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adpolandam
Karbamazepina, Okskarbazepina, Gabapentyna, Pregabalina, Lamotrygina, Baklofen, Klomipramina. Are these medications effective for stabbing pain in the middle ear caused by sounds, as well as for worsening tinnitus?
delta784
my right ear exploded since 3 -4 days after my sickness it was lowest since 14 months now right ear cuts everything 15 khz very loud it has to go away again. please :(
S
Yeah. I made my situation worse 6 months ago. There has been some improvement, but definitely worse. Will write post about it later.
delta784
If i don't believe this happened to me and i am constantly saying its not real am i lunatic? Or am i having hard time accepting this is my real life from now on
T
I completely understand you. I will turn 30 in January. Can't accept this is my life. I've found a method to end my life when I'm ready. Also dealing with chronic foot pain which makes even going for a walk and sleeping even harder. I get stressed and panicked every day but that just keeps increasing the T. So even though I'm angry and upset, even the luxury of crying or yelling in anger to release brings more suffering. I used to be able to calm myself. I just can't anymore. Sleeping is getting harder and harder. Ending it is so tempting, everyday is meaningless and I lost the strength to fight through it.

Sorry I know none of this helps. Just saying I completely understand you. Maybe if you don't have any physical pain (except your ears as I understand?) then that's a positive..
S
Give it time. I had to give up so much. Years later, I am believe it or not, a better versio of myself. Injury changed my life - forever. And strangely, for the better. Yes, I would rather have healthy ears, but without the accident, I wouldn't be the person I am today. It made me realize how fragile we are.

After years of therapy and working with myself and not giving up made me different, better man. Quite literally.

Sooner you accept your new life, the better. Think it as an new beginning. New start.
kingsfan
@Strife_84 My empathy has gone through the roof since my tinnitus began, but my patience is now nearly nonexistent. My previous self was an incredibly patient person.
Marina Moon
It's strange how easily things can change, for better or worse. Yesterday morning started off okay, worked through pain that got better in the afternoon, but then things spiraled in the evening and progressed into today. I'm so tired of being hurt. I still cannot believe that this is my reality.
delta784
Life is so unfair since 14 months and i don't think its real i just turned 30. I was harmed by a clueless doctor now she lives her life and i am having panic attacks nearly everyday. I am in pain, i am on the verge of giving up i have no emotions since 14 months. Never laughed truly. I don't think its possible to live this way. We came to this life once and i fucked up unreal.
Marina Moon
Happy almost thanksgiving everyone! I haven't logged in a quite a while but I hope and pray everyone is doing well. I'm excited for thanksgiving, my jaw pain has been acting up lately, but I hope it lets up next week because I really want to stuff my face in peace 🦃
in_the_shadows
Hi Nes! I've been reading your posts, and things have been developing very similarly for me: nine months of overprotection, earmuffs at home and double protection outside, and for the last two months I've been gradually weaning off them. I can now be at home with just earplugs and even sit in silence without any protection. While my hyperacusis and regular tinnitus have definitely improved, my reactive tinnitus has gotten much worse, it reacts with many tones to water, bedsheets, even my own breathing. The tones alternate daily. I'm dealing with the same question of whether I should take a break or push through. Just wanted to say hi and wish you a speedy recovery!
Nes
  • Nes

    Nes

Hi! It's so nice to hear from someone with a similar experience! Yeah, my tinnitus is very unpredictable too, as well as my hyperacusis. Lately, I was doing great. I even went to a friend's house and wore just loop earplugs and nothing happened. For me, my reactive tinnitus got better, but the overall tinnitus got a bit worse (nothing too dramatic though). However, 2 days ago, my hyperacusis got way worse overnight, my ears are feeling weird, and my tinnitus has been very annoying. So I'm taking a break from weaning off, and I'm back to overprotecting as long as I'm having this spike. Hi to you too, and I hope we will figure this out someday!
in_the_shadows
I'm glad to hear you're making progress! Hyperacusis spikes are normal, especially when you're re-acclimating to sound. I had a setback in August where I couldn't tolerate the sound of human voices even with earmuffs, but I kept my protection at the minimum needed to avoid pain, and the spike gradually faded over 2–3 weeks. You might also want to look at u/RonnieSpector's posts on Reddit about central sensitization theory, I've found them very helpful. Hope things keep improving for you!
Nes
  • Nes

    Nes

@in_the_shadows oh I know about RonnieSpector, thanks for reminding me ! Yeah the spike has been hard on me, it's my first one in 8 months. It's already getting a bit better after 3days though, and I have my emergency clonazepam which helps tremendously. Trying to stay as calm as possible. Thanks for the kind words !
Kain
right ear is feeling more sensitive and thumping a lot more in response to noises and it's starting to agitate me
just1morething
I got the report from the CT scan I had on Tuesday. It was similar to the report I got last March. Apparently I have a hole in the bone above my left middle ear from what I understand.
hubast
I had an acoustic trauma event where I was exposed to a hammer striking metal for about 5 minutes. This put me into a medium tinnitus and hyperacusis situation for about 1 month, after that, my tinnitus was mild enough to be able to cope with. THEN, only 1 day later, I was fixing a 250 watt stereo and someone pushed a button on the remote while my ear was next to the speaker and wham! 130DB of white noise to the ear that was 2" from the speaker!
Now my tinnitus is loud and hyperacusis is really bad. So my question is this: Should I start counting my potential recovery time from the 1st event or second event? I am 2 months out from 1st event and 1 month out from the 2nd event. Thank you kindly everyone
2049v
I think your 2nd one is just a spike, or a temporary thing. I'd say you can count from the first. Hopefully you'll feel a lot better soon!
MindOverMatter
Unfortunately, the question you ask is impossible to give a certain answer to. Only time will tell. Did you get a course of prednisone after that last incident? Have you had a hearing test?
kingsfan
Count from the original index event.
delta784
Is tinnitus common?
2049v
Very mild ones yes, severe ones no
delta784
i was very mild for 7 years stable before iv prednisone and i know how shitty severe was. thats why i used prednisone to prevent worsening. after my mild sound trauma im idiot and dumb
2049v
@delta784, sorry what was the cause for your initial tinnitus incident?
UKBloke
After hundreds and hundreds of hours of research my
unwavering opinion is that tinnitus is NOT caused by hearing
damage; it's underlying cause is a neural gating deficit.

Hearing damage (amongst other things) may result in lower
upstream voltages consequently exposing the deficient gate
allowing the neural noise to cross into conscious perception
to be experienced as tinnitus. Ergo, fixing hearing damage may
also, curiously, lower tinnitus. But if you actually want to cure
tinnitus you need to address the underlying deficiency at the
neural gate.
hubast
Has anyone had any luck with adding vitamin D3, Taurine, Lipoflavonoid, or NAC to their daily regimen? If so, how long to take effect for a positive result?
S
D3 may potentially help with SAD which certainly can't hurt with these conditions and regardless, should pretty much be taken by everyone unless you spend most of the year outside in a state of undress.
I did take Taurine to help with my anxiety pre-tinnitus (continued taking it for the first few months after onset but mine was so catastrophic even if it did something I wouldn't have noticed) and it definitely did help slightly then, plus took the edge off too much coffee... not a 'take it and 3 hours later feel better' thing, just an overall minor but noticeable day-to-day improvement.
Neither's going to quiet things down but every little helps eh.
kingsfan
I take NAC whenever I leave the house. 600mg before I step out the door and another 600mg the same night before bed. If any sort of loud event happened while I was out, I'll continue taking it morning and night for several days.

I used to also take Magnesium and vitamins A, C, E, but it became too costly. The NAC alone is quite pricey.

This was only for protective measures to try and prevent further worsening.
AfroSnowman
The hard truth is that for 95% of folks with tinnitus from hearing damage there has so far not been any pill or supplement or treatment that works. That being said < a year and certainly in the first months there is a real chance for complete natural remission. I think the best thing you can do to increase the chances of being in that lucky club is try to avoid further hearing insult, get good sleep (really important), and try to sooth yourself and focus on it as little as possible. This is a brain/hearing thing, so the key is to try to calm it from both ends.
delta784
Can someone tell me the reason why am i living like a cockroach instead of being happy all the time? And what's the point of living like this if the end is already known?
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E
@delta784 If everyday has to be fought in survival mode, then so be it. How 'well' do you generally sleep, brother ?
Kam75
Most people I see on Tinnitus Talk are older, so at least they have a reason to live (a wife/husband, and children). I'm 34 and have been living like an hermit since 7 years because of tinnitus :( No wife, no children, and I fear I'll never meet a wife because I have to live locked in my room. I just have my parents who are saddened to see him suffering everyday. The lack of sleep is also killing me. So I feel you dela784.
T
I've only had T for 1.5 years but am 29 so yeah also young. Quite a few people on the reddit tinnitus are young too. But yea wish I had got further/more stable in life before this hit.
N
@Cmspgran Interesting. How much Pregabalin do you use? The Gabapentin certainly takes some focus off my condition and reduces stress. When did you drop the Gabapentin? Was the combo still effective over time? I advise you to make an appointment with the GP, tell them you are really struggling, what helps and be candid. You obviously have an understanding GP and honesty is the way forward.

The first time I used Gabapentin, i bought it online. I am not advising you to do this of course.
Cmspgran
I take either 100mg or 150mg a night, that and an average dose of 0.5mg of clonazepam are what keeps me functional and in work. Far from ideal, but at this point have very little choice, I need to pay a mortgage and actually still try to enjoy life a bit. I'll cross the bridge of coming off them when it comes to it.
N
I completely understand your predicament. I'm wearing 'the patch' right now btw. Seems to help stabalise things over night by a small amount. I suppose I am in a more fortunate position that I've paid mine off. The hyperacusis element, when it becomes severe is my nemesis
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