may be correct that yours is the myoclonus. That seems more likely, and it may go away on its own, since it is intermittent. All my sympathies go out to you, and I totally understand...

@japongus what are your symptoms? I have myoclonus however it was diagnosed based on symptoms because the doctor cant see the muscles unless they cut your eardrum. My spasms are a loud thump that usually comes w every yawn, burp, hiccup or sometimes it can happen by itself. I hear the spasms...

Yes, I had a good talk with the doctor. He confirmed the stapedial myoclonus diagnosis based on my symptoms. He did tell me that the problem usually goes away after some time, so I will just have to deal with it. Not really any way to treat it with drugs. He does the surgery himself if it comes...

...impact? If external sounds bothered you, what kind of sounds, what sensation did they create in your ear? Did the H cause referred pain elsewhere in the body? Did you have pain after sound or only with sound? If no sound sensitivity, did the myoclonus cause pain elsewhere or delayed pain?

...is bad I can press hard on the tragus of my outer ear, and everything inside clicks, snaps and crunches. When its not there this doesn't happen. The same thing just doesn't occur with my good ear no matter how hard I press. I suspect myoclonus affecting middle-ear ventilation somehow.

I don't have a diagnosis, just advice: Avoid whatever causes myoclonus-like symptoms; you don't want that stuff getting inflamed and hanging around. Talk on speakerphone. If it still happens, silence your phone and don't take calls; text-message your friends instead. Don't mess around with...

...just settles back to baseline for one to three days (four is the most) then it recurs. I can identify no cause and effect that explains it, but I lean toward a version of middle ear myoclonus as a likely culprit. When it happens my ear crackles like someone rolling on bubble wrap when I pop it.

...doesn't sound central. When that sound reaches extreme my whole HF sound spectrum changes and becomes intolerable, and then it lets up for a day or two. Is this stapedial myoclonus? Why does it come and go? The best I've had as far as medical explanations go is "congratulations its a boy".

...saw this, it went to my Spam file. I just saw a new doctor, this one affiliated with Stanford Medical Center, and he suspects middle ear myoclonus as well. This is good news for me, since finding a Botox guy is not going well. I go back for a hearing test and then wait till my insurance...

Oh I've emailed him but time has passed and I doubt he'll respond. It's been exactly one year since I was sharing myoclonus info and books with PaulBe, I've been that indecisive and it's come to this. It's like frigging Dante's inferno. My biggest fear right now is that another otoneurotologist...

...if the muscles are cut? How did they rule out that yours wasn't tensor tympani syndrome? What is the difference between that and middle ear myoclonus? Also have you heard of anybody having the condition resolve itself? Sadly, I cannot find any success stories. I'm so sorry if I'm bothering...

It's exactly like this. The thing is I also got a medicine induced palatal myoclonus so now it clicks anyway... But prior to that, I felt exactly what you describe.