HIFU (High-Intensity Focused Ultrasound) Surgery

@Viking this sentence is a great confirmation about my own theory. I think balance and peace in the mind should be realised before further threatment can be done.

Beside this I really admire your courage and wishes you the best.

 

@Viking

You're on the road to recovery I am sure. You are a brave man and deserve only the best of outcomes. Thank you sincerely for updating us on your progress. Long may it continue.

R

 

Yes i full agree. I'm still in disorientation. The psichoterapy support is very important. For too many years I refused. I was stupid. It must be said that it is also difficult to find someone right away who understands the situation of serious hardship. Many underestimate our problem and this creates a further frustration.

Hoping the best for all, i will update !

 

Would be great to see more updates coming. For me the next time step is going into a special Tinnitus Therapy which is mainly focused on CBT purposes. I hope I can start in July or August to finally bring my emotions and negative thoughts under better control.

All the best.

 

I understand. I think that when we are in greatest difficulty ourselves, the best gift that we can do is get the right support in order to prevent the progression of negative thoughts that give more "fuel" to the disabling status.

 

That's 'cause T is downplayed everywhere. We have literally ZERO awareness of killer T. Thus all Ts are being put in the very same basket labelled ' mild '. If T was contagious we would have had a real treatment long ago! Although, the flow of new T patients isn't stopping either. I really wonder..

 

Hi @Viking!

How was your tinnitus before the surgery. Was it loud? Did you have it in both ears?

Hope you have a successful recovery

 

It was very loud and disabling, both ears fluctuanting with severity estimated on 92/104.

It is still more loud but there are many changes during the day and night. Today are only 3 weeks after surgery. I must wait at least 3 months up to 1 year because i have a neurogenic component who request a lot of time to "shut down". I can only hope in the future. All drugs attempts had failed. Surgery was the last chance

Best wishes

 

Are you able to work as usual or are you resting at home while you recover? Sure hope everything works out for you... You are a hero for trying this and I truly hope it works.

Best wishes

 

This is a big problem because i haven't a job.... Have a job is the better psychoterapy, aboout the post surgery i haven't limitations. Sometime i have headache but on mri and neurological examinations is all ok. Surgery has been done well. It's a psychological problem that i hope to go over quickly in order to give more chances to the surgery approach.... The power of mind is immense. It can be great for ourself or "deathly". This depending only by iurself. The thalamic way are destroyed...now is a matter of psychological loop after years and years of suffering.

Thank you for your support and all the best

 

Sorry to butt in @Viking but are your T lower now compared with before the surgery, and how big is the difference? My apologizes if it's been clarified in a previous post.

Regards,
V

 

You dont need to apologize at all. The tinnitus sometimes change. After the intervention (2 days after) i was near the total silence. After they return but no more disturbing. I'm under a continous changing in lateralizarion, loud and tone. Something is happening but i dont know how much time is necessary for a complete restabilization after too much long suffering. The doctors told about wait 3 months to repeat the qEEG and another year to estabilish if another (controlateral) complementary treatment will be required. Thats all i know!

Best wishes

 

Not good with big words but sounds like it did lower from your previous state so its not as disturbing? I remember you saying you had a very rare form right what was it? I remember you saying only tonal T is that like only one high pitch or did u also have many sounds mixed.

 

I haven't understand better the question! Sorry. Can you do a precise question?

 

Me neither but I think he is asking 3 questions.
1. Did the surgery make the tinnitus less disturbing in volume/nature?
2. Do you have a rare form of T, if so what is it called?
3. What kind of sounds and/or tones do you have?

 

well the answer is:

1) Not at all. Only less pain and more fluctuanting.

2) Yes surely. It is so called neurogenic tinnitus due to double neurovascular compression

3) Pure tone on the right side most frequently 7500hz 60db both with narrow band noise at same loud. Pure tone on the left side 6000hz 90 to 120 db with pain around ear

But i repeat: the surgeon told clearly; "we don't cure the tinnitus". We will do an attempt and months up to years are required to estabilish how much are the results, what type of results, and if another surgery is required

 

If he actually told you he wont cure the tinnitus, then my expectations would be extremely low.

 

Actually my expectations would be high. He is being honest för a start. Its a trial and error task with best endevours.Its already helped others. It may not eliminate but may give liveable T. All the best to you viking and if this is the extent of the support you are getting from this board stay off it för a while.

 

I don't know. You know very well my experience and also the fact that we are not all equal. Probably you will be cured at first shoot (i hope)

 

Viking are you ok? I heard you're not in a good place...I'm always here to support you buddy.

 

Oh man, somewhere in my desperate hours I thought this would be brilliant. Contagious tinnitus would really speed up the drug research

 

It is sufficient that an Arab emirate got sick for a few days ...

 

In the near future, I think more cell phones, tablets, alarm systems may help a lot for T to become an epidemic!
Technology "helps"! Once upon a time, it was only certain professions and hobbies.
Then, there is the biological factor, for neurological T. They can't seem to find an answer for that either. I wonder, since they can't really find anything regarding T, how the hell are they going to make drugs for it.

 

Well this is probably why there are no T drugs on the market.

 

Ok lets keep this thread about hifu and not T drugs.

 

Ivan how are you doing?

 

@Viking

How are you getting on? Hope all going well.

R

 

There is no sign of Viking (Ivan) since 21st of May. I am really worried for him

 

@Viking

We are thinking of you and hope all is well.

R

 

@Viking
Brother, I wish you are well, wherever you are!

Anybody heard from Ivan? He is missing since 21 May...