tiniturk
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tiniturk

Member, Male, from Netherlands

I am *this* close to writing a success story. Tinnitus hasn't reduced in the slightest, but habituation is real. Feb 22, 2024

    1. tiniturk
      tiniturk
      I am *this* close to writing a success story. Tinnitus hasn't reduced in the slightest, but habituation is real.
      1. Tom Okay, PennyCat, gameover and 4 others like this.
      2. PennyCat
        PennyCat
        That’s so great to hear! <3
        Feb 23, 2024
    2. tiniturk
      tiniturk
      The only reason why I'm still on TinnitusTalk is to read up on updates from Dr. Shore or TU Delft, lmao.
      1. kingsfan
        kingsfan
        I actively avoid the Auricle thread. Way too much speculating for my liking. It feels similar to the hockey forums I frequent, a lot of armchair assessments.
        Jan 18, 2024
        tiniturk likes this.
    3. tiniturk
      tiniturk
      Happy new year everyone! A random thought crossed my mind: how many people below the age of 25 visit this site regularly? I’m 25 myself.
      1. View previous comments...
      2. PennyCat
        PennyCat
        23 here
        Jan 2, 2024
      3. Koen23
        Koen23
        I'm also 23
        Jan 2, 2024
      4. Viridiana
        Viridiana
        Almost 24, my bday is this monday
        Jan 21, 2024
    4. tiniturk
      tiniturk
      My T is so f’n loud when I’m laying in bed trying to sleep. I luckily can still sleep but my anxiety is through the roof.
      1. L along the way, tpj and gameover like this.
      2. RunningMan
        RunningMan
        I use crickets/cicadas sounds from phone to pair of bluetooth speakers to each side of me to sleep. Just partial masking. But I still have a lot of difficulties sleeping for long and often use sleep med when I wake up overnight and can't sleep. Anxiety very high at times through the day.
        Dec 18, 2023
      3. BrOKeN_1
        BrOKeN_1
        Sounds about right. Like @RunningMan I use crickets to add ambient noise. It doesn't even come close to masking anymore but the chirping keeps me from putting all my attention on Eeee. Full masking is a fools errand anyways I think.
        Dec 18, 2023
    5. tiniturk
      tiniturk
      Aside from other obvious health advantages, is cutting sugar out of your diet good to combat tinnitus? Has it been proven?
      1. L along the way likes this.
      2. Utdmad89
        Utdmad89
        No it hasn't been proven. But everyone has a different experience to tinnitus
        Dec 5, 2023
        L along the way likes this.
    6. tiniturk
      tiniturk
      So Shore’s device is at least 2 years away, TU Delft device no updates and XEN no updates. We’re going to die with this condition, aren’t we
      1. SilverFox and gameover like this.
      2. cyberspace
        Nov 28, 2023
      3. Utdmad89
        Nov 28, 2023
      4. RunningMan
        RunningMan
        Continued misery for a couple years or so, anyway.
        Nov 28, 2023
        Joshua Macleod and tpj like this.
    7. tiniturk
      tiniturk
      I capitulated and went to the aforementioned free concert. Did not spike nor had any other side-effects. I hope we can all enjoy this feelin
      1. SarahMLFlemmer, Utdmad89 and DeanD like this.
      2. SarahMLFlemmer
        Oct 13, 2023
    8. tiniturk
      tiniturk
      Apparently I won free tickets to a concert which I registered for a couple of months ago, before I decided I wouldn't go anymore. Unsure!
      1. SamRosemary
        SamRosemary
        What type of concert? I almost went to a Smashing Pumpkins concert someone bought tickets for, but decided against it. Worst case, you could sell the tickets.
        Oct 2, 2023
      2. RunningMan
        RunningMan
        Give them away. Don't take the risk.
        Oct 2, 2023
    9. tiniturk
      tiniturk
      My hyperacusis is fully gone but there is still 1 sound which I just cannot ignore: sizzling during cooking. Very sensitive to that sound.
    10. tiniturk
      tiniturk
      I forget my T for most of the day until I put on my noise cancelling headphones. Then it sounds like laser beams are crossing each other.
      1. PennyCat likes this.
      2. TindalosKeeper
        TindalosKeeper
        Hello, do you have any actual hearing loss? Or instead, the Tinnitus is that bad it kinda interferes with hearing normally?
        Anyways, hope it calms down soon.
        Sep 21, 2023
      3. tiniturk
        tiniturk
        @TindalosKeeper, according to the hearing tests at two different hospitals my hearing is “perfect”. I have no difficulty hearing/understanding someone or something.
        Sep 21, 2023
      4. Jupiterman
        Jupiterman
        I've heard too many bad things about noise cancelling headphones - wouldn't risk it.
        Sep 21, 2023
    11. tiniturk
      tiniturk
      In what timeframe can tinnitus heal completely? It’s been almost a year for me with little to no improvement, maybe even worsened (slightly)
      1. PennyCat and 4alien2 like this.
      2. View previous comments...
      3. MindOverMatter
        MindOverMatter
        @tiniturk What do you put in "heal"? Habituation can happen any where from 6 months to 3-4 years. Possibly even longer. Meaning, even if you dont feel better/habituate after a long time, there is still time. For most people it doesn't heal in such a way that it will go completely. But what matters is how you feel! Not if its there or not. You can have t and still live a good, fulfilling life.
        Sep 12, 2023
      4. RunningMan
        RunningMan
        Never count on healing, if there is such a thing. I'm well over 20 years into tinnitus, and it has only gotten worse, then add on hyperacusis and TTTS more recently. And it affects my anxiety/depression quite a bit still, some days more than others. Just protect without overprotecting and hope for the best.
        Sep 12, 2023
        tiniturk and BrOKeN_1 like this.
      5. SarahMLFlemmer
        SarahMLFlemmer
        I've heard anywhere from less than 6 months, to 2 years, to 4, 6, and even 11 years!
        Sep 14, 2023
    12. tiniturk
      tiniturk
      Went to a party on Saturday. No spike!
      1. Utdmad89, gameover, Ngo13 and 2 others like this.
    13. tiniturk
      tiniturk
      Thought I was habituated, not the case. Had a bad day today tinnitus-wise but life goes on, I guess
      1. SarahMLFlemmer
        SarahMLFlemmer
        I guess. ❤️
        Sep 2, 2023
    14. tiniturk
      tiniturk
      Today was the first day since onset that I had zero stress about my tinnitus. Nice.
      1. Mo8409
        Mo8409
        Success!
        Aug 6, 2023
        SarahMLFlemmer likes this.
    15. tiniturk
      tiniturk
      Good news: my ear pain was actually just my wisdom tooth. No more ear pain since tooth has been pulled, which I’m VERY happy with.
      1. Mo8409, Ondine, Joe Cuber and 9 others like this.
      2. SarahMLFlemmer
        Aug 3, 2023
        tiniturk likes this.
      3. Joshua Macleod
        Joshua Macleod
        Great to hear, @tiniturk. Hope it grants you some respite!
        Aug 3, 2023
        tiniturk likes this.
    16. tiniturk
      tiniturk
      Just got back from vacation. A week in the village of my parents. I haven’t felt so peaceful for a long time. T still there, unfortunately.
    17. tiniturk
      tiniturk
      Just had a hearing test at another hospital. Hearing is still “perfect”. ENT told me to not pay attention to T, lol.
      1. SarahMLFlemmer likes this.
      2. kingsfan
        kingsfan
        I love how they test you with beeps at, like, 8 different frequencies out of thousands, then go on and say you have perfect hearing.
        Jul 10, 2023
        ECP and SarahMLFlemmer like this.
      3. Tryn2BHopeful
        Tryn2BHopeful
        You know... right from ata.org

        Do not accept “no options” diagnoses

        Yet... T sufferers still get told to suck it up and deal...
        Jul 12, 2023
      4. Mo8409
        Mo8409
        @tiniturk Yeah just ignore the loud noise consuming your life haha
        Aug 6, 2023
    18. tiniturk
      tiniturk
      Something that bothers me more than my T is ear pain. I don't thinks it's nox., what can I take to relief me a bit from this pain?
      1. SarahMLFlemmer
        SarahMLFlemmer
        I used an icepack and it really helped!
        Jun 27, 2023
        cjbhab and Ondine like this.
      2. Ondine
        Ondine
        Icing my ear helps a lot as well !
        Jun 27, 2023
        SarahMLFlemmer likes this.
      3. cjbhab
        cjbhab
        I have been having a lot of ear pain lately too. I wonder what causes a good or bad day to result with regards to pain. Oddly enough my T is much worse in my right ear but the left ear is the one that hurts. The right ear feels normal.
        Jun 28, 2023
    19. tiniturk
      tiniturk
      I don't know why but when I wake up, I am experiencing near-silence. Like the T is just almost completely absent. Comes back after 10 mins.
      1. Ngo13, SarahMLFlemmer and Joe Cuber like this.
      2. View previous comments...
      3. tiniturk
        tiniturk
        @gameover - of course I don't know the severity of your T but based on your comment I really, really would like to trade places with you. Falling asleep is so f'n hard.
        Jun 28, 2023
        gameover likes this.
      4. gameover
        gameover
        @kingsfan Yes, though the hours are wacky. I can sleep 7-8 hours.
        Jun 30, 2023
      5. gameover
        gameover
        @tiniturk I am not so sure. I have hard time falling asleep anyway. And waking up is a nightmare. It's been fluctuating over the last couple days. Less of a flare after waking up but also no so quiet late at night. WTFK what this things is going to be.
        Jun 30, 2023
    20. tiniturk
      tiniturk
      I have decided to not visit loud events (like concerts, raves, etc) anymore. Just not worth the risk. I have moderate T, let’s keep it so.
      1. View previous comments...
      2. cjbhab
        cjbhab
        how is your spike from the rave? I recently did a music fest and I'm having some ear pain. I'm thinking the same thing as you. Gonna take a break for at least a year. Last summer I did 3 concerts with no issues though. Gotta stop testing my luck.
        Jun 21, 2023
      3. Ondine
        Ondine
        This is the wisest thing to do. Since onset 2 1/2 years ago, I've stopped going to loud places entirely. I'm going to a wedding in a few weeks and will just attend the ceremony, I declined staying for the meal and party as I know there's gonna be 200 guests and insanely loud music. My mother thins I'm being stupid, but I couldn't care less. We have to protect our ears as much as we can.
        Jun 21, 2023
        SarahMLFlemmer and Ryan Scott like this.
      4. tiniturk
        tiniturk
        @cjbhab Luckily, the spike already subsided. However, it very well could have been permanent. I now realise I threaded on thin ice and I won't be making the same mistake again. I have a good life right now and I will do everything I can to not lose it.
        Jun 21, 2023
        cjbhab and Ondine like this.
    21. tiniturk
      tiniturk
      Went raving for the first time after my T onset. Loved it. Have a small spike atm but no emotional reaction to it.
      1. gameover
        gameover
        Sounds like you want to make it worse.
        Jun 12, 2023
      2. tiniturk
        tiniturk
        @gameover I really don't! I had my molded earplugs in, took very regular breaks from the music, did not stand anywhere near the speakers (average volume was like 85-90 db) and my aforementioned spike has already subsided and I am back to baseline. I won't party every weekend or something like that, but once every 5-6 months should be OK imo.
        Jun 12, 2023
        Utdmad89 likes this.
    22. tiniturk
      tiniturk
      Back again. Tinnitus still there, as always. Stable, but at times very loud. 0 improvement. I absolutely detest this condition.
      1. SarahMLFlemmer and PennyCat like this.
      2. just1morething
        just1morething
        @tinniturk, Is your tinnitus in both ears or just one? I detest my noise today in my left ear.
        Jun 7, 2023
      3. tiniturk
        tiniturk
        @just1morething, my tinnitus is the loudest in my left ear. I even have trouble sleeping on my left side because that just increases the volume.
        Jun 8, 2023
    23. tiniturk
      tiniturk
      Taking a break from TinnitusTalk. Found out that this site influences my mental wellbeing more than I want it to. Stay strong everyone!!
      1. Utdmad89, PennyCat, ErikaS and 6 others like this.
      2. Joshua Macleod
        Joshua Macleod
        I wholeheartedly agree. Keep well!
        Apr 26, 2023
        Utdmad89 and Strawberryblonde like this.
      3. Strawberryblonde
        Strawberryblonde
        I does help having breaks from here. I need to do it more often.
        Apr 26, 2023
        Utdmad89 likes this.
      4. TindalosKeeper
        TindalosKeeper
        Agreed. If humans knew how to fix auditory damages, we'd never have this site and nobody would be suffering, yet here we all are.
        One day, this all will be over for everyone.
        Stay all strong, if you read this.
        Apr 26, 2023
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  • About

    Gender:
    Male
    Location:
    Netherlands
    Occupation:
    Desk job
    Tinnitus Since:
    11/2022
    Cause of Tinnitus:
    Acoustic trauma