Hearing Aids

Discussion in 'Treatments' started by Louise, Oct 23, 2012.

    1. DebInAustralia
      No Mood

      DebInAustralia Member Benefactor Hall of Fame Advocate

      Location:
      Geelong, Victoria
      Tinnitus Since:
      12/2013
      Did masking your tinnitus entirely for that length of time ramp it up?
       
    2. DaveFromChicago

      DaveFromChicago Member Podcast Patron Benefactor

      Tinnitus Since:
      01/2014
      Cause of Tinnitus:
      Headcold/Flu
      No, there was no worsening, but no diminution either.
       
    3. Padraigh Griffin

      Padraigh Griffin Member Podcast Patron Benefactor

      Tinnitus Since:
      05/2020
      Cause of Tinnitus:
      Unknown/Stress
      I really can't describe it as every day is different and prior to 12th January I had middle ear myclonus which was torture on a level that is hard to imagine. Things have improved and since the surgery thankfully.

      I don't have head tinnitus as much as I had before. A huge decline really. At present things are different every day and sometimes every hour, but my hearing aids definitely help me cope a little better. I could not be without them.

      Hopefully my tinnitus situation will settle down at a manageable level sometime in the next year.

      As for hearing aids I really think a trial of Oticon Mores or Phonaks P90's would be interesting for you. From my research they are the best two on the market at the moment.

      Will hopefully help out :)
       
      • Helpful Helpful x 2
    4. bobvann
      Badass

      bobvann Member

      Location:
      Inside the vortex
      Tinnitus Since:
      April 2017
      Cause of Tinnitus:
      Loud shit
      Widex gave me spikes & drove me to tears. I think my hyperacuses is not as sensitive now. I'm just going to use my bone conductors as recommended by actual professionals.
       
    5. Jerad

      Jerad Member

      Location:
      Ohio; United States
      Tinnitus Since:
      2002
      Cause of Tinnitus:
      Medication ototoxicity
      I’m supposed to trial Widex hearing aids soon. I have severe hyperacusis and tinnitus.

      Was it the amplification that spiked you or the white noise in the hearing aids?

      Thanks for the help.
       
    6. bobvann
      Badass

      bobvann Member

      Location:
      Inside the vortex
      Tinnitus Since:
      April 2017
      Cause of Tinnitus:
      Loud shit
      Not sure. She actually had the hearing aid portion turned off. So basically $3600 maskers. Hence why I am ok saving my $$ and use my bone conductors. This happened after a few hours of wearing the Widex; big spike during the night, I was in tears a few hours the next day. I returned them.

      The Oticon trial was not as bad. Still at the end of the 1st day of wearing them, I went to a restaurant that was loud, and ended up throwing up from the intrusiveness of the tinnitus. I went on for another month or so, eventually returning them when they failed to help.

      I had more communication with the local clinic earlier. They acknowledged that they were refunding me admitting that therapies like TRT & CBT do not help everyone.
       
      • Informative Informative x 2
      • Agree Agree x 1
    7. bobvann
      Badass

      bobvann Member

      Location:
      Inside the vortex
      Tinnitus Since:
      April 2017
      Cause of Tinnitus:
      Loud shit
      @DebInAustralia, I may be a little late to the party. You may want to seek an audiologist for a hearing test. They are for the most part free for people over 55 in Canada (of course they are looking to sell you hearing aids). Depending on the results, a pair of bone conducting headphones may suffice. Reason of using those vs. earbuds is they leave the ear canals open. I am finding pleasant results with Bluetoothing nature sounds from an app & actual natural sounds blend together.
       
    8. Padraigh Griffin

      Padraigh Griffin Member Podcast Patron Benefactor

      Tinnitus Since:
      05/2020
      Cause of Tinnitus:
      Unknown/Stress
      The Bose HearPhones were excellent for tinnitus amelioration apparently. They have been discontinued unfortunately but might be able to pick them up off eBay. The Bose hearing aids have no Bluetooth streaming.

      I totally agree that if there is no hearing loss, then hearing aids are not necessary, but if there is hearing loss sub 8 kHz, you will find them helpful. They are also very discreet. I never thought I'd be wearing hearing aids at 46 years old, but I actually don't mind them at all. The iPhone streaming sounds are excellent too in 'background noise' but that would apply to headphones as well.
       
    9. ploughna

      ploughna Member

      Tinnitus Since:
      2017
      Cause of Tinnitus:
      motor racing and power tools
      @Padraigh Griffin, I agree with everything you said about hearing aids, although mine is noise induced, I share a number of the symptoms you've spoken about. Frustrating that it's so different for everyone - every day is waking up (assuming I've slept) to wondering what level is it going to be today. There's a threshold below which I can tolerate and above which I cannot (there was a time when it was stable which was no problem to habituate to). Also, the mere fact of driving a car or flying exacerbates significantly even with earplugs which is really crazy and would love to know if that's every going to settle where I can behave normally in these situations and not like some crazy person ever again!

      Back on point though - a question - I have Oticon hearing aids and would like to play with the settings myself. How did you get it from the Oticon site? It seems you need to set yourself up as a hearing professional to access or is there another way/source?
       
    10. Padraigh Griffin

      Padraigh Griffin Member Podcast Patron Benefactor

      Tinnitus Since:
      05/2020
      Cause of Tinnitus:
      Unknown/Stress
      Hey. I downloaded it from the Oticon website but you are right, it seems to require registration now. It didn't when I downloaded it. You also need a Noahlink Wireless to connect to the hearing aids. I'll search for the software a little bit more.
       
    11. bobvann
      Badass

      bobvann Member

      Location:
      Inside the vortex
      Tinnitus Since:
      April 2017
      Cause of Tinnitus:
      Loud shit
      I asked my audiologist again in regards to still possibly trialing Phonak. This was her response:

      The reason I did not recommend a hearing aid trial with a Phonak hearing aid is due to your history of no benefit with sound therapy for your tinnitus. All sound therapy works on the same theoretical framework, and one manufacturer of hearing aid will not have a different approach to sound therapy to any other. In your case, someone with hearing within the normal levels from 0.25 - 8 kHz, sound therapies can be delivered through traditional headphones or speaker system. Until there has been an extensive attempt to work with sound therapies that you already have access to, I would not proceed with another hearing aid trial.​
       
    12. DaveFromChicago

      DaveFromChicago Member Podcast Patron Benefactor

      Tinnitus Since:
      01/2014
      Cause of Tinnitus:
      Headcold/Flu
      To bobvann:

      I'm interested in that comment "due to your history of no benefit with sound therapy." Is it because your tinnitus is reactive? Or because layering an artificial white noise on top of the tinnitus sound creates too high a volume?

      She's entirely correct about every manufacturer's sound "therapy" being the same as any other. Just as alcohol is the same whether it is in beer or vodka, white noise is essentially the same regardless of all of the available different brands.

      At least she had the professional integrity to not have attempted to sell you something that she knew would be of no avail.
       
    13. bobvann
      Badass

      bobvann Member

      Location:
      Inside the vortex
      Tinnitus Since:
      April 2017
      Cause of Tinnitus:
      Loud shit
      Needless to say I feel like I have posted evidence backing my claims, i.e., the response with the refund from the health authority, the TRT trained audiologist that claimed that using bone conductors or earbuds is adequate if one does not suffer significant hearing loss and now this.

      I think its important to share these truths since there are a lot of practitioners out there looking to take advantage like they did in my early days. Good thing there is a trial period for the devices, but still out of a few grand for a few $300.00 "tinnitus assessments" which is a regular hearing and acoustic reflex test for the most part.

      Having said all that, some do benefit from them and good for them truly.
       
    14. Johan001

      Johan001 Member

      Tinnitus Since:
      05/2020
      Cause of Tinnitus:
      Medication
      I have Signia Silk.
       
    15. DebInAustralia
      No Mood

      DebInAustralia Member Benefactor Hall of Fame Advocate

      Location:
      Geelong, Victoria
      Tinnitus Since:
      12/2013
      Thanks for reporting back. It has inspired me to give hearing aids another go.

      Can I ask if you have head noise? If so, has that improved at all in annoyance or volume?
       
    16. BurnetteBacon

      BurnetteBacon Member

      Tinnitus Since:
      01/2022
      Cause of Tinnitus:
      Unknown
      How do you know what frequency your tinnitus is at?

      Mine started 3 months ago in one ear then gradually moved to both ears after a month. Sounds change throughout the day. I was told by ENT that I have moderate hearing loss and should think about hearing aids? But am concerned that I will not get something helpful f I am unaware of my tinnitus frequencies.

      Any advice would be helpful and greatly appreciated.
       
    17. Gb3

      Gb3 Member

      Tinnitus Since:
      12/19
      Cause of Tinnitus:
      Sshl
      They will program the hearing aids based on your hearing loss and amplify the frequencies in which you have loss. If you have hearing loss that can be treated by hearing aids, it may help with the tinnitus.
       
    18. Gary Galloway

      Gary Galloway Member

      Tinnitus Since:
      2019
      Cause of Tinnitus:
      Unknown
      I've said this about my own tinnitus when the long-term use of ear drops for inner ear infection was a suspected cause of my tinnitus. The damage in one ear due to e.g., breakdown of stereocilia (tiny batches of hair cells inside the snail shaped cochlea) means the signal pulses are relayed back incorrectly with the detector increasing its own signal to compensate for the drop - resulting in a higher pitch tinnitus. The breakdown of the stereocilia in my case has not been determined but is suspected to have been caused by extensive use of ear drops treating an inner ear infection.
       
    19. Philip83
      Jaded

      Philip83 Member Podcast Patron Benefactor

      Location:
      Sweden
      Tinnitus Since:
      2001
      Cause of Tinnitus:
      Moped (2001) Noise blast (2014) Club (2017) Snowboard (2018)
      What do you mean by head noise?
       
    20. DebInAustralia
      No Mood

      DebInAustralia Member Benefactor Hall of Fame Advocate

      Location:
      Geelong, Victoria
      Tinnitus Since:
      12/2013
      Tinnitus perceived to be coming from the head.
       
    21. Philip83
      Jaded

      Philip83 Member Podcast Patron Benefactor

      Location:
      Sweden
      Tinnitus Since:
      2001
      Cause of Tinnitus:
      Moped (2001) Noise blast (2014) Club (2017) Snowboard (2018)
      Yes, my crickets sound I would consider a head sound. The annoyance level has definitely gone down, but the volume is the same.
       
    22. tony sylvestro

      tony sylvestro Member

      Tinnitus Since:
      1975
      Cause of Tinnitus:
      Gunfire in VietNam
      The hearing aids I have are $7000 a pair. All they do is hook me up to my cell phone to listen to music or take calls. Then when someone talks to me, I can't hear them unless I turn off the music. It's crazy.

      Truth is, in my opinion, there simply is no cure or even anything to lessen the tinnitus. I'm getting psych therapy to help me cope with this. I've had it since 1971 when I had my first tour of combat in Vietnam. I was able to handle that but then came COVID-19. Got it and then got my ass handed to me with rapid sensorineural hearing loss. Hearing just shut down in one second in my right ear and was replaced with the wonderful sound of a jet engine which is amazing to try to sleep to. I haven't slept a night in months. AND THEN CAME the vaccination. And you guessed it, it put that jet engine sound into hyper space! I'm 70 now and really hope I don't have a lot of time left to deal with this. I'm not going to speed it up but, I sure will welcome it unless they get some kind of cure.

      There just wouldn't be enough money to be made if someone was able to figure it out. I don't know why they can't come up with some kind of hearing aid that can give you a series of sounds that are the exact opposite of what you are hearing so as to cancel it out. But I'm not a doctor so I don't know the mechanics, I just wish this frigging jet in my head would leave the runway!

      Along with tinnitus I also have the inability to spell very well so save the spelling comments.

      Roger out!
       
      • Winner Winner x 1
    23. bobvann
      Badass

      bobvann Member

      Location:
      Inside the vortex
      Tinnitus Since:
      April 2017
      Cause of Tinnitus:
      Loud shit
      Yesterday I went to another clinic of the same franchise. This audiologist did run an audiogram. I will be trialing Phonak hearing aids but not the 90's, the model one below. 90's are 8 grand here! She did agree that they are mostly to be used as maskers.
       
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