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Marina Moon
It's been more than a year and I am back here. I don't really have good news, just the same pain and T symptoms like before, just kind of worse. I honestly don't know what's wrong with me, but I still crave for my old normal where constant pain was never in the scope of my reality. I have a follow up appointment with my physical therapy doctor tomorrow.
S
Back once again. I write this to myself as a reminder as well: NEVER GO INTO ANY LOUD PLACES, EVEN WITH EARPLUGS! I've been doing so well for past 2 years. My T&H were basically gone, I found new joy in life. But, because I just wanted to be with my friends just for ONCE before we graduate, it's all gone in few alcohol induced hours. A terrible spike going on. I even had my earplugs on all the time.
zatara92
T still raging but my mood has stabilised. I'm by no means happy, but at least I'm avoiding the deep pits of despair I was feeling before. Except when I try to listen to music - that really gets me down.
delta784
mine is caused by prednisolone which i used to avoid tinnitus i was so mild why? is it because of my veins?
Sodlin
Man im so frustrated. We got these old doors at my work that are "hard to close". You need to close it and then push very hard for it to stay closed. My IDIOT college was closing the door right next to me but instead of doing it the right way he takes and close it by just smashing it shut super hard creating a superloud BAM, i wasnt looking since i was talking to someone else. Anxiety is thru the roof!
kingsfan
Yeah no one bothers to accommodate me with anything despite constantly reminding them to just be quieter around me.
Sodlin
My tinnitus has been elavated for like 3-4 weeks now and i cant really find why it got louder. Ive had some misshapps happening but nothing extreme. i also feel a little bit "clogged" in my right ear where the spike is happening. Im getting less and less anxiety over "loud stuff" thats happening so thats good!
Juliane
I find it difficult to put into words how much I hate this horrible disease. My hate for tinnitus is deep and all-consuming. It has stolen so much life from me and I will never recover from that loss and pain. Never.
dreamer16
Me too. I hate it. Another night of going to bed with a high-pitched whine. No silence, no true rest, nothing.
H
I feel it all the time & got so isolated I found an internet forum with other miserable people 🤗

Therapy is the only thing keeping me together

Aloha friends
L
I took vitamin D everyday for about 2 weeks. My tinnitus worsened around this time. Does vitamin D affect your tinnitus?
Juliane
I have had a similar experience. Too much of a good thing...
nedenben
I can't bear to look at pictures of my younger self anymore without being overwhelmed by guilt. I'm only 21, but it feels like I've already ruined my life. I just don't see how I could possibly build a future for myself. . And the hardest part is… I don't know if I'll ever get to be a mom. Not the way things are right now.
adpolandam
ears take a long time to heal. even up to 5 years... you are very young and you can do it. you have plenty of time for motherhood. I believe in you
crescentsky
There's a chance that it'll go away especially when you're young. I got my first round of T from a concert in my mid-20s and it went away- completely, absolute silence for 10ish years. It was an unrelated series of unfortunate events that led to my current T.
rioxy4152
Hey Zack, how are you doing and how has been your T? Did you got any better? Sending prayers 🙏🏻
zatara92
Feeling more resolute today. Despite the relentless and overpowering T now, I can remember that in the last 13 years I have had more good days than bad days. And on the best days, the T didnt matter one bit. That's got to count for something. I have to believe that I can make it through this hurdle. All I can do is take it one day at a time.
Tryn2BHopeful
T is very loud today. Trying to deal with it and not break down. Seems like the same pattern every week. M-OK, T-Moderate, W - Severe, T- Moderate, F-OK, Sat -OK, Sun - Severe. OK is not great but livable. Its the humming, hissing, ear sensations... ugh... Sometimes I just don't understand the point of "this".
Nes
Currently trying to not care about my tinnitus and hyperacusis and it's actually working. Tinnitus is less reactive and when it is, it doesn't last long (except for the 2 days of ambulance siren phantom noise I got lol)
Juliane
I have made up my mind. I will not take a Xanax or other benzos before my medical procedure. The risk of a spike not worth it. Now I need to find a way to calm myself enough to be able to go through with the procedure.
zatara92
Feeling really down. I'm so tired of having to live with this. The psychological and emotional burden of trying to be strong and carry on through every major spike has slowly chipped away at my resolve each time. It's so loud, louder than everything. Nothing can mask it. This is hell
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zatara92
Thank you for the support friends. In the last 24 hours I have learned that it is ok to let go and cry it out sometimes. I am lucky to have a supportive partner.
It may take months to habituate to this new increased T, and maybe I never will, but for now all I can do is to carry on
Ken219
"maybe I never will" it is day by day. You will habituate! We will HABITUATE!
Tryn2BHopeful
Right there with you!
D
Great, now trying to deal with a new sudden reactive tone/distortion on top of sounds, after 4 years with tinnitus, SBUTT's, scary inner ear sensations, TTTS, MEM, tinnitus spikes etc, now this. Shit keeps piling up. Do you think this can go away? After waking up it seems gone, and ramps up towards the night mostly.
Nemoriri
Spent 3,5 hours at a really loud indoors fair. Averaging around 85-90dB. Was using my Sony ANC headphones and the new calmer extra, but feeling like it was not enough and I should have done more.. but it is what it is now. T feels bit more intrusive, but trying to keep anxiety at bay and look forward.
Christiaan
TU Delft has announced a 2nd symposium on Tinnitus (June 11th). We could expect results of a bimodal device. Who'd like to go to the event with me?
Ken219
Not a believer.
Christiaan
@Ken219 Well, they seem to believe in the device, given the website and the upcoming presentation.
hunu92
Hey, i'm curious about possible treatments
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LovableGamer
@hunu92 I am still searching myself and I'm skeptical to be honest. It's still an unknown area. There may be some places but results I'm not sure on either. I believe there is positive results for some people.
hunu92
There is spi-1005 in close future they've completed all tests, cil001 and rincell1 waitin for them. Drug development is like they find it and start to test it for 10 years so if there is something in somewhere i'm curious about it. can co anywhere in the world to take it
LovableGamer
@hunu92 If you are sure. I would be cautious but I do know of Dr. Minbo Shim. I know two from this forum have gone to him in Korea. There is also those who I believe went to Stem Cells 21 in Thailand.
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