Attention Put a Spotlight on Tinnitus Research

Discussion in 'Research News' started by Tinnitus Talk, Sep 18, 2016.

    1. Tinnitus Talk
      Balanced

      Tinnitus Talk Knowledge Base

      Starting now, we are going to be working alongside our friends at the Tinnitus Research Initiative to put a spotlight on tinnitus research.

      Specifically, we are going to help raise awareness of the articles found within the Frontiers Research Topic "Towards an Understanding of Tinnitus Heterogeneity"

      How can you help?

      Every view, like, share, tweet on the articles helps, as does any message linking to the articles (posted on your blog, Facebook page, Twitter profile, etc.)

      Are You In to Push Tinnitus Research Forward?

      What?

      24 editors from a variety of disciplines have gathered together to work on the research topic.

      All the articles to be published (approximately 30 before the end of the year) are going to be open access.

      This year, Frontiers will award the most active research topic with a $100,000 conference.

      The aim is to use this competition as a vehicle to put a spotlight on tinnitus research.


      Benefits?

      • Unite the community and bring researchers, clinicians and patient organizations closer together. The public will be better informed about scientific progress.

      • Increase awareness of tinnitus and make it more attractive for funding agencies and for the industry to invest more money into research.

      • Make tinnitus research an appealing research topic that attracts the most brilliant scientists.
       
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    2. attheedgeofscience
      No Mood

      attheedgeofscience Member Hall of Fame

      Location:
      Denmark
      Tinnitus Since:
      Childhood
      Cause of Tinnitus:
      Head Injury
      One of the recently published papers featured as part of the Frontiers Research Topic investigates a curative (read: "treatment") approach to tinnitus - the paper can be found here:

      http://journal.frontiersin.org/article/10.3389/fnins.2016.00453/full

      The research above follows an earlier study (a clinical trial, in fact) from 2014 where 120 patients were evaluated in a double-blinded control (placebo) based investigation. A statistically significant improvement was observed in that trial. The full-text paper from 2014 is attached.
       

      Attached Files:

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    3. Vinnitus
      Tired

      Vinnitus Member Benefactor

      Location:
      Amsterdam
      Tinnitus Since:
      28/04/2016
      Cause of Tinnitus:
      Acoustic Trauma
      Shared this to all my social media. A problem with this however, is that it might be too technical for the average "social media" user. They might have a hard time in understanding that they need to view the articles in order to generate traffic. I did put some instructions with my posts of course, but I guess it is just mildly interesting (if at all) to the average user without tinnitus or even habituated patients.
       
    4. Cal18
      Pensive

      Cal18 Member Benefactor Team Awareness

      Location:
      San Diego
      Tinnitus Since:
      12/2016
      Cause of Tinnitus:
      2010 / 2016 Both SSRI Withdrawal and Mild Hearing Loss
      Conclusions
      Our results indicate that peripheral external ear ES changes cortical activity in tinnitus patients. One of the possible mechanisms in which ES influences tinnitus may therefore be a change in the cortical activity present within the left central temporal and frontal regions. However, whether this effect is primary or secondary to auditory system excitation remains to be investigated. Of the various forms of ES presented above, each may play a role in the tinnitus improvement observed in our study.

      I really feel like methods like these are the best path to treatment in regards to a universal solution because the brain is the final destination and there are many different things than can go wrong between the ear and the brain.

      Patients with tinnitus in the head, not the ears, were disqualified from the research.

      But I found this part of the study discouraging and this isn't the first time I've seen this. Wondering why this is - somewhere I read that it's because the tinnitus is no longer considered acute and has traveled to the brain. But this is contradictory because for many people it was immediately perceived in the brain. Makes me feel like the brain folks are screwed because so many studies are trying to treat the ear directly.
       
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    5. Markku
      Inspired

      Markku Director Staff Benefactor Hall of Fame Team Tech Team Research Team Awareness

      Tinnitus Since:
      04/2010
      Cause of Tinnitus:
      Syringing
      We have just received word that the editorial board of the Frontiers Research Topic has decided to extend the deadline.

      Now the Research Topic will be considered for the year 2017, which allows more time for submitting of research papers and their promotion.
       
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    6. attheedgeofscience
      No Mood

      attheedgeofscience Member Hall of Fame

      Location:
      Denmark
      Tinnitus Since:
      Childhood
      Cause of Tinnitus:
      Head Injury
      Ordinarily, that might be perceived as good news. However, this decision of extending the deadline also means that the research topic on tinnitus will now be competing against a new set of other research topics - one of which is the following:

      http://journal.frontiersin.org/researchtopic/3099/paradigm-shifts-in-neuroscience

      For those unaware, in the last 2-3 weeks the above research topic has roughly generated as many page views as the research topic on tinnitus has generated in its entire existence (e.g. about 8 months)! The reason the research topic on Paradigm Shifts in Neuroscience is doing so well is because they have two leading research articles generating a lot of media attention. One of them is this one:

      http://journal.frontiersin.org/article/10.3389/fnsys.2016.00095/full

      The researchers have essentially found the algorithm behind intelligence (i.e. intelligence can now be put "on a bottle" if you like). As with anything of this degree of importance, that generates a lot of media attention and page views. So... it will be a tough challenge to compete against that group of researchers for sure. The rankings are now as follows:

      upload_2016-12-23_10-29-1.png

      If the deadline had not been extended, the research topic on tinnitus would be in 2nd place (instead of the 3rd).

      I have personally led the support of the research topic on tinnitus through a series of sponsored campaigns generating about 1,000 ratings on Facebook. I cannot do any more at this point. TinnitusTalk has also contributed significantly to the mission. The rest is therefore up to the worldwide tinnitus community. Social media technology such as Thunderclap could be one option to explore:

      www.thunderclap.it
       
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    7. Markku
      Inspired

      Markku Director Staff Benefactor Hall of Fame Team Tech Team Research Team Awareness

      Tinnitus Since:
      04/2010
      Cause of Tinnitus:
      Syringing
      Yep, that's true, it will be difficult to compete with that one.

      For those interested in how the competition works:

      https://blog.frontiersin.org/2016/11/25/second-annual-frontiers-spotlight-award-announced-for-2018/

      Based on Frontiers’ advanced article-level and author-level impact metrics, and taking into account Altmetric scores, a list of ten exceptional Research Topics from 2017 will be shortlisted. A jury drawn from Frontiers’ Editorial Boards will proceed to choose an exceptional Research Topic from the shortlist, judging on international reach, subject novelty and coverage, interdisciplinary character, and academic excellence. The winning Research Topic will be announced in March 2018.

      Now I do think there will be a good chance for the Research Topic on tinnitus to be shortlisted.

      But when it's time for the jury to choose the winner among the ten shortlisted Research Topics, will tinnitus have a chance ("international reach, subject novelty and coverage, interdisciplinary character, and academic excellence") is another matter...

      This is actually very interesting and something that we should look into.

      We could probably organize a Thunderclap between us, TRI, BTA, ATA, AoHL, HHF and other interested parties later in 2017 to promote the research topic.

      I can see it potentially working really well.
       
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    8. attheedgeofscience
      No Mood

      attheedgeofscience Member Hall of Fame

      Location:
      Denmark
      Tinnitus Since:
      Childhood
      Cause of Tinnitus:
      Head Injury
      The research topic on tinnitus has advanced significantly in the ratings: currently, it is in a solid 2nd place in terms of page views, and, close to catching up with the leading topic ("Paradigm Shifts in Neuroscience"):

      upload_2017-1-7_19-43-57.png

      A recent publication on stochastic resonance proposes a new explanation for the induction of tinnitus:

      http://journal.frontiersin.org/article/10.3389/fnins.2016.00597/full

      The research was based on a cohort of +39,000 patients. Stochastic resonance allows a person to hear better than is actually possible, but, the downside is the generation of "internal noise" which can become a problem after worsening hearing thresholds from auditory insults (e.g. attending a concert). The research paper also looks at the shape of audiograms in tinnitus patients and the distribution of two sets of neurons in the cochlear (which helps explain why high frequency hearing loss is more likely to occur).

      This - the new model for induction of tinnitus - is a potentially quite important finding.
       
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    9. Reinier
      Not amused

      Reinier Member Benefactor

      Location:
      Netherlands
      Tinnitus Since:
      06/2015
      Cause of Tinnitus:
      Explosion starting engine
      This stochastic resonance I find very interesting.
      I never understood that I have tinnitus because the output of my cochlea is reduced after my NIHL and did not have tinnitus before NIHL when output of cochlea also was low because there was no environmental sound (using earplugs).

      This "Stochastic Resonance Controlled Upregulation of Internal Noise after Hearing Loss as a Putative Cause of Tinnitus-Related Neuronal Hyperactivity" makes more sense to me as a reason why we have tinnitus.

      Also before reading this article I already had the distinct impression that when tinnitus is present my hearing threshold is better. I read often that people experience the opposite, but despite that I maintain that this is what I experience.
       
    10. Coleoptere

      Coleoptere Member

      Location:
      The Hague
      Tinnitus Since:
      2002
      Cause of Tinnitus:
      Bell's Palsy, hearing loss
      Maybe there is a difference between low output from the cochlea and no output from the cochlea. So when hearing cell is disconnected / dead the connected nerve does not receive a signal and create (might create) tinnitus.

      When I have an impression that I do have an improvement I usual take an online test such as:

      http://hearingtest.online/

      It is of course not very accurate, but I take it under the same conditions. so if a miracle happens I will notice it. Until now that did not happen!
       
    11. Reinier
      Not amused

      Reinier Member Benefactor

      Location:
      Netherlands
      Tinnitus Since:
      06/2015
      Cause of Tinnitus:
      Explosion starting engine
      At the moment I avoid hearing tests. It simply frustrates me too much.
      Sometimes noticing something related to hearing is unavoidable. I could very well be wrong. Not yet I want to experiment with hearing tests :(. I just was interested to read what I think I noticed too. (So very subjective).

      Many people experience the opposite (from what I read on this forum). People experience that tinnitus is the reason why you do not hear certain sounds.
      In questionnaires about tinnitus a question often is: do you think your tinnitus is the reason why you do not hear well?
      I always answered "no" I do not think so.

      Also I was just pleasantly surprised that there are researchers which are not so sure about the current explenation why some people have tinnitus after noise exposure.
      I downloaded the article and read it more carefully. I will take in what I can. A lot will be to specialised for me.
       
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    12. Coleoptere

      Coleoptere Member

      Location:
      The Hague
      Tinnitus Since:
      2002
      Cause of Tinnitus:
      Bell's Palsy, hearing loss
      I understand very well that hearing tests are frustrating. I also had that myself. But I also had moments that I thought my hearing is deteriorating per day to be proven wrong that actually it stayed the same.

      There are people in this forum who do have tinnitus without hearingloss whatsoever (measured up to 8k of course). But I think I have tinnitus because my ear is damaged causing both bad hearing and tinnitus. My other ear is also (less) damaged but does not have tinnitus.
       
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    13. attheedgeofscience
      No Mood

      attheedgeofscience Member Hall of Fame

      Location:
      Denmark
      Tinnitus Since:
      Childhood
      Cause of Tinnitus:
      Head Injury
      Besides being in the lead, the research topic on tinnitus has reached another important milestone this weekend: 250,000 pageviews...

      upload_2017-2-5_11-7-24.png

      The milestone is reached as "Tinnitus Awareness Week 2017" kicks off tomorrow. Roughly 20 more articles will be published in the first half of 2017 thereby bringing the total to about 50 or so. Most likely the number of contributing authors will surpass 200 by the end.

      The link to the research topic can be found here:

      http://journal.frontiersin.org/researchtopic/4725/towards-an-understanding-of-tinnitus-heterogeneity
       
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    14. Steve H
      Creative

      Steve H Director Staff Benefactor Team Tech Team Research Team Awareness

      Location:
      York, UK
      Tinnitus Since:
      2003
      Cause of Tinnitus:
      Flu, Noise-induced, Jaw trauma
      We should add a huge thank you to all of the visitors to TT, on here and on social channels, that helped make this happen. We've been able to orchestrate a big impact on the metrics, it is your effort that has put tinnitus at the top of the tree.

      It's fantastic to have been able to play our part as patients and influence the topic.

      You will also see an article co-authored by us as part of the research topic, appearing soon.

      We're already planning more research work and we will be involved with the Frontiers project as it continues to evolve - hopefully into the winning topic and that massively important conference that can bring more attention to tinnitus and the need for more research.
       
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    15. Markku
      Inspired

      Markku Director Staff Benefactor Hall of Fame Team Tech Team Research Team Awareness

      Tinnitus Since:
      04/2010
      Cause of Tinnitus:
      Syringing
      Prof. Dr. Berthold Langguth (Chairman of the Tinnitus Research Initiative Executive Board and the neurologist in charge of the outpatient department at the University Hospital of Regensburg) sent us the following message (saying it's all okay to publish it). I'd like to add that the first paragraph relates to the fact that we just earlier got notified that an upcoming paper we're co-editors of has provisionally been accepted to a journal. Secondly, @Steve H attended the TINNET mini-conference this week, where he gave a presentation called "Crowdsensing: Big Data and Patient Participation." Prof. Dr. Langguth was also present. We'll have another post up soon about the conference and Steve's thoughts.


      langguth.jpg Dear Steve, Dear Markku,

      After the article about retigabine for tinnitus, this is now the second scientific article in which Tinnitus Hub plays a major role.

      I think that this is a great opportunity to communicate the relevance of patient involvement for the future of tinnitus research to all the users of Tinnitus Hub.

      Patients, clinicians and researchers have a common interest: better treatment of tinnitus.

      We all share the belief that funding for tinnitus research is very low in comparison of the burden that is caused worldwide by tinnitus and I am convinced that more investment in tinnitus research would clearly increase the chances for better treatment options.

      We are now witnessing a paradigm change in the scientific world as a consequence of new communication tools. Traditionally decisions about allocation of research money were made by the scientific community in a peer review process. But with new communication tools the opinion of patients becomes more and more important. The decision which research is valuable and where the research money should go, will become more and more democratic and can be influenced by the activity of patients. And this will be valid for all forms of research money whether it comes from crowd funding (where contributing people have the most direct influence on the direction of research), from private funds or from tax money.

      An example is the Spotlight Award of Frontiers. The research topic that has the highest visibility and the highest impact (as measured by clicks, reads, likes, shares, comments..) will win funds for a conference.

      At the moment the Research Topic on Tinnitus Heterogeneity http://journal.frontiersin.org/researchtopic/4725/towards-an-understanding-of-tinnitus-heterogeneity, in which also the current article appears, is on rank 10 out of more than 3800.

      The more people read, like, share and comment on the research papers on this Research Topic, the higher the chances to win the spotlight award and to increase the visibility of the relevance of tinnitus research for society. Becoming one of the most accessed research topics will also have an impact on policy and decision makers about the allocation of future public research money.

      Thus keep showing your interest in tinnitus research in order to improve tinnitus therapy in the near future.

      Best and congratulations to all your achievements.

      Berthold​
       
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    16. Markku
      Inspired

      Markku Director Staff Benefactor Hall of Fame Team Tech Team Research Team Awareness

      Tinnitus Since:
      04/2010
      Cause of Tinnitus:
      Syringing
      Screen Shot 2017-04-29 at 0.26.26.png

      Screen Shot 2017-04-29 at 0.27.01.png

      Screen Shot 2017-04-29 at 0.27.18.png
       
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    17. glynis
      Feminine

      glynis Member Benefactor Hall of Fame Ambassador Team Awareness

      Location:
      England, Stoke-on-Trent
      Tinnitus Since:
      2004
      Cause of Tinnitus:
      Meniere's Disease
      @Steve H,
      Spotted you on Twitter with David Stockdale and Prof David Baguley...

      C8PBWrYVYAEl2-E.jpg
       
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    18. Steve H
      Creative

      Steve H Director Staff Benefactor Team Tech Team Research Team Awareness

      Location:
      York, UK
      Tinnitus Since:
      2003
      Cause of Tinnitus:
      Flu, Noise-induced, Jaw trauma
      I hope that I managed to get the patient side across and build some stronger ties with the researchers there. My aim is to be able to make what we do here at TT matter for research. So when we decide to do a survey or work on something we can do it with researchers and make sure that it helps to build understanding and the knowledge base for tinnitus.

      Laughing at the second picture on the tweets there, I look like I'm unimpressed with something! Think they caught a particularly bad pose.... It went well. I'll write things up when I get the chance. I'm pretty tired, got back home at 1:30am yesterday, after a 2 hour drive from the airport. I can't feel too bad though as David from BTA was on the same flight as me and he had to go straight to a different airport to catch a US flight early this morning.

      I think I may need to put a note on a couple of these pics because I look asleep in some of the others.

      For the record it was a really good meeting with WG5. I have this unfortunate habit of being caught in pictures at the wrong time :)
       
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    19. Tinnitus Talk
      Balanced

      Tinnitus Talk Knowledge Base

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    20. RockyDoctah
      Happy

      RockyDoctah Member

      Location:
      'Murica
      Tinnitus Since:
      5/10/16
      Cause of Tinnitus:
      Not really sure...Bad ear infection?
      This looks promising.
       
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    21. Mic
      Buzzed

      Mic Member Team Research

      Tinnitus Since:
      04/2014
      Cause of Tinnitus:
      Otitis media / Ear infection
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