Diagnosed with Meniere's Disease Three Months After Tinnitus: Need Help!

Discussion in 'Introduce Yourself' started by robmrob51, Jul 3, 2020.

    1. robmrob51

      robmrob51 Member

      Tinnitus Since:
      March 2020
      Cause of Tinnitus:
      Menierre’s Disease
      I was diagnosed with Meniere’s recently after three months of tinnitus, full feeling in my right ear that is very uncomfortable! I have not had vertigo but have 50% hearing loss in my affected ear.

      This came out of the blue and it is so distressing. It never stops and I long for silence. It wakes me up at night and I cannot go back to sleep. I have always been a happy optimistic person and this has hit me so hard.

      Does it ever get easier? Do you ever get used to it? Please give me some ideas to cope. Thank you.
       
      • Hug Hug x 2
    2. lymebite
      Vegged out

      lymebite Member Podcast Patron Benefactor

      Location:
      United States
      Tinnitus Since:
      2013
      Cause of Tinnitus:
      Unknown
      Check out the John of Ohio regimen for Meniere's Disease. It's pretty inexpensive, all can be ordered through the mail without a prescription, and many people report great results.

      http://www.zoominternet.net/~kcshop/JOH.PDF
       
      • Like Like x 1
    3. AUTHOR
      AUTHOR
      robmrob51

      robmrob51 Member

      Tinnitus Since:
      March 2020
      Cause of Tinnitus:
      Menierre’s Disease
      Thank you so much! I will read it.
       
    4. GregCA
      Jaded

      GregCA Member Benefactor Hall of Fame

      Tinnitus Since:
      03/2016
      Cause of Tinnitus:
      Otosclerosis
      I do wonder how your doctor came to a diagnosis of Meniere's if you don't have any vestibular symptoms.
      What kind of tests have you undergone and what were the results? (if you feel comfortable, you can post some results here and redact any personal info out)
       
    5. AUTHOR
      AUTHOR
      robmrob51

      robmrob51 Member

      Tinnitus Since:
      March 2020
      Cause of Tinnitus:
      Menierre’s Disease
      He based it on my one sided hearing loss of 50%, audiology test, fullness in my ear like a great deal of fluid, and tinnitus. I am 69 years old and this came out of nowhere three months ago. My ears was examined with no visible fluid.
      Does that not seem correct?
       
    6. GregCA
      Jaded

      GregCA Member Benefactor Hall of Fame

      Tinnitus Since:
      03/2016
      Cause of Tinnitus:
      Otosclerosis
      I'm not a doctor, so I won't give medical advice. Instead I'll give you an informative page to read about Meniere's:
      http://www.earcentergreensboro.com/medical-education/menieres_disease.php

      A notable excerpt:
      The disease is characterized by sudden, often unpredictable, spells of rotational dizziness called "vertigo" that is usually the most bothersome symptom along with hearing loss. Episodes of true vertigo classically last from 20 minutes to 24 hours, occur unpredictably, and are usually accompanied by nausea, vomiting, intense sweating, inability to walk, and general incapacitation.

      Since you explicitly said you didn't have vertigo, I got curious. Perhaps it wouldn't hurt to get a second opinion.

      What has the doctor recommended for you?
       
    7. AUTHOR
      AUTHOR
      robmrob51

      robmrob51 Member

      Tinnitus Since:
      March 2020
      Cause of Tinnitus:
      Menierre’s Disease
      Thank you!
       
    8. AUTHOR
      AUTHOR
      robmrob51

      robmrob51 Member

      Tinnitus Since:
      March 2020
      Cause of Tinnitus:
      Menierre’s Disease
      My doctor has me on a water pill. That’s all, at the moment. I go back and see him on the 17th. I’ll have another hearing test.
      This is all very frustrating. thank you for your response.
       
    9. LilSass
      Pensive

      LilSass Member

      Location:
      Ontario, Canada
      Tinnitus Since:
      November 2019
      Cause of Tinnitus:
      Likely ototoxic medication
      Upper cervical chiro can help with Menieres
       
    10. AUTHOR
      AUTHOR
      robmrob51

      robmrob51 Member

      Tinnitus Since:
      March 2020
      Cause of Tinnitus:
      Menierre’s Disease
      Thank you! Does it help the tinnitus or just the vertigo?
       
    11. Jrblovsky

      Jrblovsky Member

      Tinnitus Since:
      Christmas 2019
      Cause of Tinnitus:
      Gunfire. I think
      I feel for you. I am 33 years old and I have the same issue. This disorder has completely destroyed my life. I have no idea how anyone gets used to this noise. Mine is so loud I cannot mask it. I lost my job and have been hospitalized several times due to nervous breakdowns. I have no idea how to continue with my life. It was absolutely great before this bullshit
       
      • Hug Hug x 2
    12. Jrblovsky

      Jrblovsky Member

      Tinnitus Since:
      Christmas 2019
      Cause of Tinnitus:
      Gunfire. I think
      I also lost 50% of my hearing that was perfect before. I thought a possible noise exposure was the problem but it ended up being hydrops.
       
    13. AUTHOR
      AUTHOR
      robmrob51

      robmrob51 Member

      Tinnitus Since:
      March 2020
      Cause of Tinnitus:
      Menierre’s Disease
      Do you also have tinnitus? What are you doing for it?
       
    14. glynis
      Feminine

      glynis Member Benefactor Ambassador Hall of Fame

      Location:
      England,
      Tinnitus Since:
      2004
      Cause of Tinnitus:
      Meniere's Disease
      Cinnarizine 15mg x 2, four times a day, can help tinnitus from Meniere's Disease.
      Ask your doctor to try you on it.

      love Glynis
       
      • Like Like x 1
    15. AUTHOR
      AUTHOR
      robmrob51

      robmrob51 Member

      Tinnitus Since:
      March 2020
      Cause of Tinnitus:
      Menierre’s Disease
      Thank you, Glynis! I will ask my doctor. It helps to know there are fellow sufferers out there who can offer encouragement!
      Take care.
      Roberta
       
    16. gregv

      gregv Member

      Tinnitus Since:
      2001
      Cause of Tinnitus:
      unknown/damaged vestibule
      Menierre's without vertigo... Second opinion might be a good idea. I have had high-pitched whining tinnitus since 2001, developed a damaged vestibule (right ear) in 2018 resulting in severe, debilitating, hospitalized vertigo for about 3 months. Since then a new additional tinnitus in right ear only - in the evenings when the whining gets a little quieter, it sounds like the ocean.

      For the vertigo - 6 doctors, 2 physical therapists, and extensive international research later, I found that neurotologists are the most definitive, ENTs are the least. To the majority of experts in this field, Menierre's simply means that you have vertigo for no discernible reason. If they determine the cause of your vertigo, then you have a condition to treat, and it is not called Menierre's. Mine turned out to be a pinched nerve in my C1 causing the trigeminal nerve to malfunction, resulting in the damaged vestibule (a very long but convincing story). Pinched nerve is still there, but when vertigo symptoms start up, neck-stretching exercises stop it (no, not the Epley Maneuver).

      Tinnitus - yes, significant haring loss, continuing, but there are more important things in my life that make it all bearable, and I keep those things in front of me at all times - wife, kids, personal health, things I enjoy doing.

      I wish you good luck and good health.

      Gregv
       

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