Attention Put a Spotlight on Tinnitus Research

Discussion in 'Research News' started by Tinnitus Talk, Sep 18, 2016.

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    1. Tinnitus Talk
      Balanced

      Tinnitus Talk Knowledge Base

      Starting now, we are going to be working alongside our friends at the Tinnitus Research Initiative to put a spotlight on tinnitus research.

      Specifically, we are going to help raise awareness of the articles found within the Frontiers Research Topic "Towards an Understanding of Tinnitus Heterogeneity"


      Are You In to Push Tinnitus Research Forward?

      What?

      24 editors from a variety of disciplines have gathered together to work on the research topic.

      All the articles to be published (approximately 30 before the end of the year) are going to be open access.

      This year, Frontiers will award the most active research topic with a $100,000 conference.

      The aim is to use this competition as a vehicle to put a spotlight on tinnitus research.


      Benefits?

      • Unite the community and bring researchers, clinicians and patient organizations closer together. The public will be better informed about scientific progress.

      • Increase awareness of tinnitus and make it more attractive for funding agencies and for the industry to invest more money into research.

      • Make tinnitus research an appealing research topic that attracts the most brilliant scientists.


      How can you help?

      Every single view, like, share or comment on the articles helps, as does any message (posted on your website, Facebook page, Twitter, etc.) linking to the articles.
       
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    2. attheedgeofscience
      No Mood

      attheedgeofscience Member Hall of Fame

      Location:
      Denmark
      Tinnitus Since:
      Childhood
      Cause of Tinnitus:
      Head Injury
      One of the recently published papers featured as part of the Frontiers Research Topic investigates a curative (read: "treatment") approach to tinnitus - the paper can be found here:

      http://journal.frontiersin.org/article/10.3389/fnins.2016.00453/full

      The research above follows an earlier study (a clinical trial, in fact) from 2014 where 120 patients were evaluated in a double-blinded control (placebo) based investigation. A statistically significant improvement was observed in that trial. The full-text paper from 2014 is attached.
       

      Attached Files:

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    3. Vinnitus
      Tired

      Vinnitus Member Benefactor

      Location:
      Amsterdam
      Tinnitus Since:
      28/04/2016
      Cause of Tinnitus:
      Acoustic Trauma
      Shared this to all my social media. A problem with this however, is that it might be too technical for the average "social media" user. They might have a hard time in understanding that they need to view the articles in order to generate traffic. I did put some instructions with my posts of course, but I guess it is just mildly interesting (if at all) to the average user without tinnitus or even habituated patients.
       
    4. Cal18
      Pensive

      Cal18 Member Benefactor

      Tinnitus Since:
      07/2016
      Cause of Tinnitus:
      2010 Paxil W/D (Very Mild) / 2016 Celexa W/D Started month 8
      Conclusions
      Our results indicate that peripheral external ear ES changes cortical activity in tinnitus patients. One of the possible mechanisms in which ES influences tinnitus may therefore be a change in the cortical activity present within the left central temporal and frontal regions. However, whether this effect is primary or secondary to auditory system excitation remains to be investigated. Of the various forms of ES presented above, each may play a role in the tinnitus improvement observed in our study.

      I really feel like methods like these are the best path to treatment in regards to a universal solution because the brain is the final destination and there are many different things than can go wrong between the ear and the brain.

      Patients with tinnitus in the head, not the ears, were disqualified from the research.

      But I found this part of the study discouraging and this isn't the first time I've seen this. Wondering why this is - somewhere I read that it's because the tinnitus is no longer considered acute and has traveled to the brain. But this is contradictory because for many people it was immediately perceived in the brain. Makes me feel like the brain folks are screwed because so many studies are trying to treat the ear directly.
       
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    5. Markku
      Inspired

      Markku Director Staff Benefactor Hall of Fame Team Trobalt Team Tech Team Awareness Team Research

      Tinnitus Since:
      04/2010
      Cause of Tinnitus:
      Syringing
      We have just received word that the editorial board of the Frontiers Research Topic has decided to extend the deadline.

      Now the Research Topic will be considered for the year 2017, which allows more time for submitting of research papers and their promotion.
       
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    6. attheedgeofscience
      No Mood

      attheedgeofscience Member Hall of Fame

      Location:
      Denmark
      Tinnitus Since:
      Childhood
      Cause of Tinnitus:
      Head Injury
      Ordinarily, that might be perceived as good news. However, this decision of extending the deadline also means that the research topic on tinnitus will now be competing against a new set of other research topics - one of which is the following:

      http://journal.frontiersin.org/researchtopic/3099/paradigm-shifts-in-neuroscience

      For those unaware, in the last 2-3 weeks the above research topic has roughly generated as many page views as the research topic on tinnitus has generated in its entire existence (e.g. about 8 months)! The reason the research topic on Paradigm Shifts in Neuroscience is doing so well is because they have two leading research articles generating a lot of media attention. One of them is this one:

      http://journal.frontiersin.org/article/10.3389/fnsys.2016.00095/full

      The researchers have essentially found the algorithm behind intelligence (i.e. intelligence can now be put "on a bottle" if you like). As with anything of this degree of importance, that generates a lot of media attention and page views. So... it will be a tough challenge to compete against that group of researchers for sure. The rankings are now as follows:

      upload_2016-12-23_10-29-1.png

      If the deadline had not been extended, the research topic on tinnitus would be in 2nd place (instead of the 3rd).

      I have personally led the support of the research topic on tinnitus through a series of sponsored campaigns generating about 1,000 ratings on Facebook. I cannot do any more at this point. TinnitusTalk has also contributed significantly to the mission. The rest is therefore up to the worldwide tinnitus community. Social media technology such as Thunderclap could be one option to explore:

      www.thunderclap.it
       
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    7. Markku
      Inspired

      Markku Director Staff Benefactor Hall of Fame Team Trobalt Team Tech Team Awareness Team Research

      Tinnitus Since:
      04/2010
      Cause of Tinnitus:
      Syringing
      Yep, that's true, it will be difficult to compete with that one.

      For those interested in how the competition works:

      https://blog.frontiersin.org/2016/11/25/second-annual-frontiers-spotlight-award-announced-for-2018/

      Based on Frontiers’ advanced article-level and author-level impact metrics, and taking into account Altmetric scores, a list of ten exceptional Research Topics from 2017 will be shortlisted. A jury drawn from Frontiers’ Editorial Boards will proceed to choose an exceptional Research Topic from the shortlist, judging on international reach, subject novelty and coverage, interdisciplinary character, and academic excellence. The winning Research Topic will be announced in March 2018.

      Now I do think there will be a good chance for the Research Topic on tinnitus to be shortlisted.

      But when it's time for the jury to choose the winner among the ten shortlisted Research Topics, will tinnitus have a chance ("international reach, subject novelty and coverage, interdisciplinary character, and academic excellence") is another matter...

      This is actually very interesting and something that we should look into.

      We could probably organize a Thunderclap between us, TRI, BTA, ATA, AoHL, HHF and other interested parties later in 2017 to promote the research topic.

      I can see it potentially working really well.
       
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    8. attheedgeofscience
      No Mood

      attheedgeofscience Member Hall of Fame

      Location:
      Denmark
      Tinnitus Since:
      Childhood
      Cause of Tinnitus:
      Head Injury
      The research topic on tinnitus has advanced significantly in the ratings: currently, it is in a solid 2nd place in terms of page views, and, close to catching up with the leading topic ("Paradigm Shifts in Neuroscience"):

      upload_2017-1-7_19-43-57.png

      A recent publication on stochastic resonance proposes a new explanation for the induction of tinnitus:

      http://journal.frontiersin.org/article/10.3389/fnins.2016.00597/full

      The research was based on a cohort of +39,000 patients. Stochastic resonance allows a person to hear better than is actually possible, but, the downside is the generation of "internal noise" which can become a problem after worsening hearing thresholds from auditory insults (e.g. attending a concert). The research paper also looks at the shape of audiograms in tinnitus patients and the distribution of two sets of neurons in the cochlear (which helps explain why high frequency hearing loss is more likely to occur).

      This - the new model for induction of tinnitus - is a potentially quite important finding.
       
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    9. Reinier
      Not amused

      Reinier Member Benefactor

      Location:
      Netherlands
      Tinnitus Since:
      06/2015
      Cause of Tinnitus:
      Explosion starting engine
      This stochastic resonance I find very interesting.
      I never understood that I have tinnitus because the output of my cochlea is reduced after my NIHL and did not have tinnitus before NIHL when output of cochlea also was low because there was no environmental sound (using earplugs).

      This "Stochastic Resonance Controlled Upregulation of Internal Noise after Hearing Loss as a Putative Cause of Tinnitus-Related Neuronal Hyperactivity" makes more sense to me as a reason why we have tinnitus.

      Also before reading this article I already had the distinct impression that when tinnitus is present my hearing threshold is better. I read often that people experience the opposite, but despite that I maintain that this is what I experience.
       
    10. Coleoptere

      Coleoptere Member

      Location:
      The Hague
      Tinnitus Since:
      2002
      Cause of Tinnitus:
      Bell's Palsy, hearing loss
      Maybe there is a difference between low output from the cochlea and no output from the cochlea. So when hearing cell is disconnected / dead the connected nerve does not receive a signal and create (might create) tinnitus.

      When I have an impression that I do have an improvement I usual take an online test such as:

      http://hearingtest.online/

      It is of course not very accurate, but I take it under the same conditions. so if a miracle happens I will notice it. Until now that did not happen!
       
    11. Reinier
      Not amused

      Reinier Member Benefactor

      Location:
      Netherlands
      Tinnitus Since:
      06/2015
      Cause of Tinnitus:
      Explosion starting engine
      At the moment I avoid hearing tests. It simply frustrates me too much.
      Sometimes noticing something related to hearing is unavoidable. I could very well be wrong. Not yet I want to experiment with hearing tests :(. I just was interested to read what I think I noticed too. (So very subjective).

      Many people experience the opposite (from what I read on this forum). People experience that tinnitus is the reason why you do not hear certain sounds.
      In questionnaires about tinnitus a question often is: do you think your tinnitus is the reason why you do not hear well?
      I always answered "no" I do not think so.

      Also I was just pleasantly surprised that there are researchers which are not so sure about the current explenation why some people have tinnitus after noise exposure.
      I downloaded the article and read it more carefully. I will take in what I can. A lot will be to specialised for me.
       
    12. Coleoptere

      Coleoptere Member

      Location:
      The Hague
      Tinnitus Since:
      2002
      Cause of Tinnitus:
      Bell's Palsy, hearing loss
      I understand very well that hearing tests are frustrating. I also had that myself. But I also had moments that I thought my hearing is deteriorating per day to be proven wrong that actually it stayed the same.

      There are people in this forum who do have tinnitus without hearingloss whatsoever (measured up to 8k of course). But I think I have tinnitus because my ear is damaged causing both bad hearing and tinnitus. My other ear is also (less) damaged but does not have tinnitus.
       
    13. attheedgeofscience
      No Mood

      attheedgeofscience Member Hall of Fame

      Location:
      Denmark
      Tinnitus Since:
      Childhood
      Cause of Tinnitus:
      Head Injury
      Besides being in the lead, the research topic on tinnitus has reached another important milestone this weekend: 250,000 pageviews...

      upload_2017-2-5_11-7-24.png

      The milestone is reached as "Tinnitus Awareness Week 2017" kicks off tomorrow. Roughly 20 more articles will be published in the first half of 2017 thereby bringing the total to about 50 or so. Most likely the number of contributing authors will surpass 200 by the end.

      The link to the research topic can be found here:

      http://journal.frontiersin.org/researchtopic/4725/towards-an-understanding-of-tinnitus-heterogeneity
       
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    14. Steve H
      Creative

      Steve H Director Staff Benefactor Team Trobalt Team Tech Team Awareness Team Research

      Location:
      York, UK
      Tinnitus Since:
      2003
      Cause of Tinnitus:
      Flu, Noise-induced, Jaw trauma
      We should add a huge thank you to all of the visitors to TT, on here and on social channels, that helped make this happen. We've been able to orchestrate a big impact on the metrics, it is your effort that has put tinnitus at the top of the tree.

      It's fantastic to have been able to play our part as patients and influence the topic.

      You will also see an article co-authored by us as part of the research topic, appearing soon.

      We're already planning more research work and we will be involved with the Frontiers project as it continues to evolve - hopefully into the winning topic and that massively important conference that can bring more attention to tinnitus and the need for more research.
       
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