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Alexis413
Hey The friendlyGhost. I was wondering if you could please share your story with me? Currently going through severe noxacusis.(Pain from everyday sound, homebound, double pro all day even in my room). Have you made any improvements since the onset? How bad were you? Thinking of possible surgeries?
TheFriendlyGhost
Hi Alexis,

My story is summarized in my post " Severe Noxacusis (Pain Hyperacusis) - Feels Like My Life Is Over" quite well.

Sorry to hear you got nox. I have not seen any major improvements. Homebound for two years.

Not thinking about any surgery at the moment. However, I may try clomipramine.
tiniturk
I think the time has come for me to leave TT. There is not a single development in sight and lingering on this site only worsens my mental health. Take care y'all!
2049v
Still can't believe, still can't comprehend what happened to me
View previous comments…
2049v
Isn't 4 months aldready late for sudden hearing loss? @delta784
delta784
i dont have hearing loss yet. maybe i had last week i will go to ent today. I will get another test right ear is most bothersome and damaged right now its 15000 khz unmaskable tinnitus drives me mad since 1 week it came outta nowhere.
2049v
@delta784, i know man. Trust me I do. I've been there and even far worse situation. I hope everything goes well for you.
B
I just got an MRI done. Sounds do seem a little softer compared to before the MRI but so far my tinnitus is still the same as before.
johnjacobjingle
Hey there how is your musical tinnitus?
Resin
Still full-blown. I currently wear earplugs to sleep. I don't think I'll see any improvement until that changes.
kaymath
Officially two months with Tina. She's unpredictable. She's quiet in the morning, all kinds of sounds In both ears that change like the wind. She ramps up a little around 2pm and bothers me for the rest of the afternoon. She keeps me guessing. I can't even describe the sound in my left ear rn. It's like your grandmas squeeky porch swing. Back and fourth.
SumGuy
this dang ear rumbling is getting concerning
orenge01
What rumbling exactly? Personally I can hear like rumbling like humming, when I try to strain my jaw. But I think I have always had that.
SumGuy
its like that one muscle in your ears that make this very loud rumbling noise I really dont know how to explain it, and I got this geiger counter tinnitus for a few seconds.
orenge01
Yeah I get what you mean, I get that noise when I put my teeth together really hard for example. Geicer counter sounds awful. :/ I hope your T improves and stays away again.
Nemoriri
Before Christmas my tinnitus was better than it'd ever been since I got it. Was usually just a faint white noise that I rarely ever thought about. Felt so very habituated..

Then on Christmas eve, my brother's shetland sheepdog let out her usual godawful loud highpiched bark 1,5m from my bad ear. And since then it's been bad again.. sigh.. 😞
L
My left ear has started to ring but my audiologist thinks it's ramping up trying to make up for the moderate to severe hearing loss in my right. Hearing aid comes in next Friday.
L
Had a bad T day yesterday. some of it to do with anxiety, some of it stress, and of course the fail proof demon of noise. I had SUCH a good day the day before which also made yesterday difficult :( luckily was able to grab a couple hours of sleep (although choppy) and hoping it's improved or i'm at least calmer with dealing with it.
Sodlin
Trying to care more about my posture now, Stretching the SCM muscle and neck ALOT which sent my TT ballistic but i keep doing it in hope that it will calm down when i get all the muscles "stretched and calm". Hope everyone is doing good! :)
orenge01
"Oh but, but you are completely normal there is nothing wrong with you, you have no issues, you have no problem with doing your tasks, you are not crying constantly, you don't look distressed at all, you've been managing fine. Which means you are fine."

Ugh...
BrOKeN_1
Well. It was nice while it lasted. Nothing like a good spike to remind you how obnoxiously relentless this condition is.
HighleyTall
Trouble is when you experience 'better' days you naturally expose yourself to more noise and 'normal' behavior causing T and pain returning like a boomerang.
orenge01
Also funny how you are almost expected to function normally/unstressed with all this added pressure from external unchangeable factors and other bs. Almost like having a four legged animal walk with one leg instead of four and somehow expecting it to behave the exact same way and at the same capacity/efficiency as it did before. Absolutely ridiculous.
kaymath
Week 7. We got static and an occasional hiss or EE that fluctuate in my left ear. Lower volume than it has been for a while. But still annoying. Right ear is wind. It's obnoxious. How did we go from fire alarm in my head to faint jingle bells in my right ear to this!? Doing all the things to better myself all but my sleep is very broken, I'm just sleeping so lightly. blaming the prednisone. And the bout of insomnia.
orenge01
for me its high pitched ee, but it also started with a fire alarm sound which was really loud in my head, that first night with tinnitus was devastating to say the least. I hope yours improves further. Best wishes.
kaymath
Yes. I will never forget that first week. I lost all sleep, 5 lbs, and could not stop shaking and crying. This whole thing has been very traumatic. I hope you heal too. I hope we all do.
johnjacobjingle
Hope youre doing good! I am also having distortions and reactive/multitone tinnitus here... I am also a car lover too so its been really hard here. Its been about almost a month since the Acoustic trauma I had so seeing your success really gives me hope (Im 27). Sadly music sounds like distorted trash right now and ears are still sensitive. :(
billie48
@Delta12 , thank you for contacting me. Sorry you suffer so much from tinnitus. At the start we usually suffer much as the ringing is so alien. Given time we will get better. I had to use medications too to help me, Ativan, Prozac, and sleeping bills. Check my success story "From Darkness to Light..." for detail. Take care. God bless.
Delta12
Suddenly last week tintles cane
it started because i had a lott.of stress, little overheated People say

Then i go to my doc, and i cry and cry he said you got a panic or anexity disorder.

So he discribe medication ( Nortriptellyne) how helps me with stress and anexity its my second day, but is its not working yet.



Since yesterday i started with my nortroptelyne.
RunningMan
Nortriptyline takes several weeks to begin to work with anxiety. I took 50 mg for 3 months solid, and I never felt it worked for me. Benzos give immediate relief, but you can build tolerance and dependency within a couple weeks if you take them every day.
orenge01
Lovely how unfair things can feel and you're just supposed to pretend everything is fine. I'm tired of pretending.
kaymath
Wind in right ear static somewhere (maybe left) and EEE or Ewwwa EWwwwah in left ear that both come and go.

It changes so much still 😩 last night wasn't great. Wine is not my friend.

Taking more hydroxyzine than I'd like. :/ don't wanna make it worse but I need help sleeping still I guess.

Can make it louder when yawning or bending head forward.
Sodlin
Im still in this UBERspike. I start to think more that its my reaction + tension from the incidents that spikes me, makes no sense that dropping a catcage door that made like 100-120 DB send my TT from 4-5 to a solid 8/10. Its crazy. Anyone got tips how to adress the jaw and neck? :) Tried to go for a walk today but felt more like i was running away from people with dogs so that didnt make me more relaxed.
kaymath
Wind and static today. So weird. Occasional pings an Eeeeees. had a fairly quiet day other than the gym and kids wrestling practice yesterday and didn't mask last night, took 50mg of hydroxyzine to sleep and got a lot of sleep. Been taking ginkgo and iron again. Lots of variables. Staying positive.
BrOKeN_1
*knock on wood* having alot of good days lately. Pain and noise tolerance is up. Anxiety and depression are at a low ebb. T is still loud and all encompassing but doesn't seem to be in the driver's seat for now. Wishing everyone here better days.
delta784
My distortions are gone sadly reactive t started and noxacusis (ear pain) hopefully i improve pray for me <3
View previous comments…
Alexis413
Sound trauma :( Ive been home bound for the past few weeks now. It originally started with only loudness hyperacusis about a month and a half ago but then the nox kicked in about 2 weeks ago
TheCapybara
@delta784 @Alexis413 I have no idea what noxacusis is like since I deal with distortions and reactivity, but I really hope both of you see improvement over time!
Alexis413
Thank you @TheCapybara. It means a lot. It's been a brutal journey and its hard to see an end to this. I remain hopeful that we'll get better with time
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