Nadia231
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Nov 27, 2021 at 8:00 AM
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  1. Eleanor89
  2. martinberryhorse
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Gender:
Female
Location:
Manchester, UK

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Nadia231

Member, Female, from Manchester, UK

First time since big spike a year ago that I did not notice my T until 10 minutes after waking up. I couldn't believe it. Made my day! Nov 9, 2021

Nadia231 was last seen:
Nov 27, 2021 at 8:00 AM
    1. Nadia231
      Nadia231
      First time since big spike a year ago that I did not notice my T until 10 minutes after waking up. I couldn't believe it. Made my day!
      Nov 9, 2021
      1. Robster, Tanni, Stacken77 and 8 others like this.
      2. Damocles
        Damocles
        That's what I'M talkin' about @Nadia231!

        Starting to acclimatise.

        Nice work!
        Nov 10, 2021
        Nadia231 likes this.
    2. Nadia231
      Nadia231
      Does anyone else get this weird symptom with their fleeting T episodes? Along with the feeling of deafness for a second, I also feel
      Oct 27, 2021
      1. Steph1710 likes this.
      2. View previous comments...
      3. Nadia231
        Nadia231
        @Damocles you're very right about all the paranoia that comes with T, but I've had T since 2015 which progressively got worse with the years... So any new weird symptoms just scare me so much. But I'll take your advice. Worrying won't solve it anyway.
        Oct 28, 2021
        twa and Damocles like this.
      4. Steph1710
        Steph1710
        @Nadia231 yes I do. I thought that was normal with fleeting T. :-/
        Oct 28, 2021
        Nadia231 likes this.
      5. Robster
        Robster
        It's very common with fleeting T. My hearing drops out for a split second, followed by louder than normal T for a few seconds. Happens to me most days, kind of use to it now.
        Nov 1, 2021
        Nadia231 likes this.
    3. Nadia231
      Nadia231
      Lots of fleeting T episodes with feeling of deafness today... Very scary ones. Some of them lingered for longer than usual.
      Oct 22, 2021
      1. Wrfortiscue and Damocles like this.
      2. View previous comments...
      3. Damocles
        Damocles
        Of course it could just be random. Some days I get it a lot (although, not to the extreme I've related above) and other days not at all.

        Don't worry about it though. Just another symptom we all seem to share in common. By the time you've had tinnitus as long as some of us have, this sort of thing doesn't even seem worth mentioning.
        Oct 22, 2021
        Exit, Wrfortiscue and Nadia231 like this.
      4. Nadia231
        Nadia231
        I don't drink coffee or anything with caffeine and can't really identify the cause... As long as the don't stay, I'm fine.. I just get really scared when I get one...
        Oct 22, 2021
        Damocles, Exit and Wrfortiscue like this.
      5. Wrfortiscue
        Wrfortiscue
        What Damocles said… you’re good nadia231 no worries
        Oct 22, 2021
        Damocles, Nadia231 and Exit like this.
    4. Nadia231
      Nadia231
      Hi all, any recommendations on ear defenders? They are mainly for flying and to do some noisy house chores.
      Sep 26, 2021
      1. Steph1710 likes this.
      2. View previous comments...
      3. Nadia231
        Nadia231
        Hi guys, I bought the x5a peltors and the noise cancelling is great but they are too tight? I thought I bought the wrong size but apparently that's the standard. They really hurt and I'm desperate to take them off, is that normal?
        Oct 4, 2021
      4. Kriszti
        Kriszti
        Used to be tight and uncomfortable for me too, but it gradually got better as I kept wearing them.
        Oct 4, 2021
        Damocles and Nadia231 like this.
      5. Robster
        Robster
        I use Peltor 3M, they are a little tight but I have a big head!
        Oct 22, 2021
    5. Damocles
      Damocles
      I'm not a great advocate of zoophilia @Nadia231, but I think I have a crush on your cat... /ᐠ.ꞈ.ᐟ\
      Sep 26, 2021
      1. Stacken77, Exit and Nadia231 like this.
      2. Nadia231
        Nadia231
        Hahaha, this comment just made my day. I know, Sira is way too cute!
        Sep 26, 2021
        Exit and Damocles like this.
      3. Stacken77
        Stacken77
        The cat is so cute!!
        Oct 28, 2021
        Damocles likes this.
    6. Nadia231
      Nadia231
      In panic mode after a sudden spike+new tone... I'm at work and don't know how I'm going to get through the day
      Sep 22, 2021
      2. star-affinity
        star-affinity
        Sorry about that. :(
        Try to think/hope it will get better – that the spike is likely temporary. Easier said than done, I know...
        Sep 22, 2021
      3. star-affinity
        star-affinity
        Do you have some sort of speaker where you can have a low volume but distracting sound on?

        Here are many options: https://mynoise.net/
        Sep 22, 2021
      4. Nadia231
        Nadia231
        Thanks for your words. I will look into that.. I think is more the fear of it becoming permanent, like it usually happens for me
        Sep 22, 2021
    7. Nadia231
      Nadia231
      T sufferer for 5 years now my brother-20yo- has T as well. My anxiety is off the roof, thinking he'll have to go through all this I'm gutted
      Sep 6, 2021
      1. Christiaan and Damocles like this.
      2. Damocles
        Damocles
        Sorry to hear this @Nadia231.

        At least he'll have you to help guide him through it.

        Just having someone that understands, let alone someone who cares and can offer advice, is a treasure one cannot put a price on.
        Sep 7, 2021
        Stacken77, Christiaan and Nadia231 like this.
    8. Nadia231
      Nadia231
      Just had one of the scariest episodes of fleeting T. So loud I could hear nothing but that for 40s. I'm still panicking.
      Nov 10, 2020
      1. Gareth Davies likes this.
      2. Gareth Davies
        Gareth Davies
        I’m really sorry Nadia; that sounds horrible :( How are you feeling now? Any theories yet on what could be causing it?
        Nov 12, 2020
      3. Nadia231
        Nadia231
        No theories... I get fleeting T constantly, and I know what it is and that it goes away after a few secs. This one was so loud and long that it really scared me. Thanks for your comment
        Nov 12, 2020
    9. Nadia231
      Nadia231
      6 weeks in after a spike... no improvement at all... Looks like it´ll be my new baseline. Don´t think I'll habituate to this loudness :( :(
      Oct 5, 2020
      2. View previous comments...
      3. kingsfan
        kingsfan
        I hope you feel better. I'm a 2 weeks into a spike..well a new tone.. and it's been rough as well. Just remember you're not alone. We'll all get through this together.
        Nov 4, 2020
        JPGL and Nadia231 like this.
      4. dan
        dan
        how loud is it?
        Nov 19, 2020
        JPGL likes this.
      5. Nadia231
        Nadia231
        It is quite loud. I hear it now over the TV, outside as well like at the park when it's quiet... And the hyperacusis is quite bad too...
        Nov 19, 2020
        JPGL likes this.
    10. Nadia231
      Nadia231
      Anyone from the UK? Is prednisolone the same as the prednisone you guys talk about in this forum? Can you get it without prescription?
      Sep 30, 2020
      1. Steph1710 likes this.
      2. Steph1710
        Steph1710
        Hi Nadia. Prednisone has to be converted to Prednisolone in the liver before it can work. So actually Prednisolone is better. :) well no difference really. I'm in the UK in case you're wondering.

        Steph <3
        Sep 30, 2020
        Nadia231 likes this.
      3. Steph1710
        Steph1710
        Oh I forgot to add that you can't get hold of it without a prescription. It's not a drug to messed about with. I was extremely lucky to have a doctor who prescribed it to me after I told him about its potential help towards the on set of tinnitus. X
        Sep 30, 2020
        Nadia231 likes this.
      4. Nadia231
        Nadia231
        Oh Thanks for the info, I just asked because when I google: "prednisone UK" it always directs me to "prednisolone" so I thought it was a different thing in the UK. I will ask my ENT to prescribe some to see if it helps with my spike
        Sep 30, 2020
        JPGL and Steph1710 like this.
    11. Nadia231
      Nadia231
      1 month in after loud spike...it seems this is going to be a permanent one. Same volumen, same tones... no hopes getting back to my baseline
      Sep 26, 2020
      2. View previous comments...
      3. Tweedleman
        Tweedleman
        take NAC and wait like 6 months imo
        Sep 26, 2020
        JPGL, Steph1710 and Nadia231 like this.
      4. Nadia231
        Nadia231
        NAC did not do anything when I first got tinnitus. But I'm definitely giving it a go again... I'm quite desperate
        Sep 26, 2020
      5. Bill Bauer
        Bill Bauer
        Give it another month. If it doesn't begin fading after two months, perhaps your fears are justified. After just one month there is still hope.
        Sep 27, 2020
        Nadia231 likes this.
    12. Nadia231
      Nadia231
      I habituated to my first tinnitus in 2 years. 3 weeks ago a very loud unmaskable spike woke me up in the middle of the night. I'm devastated
      Sep 13, 2020
      1. JPGL and aot like this.
      2. View previous comments...
      3. Steph1710
        Steph1710
        To be honest Nadia, I just decided to get on with life as normal. Felt like killing myself to begin with, but as I got through the days, it slowly became better again. You just have to push forward even though it seems impossible. x x
        Sep 26, 2020
        JPGL and Nadia231 like this.
      4. Nadia231
        Nadia231
        Thanks for the comment. I really know that is the way to go.. But I just can't right now... I was so habituated to my normal tinnitus... And now I have this loud one in both ears all day. I will try my best.
        Sep 26, 2020
        JPGL and Steph1710 like this.
      5. Steph1710
        Steph1710
        If it makes you feel not so alone, I’ve got a head cold right now, which has ramped up my T. I know it probably feels it Nadia, but you’re not alone. <3 I’m lying in bed now wishing I could go back to before when I didn’t have to sleep with sound on. I certainly miss the silence x
        Sep 26, 2020
        JPGL, LilSass and Nadia231 like this.
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  • About

    Gender:
    Female
    Location:
    Manchester, UK
    Tinnitus Since:
    2015
    Cause of Tinnitus:
    Unknown

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