Studies Confirm Tinnitus Improves Over Time

Discussion in 'Research News' started by gotyoubynuts, Jun 9, 2016.

    1. Emperor-Drax

      Emperor-Drax Member

      Location:
      Australia
      Tinnitus Since:
      10/06/2018
      Cause of Tinnitus:
      Loud bang on metal with a mallet
      ALBERT... COSSACKS ARE IN RUSSIA!
       
    2. IAmCalifornia
      Wishful

      IAmCalifornia Member Benefactor Hall of Fame

      Location:
      Pennsylvania
      Tinnitus Since:
      this year
      Cause of Tinnitus:
      i wish i knew
      studies confirm that studies are FULL OF CRAP
       
      • Agree Agree x 10
      • Winner Winner x 3
      • Like Like x 1
    3. IntotheBlue03

      IntotheBlue03 Member

      Location:
      Philadelphia PA
      Tinnitus Since:
      12/2021
      Cause of Tinnitus:
      Cervical/TBD
      I just hope they’re gone because they got better and not because of S.

      Glad I’m reading this now with Susan Shore around the corner.
       
    4. Athens

      Athens Member

      Tinnitus Since:
      09/27/2020
      Cause of Tinnitus:
      Unknown
      FWIW: I read an interview with an expert on tinnitus that the rate of self-harm among the tinnitus population is no greater than the general population. There have definitely been studies showing that tinnitus intensity/volume does not correlate with tinnitus distress.
       
      • Like Like x 3
    5. IntotheBlue03

      IntotheBlue03 Member

      Location:
      Philadelphia PA
      Tinnitus Since:
      12/2021
      Cause of Tinnitus:
      Cervical/TBD
      Thank you. This is very helpful information especially at present.
       
    6. antonio77

      antonio77 Member

      Tinnitus Since:
      1991
      Cause of Tinnitus:
      unknown
      Tinnitus never gets better with time. It gets worse, but if you ask someone who has had it for 3 or 5 years, they will think that it has improved because they have gotten used to it.

      Ask them in 10, 15 or 30 years and they will tell you that it has gotten worse.

      I have had it for over 30 years. After a few years you get used to it and adapt but at the same time it gets worse, and it happens that this worsening exceeds the habituation capacity (not at first, but after many years when it gets much worse, yes).
       
      • Agree Agree x 5
      • Informative Informative x 3
      • Hug Hug x 2
      • Winner Winner x 1
    7. Athens

      Athens Member

      Tinnitus Since:
      09/27/2020
      Cause of Tinnitus:
      Unknown
      It is nice to have something as delightful as worsening tinnitus to look forward to in the future.
       
      • Agree Agree x 3
      • Like Like x 1
    8. Don Tinny

      Don Tinny Member

      Location:
      Argentina
      Tinnitus Since:
      2017 (worsening)
      Cause of Tinnitus:
      Loud concert with ear plugs
      It improves. I agree. It's not always habituation, it can fade a lot over time (years).

      But loud sounds are everywhere, and one day you ruin your improvement going to a party, a concert or working in a loud environment, and finally it gets worse.
       
      • Agree Agree x 3
      • Like Like x 2
    9. IntotheBlue03

      IntotheBlue03 Member

      Location:
      Philadelphia PA
      Tinnitus Since:
      12/2021
      Cause of Tinnitus:
      Cervical/TBD
      Here’s to hoping Susan Shore’s device can bring an end to enduring this for years.

      I cannot see any of us having to endure tinnitus with no treatments after the next few years. I think bimodal stimulation will have great success that can and will be improved upon.

      I wonder if it has gotten worse for older folks in the past because of age related hearing loss and being at risk for additional tinnitus? Hopefully that won’t be the case in the future.
       
      • Like Like x 3
      • Agree Agree x 1
      • Useful Useful x 1
      • Optimistic Optimistic x 1
    10. Ozwel
      Curious

      Ozwel Member

      Location:
      France
      Tinnitus Since:
      2005 (I was 19)
      Cause of Tinnitus:
      Auditive trauma
      This is exactly it. I've had tinnitus for 17 years now, and exactly like you said:

      - first year: nightmare.

      - second year: let's see how I can live my life with this.

      - 3-10 years: it's ok but I'd be happy to live without it.

      - 10 years: new tinnitus on top of the exiting ones, some new frequencies that have become harder to cope with. Sometimes I felt like I was hearing things from outside but people around me could not hear it. That's when pulsatile tinnitus arrived, like morse code or trucks on the reverse gear. Nights became way shorter with this. Then after a couple of years I could get used to it again, etc. but in the end my head is full of sounds and will only get more sounds as I get older.
       
      • Agree Agree x 2
      • Hug Hug x 2
      • Like Like x 1
    11. aura

      aura Member Benefactor Ambassador Hall of Fame

      Location:
      Romania
      Tinnitus Since:
      05/2012
      Cause of Tinnitus:
      Unknown
      This is exactly how I feel now.

      It got worse (multiple tones and louder) but I cope with it better.

      And by coping I strictly mean that I'm not in the panic mode all the time.

      I'm almost always aware of it and it bugs me. But I'm not screaming in my head anymore "make it stop, make it stop now, if it doesn't stop I'll go insane."

      This is my progress after one year. But I don't know if I can keep up with the new tones.

      Also, it's not just about the tinnitus. My hyperacusis sure doesn't help.
       
      • Hug Hug x 2
      • Agree Agree x 1
    12. UKBloke
      Caffeine

      UKBloke Member Benefactor

      Tinnitus Since:
      1991
      Cause of Tinnitus:
      Loud Music / family history
      "Exceeds the habituation capacity". Yep, that's a brilliantly erudite and sobering statement, and one I can identify with.

      Tinnitus since '91 just like me. You and I are brothers in arms, man. How is life on a day-to-day basis for you now?

      I enjoyed 'habituation' for about 25 years. All good really, no complaints. For the last 3-5 years, however, the increased volume and capriciousness of it, together with mild hyperacusis concocted a situation that makes me doubt I will ever be able to return to life as it was.

      But still there are good days. And even on bad days there are good periods. So I get through it and I manage. I don't know how I do that, but I do. "Acceptance" perhaps, an inevitable result of time passed? "Fatalistic" - there ain't anyone or anything out there gonna help me... Dunno what it is, but I know what it isn't - it isn't habituation.
       
      • Hug x 4
      • Friendly x 2
      • Like x 1
      • Agree x 1
      • Informative x 1
    13. IntotheBlue03

      IntotheBlue03 Member

      Location:
      Philadelphia PA
      Tinnitus Since:
      12/2021
      Cause of Tinnitus:
      Cervical/TBD
      You are all warriors on here. I’m continually humbled and heartbroken by your stories but inspired by the tenacity of your will and determination. I know people are sick of me cheerleading Susan Shore but here’s to hoping bimodal stimulation can reverse these worsenings.
       
      • Hug Hug x 2
      • Agree Agree x 1
      • Friendly Friendly x 1
    14. DebInAustralia
      No Mood

      DebInAustralia Member Benefactor Hall of Fame Advocate

      Location:
      Geelong, Victoria
      Tinnitus Since:
      12/2013
      If people are sick of your cheerleading, then I wonder what others think about my interest in her research since 2013!
       
      • Like Like x 1
      • Hug Hug x 1
    15. Reed19
      No Mood

      Reed19 Member

      Tinnitus Since:
      At least 4 years ago or my whole life
      Cause of Tinnitus:
      Unknown, ear infection, head trauma, music, drugs, badsleep?
      Yeah that's what I've heard. Pretty much no cases of the volume getting better past two years with chronic tinnitus. And people who have tinnitus are much more susceptible to acquire new tinnitus whether it's their brains or their new damaged and sensitive ears.
       
    16. IntotheBlue03

      IntotheBlue03 Member

      Location:
      Philadelphia PA
      Tinnitus Since:
      12/2021
      Cause of Tinnitus:
      Cervical/TBD
      We are certainly the Shore Squad @DebInAustralia :)
       
      • Funny Funny x 1
    17. Rayk

      Rayk Member

      Tinnitus Since:
      09/2017
      Cause of Tinnitus:
      Probably loud music through headphones followed by Stress
      I've had tinnitus for 3 and a half years. No improvement. It's almost certainly worse.
       
      • Hug Hug x 1
    18. DimLeb

      DimLeb Member

      Tinnitus Since:
      03/2021
      Cause of Tinnitus:
      Idiopathic Cochleopathy or Maybe Loud Music
      I'm almost at 1 year anniversary. My tinnitus is definitely worse, more volume, a lot more tones, bigger volume fluctuations. Still mild though (audible in quiet rooms).

      Also, nothing happened to worsen it: no loud noise exposure, no headphones, 95% of time staying at home, no medication, no infection, no other notable event.

      I suppose if it happens to start off very mild, it can only get worse...
       
      • Hug Hug x 1
    19. ChrisBoyMonkey

      ChrisBoyMonkey Member Podcast Patron

      Location:
      US
      Tinnitus Since:
      2019
      Cause of Tinnitus:
      Noise
      Can confirm.
       
      • Hug Hug x 1
    20. Athens

      Athens Member

      Tinnitus Since:
      09/27/2020
      Cause of Tinnitus:
      Unknown
      FWIW, I do not agree that tinnitus always gets better. I also do not agree that tinnitus never gets better. Apparently, there are people with screaming tinnitus who do not consider it a major factor in their life. I think that high strung, obsessive types might struggle more with it.
       
    21. Mike82
      Wishful

      Mike82 Member

      Tinnitus Since:
      12/2014
      High strung, obsessive type over here!

      I've had screaming, insanely loud tinnitus for just over seven years now. There is no way it has improved over time. It has demonstrably gotten worse.

      In saying that, for want of a better analogy, you just have to learn to cope with it. My ears are ALWAYS ringing. I can ALWAYS hear my tinnitus. There has not been a single situation for the past seven years where I have not been able to hear it.

      But it's just... there. And your body seems to view it less and less as a threat over time.

      It's still infuriating. It still occupies my thoughts multiple times a day. I recently turned 40, and my hearing is so poor that hearing aids - and soon - are the only viable option.

      It sucks, and I wouldn't wish this upon my worst enemy. But in those seven years I've gotten (re)married, started an art collection, enjoyed a few memorable holidays, commenced new jobs and done a bunch of other cool things. Tinnitus doesn't define you - or it shouldn't - it's just something that's always there.

      That said, and on the topic at hand, because it can't be objectively measured, I suspect most medical doctors find the thought of intrusively loud tinnitus that exists over the hearing threshold inconceivable. You can tell them how loud the ringing is, but because there's no way for them to measure it, they simply can't comprehend it.
       
      • Like Like x 2
      • Agree Agree x 2
      • Hug Hug x 1
      • Informative Informative x 1
    22. IntotheBlue03

      IntotheBlue03 Member

      Location:
      Philadelphia PA
      Tinnitus Since:
      12/2021
      Cause of Tinnitus:
      Cervical/TBD
      This is refreshing for the Type As like me experiencing severe anxiety and PTSD from tinnitus.
       
      • Like Like x 1
    23. UKBloke
      Caffeine

      UKBloke Member Benefactor

      Tinnitus Since:
      1991
      Cause of Tinnitus:
      Loud Music / family history
      Great post and absolutely on-point. Christopher Cederroth also discussed issues like this in the latest podcast.

      He went on to state that there needs to be a distinction made between early onset tinnitus patients and those who are chronic/severe sufferers like you and me, highlighting nuances that make subtyping difficult, particularly where research towards either a cure or effective management is concerned.

      Actually, one of the biggest travesties of all is that research seems to favour those with early onset tinnitus. I've never been able to understand why so much money is spent on patients that stand the biggest chance of all to "make peace" naturally with their tinnitus within the first 2-3 years. Show me a slice of curative research for which the entry criteria is, tinnitus onset >5 years, and I'll be (forgive the pun) all ears!
       
      • Like Like x 3
    24. DaveFromChicago

      DaveFromChicago Member Podcast Patron Benefactor

      Tinnitus Since:
      01/2014
      Cause of Tinnitus:
      Headcold/Flu
      A very insightful point, but it only underscores the sort of indefensible, self-serving alibis from ENT Doctors regarding their inexcusable dismissal of the severity of this condition.

      What sort of pain is objectively measurable? Every sort of pain that I have ever had (Migraines, Arthritis, a torn Rotator Cuff, a Urinary Tract infection,etc.) is only absolutely subjective and must be accepted at face value according to what the sufferer reports.

      Granted, an MRI, for example, can provide a picture of the torn tissue of a Rotator Cuff, but the degree and character of the internally subjective pain varies and is only amenable to each patient's specific description.

      In fact, the numerous YouTube sound examples by tinnitus sufferers presenting a nearly identical facsimile of what they hear is far more accurately conveyed than, for example, any available external demonstration of what my Migraine pain feels like.

      For a definitive demonstration of this, check out "Tinnitus Nightmare" on YouTube; if this would not persuade a Physician about the "inconceivable", hellish nature of this, then I have no idea what would.
       
      • Like Like x 1
    25. Joeseph Stope
      Innocent

      Joeseph Stope Member

      Tinnitus Since:
      1992
      Cause of Tinnitus:
      noise? infection? negative stress? other?
      Well, just to give you a somewhat vague impression of the other side of the "transaction" -- back in the days when I had insurance, after much pressure from my ENT, the insurance company allowed me one week in a... umm... the Germans call it a Kur-ort. Now I ain't no German (I'm just anther Mick) but it gave me a feeling of pride (?) sense of belonging (?) or just plain satisfaction that the Germans had actually set up a centre for the treatment of tinnitus.

      Well we got loads of advice and lectures and tips and such. The main message was "Get up off your ass and go out and get on with life". And it all kind of centered around sound therapy. But once or twice a week we were given a lecture. I recall the head of the place telling us all assembled tinnitus-people that his Pappy was or had been an ENT as well. When he announced to his Pa in younger years that he had decided to go down this route the answer he got was: "OK! your decision. You can make a good living out of this, but stay away from tinnitus patients. We just don't know the answer. We just don't know." Long story short, he hadn't followed his Pappy's advice. Mind you it did help the particular case of "me" quite a lot.

      But I'm back here thumping a keyboard now, ain't I.
       
    26. T Toledo OH

      T Toledo OH Member

      Tinnitus Since:
      2/26/20
      Cause of Tinnitus:
      Likely loud noise and earbuds
      Please share the data on this.
       
      • Agree Agree x 1
    27. Gb3

      Gb3 Member

      Tinnitus Since:
      12/19
      Cause of Tinnitus:
      Sshl
      It’s personal experience. He doesn’t have any data.
       
      • Agree Agree x 2
    28. T Toledo OH

      T Toledo OH Member

      Tinnitus Since:
      2/26/20
      Cause of Tinnitus:
      Likely loud noise and earbuds
      That’s what I figured. A dim outlook. I know of many people who got better and did not get worse with age.
       
      • Like Like x 4
    29. Mister Muso
      No Mood

      Mister Muso Member

      Location:
      Scotland
      Tinnitus Since:
      2011 / April 2019
      Cause of Tinnitus:
      Loud music
      This.

      I'd trade my hyperacusis for a few extra tinnitus tones any day.
       
      • Agree Agree x 1
    30. DebInAustralia
      No Mood

      DebInAustralia Member Benefactor Hall of Fame Advocate

      Location:
      Geelong, Victoria
      Tinnitus Since:
      12/2013
      Bring it home Shore!
       
      • Like Like x 2
Loading...

Share This Page