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Tryn2BHopeful
T will be the death of me.
cjbhab
me too. :( we must continue to fight and hope.
BrOKeN_1
The old me died 5 years ago. Now I just exist in this purgatory with brief moments of distraction from the living nightmare that is Tinnitus.
S
I somehow managed to get myself vestibular hyperacusis or something. Nausea, vertigo and feels like my head is between a press.
S
I forgot to renew my Betaserc recipe. I've been without it for 3 days now and my ears are definitely worse. Louder and ears are also aching. I hope I get a new prescription soon.
Sodlin
i wouldnt say that sounds makes me "PANIC" the way they used to. I still spike ALOT tho and some seems to be permanent. I mostly get angry or irritated when people yell, clap their hands etc close to me that creates a spike and im like "oh crap not another spike". Its good to not get super panicky and anxiety rid but still getting the spikes is kind of the hardest thing for me to deal with since it drains my energy and make me feel like im going backwards in progress
Tryn2BHopeful
Somedays not sure how much longer I can keep going. What choice do I have but to keep going.
Yosemite
I'm also dealing with a worsening at the moment, so I know how you're feeling.

You have to keep going, because you could still see some improvement. Remember how you felt when you first got T? You thought it would never get better, but it did.
dipp
My morse code that I had years ago is back after a new trauma. It blends with sounds like microwave, running water or A/C and it´s disgusting. Don´t know if it´s dysacusis. Talked with my wife about VAD last night. She is not totally against it, but not in the near future, we´ll see in the coming months.
S
What was your new trauma? I'm so sorry you're going through this. Did your original tinnitus just start out of nowhere?
dipp
@Sonia554 I was in a store and had no earplugs left, I was just below the store speakers where they say to which checkout should you go. It was very loud. Yes, my original tinnitus started out of nowhere, since I have been slowly losing hearing with no known reason. I´m in a very bad place.
MindOverMatter
You never know the plan. You never know what's going to happen. We are not even promised tomorrow. I just try to focus on one day at a time. - Morgan Wallen -
E
I wanted to share this video with you-



Also, I keep reading about the fact there are only a small number of people who actually come back to tell of their success. I guess they just want to forget it ever existed for the time it did.
S
Thank you Escalado! I've seen a number of videos from people who had tinnitus and now no longer do. Mine has reduced quite a bit in the last 2 months and I believe it will keep reducing until it's gone or nearly gone. I will definitely be screaming about it from the rooftops when it happens. How is yours doing?
E
Maybe because I'm still early into this but it's not changed really. Its weird because I can go into the bathroom or living room ( when the TV is off ) and actually feel the silence for a while. Of course, I'll take that every chance I get.

One thing is certain, and thats you not doing a disapearing act once you're adequately recovered. You're getting nearer with each passing week 😊
dipp
Didn't ever believe that Susan Shore's device would work for me. But anyway, by the time it comes out I won't be able to use it because I won't be able to hear frequencies of my most bothersome T. Out of hope. Can't sleep today.
kingsfan
Yeah we just keep getting worse as they cross their T's and dot their I's and be perfectionists.
tobyharrixon
Does it require you to hear the frequencies your tinnitus is at?
delta784
how long do i have to endure this? susan shore device looks shit anyway and i live in turkey
D
We in Europe are possibly getting the Shore device in about 10 years the earliest if USA is getting it in like 6 years. Lol, thanks for nothing I guess.
dipp
Can't believe the dates shown on Auricle's stream.
cjbhab
made me sad. I was hoping to see it was 1-2 years away.
Sodlin
Ive been stretching my neck and jaw alot trying to release my tension i got everywhere. Also been taking walks. My tinnitus has got from 5/10 to 7/10 with doing these things. I dont understand why. Shouldnt it get lower? I wonder if i should keep going and if im onto something here or if i should stop. Takes alot of energy having it louder. its also more loud on the side i got most tension on which is weird.
kingsfan
Mine spikes for the day if I do any sort of exercise, hiking/walking included.
Sodlin
This has been 2 weeks tho :/
Ricardo1991
Developed pulsatile tinnitus, every time I lay down it sounds like a washing machine in my left ear. Been feeding ChatGPT with data about my PT now and it's been giving me some reassuring feedback that it's just positional. However might be due to Eustachian tube dysfunction.

Update: The PT has subsided after multiple nasal rinsing sessions.
MindOverMatter
Might also be a variant of TTTS - Tonic Tensor Tympani Syndrome. Ive had long bouts of what you describe myself in the past, lasting for up to 6 months. It passes, eventually, every time.
S
Wish there was a hearing loss cure / tinnitus cure already it's been so fucking long.
S
what caused your tinnitus and hearing loss?
S
noise induced i kept listening to loud music when i was younger I regret it every day.
mandyc
I;m in a crisis now. I took the antibiotics and am really really not well at all. I'm only on my second dose and the tinnitus is through the roof. I feel feverish and shaky. I just don't feel right if you know what I mean. I'll have to stop but I'm scared strep infection will get worse. Dont know what to do. Its a holiday weekend so I'm at a loss of who to phone or what to do.

My throat feels worse than what it was before I started.
Sodlin
After been a stressball the entire week i went for a walk unprotected, i live in a very quiet area. there was a garden with a dog so i was force to take a "offroute", went in the forest and saw freshly cut trees along the path. When i was walking suddenly i hear a chainsaw start behind a bush only 6-10 metres away from me i didnt see the worker. I ran in panic with my fingers in my ears. Urgh it was so loud. still a stressball......
orenge01
Hey I feel you and I'm sorry that happened to you, it's so hard to manage this world sometimes :/ I've had a couple of slip ups with 100% volume again for brief seconds in my ears, great stuff... Not. Some applications just default to a very loud volume for some reason, not fair. Man I know this happens to other people and they just shrug it off but for us it's way different :(
Sodlin
Yes. I think its some kind of PTSD that just "send us back" to where we been when we had problems
orenge01
yeah it definitely is something like that I've realized, somewhat similar at least. I think the brain remembers the trauma :/
delta784
Im idiot i read horror stories in here and used iv prednisone because of stupid people all around the forums i should sit down in silence and shut the fuck up
tobyharrixon
i haven't taken pred, but have been very close to after reading people's comments on here. don't blame yourself - some people to get improvement from it. just seems unpredictable as to who
Sodlin
What is it with these people that have this weird urgue to shout or scream out of nowhere. We are on a meeting... Someone comes in and the person right next to me (about 50 cm away) litterally yell out "HEY DANIEL" VERY loudly. It was like getting a fistpunch of noice right into my right ear and of course i jumped and hes like "oh.... did i scare you". Now im having a spike
RestlessNights
same, happens to me all the time especially in class when i don't have my earplugs in. People are so so loud for no reasons
Sodlin
Exactly my feeling! What cant they not say "oh hello Daniel" like a normal person. Why do the need to scream and shout around them... Must be a bad selfesteem thing.
E
I just read your latest message. I am super happy that progress is in full motion for you.

Without getting carried away, things are looking up, Sonia! Very much so 👌
mandyc
omg it just doesn't seem like it's getting better for some of us. I'm so sorry you have it so bad. I too am very bad. I can't believe how loud tinnitus is. My hyperacusis is worse. Thankfully I got over my ocd and I think you can too but it was difficult. I was stuck at home for years with ocd, now I'm stuck at home with tinnitus. I'd rather have the ocd than this. Now I've got to take antibiotics which I know will make me worse and I too feel very suicidal. I'm not sure I'll make it to the end of this month. Just taking it one day at a time. Feeling your pain and hoping one day we'll all see light at the end of the tunnel x
delta784
I am just 30 one day at a time till i die? what the fuck
L
I had an unfortunate run-in with a low-flying helicopter (think lower than 100ft)... I am enduring worsened tinnitus (so much louder), plus muffled hearing.
delta784
ananın amına koyayım pelin koçdor
Kam75
Is she the doctor who prescribed you the intravenous drug that gave you tinnitus?
delta784
yes not only tinnitus visual snow syndrome and pain h
delta784
im so tired mentally im tired of crying everyday its been how many days since 26 september 2024?
delta784
you are just like me you stopped coming into these shitty forums hopefully you are in better place you are young like me
adpolandam
No one in my family accepts my condition and when I try to explain it, a huge argument breaks out.
2049v
My family never really accepted my condition either. And whenever I tried to explain it to them, it broke something inside me — that strong desire to be understood. No matter how hard I tried, they just couldn't grasp how much of a torture this can be unless they've experienced it themselves. They thought my mental health was deteriorating or that I was exaggerating things psychologically. And maybe, without realizing it, they were gaslighting me.
2049v
My advice to you is this: when it comes to tinnitus, no matter who your family or friends are, anyone outside of "our group", the tinnitus community will probably react the same way. You might not like to hear this, but honestly, my advice is: don't bother telling anyone who hasn't lived with tinnitus. There's simply no benefit. Most people just won't understand. Even your closest friends might end up asking stupid questions. Trust me, I know this too well because I've been through it myself.
dipp
(2/2) Right now, I continue not because of me, but for my wife and my family. I don't know what can I do to get a little better. I truly want to live of course, but right now it's hard to see the point in any of this. I just go through days and weeks the best that I can, but it's hard when you are being tortured all day 24/7. If I surrender someday, at least I know that I tried as hard as I could.
2049v
Hey my friend, I'm really sorry to read what you're going through. I noticed you joined the forum back in February 2017. Has it really been bad all this time? Didn't you have any better or more tolerable periods — times when things felt a bit lighter or closer to baseline? It's been over 8 years now. I've had very severe tinnitus too, for more than a year. I went through suicidal-level days, but also some okay ones. Not many, but still not every day was terrible. I just wonder if you had any of those moments too.
dipp
@2049v , thanks a lot for your message. Yes, during this years I´ve had lots of good times. My main problem is that year by year my hearing is worse, and my T louder. I somehow habituate and then I became worse and then have to habituate again, and I´m reaching very severe levels. I started with very low single tone T that I heard only at night, and progressively gone worse and now I have lots of sounds, the worst ones electrical hissings that I can hear it next to a highway or driving with music on. Maybe I can overcome this once again, but the bad thing for me is that I know that sometime I will worsen again. I´m getting out of strength to keep fighting. But I have to try.
2049v
@dipp, yes, I also had that electrical-type ringing, especially at the start. It couldn't be masked at all, and I cried until my tears ran dry because I couldn't sleep or if I did for a few minutes, the noise woke me up again. It was pure torture, truly horrifying. No one can understand unless they've lived it. I'm really sorry you're going through this. I've had awful days too, but I try to stay hopeful and live day by day now. Not every day is hell, though many are hard. I hope things get easier for you too. Only those who suffer like us can truly understand. By the way, do you know why your hearing keeps getting worse? Is it due to acoustic trauma or age related?
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