What's the Point? No Matter What I Try to Do, I Will FOREVER Have My Tinnitus and Hyperacusis...

Discussion in 'Support' started by Christophe_85, Aug 15, 2017.

    1. G61

      G61 Member

      Tinnitus Since:
      2016
      Cause of Tinnitus:
      Head and neck trauma
      I have severe T & H. I "choose" to suffer less. I have been doing meditation and biofeedback. Those two can be totally free. Both so-called treatments have positive influence on the autonomic nervous system. It will take a lot of time and effort to see the results. This is a reminder that "Pain is inevitable; suffering is optional".
       
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    2. Michael Leigh

      Michael Leigh Member Benefactor Hall of Fame

      Location:
      Brighton, UK
      Tinnitus Since:
      04/1996
      Cause of Tinnitus:
      Noise induced
      Well done @G61 I wish you every success with meditation and biofeedback.
      Please let me know how you get on.
      All the best
      Michael
       
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    3. G61

      G61 Member

      Tinnitus Since:
      2016
      Cause of Tinnitus:
      Head and neck trauma
      Thanks Michael. I should create a new thread to talk about it.
       
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    4. Lorac

      Lorac Member Benefactor

      Location:
      Michigan
      Tinnitus Since:
      2013
      Cause of Tinnitus:
      Sudden profound hearing loss in left ear.
      I agree with Jodie. Technology has changed the world very quickly. When I was a child, I had to stand in the kitchen to talk on the phone which was attached to the wall by a short cord and there were nine other houses using the same line so we had to take turns. Now, each person carries around their own phone which is also a computer that tracks where they are and provides volumes of information!
      I am not a doctor or a scientist or any kind of expert but I am optimistic about the future of technology as it relates to medicine. There are no surgeons who are talented enough to fix the complex injuries of my inner ear and brain. I think the cure for hearing loss, tinnitus and many other diseases will come from cell regeneration and technology is the catalyst. A cure may or may not come in my lifetime but I am hopeful for the younger people here.
       
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    5. Sheron
      Loved

      Sheron Member

      Tinnitus Since:
      05/2017
      Cause of Tinnitus:
      unknown
      Have you ever thought of wearing hearing aids? You look quite young in your photo but believe me they cut down the tinitus noise by half. I'm an old lady (71) with a fair amount of hearing loss. T was driving me nuts until I was fitted with hearing aids. It's just a thought.

      Keep hoping as we all do. I try my best to be optimistic.
       
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    6. UpDownAround
      Spaced

      UpDownAround Member

      Tinnitus Since:
      1985
      Cause of Tinnitus:
      unknown
      I guided rafts decades ago and I like to think back n what a fellow guide would say when someone had a complaint early in the trip "Not yet, please - there will be 5 minutes of allotted snivelling at the end of the trip". I came to this forum to see if others share symptoms and have any advice. I have had T for over 30 years (H for over 15) and hope to have it for 30 more unless there is a cure.
       
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    7. AUTHOR
      AUTHOR
      Christophe_85
      Alone

      Christophe_85 Member Benefactor

      Location:
      Geneva, Switzerland
      Tinnitus Since:
      November 2015
      Cause of Tinnitus:
      Not sure...
      Thanks for your answer !

      So do you feel better with those methods ?

      :)
       
    8. AUTHOR
      AUTHOR
      Christophe_85
      Alone

      Christophe_85 Member Benefactor

      Location:
      Geneva, Switzerland
      Tinnitus Since:
      November 2015
      Cause of Tinnitus:
      Not sure...
      Dear Sheron,

      Actually according to the different ENT, I don't have any hearing loss...

      But this summer I went to a hearing shop and did personnal earplugs... I didn't try them yet... Still using my wax earplugs for now... ;)

      I am glad that hearing aids help you ! :)

      I am 31 years old by the way... ;)

      My T and H started back in November 2015... :(
       
    9. AUTHOR
      AUTHOR
      Christophe_85
      Alone

      Christophe_85 Member Benefactor

      Location:
      Geneva, Switzerland
      Tinnitus Since:
      November 2015
      Cause of Tinnitus:
      Not sure...
      Hello Jodie,

      How was your appointment with the ENT ?

      I hope it went fine !

      All the Best
       
    10. JodieStephens

      JodieStephens Member

      Location:
      Nova Scotia , canada
      Tinnitus Since:
      2007
      Cause of Tinnitus:
      Unknown
      I still haven't even gotten an appointment with one yet. The past week has been bad... I'm not as optimistic anymore lol
       
    11. AUTHOR
      AUTHOR
      Christophe_85
      Alone

      Christophe_85 Member Benefactor

      Location:
      Geneva, Switzerland
      Tinnitus Since:
      November 2015
      Cause of Tinnitus:
      Not sure...
      What do you do to help you relax and cope better with your T ?

      :huganimation:
       
    12. JodieStephens

      JodieStephens Member

      Location:
      Nova Scotia , canada
      Tinnitus Since:
      2007
      Cause of Tinnitus:
      Unknown
      its my first time ever having my tinnitus spike so I'm still finding soundtracks to help me out. I'm just riding it out right now . I have no idea what to do except play raindrop noises from a random app I downloaded
       
    13. AUTHOR
      AUTHOR
      Christophe_85
      Alone

      Christophe_85 Member Benefactor

      Location:
      Geneva, Switzerland
      Tinnitus Since:
      November 2015
      Cause of Tinnitus:
      Not sure...
      But in addition to that, do you do any relaxation ?
       
    14. JodieStephens

      JodieStephens Member

      Location:
      Nova Scotia , canada
      Tinnitus Since:
      2007
      Cause of Tinnitus:
      Unknown
      No, I dont know how to. I just take Benadryl to sleep at night, and melatonin. I haven't tried any treatments yet, I'm not gonna try anything until I see the ENT

      For bad days I'll just take clonazipam. I try to hold off on the clonazipam incase I get addicted to it
       
    15. Mettafort
      Sunshine

      Mettafort Member Benefactor

      Location:
      Illinois
      Tinnitus Since:
      April 8th, 2017 (a few days after)
      Cause of Tinnitus:
      Vertigo->48 hours->Deaf in left Ear->Tinnitus
      I love the word Choose and everything it implies.

      I choose exactly the same.
       
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    16. Marie79

      Marie79 Member

      Location:
      USA
      Tinnitus Since:
      2/1/16
      Cause of Tinnitus:
      Ear infection
      Hyperacusis is actually pretty treatable. Tinnitus not so much other than habituation but not so for Hyperacusis. Dr. Marzgharh in Los Angeles was very helpful in regards to Hyperacusis (Tinnitus eh, he could have been better). He has saved lives in regards to Hyperacusis ...people that depend on the music industry to survive. If you can't see him find a doctor that specializes in tinnitus and hyperacusis and know about it.
       
    17. AUTHOR
      AUTHOR
      Christophe_85
      Alone

      Christophe_85 Member Benefactor

      Location:
      Geneva, Switzerland
      Tinnitus Since:
      November 2015
      Cause of Tinnitus:
      Not sure...
      Have you tried meditation or anything similar ?

      I used to take sometimes a Benzo, but I was very scared to get addicted to it...

      I take an Antidepressant since the beginning of the year.
       
    18. AUTHOR
      AUTHOR
      Christophe_85
      Alone

      Christophe_85 Member Benefactor

      Location:
      Geneva, Switzerland
      Tinnitus Since:
      November 2015
      Cause of Tinnitus:
      Not sure...
      Thank you for your message !

      And also for the information, have you seen this Doctor ?

      :)
       
    19. JodieStephens

      JodieStephens Member

      Location:
      Nova Scotia , canada
      Tinnitus Since:
      2007
      Cause of Tinnitus:
      Unknown
      I haven't tried meditation... I just don't know what to do honestly. It's only been two weeks since it got worse . I heard benzodiazepines could lower volume of tinnitus, but when I tried it I think it only relaxed me, mabye a slight volume decrease? I don't know

      How did your tinnitus react with your benzo?
       
    20. PaulBe

      PaulBe Member Benefactor

      Location:
      Cairns
      Tinnitus Since:
      11/2013
      Cause of Tinnitus:
      Probably sound, though never proven
      For some.
       
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    21. Bill Bauer
      No Mood

      Bill Bauer Member Hall of Fame

      Tinnitus Since:
      February, 2017
      Cause of Tinnitus:
      Acoustic Trauma
      "What are the most important skills to learn for the jobs of tomorrow?

      Tracking, bushcraft, flint knapping..."
       
    22. JodieStephens

      JodieStephens Member

      Location:
      Nova Scotia , canada
      Tinnitus Since:
      2007
      Cause of Tinnitus:
      Unknown
      i don't even know what those are lol
       
    23. Bill Bauer
      No Mood

      Bill Bauer Member Hall of Fame

      Tinnitus Since:
      February, 2017
      Cause of Tinnitus:
      Acoustic Trauma
      "Tracking" is using animal tracks as an aid in hunting. "Flint knapping" is shaping a flint using others stones.

      I wouldn't bet on progress in the future, I would bet on regress.
       
    24. MBH

      MBH Member

      Location:
      Upstate NY
      Tinnitus Since:
      06/2017
      Cause of Tinnitus:
      Overloaded stress
      My T came out of the blue I had nothing for the docs to go on not that it matter anyway there insight was not there but the doc told me to take benadryl at night and I was taking Tylenol PM so then I stop the benadryl when the doc gave me nortriptyline I have a loud fan but with anxiety I'll need something it's hard to fight it. I went to 2 ENTs got nowhere did 3 hearing test so I final went to a private hearing guy he gave me hearing aids with masker features and a remote to Lower or higher the sound with blue tooth. He was very knowledgeable. Did anyone have a Lyme's test done.
       
    25. JodieStephens

      JodieStephens Member

      Location:
      Nova Scotia , canada
      Tinnitus Since:
      2007
      Cause of Tinnitus:
      Unknown
      Welll I'm just an optimistic person . Only on some days though haha
       
    26. Bill Bauer
      No Mood

      Bill Bauer Member Hall of Fame

      Tinnitus Since:
      February, 2017
      Cause of Tinnitus:
      Acoustic Trauma
      You know what they say - a pessimist is an experienced optimist...
       
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    27. Kolisar
      No Mood

      Kolisar Member Benefactor

      Tinnitus Since:
      birth?
      Cause of Tinnitus:
      unknown
      and stay optimistic. It is optimistic people who keep searching for, and eventually find solutions to problems. If everyone gave up easily there would never be scientific progress.
       
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    28. AUTHOR
      AUTHOR
      Christophe_85
      Alone

      Christophe_85 Member Benefactor

      Location:
      Geneva, Switzerland
      Tinnitus Since:
      November 2015
      Cause of Tinnitus:
      Not sure...
      You can try a meditation class maybe... :)

      I think it helped me just put the T and H aside for a while...
       
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    29. Marie79

      Marie79 Member

      Location:
      USA
      Tinnitus Since:
      2/1/16
      Cause of Tinnitus:
      Ear infection
      yes I have seen him. He was just ok for tinnitus but he was wonderful in terms of H.
       
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    30. PaulBe

      PaulBe Member Benefactor

      Location:
      Cairns
      Tinnitus Since:
      11/2013
      Cause of Tinnitus:
      Probably sound, though never proven
      @Bill Bauer you remind me of that famous line about WW3 being fought with nuclear weapons and WW4 being fought with sticks and stones.
       
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