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Location:: Michigan, USA

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jjflyman

Member, Male, from Michigan, USA

5+ years after 2nd acoustic trauma. Life has been back to normal for a few years now, I still avoid loud places. T faded 95% to a mild hiss May 13, 2022

1. jjflyman
  5+ years after 2nd acoustic trauma. Life has been back to normal for a few years now, I still avoid loud places. T faded 95% to a mild hiss
  
  May 13, 2022
  1. Amv, Sodlin, Jupiterman and 17 others like this.
2. twa
  JJflyman, if I remember correctly your last acoustic trauma was from an outdoor concert at church. Have you been able to go to church or similar activities? I'm 5 months in, we go and sit in the family room (cry room) and I wear earplugs.
  
  Mar 6, 2021
  2. jjflyman
    Concerts, movie theaters and similar are a no go for me. Church (depending on how loud), casinos and gyms are ok if I wear ear plugs. I will always be careful from now on, I never want to go through T again! I think once your ears have been compromised, they are more easily injured again
    
    Mar 7, 2021
    
    anotherforumuser, ALS, SadMan and 2 others like this.
  3. twa
    Its sad to think our lives are forever altered because of this.
    
    Mar 7, 2021
    
    ALS and SadMan like this.
3. kyblue
  Hi - thank you for sharing your story! Question - did you ever use sound therapy at night to help you sleep? Like waves or rain played from a phone by your bedside. I’m 2 months in with loud tinnitus after exposure to fire alarm that I had to disable in the house and sleep is a major challenge. Maybe some slight improvement on rare days but really stuck on sleeping.
  
  Mar 4, 2021
  2. jjflyman
    Yes, I used a sound machine with rain sounds by my bed to help me sleep, and I had several sound machines around the house running all the time.
    Your T will fade probably fade away in a year or so
    
    Mar 6, 2021
    
    ALS, kyblue and twa like this.
4. Rb86
  JJ, I just want to say your story and the collection of success stories you posted are an inspiration for me that I revisit often when I'm struggling.
  
  Feb 27, 2021
  2. jjflyman
    Thank you for the kind words. I hope you get relief too in time. I can tell you that I continued to see slow improvement even after 3+ years, so as long as you are seeing some improvement, don't give up hope
    
    Feb 28, 2021
    
    dolphinskin, Zora, ALS and 2 others like this.
  3. twa
    I do too, I post them to my bookmark section and they always lift me up on difficult days.
    
    Mar 4, 2021
    
    jjflyman likes this.
5. twa
  You mentioned this was your second acoustic trauma. Did you have low level tinnitus before this trauma?
  
  Dec 3, 2020
  1. aot likes this.
  2. View previous comments...
  3. jjflyman
    Totally gone
    
    Dec 7, 2020
    
    twa likes this.
  4. twa
    Can you do things you did before like going to the movies, concerts, church, etc.?
    
    Dec 7, 2020
  5. twa
    @jjflyman, did your ears feel stopped up at times? Did your jaw ever hurt? Thank you for the responses.
    
    Dec 10, 2020
6. twa
  Did you have any other types of tinnitus? Different sounds?
  
  Nov 23, 2020
  2. jjflyman
    My only T was from acoustic trauma. Yes, I had lots of sounds, from high pitched to low hum and hiss. Lots of it was at the same time, but it all went away eventually
    
    Dec 2, 2020
    
    Aschenherz, ALS and twa like this.
7. jjflyman
  4 years after a serious acoustic trauma causing screaming loud T, it is basically gone, except for a slight hiss that I hardly ever notice.
  
  Oct 5, 2020
  1. Zora, GSC, twa and 13 others like this.
  2. GBB
    Hi jj, did you ever get reactivity (e.g. spiking easily from everyday noise), or was that not a thing for you? Congrats!
    
    Oct 6, 2020
  3. jjflyman
    GBB-Yes, it would spike if I was around loud noise, even going for a boat ride would cause it to spike, sometimes for days or even longer. I wore earplugs a lot, even going to restaurants (still wear them if it's getting too loud)). I don't buy into the "over protection" theory.
    
    Oct 7, 2020
    
    ALS, SadMan, twa and 1 other person like this.
8. Zigs
  Hey
  I was just wondering what you did to relieve your H? I can’t find your posts on this sorry
  Thanks
  
  Aug 20, 2020
  2. jjflyman
    There is really nothing you can do except give it time. the H will improve as time goes on, but it may take a year or so.
    
    Aug 20, 2020
    
    Zora, ALS, twa and 2 others like this.
9. serendipity1996
  Just want to say your story is very inspiring to me. 6 months on from a second acoustic trauma and I am probably about 75-80% better. It was mostly H for me rather than T but the burning, searing pain and fullness has gone away (and been gone since April). Still contending with lingering trigeminal and facial symptoms such as mild facial tension and tightness but this has also continued to improve albeit slowly.
  
  Jul 1, 2020
  1. Mi1, ALS, twa and 5 others like this.
  2. jjflyman
    It took about a full year for my H and ear fullness to go away.
    Loud "sharp" noise like dishes clanking still bother me a little, but nothing compared to what it was. Sounds like you trauma is healing great!
    
    Jul 1, 2020
    
    ALS, twa, Zigs and 2 others like this.
10. jjflyman
  40 months after acoustic trauma, T went from 9 to a 1. I barely notice my T now. I use what little is left as a reminder to protect my ears
  
  Jan 21, 2020
  1. SadMan, twa, GBB and 15 others like this.
  2. View previous comments...
  3. Jack Straw
    I would suggest making a post in success stories
    
    Jan 21, 2020
  4. jjflyman
    Yes I plan on posting a complete story there in the near future
    
    Jan 21, 2020
    
    twa, magiccat, Regal and 1 other person like this.
  5. Sevv
    May I ask you if you had any setbacks on the way? (if we don't count the second acoustic trauma as setback)
    
    Mar 8, 2020
11. Mymlan
  Hi! Do you eat any supplements for your T? And if you do, have you noticed any benefits from them? Also, is there anything that you avoid?
  
  Jul 7, 2019
  2. jjflyman
    No supplements, but a lot of caffeine or sodium will make my T worse.
    
    Jul 7, 2019
    
    twa likes this.
  3. Mymlan
    Good to know. I quit caffeine about two months ago, so no coffee for me.
    
    Jul 7, 2019
    
    twa likes this.
  4. Mymlan
    I do drink coffee again, one cup a day makes no difference.
    
    Dec 10, 2020
12. MarkX
  Hey. You said you T is 90% gone. So do you rarely think about it. Do you only hear it in silent rooms? Is it more like ringing or crickets?
  
  May 25, 2019
  1. SadMan and twa like this.
13. Mi1
  Hey! I don't have tinnitus but because of fireworks (in 2018) I have a blocked and tight feeling around my ears... It's already better than before but it's still there... Have you had this too? I wanted to send you a private message but it's not possible? Thanks in advance! Greetings
  
  Feb 20, 2019
  2. jjflyman
    If you don't have any T, I would just give it time, you're ears should eventually heal. If it is a full feeling like your ears need to equalize or pop, you could get a little device called
    Eustachi Eustachian Tube Exerciser. I had great success getting my ears to pop and lose that full feeling using that.
    
    Feb 22, 2019
    
    ALS and Mi1 like this.
14. RoseFaith
  Hi jjflyman, your posts have given me a lot of hope the last few weeks. I was hoping maybe we could chat about it and you could instill some hope in me or some advice? Thanks, Rose
  
  Feb 10, 2019
  2. jjflyman
    Sure
    You can start a private conversation with me, I'll be happy to chat
    
    Feb 11, 2019
15. jjflyman
  27 months after acoustic trauma and my T is still slowly fading. It takes a long time!
  
  Jan 14, 2019
  1. twa, Freyja95, Tara Lyons and 5 others like this.
16. Allan1967
  Thanks jjflyman
  
  There's so much talk on the forum about spikes lasting days or weeks but people rarely talk about months or years which gives people like me (already had T but then must have worsened it following basic piano playing who's now into my 5th week of a spike) a sense of hopelessness.
  
  Nov 5, 2018
17. Allan1967
  Hi jjflyman
  
  I read with interest your post about how you suffered noise damage on two occassions and it took some time, quite a long time, for it to settle. Can I ask....how long was it before you started to notice the difference and was there anything you did in particular?
  
  Many thanks....Your post gave me hope.
  
  Allan
  
  Nov 5, 2018
  1. twa likes this.
  2. jjflyman
    It took many months, maybe 6 months before I started to notice any improvement, and then it very slow, only measurable in months, not days or weeks. improvement continues even today, after over 2 years. I can still hear a slight hiss, but it doesn't bother me and it still is fading.
    I never took anything for my T, just protected my ears from noise and gave it time.
    
    Nov 5, 2018
    
    anotherforumuser, SadMan, twa and 1 other person like this.
18. Santiago Biagi
  Hy man! I’m nearing my 12 month mark. My H is gone but I have really good days of T and some bothersome days. Did yours fluctuate like that? I have a pretty normal life now, just don’t go to clubs, never liked them anyway. And I have very high frequency hearing loss on left ear (hidden hearing loss, sounds not as crisp as other ear)
  
  Jul 19, 2018
  2. jjflyman
    Yes mine fluctuated, and still does. I actually had a big spike 10 days ago from going boating, but the spike has decreased 75% already. I read 2 success stories recently one took 2 1/2 years to fade, another took 3 years. So, it takes lots of time.
    
    Jul 19, 2018
    
    twa and acute like this.
  3. dpdx
    Santiago, what does your audiogram look like? Do you have a huge drop?
    
    Aug 20, 2018
19. Kritish Gooriah
  Hi jjflyman,
  
  Since the onset of my T, i have improvements and setbacks (the trend is it continues to improve (fews seconds i don't have T- T is more and more lower), my T is very reactive to the noise, but i don't want overprotect me, for avoid sensitives ears, do you have counsel for me please?
  
  Jun 24, 2018
  2. View previous comments...
  3. dpdx
    How are you doing man?
    
    Jul 3, 2018
  4. jjflyman
    Well, my small "spike" is gone and I am back to mild/very mild T. it is still getting better, but slow. It's been 21 months now
    
    Jul 3, 2018
    
    twa and dpdx like this.
  5. dpdx
    How you been? Is your T still fading.
    
    Aug 30, 2018
20. jjflyman
  Continuing to slowly fade. I would say it has faded close to 95% so far. I am hoping for a full recovery by the 2 year mark.
  
  Jun 1, 2018
  1. twa, acute, Mi1 and 7 others like this.
  2. View previous comments...
  3. dpdx
    You are very lucky. I am suffering even more then I did a few months ago. Each month is worse. I hardly sleep anymore. High BP.
    
    Jun 1, 2018
  4. dm222
    @dpdx are you taking medication to calm yourself to sleep? maybe you should
    
    Jun 16, 2018
  5. dpdx
    I am also reaching my 1 year mark in September. I have not seen any improvement at all.
    
    Jul 6, 2018
21. dpdx
  Any update?
  
  May 20, 2018
  2. View previous comments...
  3. jjflyman
    I know at 7 months in I was still a basket case with loud T, especially at night when I was tired. Is it better in the mornings? Are you taking any supplements? Sometimes they can actually cause the T to get louder. I know turmeric made mine go through the roof at night.
    Don't give up hope
    I will keep praying for you (and for all people who suffer from this)
    
    May 23, 2018
    
    twa and dpdx like this.
  4. dpdx
    Nope just vitamins. I also have severe H. I didnt have severe H before ear tests. I am wondering if its TMJ caused or the ear tests caused it. Before ear tests my T was mild after that it is severe
    
    May 23, 2018
  5. dpdx
    I am not doing good. I will be 1 year in with T in September. my T is a loud screeching/high pitched dentist drill that covers 90% of things (tv, peoples voices, faucets running full blast). I am seriously getting scared that it wont get better.
    
    Jul 27, 2018
22. littleears
  Hi jjflyman, I would really appreciate your input! I'm a indoor cycling instructor for the past 4 years. I taught a class in Dec. and then came home and hours later I had intense burst of tinnitus, hyperacusis, and ear fullness. Predisone completely cured it but shortly returned. Its been over 4 months and the ringing has not gotten any lower. Do you think my tinnitus will fade and heal completely?
  
  Apr 25, 2018
  2. jjflyman
    exercise classes can get very loud with the music and the instructions. My wife and I always wear earplugs at the gym now. IMO you need to protect your ears from loud noise and let them heal. Most likely your T will fade over time,(maybe even to zero), but it will take up to 2 years
    
    Apr 25, 2018
    
    ALS, twa, Autumnly and 1 other person like this.
23. dm222
  Cases like yours are my only hope
  
  Got tinnitus 6 weeks ago and since then it has been hell...
  
  Since week three or so I notice I get T free momenta during the night but when I wake up immediatly it builds up and gets loud as the surounding noises begin.... Im talking about 30db instead of 25 during the night...
  
  Did you experienced this? It is so sensitive to noise...
  
  Also at work I have 40-50db...
  
  Apr 4, 2018
  2. jjflyman
    Yes, T is hell, nobody can understand except others who have suffered with it. Yes, my T was sensitive to noise to the point it would cause my ears to hurt. I had screaming T that was so loud I could hear it over everything. Please give it time to heal and fade, but it will be very slow to fade and might take 1-2 years.
    
    Apr 4, 2018
    
    twa and dpdx like this.
  3. dm222
    Hi,
    
    Did you ever got distorted earing....
    
    Like when you are hearing rumning water also listening a little hiss bip bip bip bip...
    
    Apr 7, 2018
  4. jjflyman
    No, I never had any hearing distortion or lost any hearing.
    
    Apr 8, 2018
24. Dij111
  Hey @jjflyman , when your T first went away, do you remember if you had any semblance of the sound - when you were stressed, working out etc? (if you plugged your ears for example)
  
  Mar 25, 2018
  2. jjflyman
    My first T completely faded away. After aprox 2 years, I could not hear it even with foam earplugs in, exercising, or stressed. It went totally away. I may have had a slight hiss when plugging them but everyone has that just from putting years of life on your ears
    
    Mar 25, 2018
    
    dpdx, Dij111 and Jiri like this.
  3. dpdx
    Oh man if mine went away like that I would be the happiest man in the world
    
    Mar 28, 2018
    
    twa likes this.
25. threefirefour
  Spell ICUP
  
  Mar 5, 2018
  1. Contrast likes this.
  2. View previous comments...
  3. threefirefour
    Oh right. Nothing bad I just wanted you to spell ICUP. That's all.
    
    Mar 8, 2018
  4. jjflyman
    Are you a member of any psychiatric forums? You should look into it.
    
    Mar 12, 2018
    
    threefirefour likes this.
  5. threefirefour
    Spell it nerd
    
    Mar 13, 2018
26. jjflyman
  Still slowly fading, I am going to take a break from TT for a few months. I hope to come back this summer and post my success story.
  
  Mar 3, 2018
  1. twa, JSR, Val ZeeBee and 3 others like this.
  2. dpdx
    wonderful news :)
    
    Mar 14, 2018
27. jjflyman
  Continuing to slowly fade. just over 16 months in, I would say 85% faded.
  
  Feb 16, 2018
  1. JSR, summ, dpdx and 1 other person like this.
  2. dpdx
    Great News..
    
    Feb 16, 2018
28. JSR
  Set back is kicking my butt. It has somewhat improved over the last 3 weeks but I’m not back to where I was before the party. I can’t sleep cuz my T wakes me uplouder than ever but than fades (wasn’t a problem before). Luckily now during the day I can only hear it in quiet room and can usually mask it. Hope was in sight before setback but now I’m discouraged and worried. Do set backs take a long time to recover from?
  
  Jan 23, 2018
  2. Red
    Ear dmg in general is impossible/hard to recover from so if it does, it'll take longer and be that much more susceptible.
    
    Welcome to the setback club btw.
    
    Jan 23, 2018
    
    JSR likes this.
29. jjflyman
  16 month in and still fading. I'm starting to believe it will fade completely . mostly don't notice it unless I am in a very quiet place.
  
  Jan 22, 2018
  1. twa, acute, Kritish Gooriah and 7 others like this.
30. dpdx
  How is your T now?
  
  Jan 21, 2018
  2. View previous comments...
  3. dpdx
    Did you have H?
    
    Jan 28, 2018
  4. jjflyman
    Yes, I had H for about a year, but it slowly went away. I would say H is 90% gone
    
    Jan 28, 2018
    
    twa likes this.
  5. dpdx
    How are you?
    
    Feb 12, 2018
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About

Gender:

Male

Location:

Michigan, USA

Occupation:

Retired

Tinnitus Since:

09/2016

Cause of Tinnitus:

noise (Concert)
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