BeMagnified
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BeMagnified

Member, Female, from Canada

I now have an appointment scheduled with a neurologist but it's another 3 months away. Feb 23, 2024 at 7:07 PM

BeMagnified was last seen:
Feb 25, 2024 at 2:38 AM
    1. BeMagnified
      BeMagnified
      I now have an appointment scheduled with a neurologist but it's another 3 months away.
    2. BeMagnified
      BeMagnified
      The muscles on the left side of my body are still twitching and jumping non stop 24/7. I've been finally referred to a neurologist.
      1. aab likes this.
    3. BeMagnified
      BeMagnified
      I think I have myoclonus. My left ear thumps and my left shoulder and left side of my neck have been jerking non stop for the last 3 weeks.
      1. View previous comments...
      2. MindOverMatter
        MindOverMatter
        Ok. "The jerking is strong enough that it makes me feel off balance when walking or standing." Sounds like the issue is more than myoclonus. You should see a neurologist.
        Jan 21, 2024
        BeMagnified likes this.
      3. BeMagnified
        BeMagnified
        I do agree that I need to see a neurologist but I need to be referred to one by my PCP. Right now, it feels like my PCP is just guessing while throwing drugs at me.
        Jan 21, 2024
      4. BeMagnified
        BeMagnified
        I'm not certain about her compressed nerve diagnosis as I have no pain or tingling, just a strong jerking and twitching sensation that has lasted 24/7 for the last 3 weeks. She hasn't even sent me in for a scan of my neck or spine.
        Jan 21, 2024
    4. BeMagnified
      BeMagnified
      My musical tinnitus began one year ago this week. I had a lot of anxiety for the first 6 months but I would say I'm coping much better now.
      1. cjbhab
        cjbhab
        What does your musical T sound like? I believe I had musical T for a couple years and it went away. Lately I’ve been experiencing it occasionally at night though. It is different than the last time.
        Nov 16, 2023
      2. BeMagnified
        BeMagnified
        @cjbhab It often sounds like either bagpipes or an accordion playing the same four or five notes over and over again. I hear the same "melody" all the time but the melody will change octaves and speed throughout the day.
        Nov 17, 2023
      3. cjbhab
        cjbhab
        @BeMagnified mine sounded like the neighbours were having a party and there was music blasting next door… but there was no music.
        Nov 17, 2023
    5. BeMagnified
      BeMagnified
      The psychiatrist thinks that I should see an ENT specialist while the ENT specialist thinks that I should see a psychiatrist.
      1. Juliane and crescentsky like this.
      2. View previous comments...
      3. SarahMLFlemmer
        Oct 22, 2023
      4. crescentsky
        crescentsky
        THIS! This is the behavior of these so called professionals! Not going to lie, there are moments I want to slap them in the face when they spout such shit.
        Oct 23, 2023
        Juliane and SarahMLFlemmer like this.
      5. cjbhab
        cjbhab
        That’s the usual treatment with T “go somewhere else”
        Nov 16, 2023
    6. BeMagnified
      BeMagnified
      The ear pressure, ringing and hearing loss have gotten worse and I really don't know what to do. I'm really terrified.
      1. Juliane and aab like this.
      2. View previous comments...
      3. BeMagnified
        BeMagnified
        Sep 24, 2023
        sakrt likes this.
      4. sakrt
        sakrt
        Even better! just a thought if you're unable see Dr. to maybe try them out. I'm glad you were able through ER, however prednisone is a nasty drug. Did it help? @BeMagnified
        Sep 29, 2023
      5. BeMagnified
        BeMagnified
        @sakrt I got the prescription filled but I never took any more than the first dose. According to the pharmacist, the doctor didn't prescribe me a proper taper (the ER doctor wanted me to take 50 mg for 9 days and then 10 mg for another 9 days). After doing research, I decided not to finish the course.
        Oct 2, 2023
        sakrt likes this.
    7. BeMagnified
      BeMagnified
      I'm feeling so lopsided and dizzy and I can't stop throwing up. The whooshing is gone but hearing loss, ringing and pressure r still there.
      1. Ryan Scott likes this.
      2. Juliane
        Juliane
        Sorry to hear that :-( It could sound a bit like symptoms of Menieres disease. Have you been tested for that? Sorry if this is a stupid/ insensitive question.
        Sep 23, 2023
      3. BeMagnified
        BeMagnified
        @Juliane I went through testing back in the late 2000s and everything came back normal. I haven't been able to receive a diagnosis of any kind despite seeing multiple ENTs over the years.
        Sep 23, 2023
        Juliane likes this.
    8. BeMagnified
      BeMagnified
      It's nearly 2am on a saturday and I just lost my hearing in my left ear. I'm also experiencing loud ringing and rhythmic whooshing.
      1. Juliane and Ryan Scott like this.
    9. BeMagnified
      BeMagnified
      Today is my 35th birthday.
      1. sakrt, ZFire, brixenbrixen and 5 others like this.
      2. View previous comments...
      3. Hardwell
        Hardwell
        Happy Birthday :)
        Jun 1, 2023
        BeMagnified likes this.
      4. Joshua Macleod
        Joshua Macleod
        Happy Birthday, chief!
        Jun 1, 2023
        BeMagnified likes this.
      5. brixenbrixen
        brixenbrixen
        alles Gute
        Jun 2, 2023
        BeMagnified likes this.
    10. BeMagnified
      BeMagnified
      My musical tinnitus began 6 months ago.Even though I still have it, I would say I'm coping much better with it these days compared to before
    11. BeMagnified
      BeMagnified
      I went to a family BBQ today and I couldn't hear any of my tinnitus tones at all. It was amazing and quite the nice break.
    12. BeMagnified
      BeMagnified
      It feels like my head is under water. Also can't hear low tones in my right ear and am getting loud humming and rumbling. Also can't sleep.
      1. Sointu, tpj and Strawberryblonde like this.
    13. BeMagnified
      BeMagnified
      I miss having just simple tinnitus.
      1. Sointu, Gabriel, PennyCat and 5 others like this.
    14. BeMagnified
      BeMagnified
      I was just watching a movie and the hearing in my left ear suddenly dropped and was followed by ringing, pressure and rhythmic whooshing.
      1. makeyourownluck
        makeyourownluck
        If it was just temporary then it’s nothing to worry about.. pretty standard for us T sufferers. Just a muscle spasm.
        Apr 28, 2023
    15. BeMagnified
      BeMagnified
      I never thought I would have bagpipes, an accordion, screeching tires, a fire alarm and a helicopter all trapped in my right ear.
      1. View previous comments...
      2. BeMagnified
        BeMagnified
        @TindalosKeeper I pretty much have my own personal soundtrack playing in my ear during all my waking hours. It is interesting to listen to but I'd rather have just the simple whistling and hissing. At least I could mask the hissing and whistling unlike my other sounds that just compete with external noise. I miss how simple my tinnitus used to be.
        Apr 19, 2023
        TindalosKeeper likes this.
      3. TindalosKeeper
        TindalosKeeper
        Now that you mention these different Tinnitus tunes, do you think the Tinnitus itself is the one causing Hearing Loss, then once one of these tunes fade or entirely go away, your hearing returns?

        Unfortunately for me, my own Hearing Loss has been quite consistent, strangely enough. It's like some hair cells in my ear decided they lived enough and yeeted themselves from a bridge the next morning, lol.
        Apr 20, 2023
      4. BeMagnified
        BeMagnified
        @TindalosKeeper My hearing actually keeps testing normal although though I do feel that the musical tones interfere with my hearing. My musical tones have never faded not even once suddenly developing nearly 6 months ago.

        During my sudden hearing loss episodes, I get pulsatile tinnitus. In this case, my hearing returns as the pulsatile tinnitus fades away. I think the two are connected somehow.
        Apr 21, 2023
    16. BeMagnified
      BeMagnified
      My tinnitus began suddenly 16 years ago this week.
      1. BrOKeN_1
        BrOKeN_1
        Veteran. Respect!
        Apr 13, 2023
        BeMagnified likes this.
    17. BeMagnified
      BeMagnified
      So the 5th ENT said nothing can be done and recommended that I should see a psychiatrist. The appointment went as well as expected.
      1. View previous comments...
      2. BeMagnified
        BeMagnified
        @EternalRinging I'm not sure if I'll ever know the cause of mine. I've had countless hearing tests over the years and they have always come back normal. My last hearing test showed that I have slightly better hearing in the ear with the tinnitus than the one without.
        May 15, 2023
      3. EternalRinging
        EternalRinging
        Have you ever had a hearing test in the extended frequency ranges up to 20 kHz? My normal audiogram up to 8 kHz is within 10 dB but when I got tested with the extended frequency range, I found I have hearing loss of 35 dB on ~16 kHz.

        Thou I know it’s pointless cuz I’m pretty sure that almost everybody without tinnitus also have hearing loss in the extended frequency, but who knows
        May 15, 2023
      4. BeMagnified
        BeMagnified
        @EternalRinging I have never had an official extended hearing test. I did do an extended hearing test through an app on my phone and it showed hearing loss in both ears in the extended range.
        May 16, 2023
    18. just1morething
      just1morething
      Call your doctor right away. You may need a steroid injection into your middle ear. Go to urgent care or ER today and see what they say. Delaying could possibly cause permanent hearing loss.
      1. BeMagnified and DeanD like this.
      2. View previous comments...
      3. just1morething
        just1morething
        @BeMagnified, Did you go to urgent care or ER? I would at least talk to your ENTs nurse by phone ASAP.
        Mar 27, 2023
        Strawberryblonde likes this.
      4. BeMagnified
        BeMagnified
        I didn't go to the ER this time but I have in the past. What normally happens at the ER is that they look into my ear and see the fluid that's been sitting there for years. Then they blame the fluid for my symptoms and prescribe me nasal spray, which I'm already on. At this point, it feels so futile to go there to get help even though sudden hearing loss is technically an emergency.
        Mar 27, 2023
        Strawberryblonde likes this.
      5. Strawberryblonde
        Strawberryblonde
        Hi @BeMagnified ive been gargling salt water about 5 times a day for a few days now and it's helping with my post nasal drip/catarrh or whatever is going on with my tubes. My nose feels clear and I can breath better. Have you ever done that constantly and trier it for a week?
        Mar 27, 2023
    19. BeMagnified
      BeMagnified
      I just suddenly lost my hearing in my left ear again. I'm getting a lot of pressure, ringing and rhythmic whooshing. This is terrifying.
      1. Strawberryblonde likes this.
      2. Damocles
        Damocles
        These things happen.

        https://www.tinnitustalk.com/members/sarahmlflemmer.50193/

        Only thing concerning about the situation, is that you say "again". How recently was the last time?

        In any case, check the thread I just linked you. Same advice applies in your case (unless it's happening often/in short spaces of time).
        Mar 26, 2023
        BeMagnified likes this.
      3. BeMagnified
        BeMagnified
        @Damocles the last time was just about two weeks ago with the same ear. My hearing came back fully after a few days the last time.
        Mar 27, 2023
        Damocles likes this.
    20. BeMagnified
      BeMagnified
      Can SNRI antidepressants worsen tinnitus?
      1. Shelbylynn
        Shelbylynn
        hmm I know SSRIS can but not sure about SNRIs though it's the serotonin that can potentially worsen it. I'm on Zoloft and it helps my perception of t. it just depends
        Mar 26, 2023
        BeMagnified likes this.
      2. spedgas
    21. BeMagnified
      BeMagnified
      So I've gained a few new tones this week. One of the tones sounds similar to the gurgling sound from the movie The Grudge.
      1. Strawberryblonde likes this.
      2. Jupiterman
        Jupiterman
        Sorry to hear that, hopefully they are temporary.

        What do you think caused this?
        Mar 24, 2023
      3. BeMagnified
        BeMagnified
        @Jupiterman I'm not sure but I've had a lot of sinus and congestion problems lately, which I don't think is helping my ear. I sometimes wonder if I have some form of cochlear hydrops given that I also have sound distortion, fullness and dizziness.
        Mar 24, 2023
        Jupiterman likes this.
    22. BeMagnified
      BeMagnified
      Sometimes the ear pressure/fullness and sound distortion are worse than the tinnitus itself.
      1. brixenbrixen
        brixenbrixen
        I know … can you describe the distortions ?
        Mar 31, 2023
    23. BeMagnified
      BeMagnified
      I feel lonely & anxious during these late night hours. I wish I didn't have DSPD so that I could sleep at night like most other people.
      1. tpj likes this.
      2. View previous comments...
      3. BeMagnified
        BeMagnified
        Mar 22, 2023
        Strawberryblonde likes this.
      4. Strawberryblonde
        Strawberryblonde
        Do you have family or friends? Someone you can call perhaps? :)
        I talk my bf or mum's ear off when i feel down and lonely.

        We are always here for you too. :)
        Mar 22, 2023
      5. BeMagnified
        BeMagnified
        @Strawberryblonde I have one relative that I live with. They're able sleep at night whereas I can't. I spend a lot of time physically alone due to being awake all night and asleep part of the day.
        Mar 23, 2023
    24. BeMagnified
      BeMagnified
      So I have an appointment with a 5th ENT soon. I'm not feeling hopeful since the others weren't helpful but I don't know what else to do.
      1. just1morething
        just1morething
        ENTs don’t have anything to offer us for tinnitus. Widex Zen seem to help somewhat.
        Mar 18, 2023
        Strawberryblonde likes this.
      2. BeMagnified
        BeMagnified
        @just1morething I don't expect a cure for tinnitus but it would be nice to get a diagnosis for all my symptoms as well as some help for my chronic sinusitis and the fluid that has been sitting behind my eardrums for 3 years.
        Mar 18, 2023
    25. BeMagnified
      BeMagnified
      So I've been awake for 37 hours straight and I can't seem to calm my body and mind down. I seem stuck in flight or fight/anxiety mode.
      1. View previous comments...
      2. SamRosemary
        SamRosemary
        @BeMagnified I was able to self refer through here:
        https://www.accessmha.ca/
        It does say Eastern Ontario (not sure where you are), but even if not give them a try and if you’re not in the area for those services they can refer you.
        Mar 17, 2023
      3. SamRosemary
        SamRosemary
        Through them I was able to go through intakes and get into the CBT program through OSP- Ontario Structured Psychotherapy through The Royal here in Ottawa. Was 16weeks and covered through OHIP. Didn’t take too long to get into either.
        Mar 17, 2023
      4. BeMagnified
        BeMagnified
        @SamRosemary I am from a rural area in southwestern Ontario. It looks like calling 211 might be an option (I can't find such a link or program for my area online). I might look into cmha since they have been helpful in the past.
        Mar 18, 2023
    26. BeMagnified
      BeMagnified
      Just suddenly lost my hearing in my left ear. Also getting loud ringing and rhythmic whooshing in that ear. Might go to the ER but unsure.
      1. Strawberryblonde likes this.
      2. View previous comments...
      3. DimLeb
        DimLeb
        And also an episode of decreased high frequencies in the left ear (which probably was a fleeting T episode but I don't know) for 10 minutes. My T is thankfully mild, except for a few days per month, that it goes to moderate and I have a general instability/off balance feeling nearly all the time. So yeah, I'm in the same boat with doctors... 2/2
        Mar 18, 2023
      4. BeMagnified
        BeMagnified
        @DimLeb I've had countless hearing tests since 2007 and they've always come back normal. I think I might have a form diplacusis as sounds don't sound the same in each ear (but my ability to hear tests the same in each ear).
        Mar 18, 2023
      5. BeMagnified
        BeMagnified
        @DimLeb Up until November, my t was mild to moderate and non disruptive most days. I took one dose of prednisone and suddenly developed musical T. A couple of weeks ago, my regular T got more intense and I started to get fullness and dizziness.
        Mar 18, 2023
    27. BeMagnified
      BeMagnified
      Right ear still screaming. Getting dizzy spells, fullness and tinny hearing. Feeling depressed and sleep deprived.
      1. tpj likes this.
      2. DeanD
        DeanD
        @BeMagnified - I have very similar symptoms as you. Are you on any medication?
        Do you hear any loud crackling in your ears when swallowing?
        Mar 13, 2023
      3. BeMagnified
        BeMagnified
        @DeanD I don't get any crackling when I swallow. I do have fluid behind both eardrums, which I'm on steroid nasal spray for. But I don't know if this fluid is responsible for my symptoms. It's possible that I have eustachian tube dysfunction.
        Mar 13, 2023
      4. DeanD
        DeanD
        @BeMagnified - I have been wondering if mine is ETD related to, but the symptoms can match. Getting diagnosed for such things isn't easy
        Mar 13, 2023
    28. BeMagnified
      BeMagnified
      Just went for a late night drive. The music from the radio drowned out my regular T while my musical T competed with it.
    29. BeMagnified
      BeMagnified
      Does anyone have any experience with the medication Rexulti/Brexpiprazole? I was just prescribed this today and have yet to start taking it.
    30. BeMagnified
      BeMagnified
      My right ear started screaming about a week ago and now I've been dizzy for the last 3 hours. I really wish I could just feel normal.
      1. BrOKeN_1, tpj and Strawberryblonde like this.
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  • About

    Gender:
    Female
    Location:
    Canada
    Tinnitus Since:
    04/2007 (regular T), 11/22 (musical T)
    Cause of Tinnitus:
    Unknown