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lanterns&coffee
I woke up at 5 am just now. My head really hurts and it's never been this loud before I'm so panicky :( I can't think of anything else but it's so so so loud and I feel like I'm back t square one. I'm so scared.
kingsfan
It's just loud because you woke up at a strange time
D
Being in extremely hot temperatures lowers my tinnitus by about half. I only realized this past summer and I'm sure it's related to either muscle tension or vasodilation. Something to remember
BrOKeN_1
This condition is endlessly frustrating. Had the quietest day in almost 5 years yesterday for no apparent reason. Made me hopeful. Then today happened... and well. You all know I'm sure. Damn the luck.
MindOverMatter
Thats the relentless nature of t @BrOKeN_1 Embrace the good day you had, knowing that there will be good days coming again. Don't let the bad days dwell too much in your mind.
Tryn2BHopeful
Been there many times.
orenge01
Hey, at least you had a good day I guess. :/ This condition is so damn relentless, I'm going through a spike currently that doesnt want to fade away no matter how hard I seem to try, sleeping quality is decreased too. All we can do is keep our hopes up I guess.
Nes
My tinnitus is often lower when I'm exhausted. That's a good news because tinnitus is exhausting lol
Nes
Actually, my hyperacusis is almost completely gone today. It makes no sense, I'm running on 2h of sleep
delta784
This is my full name and where i live

Alpay Tunc AGE 29

Istanbul/Bayrampasa 34035

I cannot bear with this anymore. I don't have guts to hurt myself but im tired my heart cannot take it anymore i never thought this will be my life but here we are please hug to your loved ones. If you have mild moderate tinnitus you can live, i never done loud things. mine is medication induced because of clueless ENT take care.
H
Are you managing to sleep at all, if not that something you can try to help first. Are you still taking clonazepam?Is it helping at all?
Joshua Macleod
Had what I assumed was another noisy new tone last night. Spent a good few hours laying there trying to calm myself.

It was the fridge.
delta784
I am an idiot i couldn't do it and today new high pitch in right ear screams worst of the worst tone 15 khz i hope it goes away it happened many times always went away this time it feels different consistent high pitched why though? i dont even go outside i swear i never went to parties ever ever in my life If that high pitch doesnt go away im ruined im done
M
Hi delta784, just wondering how youre doing now. Im looking for some hope to get me through these bad times. My tinnitus is so extreme i just want to jump.off something high and die too. I know this would hurt my boyfriend and mum incredibly but i dont know what else to do. It is relentless and so painful. I don't see how anyone can habituate to this.
B
Have you tried Chatgbt? I have recently discovered Chatgbt and found that it was helpful and informative. If you lay out your tinnitus symptom history, including a description of the intestinal issues that you are encountering, it will provide you with detailed explanations and prognosis and a multi-step plan for addressing your issues.
dipp
Had a mental breakdown while talking with my parents on the phone.
H
Hey we never talked but I've read alot of your posts. You've always managed to get through it the past and I feel like you'll do the same now. We're all hoping the best for you.
dipp
@hey Thanks for your kind words, that meant a lot to me. I tell that to myself, but my situation is always getting worse. T related and HL related. I'm struggling to get through every single day. Maybe I can overcome this, but not very hopeful this time.
Varda
I may need to get treatment for HP :(
Do you have any wisdom on what is best to not worsen tinnitus?
UrbanBubblegum
First and foremost, make sure to request a sensitivity test for HP. Once you get the result, start googling. If you are not allergic like me, Doxy, Amoxcillin (fyi; HP will always remain sensitive to Amoxicillin), PPI such as Nexium, and they sometimes throw in Pepto Bismole. DISCLAIMER: I am not a doctor. Just sharing my own, very costly, experience.

Thanks for reaching out. Wish you the best of luck!
Varda
Cory_
Just had my first hyperacusis setback in 3 years. Damn!
I've seen it all before and I'm not scared anymore. Hopefully this time it'll be a short one.
Is the fact that my baseline was so good for so long, and that I withstood tons of bad noise insults with no setbacks, a good sign at all?
orenge01
I think I'm going through a nasty setback right now, I guess for being kinda reckless. Dunno if its from noise exposure or something else, but T is really loud at the moment again :/
dipp
Talking with people makes my new ultra high pitched electric sound go wild. I can stand in silence without much problem, read a book and so on. A little chat or something on TV, and it worsens a lot a it´s highly noticeable. I don´t know how to handle this. It seems like the end.
PennyCat
Well on the "bright side" I'm no longer freaking out about my normal T because my PT is back/acting up and now I have to deal with that and look into whether I have another stenosis that needs surgery. I want to die.
Tom Okay
Third anniversary in this forum but I've had tinnitus for 30+ years (mild). Now, it's pretty brutal, I think, and it takes my thoughts away every day. Still hoping and working on it getting better.
RestlessNights
Fainted today because I was cycling in the heat of south France, before that had terrible vertigo.. my T exploded at that moment, it was like an alarm, this demon truly has no limits
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RestlessNights
Hi, fainting is very unsual for me, but sometimes I do have some really annoying vertigo and heart palpitations from nowhere.. I think it can be related to my diet/lifestyle and anxiety but ill definitely look that up.. thanks!
streifzug
it really is a demon
MindOverMatter
@RestlessNights Well, what you describe with vertigo and heart palpitations (and some fainting, or close to fainting) is one of the main symptoms of POTS. So you should definetly get checked for this if these symptoms has been for a while. You would need a tilt table test or lean test by someone that knows about the field of dysautonomia.
DorianP
I haven't been able to sleep well these past few days. I'm too anxious because the low humming/rumbling in my left ear is just too loud. It's by far the most annoying of my tones.
orenge01
I can relate. This spike I'm going through is very persistent and wakes me up at night :/
DorianP
@orenge01 Do you also have the humming/rumble?
orenge01
@DorianP No humming, no rumble, just this loud hissing, like a dying lamp :/
DorianP
@Ben Winders Hey, I have exactly the same symptoms as you describe for the drone/low hum (noise induced, in left ear and sometimes feels like it jumps to my right ear as well). I've had it for six years now, and I still find it difficult to manage.
PennyCat
I keep thinking I'm hearing some faint whooshing from my PT again (which I had 2 surgeries for), and my right ear feels full. I can't tell if it's actually happening or if it's because I'm so hyper aware of all sounds and sensations. It seems unlikely it would randomly get worse at the exact time I'm extremely anxious about my normal T. Hopefully it's just anxiety
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