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Yesterday seemed good in comparison to most days... but back to the normal... who knows maybe there is hope.
Tryn2BHopeful
Of course I write this and this week has been terrible... ugh. How much longer can I do this?!
18 months since I got H. Doing much better now. Able to go outside with ear plugs. Watched latest squid games season with decent volume. Still taking Nortriptyline. Although very low dosage 5 mg.
ECP
I'm happy to hear you're doing better! May I ask if you've ever tried clomipramine, and if so, what made you switch to nortriptyline? I've never taken either one, and I still can't decide which one I would ask for.
Heal82
I started using Nortriptyline due to a cyst developed inside the roof of my mouth. I developed it 3 months after I developed H. Not sure whether it is in any way related to H. Mouth Dr has advised me to undergo operation which I have resisted until now
Heal82
Also, just to be clear I have never tried Clomi..
To me, it's not the sound that's worst. It's the physical sensation. Aching ears, burning, headache, fullness, the feeling something is broken.
Why does it feel like my head is between a bench vise? What a terrible feeling. I never really wanted to come back here. I was doing well. One stupid mistake when I just wanted to feel normal again. It's been 2 months already.
Tryn2BHopeful
I couldn't agree more. Same for me back in December.... and every time I feel like I am turning a corner BOOOM back again.
adpolandam
trigeminal nerve irritation?
I now have fullness in both ears, dunno whats happening but it feels like I have earplugs in even if I dont have them in, it's some weird persistent sensation. Not sure :/
It sucks realizing that no matter how much I want this to be done... it never will be. Tinnitus doesn't take a vacation, and it doesn't care about yours.
cjbhab
I still hold out hope even after 9 years, miracles happen.
Tryn2BHopeful
Hope is all we got I suppose.
4Grace
@cjbhab - 9 years. God bless you. I'm noise trauma after noise trauma at my home with child. Food kills me. Everything. Man … I'm really scared today.
The moment I start living a bit more, everything goes to hell
Kam75
Same for me, same for nearly all of us here :( Two years ago I started living almost normally, going to bars and clubs, as I felt better. But now I'm living a nightmare... Tinnitus increased because of that. I have sleepless nights every nights. This conditions always reminds you that your life will never be the same. We have to forget our social life forever...
cjbhab
you hit it bang on. I was feeling pretty good in April/May - started doing a few more things - bang head hurts bad and in a long spike now.
I'm getting weird headaches/tinnitus flare ups in the early morning. It's like my head is pulsating with sound. Hyperacusis has been flaring up too after a noisy day, although it's getting better by day 3
Had a conversation with a coworker that is VERY loud when she talks. I thought my Hyperacusis was better so i just took 2-3 steps back and had the conversation for around 1 hour without earplugs. Was so proud that i managed handle it decent! Today im paying with a pretty huge spike tho :/
Had movie night at my friends place and my ears are slightly worse again. The movie wasn't even loud! My ears haven't been this bad in many, many ( y )ears. Frustrating. But what am I gonna do?
Maruashen
I think you should focus on the success you had 19/6! Recovery and habitulation seems like 2 steps forward and 1 step backward for most people. The key is to slowly push forward. One setback isnt the end, because each time you push forward, you risk a setback, and thats the whole point sort of. :)
hello, i read on your profile that part of your tinnitus was caused by ototoxicity, and i was wondering which medication made it worse? And i was also wondering if antidepressants worsen your tinnitus? which medication do you take and which have you previously tried, and what kind of effect do they have on your tinnitus? thanks!
Kam75
Naproxen made my tinnitus worse. My ENT specialist confirmed afterwards that it was indeed an ototoxic anti-inflammatory.
I started with Amitriptyline and have now been on Mirtazapine for 4 years.
Neither of the 2 antidepressants made my tinnitus worse.
Going to music evenings has made it much worse.
ellees
so it was the naproxen that gave you tinnitus?

did you start the amiptriptyline before or after getting tinnitus? (what was and are your doses for these meds?)

why did you switch to mirtazapine?
Kam75
Naproxen made my tinnitus worse. You can find my whole story here.
I swiched to Mirtazapine because Amitriptyline no longer worked. Now Mirtazapine no longer works because 2 years ago I resumed a social life and exposed myself to music.