MuteButton

Discussion in 'Treatments' started by Jim, Jun 7, 2011.

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    1. M.K.
      Bookworm

      M.K. Member

      Tinnitus Since:
      02/2018
      Cause of Tinnitus:
      Somatosensory

      What’s considered significant physical trauma - in terms of Neuromod criteria?
       
      • Good Question Good Question x 1
    2. antonio77

      antonio77 Member

      Tinnitus Since:
      1991
      Cause of Tinnitus:
      unknown
      When we talk about "type of tinnitus" are we talking about the type of noise or the specific area of the brain where there is overactivity of the neurons?

      I have the impression that there is an infinite number of combinations of neuronal alterations in the areas of the brain in which the activity takes place and that little by little a specific treatment will be created, a bimodal stimulation based on echoencephalography, magnetic resonance etc, and it will be possible to solve but it may be very expensive, you have to find the neurologist or specialist who knows what to do and how to analyze it and surely those people are only in the big cities because I do not think it is something general, even if there are many people with tinnitus, because most people end up getting used to it.
       
    3. Paulmanlike

      Paulmanlike Member Hall of Fame

      Tinnitus Since:
      2008
      Cause of Tinnitus:
      Noise
      I’m guessing the area of the brain it’s involved in. Just like with epilepsy, it’s can occur at different areas of the brain. Unfortunately there’s no way to directly objectively measure tinnitus so there’s no way of knowing where the tinnitus is localised. It could be that the 2/3 of the patients who benefitted had it through a specific area of the brain and the 1/3, the non-responders, had it elsewhere, but there’s no certain way to know - unless Neuromod know something we don’t.

      Anyway, it’s a good point and would be worth sharing your question for the upcoming Richard Tyler podcast.
       
      • Like Like x 2
    4. Tigo

      Tigo Member

      Tinnitus Since:
      2 years
      Cause of Tinnitus:
      genetic hearing loss
      I looked at the MuteButton's website today and I noticed the following sentence.

      Neuromod’s CE-marked medical device comprises of three main components

      Is this something I missed?
       

      Attached Files:

    5. GamesB2
      Predatory

      GamesB2 Member

      Location:
      Huddersfield, UK
      Tinnitus Since:
      2010
      Cause of Tinnitus:
      Dumb brain
      I don't really understand what you're asking but here's the Wikipedia on what a CE Mark is:
      https://en.wikipedia.org/wiki/CE_marking

      "CE marking is a certification mark that indicates conformity with health, safety, and environmental protection standards for products sold within the European Economic Area (EEA)."

      Looking at the UK Gov website, Medical Devices must be CE marked to be sold in the UK.

      Cool little rabbit hole of information though.
       
    6. Paulmanlike

      Paulmanlike Member Hall of Fame

      Tinnitus Since:
      2008
      Cause of Tinnitus:
      Noise
      Have you not followed it at all?

      You have headphones and the tongue stimulator with a control unit.

      How else are you meant to deliver bimodal stimulation?
       
    7. kelpiemsp
      Swamped

      kelpiemsp Member Benefactor Hall of Fame Advocate

      Location:
      United States
      Tinnitus Since:
      birth/ recent spike 2/2018
      Cause of Tinnitus:
      Born with ETD, several acoustic traumas, most recently ETD
      Many other ways. The device I used had a roadmap to bring it all into one device (think hearing aid on one side).
       
      Last edited: Apr 11, 2019
      • Informative Informative x 2
    8. Ray552

      Ray552 Member

      Tinnitus Since:
      12/18
      Cause of Tinnitus:
      Noise trauma
      Your tinnitus resolved after using that device?
       
    9. kelpiemsp
      Swamped

      kelpiemsp Member Benefactor Hall of Fame Advocate

      Location:
      United States
      Tinnitus Since:
      birth/ recent spike 2/2018
      Cause of Tinnitus:
      Born with ETD, several acoustic traumas, most recently ETD
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    10. spedgas
      Depressed

      spedgas Member Benefactor

      Tinnitus Since:
      09/2018
      Cause of Tinnitus:
      Unknown
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    11. Piney

      Piney Member

      Tinnitus Since:
      March 2018
      Cause of Tinnitus:
      Shingles virus
      Nice, it looks like you started the University of Minnesota treatment attempt already. Keep posting how it goes for you.
       
    12. Paulmanlike

      Paulmanlike Member Hall of Fame

      Tinnitus Since:
      2008
      Cause of Tinnitus:
      Noise
      He already has. Achieved great results. Hopefully Neuromod device will do the same for most people here.
       
      • Optimistic Optimistic x 6
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    13. jmasterj
      No Mood

      jmasterj Member Benefactor

      Tinnitus Since:
      2011
      Cause of Tinnitus:
      Acoustic?
      It is pretty quiet around this thread. I am guessing at this point we aren't going to hear anything until May 5th when there trademark is approved. It is rather disheartening. I guess I will have to hope that I can get in on the Minnesota trial.
       
    14. fade2black244
      Inspired

      fade2black244 Member Benefactor

      Location:
      TX
      Tinnitus Since:
      03/24/2017
      Cause of Tinnitus:
      Noise Induced
      Link/page/thread about a trademark?
       
    15. Helheim
      Stressed

      Helheim Member

      Tinnitus Since:
      01/2017
      Cause of Tinnitus:
      Infection
      Yeah I think we've just realised that there isn't much else to say until they finally release. RIP.
       
      • Agree Agree x 3
    16. Drone Draper
      Jaded

      Drone Draper Member

      Location:
      U.K.
      Tinnitus Since:
      12/2018
      Cause of Tinnitus:
      NIHL, ETD and work stress
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    17. Allan1967

      Allan1967 Member Benefactor

      Tinnitus Since:
      1997
      Cause of Tinnitus:
      Ear infection
      Are we any closer to hearing about the release of this damn device?
       
      • Good Question Good Question x 4
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    18. Redknight

      Redknight Member

      Location:
      Lisburn, N.Ireland
      Tinnitus Since:
      03/2019
      Cause of Tinnitus:
      Unknown
      • Helpful Helpful x 1
    19. Autumnly
      Wishful

      Autumnly Member Benefactor Hall of Fame

      Tinnitus Since:
      July/August 2013
      Cause of Tinnitus:
      Noise induced
      There's a thread about the Parasym (formerly known as SaluStim) device but not much information there. Here's a thread about the SaluStim device.
       
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    20. GlennS

      GlennS Member

      Tinnitus Since:
      1992
      Cause of Tinnitus:
      Loud music
      How exactly is it disheartening? The trademark is simply a formality and I don't know why there's this handwringing over it. Even if by some extreme case someone comes around and claims they have the trademark (which is doubtful), they just rename the damn thing and continue. So the trademark is inconsequential in the grand scheme of things. There are a lot of ways for Neuromod may wind up being vaporware but the trademark is the least likely.

      Now is probably the worst time to write off Neuromod. Those who do will look silly if they really are weeks or only a few months away from delivering.

      Meanwhile, good luck trying to ram yourself into a (presumably out-of-state) clinical trial that probably only allows for a few hundred participants at most and may not even be running right now (just as Susan Shore's trial doesn't look like it's running). I know we have a couple people here who have been in trials but that doesn't mean everyone who wants tinnitus relief can just automatically get in on them. It's like winning a lottery.

      Again, let's see if things are still in this limbo state with little explanation through July-August.
      giphy.gif
       
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    21. EDDTEKK

      EDDTEKK Member

      Location:
      Europe
      Tinnitus Since:
      2000
      Cause of Tinnitus:
      Noise Exposure
      tVNS didn't work for me or a friend of mine. University of Regensburg did a trial some years ago - the final result was that it doesn't affect tinnitus at all.

      This is the German company behind it. I think they now only target epilepsy and migraine.

      https://cerbomed.com/
       
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    22. jmasterj
      No Mood

      jmasterj Member Benefactor

      Tinnitus Since:
      2011
      Cause of Tinnitus:
      Acoustic?
      If you have read the thread I have been a strong advocate of Neuromod. I have never written them off. I am just frustrated by their lack of communication as are many others. I don't care about the name. I was just guessing that may be the next time we may hear an update from them.

      As far as the Minnesota trial I have been in contact about them for the next stage of the trial and I live relatively close so don't assume you know about me.

      My preference would be for Neuromod to come out and cure us all. We are all suffering here and I want this for me and you!
       
      Last edited: Apr 16, 2019
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    23. Jack Straw
      Balanced

      Jack Straw Member Benefactor Ambassador Hall of Fame

      Location:
      US
      Tinnitus Since:
      1990s
      Cause of Tinnitus:
      Infection, Acoustic Trauma
      To be honest this is kind of getting comical. How is there no update?!
       
      • Good Question Good Question x 7
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    24. grate_biff
      Alone

      grate_biff Member Benefactor

      Location:
      Oslo, Norway
      Tinnitus Since:
      09/2014
      Cause of Tinnitus:
      Acoustic trauma, benzo/mirtazapine withdrawal, or combo!
      Hey Neuromod. Working hard or hardly working?
       
      • Funny Funny x 2
    25. Eric N

      Eric N Member Benefactor

      Location:
      Montreal QC
      Tinnitus Since:
      10/2012, 03/2016, 05/2017, 05/2018
      Cause of Tinnitus:
      noise + 3 major increases via (shouting / MRI/ flu+Tylenol)
      Because tinnitus and everything related to it has to suck.
       
      • Agree Agree x 3
    26. GlennS

      GlennS Member

      Tinnitus Since:
      1992
      Cause of Tinnitus:
      Loud music
      Wanting the product is good. Being enthusiastic is good. Struggling with the wait is understandable. But sometimes people come across like this which is a little...cringey.

      giphy.gif
       
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    27. Jazzer

      Jazzer Member Benefactor Hall of Fame

      Location:
      UK
      Tinnitus Since:
      1/1995
      Cause of Tinnitus:
      Noise
      I haven’t been on this thread, but must say that I don’t really quite understand the excited euphoria.

      Nobody knows yet whether this thing is going to be of any significant help, or just a pipe dream, do they?
       
    28. dayma
      Inactive

      dayma Member Benefactor

      Tinnitus Since:
      1/6/2018
      Cause of Tinnitus:
      UNKNOWN
      Initial test results and hope. It’s powerful stuff. Rather people be hopeful than the alternative.
       
    29. Jiri
      No Mood

      Jiri Member Benefactor

      Tinnitus Since:
      11/2017
      Cause of Tinnitus:
      noise + injury
      Neuromod advertisement in Tinnitus Today Vol. 44, No. 1, Spring 2019, p. 16, Link.

      Neuromod_Add.jpg
       
      Last edited: Apr 17, 2019
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    30. OnceUponaTime
      Fine

      OnceUponaTime Member Benefactor Hall of Fame

      Location:
      New York
      Tinnitus Since:
      11/11
      Cause of Tinnitus:
      Allergies or Acoustic Trauma, Stress
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