My Trip to Bangkok: Stem Cell Treatment [Comments]

Discussion in 'Treatments' started by Markku, Aug 18, 2013.

    1. cmurem

      cmurem Member

      Tinnitus Since:
      08/05/2012
      Hi @EricMI.. This passage is from the website of hearing health foundation:

      "In addition, not everyone with tinnitus has an abnormal audiogram. In these cases, it is thought that individuals who have audiologically normal hearing but who suffer from tinnitus have more subtle damage to one or more restricted regions of the cochlea that are not tested by a standard audiogram. In such cases, tinnitus could be due to damage to frequencies above 8,000 Hz, which are not routinely tested, or “microlesions” in small areas of the sensory epithelium, in between those that encode standard audiometric frequencies."

      About fulness of ears, we recently discussed that if the patient does not have TMJD the ENTs mostly can not understand the cause of this case.. But according to outstanding researches the culprit could most likely be the spasm of a tiny muscle called tensor tympani which also can cause dysfunction of eustachian tube. I do not remember exactly what triggers the spasm of the tiny muscle but i think stressfully focusing on the ears could lead spasms around ears.
       
      • Like Like x 1
    2. Gustavo Bessone

      Gustavo Bessone Member

      Tinnitus Since:
      Mid 2011
      Hey Guys,

      any news from attheageofscience? It seems like we are over the 2 months mark. Would be good to have an update to see if it finally worked or not.

      Cheers to all
       
    3. yonkapin

      yonkapin Member Benefactor

      Location:
      Melbourne, Australia
      Tinnitus Since:
      March 2012
      I do wonder how he is going, hopefully he is doing okay. I thought it was pretty cool for him to share the whole experience with us on this forum - the more experience and information we can all share, the better!

      But I did things looked a bit off when it came to the bio-energenic scan stuff: My Trip To Bangkok: Stem Cell Treatment [Journal]. Looks like something done up in visual basic.

      But I remain optimistic!
       
      • Agree Agree x 1
    4. cmurem

      cmurem Member

      Tinnitus Since:
      08/05/2012
      While thinking positively, it is thought that when hair cells regenerated the jobless nerve fibres which were at one time attached to the suitable haircells to create its own frequency, have some time to reattach to suitable cells. Second phase is that the nerve fibres remember their jobs as they begin to turn vibrations into electrical signals instead of being start point of phantom noise development. Thus, i think it it could take time for tinnitus to be relieved..
       
    5. jes
      Familiar

      jes Member Benefactor

      Location:
      copenhagen denmark
      Tinnitus Since:
      10/2012
      Thats ok it takes time to recreate, if we just can start the proces, how do we do that does anybody know?
       
    6. Erlend
      Question it

      Erlend Member Benefactor

      Location:
      Scandinavia
      Tinnitus Since:
      05/2013
      I see attheedgeofscience is online now, maybe we can get some promising news :)
       
      • Like Like x 2
    7. Owch

      Owch Member

      Tinnitus Since:
      03/2013
      Thank you for the update and you have all my hopes for a successful experiment.

      I couldn't agree more with your frustration at the medical establishment's response to tinnitus as it is truly lamentable and the whole ENT specialism (with a few noteable exceptions) should hang their heads in shame for seemingly not making any efforts to warn people about the condition and its various causes... it's like dentists not telling people to brush their teeth!

      The guy behind AM-101, Thomas Meyer, is also from outside the medical establishment and without his enthusiasm (and personal wealth!) we wouldn't have that prospect either.

      Wishing you luck and looking forward to your next update!
       
    8. cmurem

      cmurem Member

      Tinnitus Since:
      08/05/2012
      Unless these guys know anything what the rest of the world do not, they are most likely trying to find a needle in a dark room. And..this is horrible..
       
    9. NeoM
      Moonlighting

      NeoM Member

      Location:
      America
      Tinnitus Since:
      10/31/2013
      Does anyone know, if attheedgeofscience doesn't reply, whether he picked this place because it was known for treating tinnitus or because it was known for treating hearing loss?
       
    10. AUTHOR
      AUTHOR
      Markku
      Inspired

      Markku Founder Staff Podcast Patron Benefactor Hall of Fame Advocate

      Tinnitus Since:
      04/2010
      Cause of Tinnitus:
      Syringing
      From the Journal:
       
    11. attheedgeofscience
      No Mood

      attheedgeofscience Member Mighty Benefactor Hall of Fame

      Location:
      Denmark
      Tinnitus Since:
      Resolved since 2016
      Cause of Tinnitus:
      See information page
      If you mean the clinic in Thailand, then Markku has already answered it above. If you mean the hospital that I will be going to this x'mas, then I picked it simply because they have the highest stem cell count in the world. However, as it happens, I did learn a couple of days ago that they treat hearing loss cases "routinely", and that they have also treated one prior case of tinnitus (which actually was one of the hospital's own physicians).

      I will be receiving twice as many stem cells as Chloe Sohl did (the most famous case of hearing loss, to date), and I will be receiving umbilical cord blood stem cells (two different sub types) which are the most potent stem cells used in therapy today. The stem cells are cultured. One of the specific things I will be discussing with the doctors is the administration of the stem cells. In Thailand everything which given via IV. For my upcoming treatment, the doctors are suggesting both IV and lumbar puncture (spinal cord injection), 600 million stem cells each - split across 8 injections (ie. 4 IV, 4 LP). Initially, I requested to have everything IV, but I will probably reconsider to have the standard option used for neurological conditions (which is 4 IV, 4 LP injections).

      The hospital is probably the one offering the widest range of stem cell therapies in the world (ie. they treat probably around 30-35 different conditions). They also treat cancer using stem cells - but this is using a different kind of stem cells - known as cancer killer stem cells - which is something I know very little about.

      For those who doubt the power of stem cells, check out this clip from youtube (not for the squeamish to begin with).

      Regenerative Stem Cell Therapy for Dogs, Cats...
       
      • Informative Informative x 1
    12. Charles Bronson

      Charles Bronson Member

      Tinnitus Since:
      1/2009
      I have had treatment done for my memory loss at emcell and now would like to go again for Tinnitus. Kindly advice which clinic did you go to in Thailand and your plans for the next treatment in a hospital.

      Thank you.
       
    13. attheedgeofscience
      No Mood

      attheedgeofscience Member Mighty Benefactor Hall of Fame

      Location:
      Denmark
      Tinnitus Since:
      Resolved since 2016
      Cause of Tinnitus:
      See information page
      I can disclose the name of the Thai clinic in a private e-mail. As for my future plans, I believe I have already disclosed as much as I can at this point in time.
       
    14. NeoM
      Moonlighting

      NeoM Member

      Location:
      America
      Tinnitus Since:
      10/31/2013
      Oh, so you'll be receiving double the umbilical you received in Thailand? So does that mean double the cost?

      I remember you stating somewhere that you knew of 5 people that stem cells helped their tinnitus. Does that mean reduction or elimination?
       
    15. RM1992

      RM1992 Member

      Tinnitus Since:
      09/2010
      I would love information on where you have been and where you are going, please feel free to private message me. I have been desperately seeking to find a clinic or hospital that deals with hearing loss and more specifically one that can provide references. I have heard from one in Mexico but they cannot find a patient that will correspond with me to let me know the outcome. It is through forums like this that we find out about options that our physicians here in the US won't even discuss.

      I have two kids and a wife that I am losing touch with daily because of my worsening hearing (loss and tinnitus). I really need the help and will find the money to get it done. I do not want to ruin all chances of gaining any natural hearing back by going the C.I. route. I'm just not ready to do that yet. The external devices would severely impact my daily life and activities and when you turn them off well - you are totally deaf.

      Please share your information and insight.

      RT
       
    16. Tenna
      Anime

      Tenna Member

      Location:
      Europe
      Tinnitus Since:
      10/2013
      Makes one think about decades ago, how pneumonia was a deathsentence, or just a lesser inflammation would get you. At that point you couldnt imagine an invention like the "oops, did I just make antibiotics", just imagine stemcells as the future's universal patch
      I must say, being that ultimate case you are attheedgeofscience:p I'm very happy for you :)
       
    17. Liesel

      Liesel Member

      Location:
      California
      Tinnitus Since:
      7/2013
      Thanks for the update! Gives me a lot of hope, not just for tinnitus treatment, but for modern medicine as a whole. It will be interesting to see stem cell treatment become refined and hopefully more widely legalized. Cheers!
       
    18. seal

      seal Member Benefactor

      Location:
      Germany
      Tinnitus Since:
      12/2007
      Cause of Tinnitus:
      acoustic trauma
      Also from me thanks for the update, I can't wait to hear from you next year - merry christmas to you already and good luck, see you next year!
       
    19. Luca
      Amused

      Luca Member

      Going for another of these treatments? How about you take those images from your Journal thread and bring them to any real Doctor in Germany, any GP will do. Tell me if he/she laughed or cried.

      Since you seem big on investments how about: http://www2.khri.med.umich.edu/giving/index.php
      some legitimate research in the past year by Dr. Shore.
       
    20. attheedgeofscience
      No Mood

      attheedgeofscience Member Mighty Benefactor Hall of Fame

      Location:
      Denmark
      Tinnitus Since:
      Resolved since 2016
      Cause of Tinnitus:
      See information page
      You forgot to say "please"...
       
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    21. Robb
      Question it

      Robb Member Benefactor

      Location:
      Germany
      Tinnitus Since:
      09/2013
      Hi At the edge of Science,

      I understand this person has insulted you as I am similar to you and would react the same.
      But please realise that there are people like you who want to do the same therapy and test it out!

      So please advise me which hospital to go!

      Thank you so much and all the best

      Robb
       
    22. Vkis

      Vkis Member

      Tinnitus Since:
      03/16/2012
      I need your updates! Although I am scaptic I need any result of this treatment. The only cure I can believe is the cure of this forum members .
       
    23. NeoM
      Moonlighting

      NeoM Member

      Location:
      America
      Tinnitus Since:
      10/31/2013
      I really don't understand why he left considering there is an ignore function where he could of just ignored this person. Even more so considering it's just one member.
       
    24. Johno
      Dreaming

      Johno Member

      Location:
      Slovakia
      Tinnitus Since:
      6/07/2012
      Cause of Tinnitus:
      acoustic trauma
      Hello, i am new here. Sorry for my bad english, i hope you will understand me. One stem cell private clinic is in the Kyjev - Ukraine. I wrote them e-mail nearly year ago and they answered me (one hour after i sent email), that price is (was) 6500 eur. I am from Slovakia, and i have not free 6500 eur, but i will try it in the future (must earn and save money for it). But maybe one of you... ???
       
    25. Aaron
      Fine

      Aaron Member

      Location:
      China
      Tinnitus Since:
      06/22/2012
      This is quite understandable, why I used a lot of money and time, but commented by somebody else like this, then I continue providing free infomation for everybody as an angel, he doesn't have the responsibility.....
       
      • Agree Agree x 1
    26. Johno
      Dreaming

      Johno Member

      Location:
      Slovakia
      Tinnitus Since:
      6/07/2012
      Cause of Tinnitus:
      acoustic trauma
      But why not to be an angel? Experiment of Attheedgeofscience was very expensive. But, he is a pioneer and, i can say, our only hope. He has resources and courage . I have courage, but no resources. And he wrote, he can feel improving of his T (in areoplane with earplugs in ears) I am curious, how about his hearing treshold curve, audiogram. It is better too? (sorry for my english)
       
    27. NeoM
      Moonlighting

      NeoM Member

      Location:
      America
      Tinnitus Since:
      10/31/2013
      I understand your point, but mine is that this is one member and there's a function where you won't see their posts, so why leave? It's not like this troublesome poster is a neighbor pounding on his door yelling, "U GON GET GOT!" A lot of people that are active on the forum and lurking probably want to read the updates.
       
    28. Aaron
      Fine

      Aaron Member

      Location:
      China
      Tinnitus Since:
      06/22/2012
      I know your idea, maybe I could ask him about the updates, basically, he had finished the treatment, but the result could only be decided at Feb end or even March, so let's just wait. Again, don't worry, we have contact with him, we will share every useful info here in TT.

      But to be honest, I didn't know there is a function like that before you mentioned here. I also don't think that the one member was making good contribution to this forum at all.
       
      • Agree Agree x 1
    29. Aaron
      Fine

      Aaron Member

      Location:
      China
      Tinnitus Since:
      06/22/2012
      Just try to put your feet into his shoes, he applied visa, fly across the continent, want to cure a incurable situation with hope but also, with fear that it will not work at all. In this kind of mental situation, you could not ask somebody to be a great angel when he is commented like that not just once, since everybody who got T here, has some anxiety or worry for there future and life. It is quite understandable, we are basically not as happy as the normal persons, we really worry for the life of ourselves.
       
      • Like Like x 1
    30. Johno
      Dreaming

      Johno Member

      Location:
      Slovakia
      Tinnitus Since:
      6/07/2012
      Cause of Tinnitus:
      acoustic trauma

      Ok, I understand him. But i am looking forward for updates. And i believe, his experiment will be sucesfull :)
       

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