Hi
@UKBloke, thank you for your very detailed post. The information helps a lot.
I understand everything that you are going through because I went through something very similar when I suffered my second noise trauma in 2008. My very low tinnitus changed to variable tinnitus in an instant and showed no mercy in its severity. It took 4 years to habituate for the second time and you can too.
Your audiologists mean well but it's unlikely they have seen many patients with your type of tinnitus and hyperacusis, because your original tinnitus has changed to variable after a long habituation period. This type of tinnitus is treatable but requires time, patience, determination and a positive attitude. Reading your post, it's clear to me that you have these essential qualities and that's in your favour and will make you become the victor over this awful condition.
I believe you need to start wearing white noise generators to treat your oversensitive auditory system that is causing the hyperacusis and help to treat the tinnitus. I know you are very sensitive to sound(s) at the moment so you will have to take things very slowly. If you haven't been issued with white noise generators yet, see if you can gently persuade your audiologist to prescribe them. This is one of the best ways to desensitize your oversensitive auditory system and hopefully cure the hyperacusis.
Last year
@Eleanor89 was experiencing very painful hyperacusis. She followed some of my suggestions on using white noise generators. At first, she could only wear them for 5 to 10 minutes, then had to take them off for the same duration, then put them on again. Over many weeks and months, she gradually increased the wearing time, always keeping the volume low. Now she can wear them for many hours at a time and her oversensitivity to sound has dramatically reduced and she continues to make improvement.
When you get the white noise generators, if you want advice on how to use them, please ask me. Some audiologists advise patients to slowly increase the volume of the WNGs to treat the hyperacusis first, unfortunately this often causes irritation and can make the tinnitus and hyperacusis spike. It is better to always keep the volume low.
If you are not using sound enrichment at night, then I suggest that you do. Place a sound machine by your bedside and keep the volume low. The sounds should play throughout the night until morning. I recommend that you don't listen to audio through any type of headphones even at low volume. When listening to audio through speakers or through your laptop, keep the volume low.
Since you are a tinnitus veteran, you know all about keeping positive. Try to engage in things you like doing. Going out and socialising if possible. Take up a new interest or hobby. Anything that helps to take away your focus from the tinnitus and hyperacusis. Things will improve but it will take time.
My ENT consultant prescribed me Clonazepam as my variable tinnitus was so severe. It was a lifesaver for me and I don't know what I would have done without it. Please click on the link below and read my post: My Experience with Tinnitus. I was advised to only take it when my tinnitus was severe. I have been taking it for over 10 years and never had a problem with it. If your tinnitus and hyperacusis is causing stress, I suggest talking things over with your audiologist or GP and see if something can be prescribed to help lower the stress. Stress makes tinnitus worse, and tinnitus makes stress worse. It can become a vicious cycle if stress is not managed.
I wasn't looking for my tinnitus to reduce when I started having Epsom salt baths. It came as a complete surprise and fortunately it still remains low for most of the time. I don't think Epsom salt baths will do you any harm. I noticed I'm a lot calmer and sleep wonderfully. I now use 3 cups of Epsom salts in the bath. I get mine from Amazon in a 25kg bag. Please click on the links below and read my posts.
All the best,
Michael