All, Thanks for sharing your experiences.
As bad as the hissing in my head is, the worst part is probably the anxiety of feeling alone in this experience, a feeling that is aggravated by doctors dismissing it because they cannot test for it or measure it.
Initially my tinnitus was a loud pure tone (R>L) that has changed over 4-5 months to a hissing sound. On good days, it is a single tone at very low volume. On bad days, it is loud multiple hissing sounds with what I call a "rough edge", like a thousand sets of car keys being jingled. I also have frequent ear fullness, 2-3 episodes hyperacusis, and periods where I can hear gurgling sounds in my throat (autophony?).
My cause is unknown. I do have have high frequency hearing loss. There are also certain sounds that hurt my ears: some work colleagues on cells on conference calls will have a crackling that hurts my ears. I had bilateral internal carotid artery dissections in DEC 2017, the T started immediately at that time; however, the neurologists are not attributing the T to the dissections.
Thanks again. I'm sorry that others are also going through this but reading success stories gives me hope. Best, Joe
As bad as the hissing in my head is, the worst part is probably the anxiety of feeling alone in this experience, a feeling that is aggravated by doctors dismissing it because they cannot test for it or measure it.
Initially my tinnitus was a loud pure tone (R>L) that has changed over 4-5 months to a hissing sound. On good days, it is a single tone at very low volume. On bad days, it is loud multiple hissing sounds with what I call a "rough edge", like a thousand sets of car keys being jingled. I also have frequent ear fullness, 2-3 episodes hyperacusis, and periods where I can hear gurgling sounds in my throat (autophony?).
My cause is unknown. I do have have high frequency hearing loss. There are also certain sounds that hurt my ears: some work colleagues on cells on conference calls will have a crackling that hurts my ears. I had bilateral internal carotid artery dissections in DEC 2017, the T started immediately at that time; however, the neurologists are not attributing the T to the dissections.
Thanks again. I'm sorry that others are also going through this but reading success stories gives me hope. Best, Joe
