Emgee

!!!!!

I have the first one.

I’m so lucky to have been bestowed with both - NOT. Hope you’re doing ok, @Kriszti.

Honestly not sure if I’m experiencing spikes or just highly-fluctuating T @Steph1710. On good days, my baseline is a 4/10, but on others it can be a 8 or 9. The reactive overlay is always a 10/10, that never changes.

I had a dentist appointment today and my T has been aggravated as a result.

If it helps Emgee, mine is SO reactive. If I stay in a quiet room then my T behaves. But as soon as anyone slams a door or chinks a glass, then it immediately spikes! I have found drinking water and no junk food helps it’s reactivity though :-/ I think yours could just be highly reactive like mine.

I feel you, Steph. I can’t watch TV, listen to music, or really do anything that involves consistent sound. I can’t even go near my fridge. My reactive T kicks in and goes above the volume of whatever the external noise is. It’s like an electrical knife cutting into my ear. I need to be in a silent room as much as possible.

Keep on playing that record @Emgee. And you can always pm me if you need to vent

Yup same! I'm feeling ill and currently have an ear infection - the joys of over using earplugs :( and it has made my T go a bit haywire. Seems life is a constant battle to keep T at bay... It's so tiring. Hope you're okay Emgee x

Appreciate you both. Wishing improvement and progress for you guys. We have to keep fighting day by day.

I'm the same with hyperacusis - it doesn't need to be 100% symptom reduction to satisfy me like I won't mind if I can never go to a concert or extremely loud sporting event. Just want to be able to be okay in 99% of situations.

@serendipity1996 exactly how I feel in regards to T. I don't necessarily have hyperacusis (I think anyway? My T fluctuates but randomly so not necessarily 'reactive'). I don't care if I can't go to a bar or a concert ever again, I just want to be able to do my thing and live life and be happy. With intrusive T it's just so hard.

It's amazing (in a sad way) how far many of us have fallen. We wish for things that suck majorly because it's a few levels higher in hell. I'm over here hoping for hearing loss. What kind of a sick fantasy is that? Anyways, I 100% agree on not needing a cure. My life has been transformed; I am begging for any mercy at all.

... yet we have leg hair. I would rather have lost that during evolution than the ability to regenerate hair cells in the ear.

@aot your comment made me lol. XD

Here’s hoping medical regeneration (when it comes) cures everyone’s T.

My concern is my audiogram didn’t show hearing loss, but I still have T. Hopefully there’s some hidden hearing loss that the regenerative medication can fix.

I feel like we’re to young for our lives to be over

We all do. Perhaps we will be able to build something decent out of the rubble..

@Emgee I think it has not especially helped the reactivity but the complete tinnitus / over reactivity of the hearin system. Often it seems milder and less intrusive, but it's still reactive. That means that often now my tinnitus is more intrusive with louder surroundings due to the reacitivity, when it's quiet T sometimes hardly notice it. But it still fluctuates greatly.

@Sironketchup Thanks for your insight. Wishing you continued progress!

That’s why I think reactive T is a really a form of hyperacusis. This would explain why it improves naturally over time for some people. I think regen medicine will ultimately be needed to correct this issue.

I agree to. I developed pain H in my left ear a year ago. (no loudness hyperacusis). The pain comes and goes. When it’s bad I get reactive tinnitus in that ear, and when my ear is not in pain and feels a bit stronger I don’t experience reactive T. Hope you feel better @Emgee Reactive tinnitus is hell and mine isn’t even that loud when I have it :(

@Zugzug I hope we all get help soon.

@Monica123 Sorry to hear that. Hope you’re doing ok.

I have severe H and reactive T. It's not going away anytime soon =/

Sorry to hear that. Did your reactive T ever improve at all? Mine is horrific. I hope regen medicine works for us.

I don't think this will happen or at least not in our life time :/

@stacey It’s coming. Hang in there. I’m sure of it. :)

Reactive T, as far as I know, has the same causes as normal T. I don't see why it wouldn't work on Reactive T. Don't give up hope! *hugs*

I’m just confused on whether or not it’s a form of proper tinnitus or a version of hyperacusis (loudness or frequency-specific).

Thanks for the support, @aot. It means a lot. I hope we’re all cured soon.

I have to agree with you on that, @tbuzz89. This is awful. Hopefully, we are cured soon.

@tbuzz89 I've been unable to walk due to health issues and I'd take that again over this

So sad. You posted this on July 4th. The day I acquired reactive T. :( I was so happy before then.

I take it and it has no effect on my tinnitus.

I take it. No effect on my tinnitus.

Thanks for the kind words, @Steph1710. Same to you. Hope you’re getting on ok.

Hang in there man. I know it's difficult as all of us here go through it, and as much as I understand how that doesn't help in these moments, you'll get through this. Always here to talk.

Thanks man, @tbuzz89. Appreciate the support. T continues to worsen so it’s been really tough. Hope you’re starting to feel better.

@Christiaan I know the interview was initially canceled due to COVID-19. Any word on when they expect to interview?

They postponed it. But have no fear, TT will do the postcast very soon with Frequency. Mark my words:)

I can't wait for the podcast!

Amitriptyline

Mirtazapine!

Add me to the list as well @Emgee

@Lucifer The wait is so long. :(

We’re having the best party ever after we all get cured.

@Emgee hell yeah.

It’s the most difficult thing I’ve personally ever had to face. How are you doing today?

@tbuzz89 Unfortunately, I haven’t seen any improvement at all. This is debilitating. How are you feeling?

@aot My TMJ has been acting up really bad lately, and I think that may be playing a role in the severity of my T.

I always wonder what kind of T is caused by TMJ because I suspect I have it, too.

@ASilverLight I just got fitted for a TMJ splint today. I’m hoping that relieves muscle tension and reduces my T even a little.

Hi, @Christiaan. Sometimes I just worry because of how strong my reactivity is. The science would suggest that you’re right and I’m just being overly concerned. I hope we all get fixed soon.

Yeah, it's hard to wait to get used to this @Emgee. But it could always change for the better in the meantime before we get that fix! I had reactive T too, but after two months (from onset) , my T decided to become a lazy basterd and no longer reacts to certain high frequency sounds. Hope it turns out the same way for you too!

That’s great to hear @Christiaan. Mine is so reactive that even low-level sounds within my house cause my T to go crazy. Hoping for some relief.

@ASilverLight Is yours bilateral?

@Emgee yes it is, but both sides have completely different noises. I don't really have a pure tone that stays (I get one or two from time to time) but most of my noises seem to waver/play on a loop, almost. Very, very strange.

@ASilverLight Nothing regarding T surprises me anymore. I also have different noises in each year. However, only my right ear is reactive. That’s my main issue as it’s truly debilitating.

If I were in your shoes, I would avoid the noise.