Tinnitus Loudness Scale?

Discussion in 'Support' started by OddV, Nov 17, 2014.

    1. linearb
      Psychedelic

      linearb Member Benefactor Hall of Fame

      Location:
      temporarily banished from this plane of existence.
      Tinnitus Since:
      1999
      Cause of Tinnitus:
      karma
      I'm 2-3 under normal circumstances, and 7-9 if I am severely stressed out, overtired, or heavily fixated on my tinnitus.

      So, for me, whether or not I can perceive the sound over background noises is a product of my attention processes, and not the other way around.

      "Loudness" is kind of a weird concept; these sounds are internally generated and have no real db value associated with them.
       
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    2. Telis

      Telis Member Hall of Fame

      Tinnitus Since:
      11/2013
      Cause of Tinnitus:
      Drugs barotrauma
      I don't know how loud my T is on a scale but it bothers me 24 7 no matter what I'm doing. My mind can be on it or not, doesn't make a difference, I hear it loud and clear. Also nothing really masks it, noise seems to just make it louder.
       
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    3. NiNyu

      NiNyu Member

      Tinnitus Since:
      29/12/2014
      Cause of Tinnitus:
      barotrauma? stress?
      @linearb , every sound we hear is being interally processed and perceived no matter the db. That being said, you could try to mask your T and check the db value of the masking device. Thus getting some values of loudness.

      I'm with @Telis every sound makes it just louder. And it is already LOUD!
       
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    4. @NiNyu and @Telis Any sounds just made my T louder too. I think it is because I was getting active inputs from the cochleovestibular nerve. What have you tried for masking?
       
    5. NiNyu

      NiNyu Member

      Tinnitus Since:
      29/12/2014
      Cause of Tinnitus:
      barotrauma? stress?
      @svintegrity , in my case I think the neurons (left) create painful noises in the range of the offline frequencies, and I have plenty of them!, and as soon as my healthy ear (right) hears any sound(s) in the same frequencies the noise gets boosted up right through the skull. Worse, it stays on that increased level for hours to come!

      So far I tried to mask with wind, water, rain, 4hz isochronic pulses, plane ambient sound, cat purr and womb sounds. But most of the time it doesn't help. T gets louder and louder and louder..

      ..I really should consider some meds.
       
    6. @NiNyu Yes, I had the same experience with my healthy ear. I tried all of the masking sounds you mention too, only making the T louder. I even tried two different kinds of masking hearing aids. Are you sleeping at all these days? What meds are you considering? If you can find a combination that will work for you, it will give you a leg up. I am pulling for you!
       
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    7. NiNyu

      NiNyu Member

      Tinnitus Since:
      29/12/2014
      Cause of Tinnitus:
      barotrauma? stress?
      @svintegrity , sleep.. sleep eludes me greatly. Though I'm craving for it since it's the only safe place that feels sane and reasonable to me. This world here has become all pain. A sad world. I do lie in bed for hours wanting to open the door to my new world REM sleep. And it hurts. It hurts so much. The door is heavily guarded and always locked. I don't have the key nor do I have any weapons or tools and my body is just too weak. Eventually after hours and hours of toss and turn and endless tears the guards fall asleep and I can sneak up to pickpocket the key to my new world. I open the door and slowly enter. I drift off. And I never want to leave this place. This beautiful place. Never! Time is strange in dreams, you know. But everything is possible with a calm mind and a genuine smile on your face. But as you know, time is very strange in there and not long before the guards of hell will awake from their dark, gloomy slumber and find the door behind them open. Determined they enter my new world, find me and force me back to pure purgatory. I do wake up in pain. In hell. Of course, this happens innumerous times till I can't find the way back to my new word. REM Sleep. But I don't want to get up. No I am way too weak. Way too damaged. I lie there.. for a long time thinking, 'Why?' No! I really don't want this anymore! I'm fed up. I had enough. I'm done. This ain't nature anymore. F*ck hell !!! -- I'd better leave this place for good. There's nothing left for me to enjoy -- here.

      What meds do I consider? I'd like to try morphine. The more the merrier, as they say. Perhaps mighty Morpheus can fight off those guards? Maybe free me of hell?
       
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    8. @NiNyu Your words are powerful. I really feel for you. I wish there were something I could say or do help ease your burden. Please know that I do understand the pain and suffering you are experiencing, as I have been there. I am still at times. You are right on target when you say that "anything is possible with a calm mind and a genuine smile on your face." I have had a challenging day here, and I have tried to keep a calm mind. Not always easy, but essential. My words seem so trivial after what you have written here, but please know that I understand the deepness of your feelings, of your pain. Your rawness is evident. Would you consider any meds that have a different purpose other than morphine? Perhaps something to help get you over the hump? To help you sleep in the short-term? My heart goes out to you.
       
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    9. linearb
      Psychedelic

      linearb Member Benefactor Hall of Fame

      Location:
      temporarily banished from this plane of existence.
      Tinnitus Since:
      1999
      Cause of Tinnitus:
      karma
      Opiates can be ototoxic; morphine definitely makes my ears ring more prominently.... of course, you tend to stop caring about it.
       
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    10. Senketsu

      Senketsu Member

      Location:
      Germany
      Tinnitus Since:
      01/2015
      Cause of Tinnitus:
      Unknown (No hearing loss)
      My Tinnitus started in 01/2015. No medical cause was found. I have perfect hearing (no hearing loss). In my right ear I hear an "cricket/morse-code"-sound at 1450hz", in my left hear there is a constant tone at 4000hz. In general, I can't hear my Tinnitus when I am outside my apparment. I need to plug my ears to hear it.

      Using your Tinnitus-Loudness Scale my one (both ears) is a

      2/10 in average (normal day / lets say 95% of the year)
      3/10 on "bad days".
      5/10 (Once; after doing some exercise (Karate))

      Note:
      I can supress the right ear tinnitus completely by closing my nose and building up pressure. I don't know why? any tips
      - I am sorry for typing errors, i am german.
       
    11. JohnK
      Busy

      JohnK Member

      Location:
      London
      Tinnitus Since:
      10/26/2015 (habituated) 5/13/2019
      Cause of Tinnitus:
      Doxycycline (2015) Otimize ear drops [neomycin] (2019)
      I feel like maybe you need 3 numbers here...

      -loudness itself
      -maskability (not necessarily tied to loudness)
      -emotional affect
       
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    12. DebInAustralia
      Fine

      DebInAustralia Member Benefactor Advocate

      Location:
      Geelong, Victoria
      Tinnitus Since:
      30/12/13
      Or maybe we could move away from measuring our t?
       
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    13. John Mullarkey
      In love

      John Mullarkey Member

      Tinnitus Since:
      June 24th 2016
      Cause of Tinnitus:
      loud Noise exposure
      Mines a 2 but i still use brown noise to mask it at night . I cant hear it at all throughout the day only in complete silence and when i focus on it its gets to a 4 or 5
       
    14. TheDanishGirl
      Sad

      TheDanishGirl Member Benefactor Hall of Fame

      Location:
      Denmark
      Tinnitus Since:
      05/2017 (H since 06/2017)
      Cause of Tinnitus:
      long term noise exposure (headphones), maybe some stress.
      I can not scale my T on that scale.

      I would say volume wise my T is a 4, but distress wise it is an 8 as i need masking to sleep and that it causes me a certain amount of distress overall.
       
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    15. Tinker Bell

      Tinker Bell Member Hall of Fame

      Location:
      U.S.
      Tinnitus Since:
      02/2017
      Cause of Tinnitus:
      SSHL from virus
      I think that's why doctors often measure tinnitus based on its impact. Or at least the audiologists and ENTs that I see have. They don't ask how loud it is, they ask how it impacts me: am I able to sleep, read, watch TV, enjoy time with my kids, etc.

      Of course, I have had a few take one look at my audiogram and comment that my tinnitus must be very loud and high pitch -- so maybe they feel there's no reason to ask. :(
       
    16. Sam Bridge

      Sam Bridge Member Benefactor

      Tinnitus Since:
      2012
      Cause of Tinnitus:
      Loud music/gigs probably
      Do you have any sound on while watching tv? E.g. White noise
       
    17. Tinker Bell

      Tinker Bell Member Hall of Fame

      Location:
      U.S.
      Tinnitus Since:
      02/2017
      Cause of Tinnitus:
      SSHL from virus
      No. With my hearing loss, I feel like my good ear gets overwhelmed when there are too many sounds. Like if my kids are both talking at the same time, I can't understand either of them. Or if we go to a restaurant, everything jumbles together. I used to be able to focus my hearing. Does that make sense?

      I think white noise in just my bad ear would be okay, but my good ear gets annoyed with white noise.
       
    18. Carlyi
      Blah

      Carlyi Member

      Location:
      Prague, Czech Republic
      Tinnitus Since:
      3/2017
      Cause of Tinnitus:
      TMJ
      everyday it's different. Today a 1, sometimes 2... Thank God.
       
    19. Jantine

      Jantine Member

      Tinnitus Since:
      2009
      Cause of Tinnitus:
      Trauma
      7, hear it always, can't relax anymore. I'm the CEO of a big company and that's the only reason I'm still going.
       
    20. Jake007

      Jake007 Member Benefactor

      Location:
      Nebraska
      Tinnitus Since:
      December 2016
      Cause of Tinnitus:
      hearing loss for long time, chainsaw, infections
      This happens to me also, exactly the same.
       
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    21. JoyBenz007
      No Mood

      JoyBenz007 Member

      Location:
      Texas
      Tinnitus Since:
      May 1, 2017
      Cause of Tinnitus:
      Unknown
      I feel like mine ranges from a 2-5
       
    22. TinnitoToto
      Buzzed

      TinnitoToto Member

      Tinnitus Since:
      05/2017
      Cause of Tinnitus:
      Unknown
      I'm new member have Tinnitus since May 2017, it's been only three months, but especially the first month it was hell now it's just as loud but I'm starting to cope with it,
      I would definitely say that on the scale I'm usually between 6 and 9 since I've had it I never had it below 6, most of the time is an 8 but when it goes to 6 I feel like im living again.
      The only thing about the scale I never used Masking
       
    23. GregCA
      Jaded

      GregCA Member Benefactor Hall of Fame

      Tinnitus Since:
      03/2016
      Cause of Tinnitus:
      Otosclerosis
      Same here. Interesting how this works.
       
    24. mikejohnno
      Thinking

      mikejohnno Member

      Tinnitus Since:
      April 21st 2017
      Cause of Tinnitus:
      Clubbing
      2-3
       
    25. Autumnly
      Wishful

      Autumnly Member Podcast Patron Benefactor Hall of Fame Advocate

      Location:
      Germany
      Tinnitus Since:
      July/August 2013
      Cause of Tinnitus:
      Noise induced
      My tinnitus is a solid 8, I’d say, but for whatever reason I never really had any troubles falling asleep, however, I just don’t feel rested anymore, even if I get enough sleep. Whenever I have a big spike, I’ll have a couple of nights where I wake up due to the tinnitus being louder, but my body gets used to the higher volume/intensity pretty quickly. Also, I never mask my tinnitus.. Sometimes I’ll have some music on in the background, but if I’m e.g. working on a project for college, the tinnitus usually doesn’t bother me. It extremely bothers me, however, when I have to study or read something.
       
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    26. Tinker Bell

      Tinker Bell Member Hall of Fame

      Location:
      U.S.
      Tinnitus Since:
      02/2017
      Cause of Tinnitus:
      SSHL from virus
      I really do not care for that scale. In terms of volume on the scale, mine is an 8 or 9. I can hear it over everything because it reacts with a louder ring to everything.

      However, in terms of emotional distress, I feel like I fluctuate. Sometimes my anxiety is very mild and sometimes severe. So sometimes I can ignore it and sometimes I can't, depending on my emotional state and its volume.
       
      • Helpful Helpful x 1
    27. JoyBenz007
      No Mood

      JoyBenz007 Member

      Location:
      Texas
      Tinnitus Since:
      May 1, 2017
      Cause of Tinnitus:
      Unknown

      I feel you on the emotional distress!
       
    28. Tinker Bell

      Tinker Bell Member Hall of Fame

      Location:
      U.S.
      Tinnitus Since:
      02/2017
      Cause of Tinnitus:
      SSHL from virus
      I feel like there should be two scales -- sound volume and emotional state -- and the scores of those combine for an overall score.

      But ultimately, comparing tinnitus does not matter. If it bothers someone, then it bothers them and it doesn't matter the volume.
       
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    29. JoyBenz007
      No Mood

      JoyBenz007 Member

      Location:
      Texas
      Tinnitus Since:
      May 1, 2017
      Cause of Tinnitus:
      Unknown
      Exactly! you made an excellent point!
       
    30. PortalNaut

      PortalNaut Member

      Location:
      USA
      Tinnitus Since:
      Late 2/2018
      Cause of Tinnitus:
      Noise Induced
      Is the chart in the below thread the one people use for reference of the tinnitus noise on a scale of 10?

      https://www.tinnitustalk.com/threads/tinnitus-loudness-scale.6873/

      tloudnessscale-png.png

      Is there some other scale that people use when they say 4/10 or whatever?

      From this chart, in the first few weeks, I had most days at 6 some 4's, and at best at night was a 2 (but could be higher). I could also hear in loud rooms (7), though the loud room was "louder" - it's just impossible to mask 10kHz noise with room noise.

      But I wonder what other chart or reference is in use...or if this is the main one.

      Thankfully it seems to be quieter now, but I want to try to get a grip on the scales in use.

      Thanks
       
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