cyberspace

I really feel this comment. My T has spread to my left ear. It feels full and almost feels like it’s bleeding. Honestly it feels like my T is so loud that the sound of my T hurts. God please help us.

It could play a role in it since the jaw is so close to the ears. Even if your bite is off or teeth move.

I have had 4 impacted wisdom teeth removed years ago. Dentist had a rough time removing them. I always wonder if it contributed. No question it can play a role. I can manipulate my T by moving or touching my jaw.

That's horrible. I hope it will reverse soon for you.

Praying for you. This breaks my heart to see. I am there with you. I have been suffering the same. Please keep fighting for a better day.

Same here! Do you know what caused your T? Noise? Meds?

@Juliane microsuction earwax removal

Sorry to hear that:-(

Your spike will calm down, just give it some time. I know waiting seems impossible when every second is hard but time is the healer. You got this. Cry if you must, get mad but don't let T win! It's gonna be okay. ❤️

Sorry to hear, I've thought of this also some times... i tell myself, to NEVER be impulsive about that one... always give yourself time. I tell myself.. time (with natural lifestyle) is the greatest healer. Things can slowly get better, we ought to have faith in that. Wishing you (& myself too if i may say) strenght & ease

@Juliane I’m starting to think this isn’t a spike but rather just the condition progressing.

@cyberspace That would be horrible but would not surprise me :-(

How long have you had it for?

This condition is very random, it makes no sense and there is no explanation for some of the spikes. I try and try to unders6 what could I possibly have done to cause a certain spike. Nothing, I do nothing and I still make it worse. Hope it settles

@cyberspace - I know exactly how you feel. Yesterday I felt good even though I went through 2 major set backs. I was happy for some strange reason. Today I am at my lowest. For the first time yesterday I wore ear muffs all day. Only to wake up to the worst T ever. Next box has my theory.

@cyberspace - what did you eat yesterday? Yesterday I had red sauce, medium steak and red kidney beans. Also had one bite of ice cream. Way too much protein. It was my most careful day with noise. It can be the food. No question it’s the food for me in addition to noise. My nerves and ears are shot beyond repair. I am praying for us .

I have the same issue with my neighbor and his car at 6 am. They don't care. They also want to show off and wake up the whole neighborhood.

Simply let your neighbor know the situation.

What I've noticed is that constant exposure over time dies down the reactiveness. If that doesn't work and the fan makes you happy then keep the fan on and focus on the fan noise over the Tinnitus. My Tinnitus was/is the same. I keep doing the fan and notice it's less reactive and I focus on the fan sound more then the Tinnitus.

I have that too, like morse code.

@cyberspace i had bad reactive t during the first year I developed T. Thankfully i can tolerate the fan and AC again with the reactive component not being so fussy

@SarahMLFlemmer its hard to even exist right now and lay down without intense panic

I feel ya... can only share from my experience kratom helped a lot with anxiety & panic... i say to you, us, myself.. take it easy, give it time... having faith things may get better

@cyberspace I know, I was there too but getting better at it. 11 months in and T has turned itself down in volume a notch.

Sure as hell seems that way. And all you can really do is hope to build a higher tolerance/endurance. I often stare into the medicine cabinet feeling defeated. And then off to the races.

Indeed... it sucks so bad... I just try to live healthy & have hope it will heal with time . . pffuhuh

Mine does

@DeanD do showers spike your tinnitus? Or the sink

@cyberspace - i went on mirtazapine but came off. See my profile for the details of my T. It is sensitive to everything I eat. Every supplement I take makes my ears more sensitive. Not a perception. Unfortunately I am afraid of all meds. I did take Benzo’s for a very short time. Also tried some other ADs.

I spend most of my days in bed too - sleeping. And my sleep schedule is totally messed up. So definitely feel you!

@MadeleineHope - just seeing your post above. This is insane! We are are suffering incredibly. You are so kind. It’s so sad that such beautiful people need to suffer like this. So, so, so SAD!!!!! Makes me angry.

How loud would you describe yours? There is no looking for mine. It’s in your face all the time. Only do not hear it in shower. If I try I could. If your is low you are doing the right thing. Hope you feel better soon.

@4Grace After my microsuction it was 6-8/10 for months, now I’d say 5-6/10

@cyberspace - such great news that it’s improving. I am happy it’s getting better for you. I wish I could take meds without impact on T.

This is so very true. After 11 months on my first good day I go to a friends and somebody whistles. Destroys by right ear. Pain and loud humming. Then goes to silent. Then one day later a cup falls in the sink and boom. Back to worse than I was ever. All progress lost. My friend does not know what he caused me. I feel like he ended my life.

No! ;[

I’m sorry to hear this. Praying for you.

Sometimes medication is necessary. Maybe try a very slow taper up?

Give it time buddy. You are very young, the younger you are the best your chances for recovery.

Took a couple milligrams of klonopin I had lying around with some valium. Doubt it's doing anything though

I'm sorry.

I have cried more than I have with this than I have with anything else.