Acoustic CR® Neuromodulation: Do It Yourself Guide

Discussion in 'Treatments' started by jibs, Apr 24, 2013.

    1. IvanRus

      IvanRus Member

      Tinnitus Since:
      04/2017
      Cause of Tinnitus:
      ototoxicity
      I bring to your attention the ACRN therapy model On-line.

      Select the approximate frequency of your tinnitus using the frequency bar and the slider and press the "ACRN" button-you will start playing 4 tones-2 above and 2 below the frequency of your noise.

      You can just try to estimate the frequency of your tinnitus.

      I have a fairly high frequency, which frustrates me in the sense that the higher the frequency of tinnitus - the more difficult it is to cover (compensate) with the aid of a hearing aid - the only reliable means for today. The maximum coverage for today is 12 kHz. Need more!

      I wrote in ESIT, they have the item "personalization of hearing aids for tinnitus", at least devices with coverage up to 14 kHz are needed.

      The site is Russian-language, but you can translate it with the help of a google translator, also everything is intuitive.

      Try and write down the approximate frequency of your tinnitus here, and whether this method helped you a little!
      Link:
      http://tinni.club/acrn
       
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    2. fgabriel
      Digging it

      fgabriel Member

      Tinnitus Since:
      08/2013
      Cause of Tinnitus:
      Emotional
      OMG, I played for 20 minutes, took off the phone and my tinnitus was masked. I think it will return in minutes, but WHAT THE FFFF???!?!?!??!?!?!??!?!?

      I suffer from this for about 5 years.

      F I V E
      Y E A R S
      OMG IM AMAZED.

      Dont know if it is some sort of a cure, but this was crazy.
       
      • Like Like x 1
    3. threefirefour
      Rebellious

      threefirefour Member Benefactor Hall of Fame

      Location:
      California
      Tinnitus Since:
      5/15/16
      Cause of Tinnitus:
      140dB B R U H moment
      If you do it for a longer time, the tinnitus will reduce most likely (although probably not permanently).
       
    4. fgabriel
      Digging it

      fgabriel Member

      Tinnitus Since:
      08/2013
      Cause of Tinnitus:
      Emotional
      Dude, I LOVE YOU!
      Thanks for showing me neuromodulation!!!
       
      • Agree Agree x 1
    5. Pleasure_Paulie

      Pleasure_Paulie Member

      Location:
      Australia
      Tinnitus Since:
      06/2016
      Cause of Tinnitus:
      Noise or maybe... unicorns!
      If you know sound therapy works for you. You should look at listening to it on a regular basis for hours each day and see if you get any benefits in a few months time :)
       
      • Agree Agree x 1
    6. threefirefour
      Rebellious

      threefirefour Member Benefactor Hall of Fame

      Location:
      California
      Tinnitus Since:
      5/15/16
      Cause of Tinnitus:
      140dB B R U H moment
      I've been doing it for a month and a half and this week hasn't been record quiet for me.
       
      • Like Like x 1
    7. Pleasure_Paulie

      Pleasure_Paulie Member

      Location:
      Australia
      Tinnitus Since:
      06/2016
      Cause of Tinnitus:
      Noise or maybe... unicorns!
      ACRN or another?
       
      • Good Question Good Question x 1
    8. threefirefour
      Rebellious

      threefirefour Member Benefactor Hall of Fame

      Location:
      California
      Tinnitus Since:
      5/15/16
      Cause of Tinnitus:
      140dB B R U H moment
      ACRN. My tinnitus is 25% quieter and less reactive.
       
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    9. Pleasure_Paulie

      Pleasure_Paulie Member

      Location:
      Australia
      Tinnitus Since:
      06/2016
      Cause of Tinnitus:
      Noise or maybe... unicorns!
      I'm really really glad to hear its working for you! Are you listening to headphones or just via your computer?
       
      • Agree Agree x 1
    10. threefirefour
      Rebellious

      threefirefour Member Benefactor Hall of Fame

      Location:
      California
      Tinnitus Since:
      5/15/16
      Cause of Tinnitus:
      140dB B R U H moment
      I'm using headphones, but I sometimes use speakers.

      I do headphones for 30 minutes daily, or speaker for an hour.
       
      • Like Like x 1
    11. jay777

      jay777 Member

      Tinnitus Since:
      10/2017
      Cause of Tinnitus:
      benzo/ headphones
      • Helpful Helpful x 1
    12. jay777

      jay777 Member

      Tinnitus Since:
      10/2017
      Cause of Tinnitus:
      benzo/ headphones
      @threefirefour hi will the effect last 24hours?
       
      • Good Question Good Question x 1
    13. threefirefour
      Rebellious

      threefirefour Member Benefactor Hall of Fame

      Location:
      California
      Tinnitus Since:
      5/15/16
      Cause of Tinnitus:
      140dB B R U H moment
      Does for me usually, but it takes a while to get to that point.
       
      • Helpful Helpful x 1
    14. Hazel
      Dreaming

      Hazel Director Staff Podcast Patron Benefactor Hall of Fame Advocate

      Location:
      the Netherlands
      Tinnitus Since:
      10/2017
      Cause of Tinnitus:
      one-sided hearing loss (of unknown origin)
      @threefirefour , please find below the analysis you requested wrt ACRN and treatment duration, based on the 2016 survey results. N= 122 so not very robust in terms of sample size. Also, I'm somehow suspicious of the duration category called "currently trying this treatment" since it doesn't seem mutually exclusive with the other duration categories; potentially a survey design flaw. It could also be that people just tend to be really enthusiastic when they've just started a treatment, and overestimate its effectiveness at that point in time.

      In any case, if there's any valuable insight to be gleaned here, it's probably that there seems to be an effectiveness peak at 2-4 months of treatment duration.


      upload_2018-4-9_16-19-56.png
       
      • Informative Informative x 1
    15. threefirefour
      Rebellious

      threefirefour Member Benefactor Hall of Fame

      Location:
      California
      Tinnitus Since:
      5/15/16
      Cause of Tinnitus:
      140dB B R U H moment
      N=122 is a hell lot better than most tinnitus studies. I've studied stats. It's not great but it's far from bad.

      Anyways that graph makes perfect sense. If it were inneffective, why does "big improvement" randomly improve 6+ months? And why does "small improvement" peak in 2-4 months? This is what desynchra said would happen, and that's why people are excited. Reason is because if they do it all the time, then the improvement becomes the norm. What I think would be worthwhile is seeing the improvements during a washout period. Anyways I'm in class so I'll give you some other statistics later.
       
    16. Hazel
      Dreaming

      Hazel Director Staff Podcast Patron Benefactor Hall of Fame Advocate

      Location:
      the Netherlands
      Tinnitus Since:
      10/2017
      Cause of Tinnitus:
      one-sided hearing loss (of unknown origin)
      I'm not saying it's ineffective, but not worth cheering about either imo. Keep in mind that out of the group who've tried ACRN for more than 6 months, only 24% saw any improvement at all, and that improvement could have occurred at any time over the 6+ month period, not necessarily at the end --- It's not a longitudinal study (that would of course be ideal to track people over time, and would also allow for studying washout effects as you propose.) Come to think of it, perhaps representing the data this way is in fact misleading, since it seems to suggest a longitudinal aspect, what do you think?
       
      • Informative Informative x 2
    17. threefirefour
      Rebellious

      threefirefour Member Benefactor Hall of Fame

      Location:
      California
      Tinnitus Since:
      5/15/16
      Cause of Tinnitus:
      140dB B R U H moment
      Maybe you should post the paper of the study that graph is from. Context would be helpful in dissecting the results.
       
    18. Hazel
      Dreaming

      Hazel Director Staff Podcast Patron Benefactor Hall of Fame Advocate

      Location:
      the Netherlands
      Tinnitus Since:
      10/2017
      Cause of Tinnitus:
      one-sided hearing loss (of unknown origin)
      As I explained above, this graph is based on the TT 2016 survey results. I created it myself based on the raw survey data.
       
      • Informative Informative x 1
    19. threefirefour
      Rebellious

      threefirefour Member Benefactor Hall of Fame

      Location:
      California
      Tinnitus Since:
      5/15/16
      Cause of Tinnitus:
      140dB B R U H moment
      I agree there. It would be helpful to observe a washout period.

      It would also be good to know if there was other changes. Like if their frequency changed, and treatment with the change. Or if the sound changed, or how long they underwent the treatment. 4 hours a day is optimal I get that I'm a unique case.
       
    20. threefirefour
      Rebellious

      threefirefour Member Benefactor Hall of Fame

      Location:
      California
      Tinnitus Since:
      5/15/16
      Cause of Tinnitus:
      140dB B R U H moment
      I didn't see that explained anywhere but you're right. Thanks for compiling the data btw. Extremely helpful.

      Since there's no original paper context, I don't know how to digest the data. Not saying it's unhelpful, just I don't know how to process the data into a useful conclusion.
       
    21. Hazel
      Dreaming

      Hazel Director Staff Podcast Patron Benefactor Hall of Fame Advocate

      Location:
      the Netherlands
      Tinnitus Since:
      10/2017
      Cause of Tinnitus:
      one-sided hearing loss (of unknown origin)
      There's a huge amount of effort required to gather such data. There will be future TT surveys (probably) that may capture some of this, and gathering longitudinal data is an objective, but also a gargantuan effort to undertake with limited resources.

      Feel free to keep the suggestions coming...
       
      • Agree Agree x 1
    22. threefirefour
      Rebellious

      threefirefour Member Benefactor Hall of Fame

      Location:
      California
      Tinnitus Since:
      5/15/16
      Cause of Tinnitus:
      140dB B R U H moment
      The TT survey got 5k+ responses. There's very expensive survey sources that are much more expensive and less people. The fact you guys managed to do that is in itself, very impressive.

      The best way to gather meaningful data on ACRN, would be to set up a random group of TT people to undergo the treatment, and give updates, current and longitudinal. Have the experiment for 6 months and gather data from the patients for a year to get longitudinal data. It would be great but very difficult. At least for now we have some smaller but more organized scientific papers on the subject.
       
      • Like Like x 1
    23. Hazel
      Dreaming

      Hazel Director Staff Podcast Patron Benefactor Hall of Fame Advocate

      Location:
      the Netherlands
      Tinnitus Since:
      10/2017
      Cause of Tinnitus:
      one-sided hearing loss (of unknown origin)
      And are you going to organize/coordinate this? I'm not being sarcastic here, nor trying to put down valuable ideas, it's just a lot more work than we can currently manage.
       
      • Good Question Good Question x 1
    24. threefirefour
      Rebellious

      threefirefour Member Benefactor Hall of Fame

      Location:
      California
      Tinnitus Since:
      5/15/16
      Cause of Tinnitus:
      140dB B R U H moment
      I'm not. You asked me to give more suggestions. I just said what the best way to get data on ACRN would be. I'm sure it is. I didn't say the most practical way, just the best way.
       
      • Like Like x 1
    25. Pleasure_Paulie

      Pleasure_Paulie Member

      Location:
      Australia
      Tinnitus Since:
      06/2016
      Cause of Tinnitus:
      Noise or maybe... unicorns!
      I don't know if sound therapies need to be proven do they? They are the only accepted treatment by the medical community and there is a huge amount of clinical trials on them.

      They are pretty much all trying to achieve the same thing and train your brain to not focus on the Tinnitus and break the habit of listening to your tinnitus. The more you listen to it, the louder it gets. Of course compliance is key which is potentially why TRT is so common as you wear masking devices behind the ear all the time.
       
      • Good Question Good Question x 1
    26. threefirefour
      Rebellious

      threefirefour Member Benefactor Hall of Fame

      Location:
      California
      Tinnitus Since:
      5/15/16
      Cause of Tinnitus:
      140dB B R U H moment
      Well they do to see if they're effective. All treatments need to be proven.

      In response to this thread, ACRN is different. ACRN is actually supposed to reduce tinnitus volume, and the current scientific evidence (although limited) suggests that it does. If it doesn't and just does the same crap that sound therapy does (which there's way too many and it's mostly useless IMO) Then it's useless and not even worth consideration. That's why we need to do more studies on it to see if it does what it's supposed to.
       
    27. Pleasure_Paulie

      Pleasure_Paulie Member

      Location:
      Australia
      Tinnitus Since:
      06/2016
      Cause of Tinnitus:
      Noise or maybe... unicorns!
      There is a few variations to how ACRN is implemented by other companies. Neuromonics achieves the same thing using classical music around your tinnitus frequency, Otoharmonics does it in your sleep. Notch therapy is slightly different still, but perhaps worth a look into.

      But yes, it is different to simple masking.
       
      • Agree Agree x 1
    28. threefirefour
      Rebellious

      threefirefour Member Benefactor Hall of Fame

      Location:
      California
      Tinnitus Since:
      5/15/16
      Cause of Tinnitus:
      140dB B R U H moment
      I haven't looked too much into notch but I'll have to do more research on it. From my anecdotal research it doesn't seem as effective as ACRN but I haven't done the scientific research yet.
       
      • Genius Genius x 1
    29. Pleasure_Paulie

      Pleasure_Paulie Member

      Location:
      Australia
      Tinnitus Since:
      06/2016
      Cause of Tinnitus:
      Noise or maybe... unicorns!
      Hey if ACRN is working for you, stick at it! Is your tinnitus a white noise or a ring? I've always had trouble finding my exact Frequency using this website as I have a white noise sound.
       
      • Good Question Good Question x 1
    30. threefirefour
      Rebellious

      threefirefour Member Benefactor Hall of Fame

      Location:
      California
      Tinnitus Since:
      5/15/16
      Cause of Tinnitus:
      140dB B R U H moment
      It's a hissing. My exact frequency is 5573 (process of elimination) and it took me days to find it. I picked a random frequency using a dog whistle app, and decided if that was higher or lower than my hissing. I used this over the process of days to narrow it down.
       
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