Juliane
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Jul 19, 2024 at 3:19 PM
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Juliane

Member, Female

Do any of you guys have eye floaters? Any connection with T? Jul 19, 2024 at 2:57 PM

Juliane was last seen:
Jul 19, 2024 at 3:19 PM
    1. Juliane
      Juliane
      What to do if you have a horrible co-worker who talks constantly? It is making me physically ill :-(
      1. 4Grace, gameover and RunningMan like this.
      2. RunningMan
        RunningMan
        I can relate. I never liked sharing an office due to all the extra chatter, noise, interruptions, food smells, etc. And that's with only 1 or 2 others before I had severe T. Fortunately, I eventually got my own office.
        May 6, 2024
        Juliane and gameover like this.
    2. Juliane
      Juliane
      Holey moley this life is not for beginners. Not for medium trained either
      1. 4Grace, tpj and gameover like this.
    3. Juliane
      Juliane
      For those who want to answer - do you still work with T?
      1. L along the way and RunningMan like this.
      2. View previous comments...
      3. MiaVIL
        MiaVIL
        @4Grace I agree with you. My tinnitus is so bad that there is nothing I enjoy. I have to work even though I struggle/suffer through it. I wouldn’t be in a better situation by any means if I didn’t have to work. My tinnitus is the kind that I can actually feel so it pierces through my ear drums like they’re being cut
        May 8, 2024
        BrOKeN_1 and L along the way like this.
      4. 4Grace
        4Grace
        @MiaVIL - how do you do it. You are so incredibly strong. Working is better but I physically could not… I worsen with the wind. I reached this new point 2 weeks ago. Can’t drive for 5 min. My ears begin to burn and ring harder.
        May 8, 2024
        L along the way likes this.
      5. MiaVIL
        MiaVIL
        @4Grace I work from home and there is a tiny ounce- a very tiny ounce that I will recover. Even though it’s minuscule.
        May 8, 2024
        BrOKeN_1 and Juliane like this.
    4. Juliane
      Juliane
      I have learned nothing from this experience. It has been utterly useless
      1. L along the way, Pinhead, tpj and 2 others like this.
      2. View previous comments...
      3. L along the way
        L along the way
        I wanted to do anything i could to improve my health. Started experimenting with diets, a plant based diet gave me amazing results overall healthwise. No hate against meat eating, but i think i feel more affinity with animals now, because they also have a nervous system and can feel joy and suffering.
        May 1, 2024
        Juliane and 4Grace like this.
      4. L along the way
        L along the way
        So, the animal industry, i don't view animals so much as an industry anymore. Eating animals i don't think is the worst, but just that they can have a natural and free life would be more humane
        May 1, 2024
        Juliane likes this.
      5. L along the way
        L along the way
        That being said.. i would just like to add.. i do believe we as humans have more depth of experience, and are more valuable. But to value animals that they also deserve to be free of unnatural and unnesary suffering.. a more natural life
        May 1, 2024
        Juliane likes this.
    5. Juliane
      Juliane
      I want my ashes thrown over the ocean. That image gives me a sense of freedom and relief. I will be foam on a wave, eternally moving
      1. View previous comments...
      2. gameover
        gameover
        I used to want to have a nice spot in some nice cemetery. No longer. I don't belong to this world anymore, I don't want to have a grave.
        Apr 30, 2024
        dipp, Juliane and crescentsky like this.
      3. Juliane
        Juliane
        May 1, 2024
        gameover likes this.
      4. gameover
        gameover
        Well, within 1-1.5h drive so not exactly near I guess.
        May 1, 2024
        Juliane likes this.
    6. Juliane
      Juliane
      Other patient groups are able to meet IRL and talk and support each other. We can't even do that. We are being tested like gladiators
      1. 4Grace, tpj, gameover and 2 others like this.
      2. dipp
        dipp
        There are some groups in my zone but I refuse to go and hear people complaining of mild cases. Don´t want to reassure that my case is so severe.
        May 13, 2024
    7. Juliane
      Juliane
      Another day in this prison called existence.
      1. 4Grace, crescentsky, tpj and 2 others like this.
    8. Juliane
      Juliane
      I cannot continue. The indifference of "close ones" adds to the torture. If I develop a deadly disease I blame those family members
      1. 4Grace, L along the way and gameover like this.
      2. L along the way
        L along the way
        Sorry to read.. i can't share or give any advice.. i just symphatize
        Apr 29, 2024
        Juliane likes this.
    9. Juliane
      Juliane
      I am so tired of my own posts. I hate being so depressed, so sick of life
    10. Juliane
      Juliane
      No support from family. They don't understand how close I am to ending it all. Or they don't care
      1. SharonBell, 4Grace, weehiru and 2 others like this.
      2. RunningMan
        RunningMan
        This is a common theme on here. People who don't have it severe don't get how much suffering it can cause.
        Apr 28, 2024
        Pinhead, 4Grace, Juliane and 3 others like this.
    11. Juliane
      Juliane
      How can I keep hoping for better times when life today is so much worse than one year ago? When I think of the future I freeze with fear
      1. 4Grace, tpj, gameover and 1 other person like this.
    12. Juliane
      Juliane
      I will quit my job. I give up
      1. gameover likes this.
    13. Juliane
      Juliane
      I am so tense all the time, this cannot go on
      1. SharonBell and gameover like this.
    14. Juliane
      Juliane
      I need help
      1. gameover likes this.
    15. Juliane
      Juliane
      Please help me. I am losing everything
      1. tpj and gameover like this.
    16. Juliane
      Juliane
      How do you guys avoid getting sick from the constant torture and lack of sleep? My immune system is failing badly
      1. RunningMan likes this.
      2. RunningMan
        RunningMan
        This has been something that's worried me for a couple years. I average about 5 1/2 hours, and I keep seeing news stories that recommend 7 to 8 hours and that not getting enough is unhealthy. And then, add all the anxiety on top of that, which can take its toll on your health as well. Exercise & diet can only do so much.
        Apr 28, 2024
        gameover and Juliane like this.
      3. Juliane
        Juliane
        Apr 28, 2024
        gameover and RunningMan like this.
      4. RunningMan
        RunningMan
        I feel kind of sick sometimes, but I think it's mostly from anxiety, and now from a new sleep med I just started. Also, have apparent nerve pain behind shoulder and ongoing stomach pains for months, that I never used to have until late last year. I got a referral for diagnosis.
        Apr 28, 2024
        Juliane and gameover like this.
    17. Juliane
      Juliane
      Loud humming tone quiets a bit when I plug my ears. HOW is that possible? Is that objective tinnitus?
      1. 4Grace and SumGuy like this.
      2. View previous comments...
      3. Juliane
        Juliane
        @Pinhead I know for sure it is in my head because it follows me around. But since I can somehow manipulate the sound by plugging my ear, I wonder if the sound literally/ organically comes from a place inside my head? I read that true objective tinnitus can be heard by other people eg with a stethoscope
        Apr 27, 2024
        4Grace likes this.
      4. Juliane
        Juliane
        @Tryn2BHopeful Perhaps all the WiFi surrounding us is finally getting to the more sensitive among us :-( It def cannot be healthy with all that electronic shite
        Apr 27, 2024
        4Grace likes this.
      5. SumGuy
        SumGuy
        I had a tone like this! It was my neighbors noise machine since she had horrible t at night.
        Apr 27, 2024
        4Grace and Juliane like this.
    18. SumGuy
      SumGuy
      How are you doing friend?
      1. gameover likes this.
      2. Juliane
        Juliane
        Thanks for checking in on me. Struggling at the moment. How are you?
        Apr 25, 2024
        SumGuy, tpj and gameover like this.
      3. SumGuy
        SumGuy
        Hi Juliane, sorry to hear that. I hope things turn around for you. I'm ok, I'm not sure if its going down in volume or im getting used to it. I miss silence
        Apr 26, 2024
        tpj and Juliane like this.
    19. Juliane
      Juliane
      It is not the strongest people who survive but the luckiest
      1. SilverFox, tpj, streifzug and 3 others like this.
      2. Jammer
        Jammer
        I'd rather be lucky than good any day.
        Apr 22, 2024
        Juliane, ZFire and gameover like this.
      3. BB23
        BB23
        Yes. Survival of the fittest doesn't mean the strongest survive. The strongest could die in an accident. It doesn't relate to physical fitness. It means to fit the environment. to avoid all complications of life long enough to pass on your genes.
        Apr 23, 2024
        gameover and Juliane like this.
      4. Juliane
        Juliane
        @BB23 I agree. But even mental strength is also not enough when e.g. having T. It wears you down over time. If it spontaneously lowered that's a different story. Then you are Lucky. Then you start thriving again. But not because of strength. Because of luck. Pure luck.
        Apr 23, 2024
        Cmspgran, gameover and BB23 like this.
    20. Juliane
      Juliane
      I now know life can change in an instant. The homeless person on the street could have been you or me.
      1. SilverFox, tpj and gameover like this.
      2. View previous comments...
      3. crescentsky
        crescentsky
        I desperately wish this was an option - take all my investments and stocks. take all my friends too. don't have a husband, but take him too! i don't care. just give me the damn permanent silence.
        Apr 23, 2024
      4. BB23
        BB23
        In the modern world we think in very limited and self centered ways. I don't think being homeless is the worst thing, compared to this scenario. You could be a farmer and vikings can come invade your land and rip your heart out and eat it to please their gods etc. stuff like this used to happen all the time. nobody in the world is destined to be happy.
        Apr 23, 2024
        gameover likes this.
      5. Juliane
        Juliane
        @cjbhab So would I! But my point was also that some homeless people probably also have T in addition to other multiple issues. We just never know what people struggle with which is why we should never judge anyone.
        Apr 23, 2024
        SharonBell and gameover like this.
    21. Juliane
      Juliane
      I think I might aspire to become a crazy bag lady wandering the streets wearing ear muffs while shouting incomprehensibly at bypassers
      1. Sansa and gameover like this.
      2. cjbhab
        cjbhab
        i don’t recommend shouting. that will give you a spike.
        Apr 22, 2024
        Sansa, tpj, BrOKeN_1 and 2 others like this.
      3. Juliane
        Juliane
        Apr 23, 2024
        tpj likes this.
    22. Juliane
      Juliane
      If I could be deaf with zero T, I swear I would want that. I really do
      1. tpj and gameover like this.
      2. cjbhab
        cjbhab
        imagine being deaf with T!! i would pull the trigger immediately.
        Apr 22, 2024
        Juliane, gameover and Kiyomi like this.
      3. Juliane
        Juliane
        @cjbhab I know! That's why being deaf with ZERO T would be the only manageable way. However, being deaf with no T becomes more and more appealing. Funny how life changes your perspective
        Apr 23, 2024
        gameover and tpj like this.
      4. crescentsky
        crescentsky
        deaf with zero T, complete 100000% silence - the dream!
        Apr 24, 2024
        Juliane and gameover like this.
    23. Joe P. Tamborra
      Joe P. Tamborra
      Jesus promises His followers that when we enter His kingdom, there will
      be no more death, pain, sorrow, or crying (Revelation 21:4) With a precious
      promise like that, it makes tinnitus bearable; knowing that this to will pass!
      1. Eloy Resendez Jr likes this.
      2. View previous comments...
      3. Juliane
        Juliane
        Also, I would not know how to follow Jesus even if I wanted to. How does one follow Jesus?
        Apr 22, 2024
        gameover likes this.
      4. gameover
        gameover
        It is nice psycho babble. If it works for one, great. Does not help me, sorry.
        Apr 23, 2024
      5. Eloy Resendez Jr
        Eloy Resendez Jr
        I’m with you pastor it’s just much easier said than done. I do however look forward to that day!
        Jun 13, 2024
        Juliane likes this.
    24. Juliane
      Juliane
      If a vampire offered you eternal life without T and H but having to live a vampire life, would you say yes?
      1. SharonBell, streifzug, tpj and 2 others like this.
      2. View previous comments...
      3. Lurius
        Lurius
        In a heartbeat! *pun intended*
        Apr 22, 2024
        gameover and Juliane like this.
      4. gameover
        gameover
        Yeah, I really like the idea. I would feast on all the Harley riders, rednecks in loud trucks and other noisy scum. Win-win.
        Apr 23, 2024
        Juliane and tpj like this.
      5. Lurius
        Lurius
        @gameover You could be a Ventrue with a preference for noisy people xD
        Apr 26, 2024
    25. Juliane
      Juliane
      My nervous system is dysregulated. How do I balance it?
      1. 4Grace
        4Grace
        I am truly sorry to hear this. My anxiety is also through the roof the last 3 days. I am experiencing some symptoms from it that I don’t even want to mention. It’s your damned if you do and your damned if you don’t. Constant fear of noise I find can be just as bad as T. I use youtube guided meditation videos. Try to go out in noise friendly places. Talk to people.
        Apr 22, 2024
        tpj, Juliane and L along the way like this.
      2. Juliane
        Juliane
        Apr 22, 2024
        tpj likes this.
    26. Juliane
      Juliane
      My anxiety is getting so bad that I have trouble leaving my home
    27. Juliane
      Juliane
      Has anyone else started getting frequent infections and getting sick more often after T? I litterally get sick all the time
      1. gameover likes this.
      2. View previous comments...
      3. Juliane
        Juliane
        I am so glad to hear you are better @gameover
        Apr 23, 2024
        gameover and 4Grace like this.
      4. gameover
        gameover
        Thank you @Juliane. Usually when I write I am better, I turn worse. I am suffering through a hellish day and night today. Do you get better/lower T days at all these days?
        Apr 25, 2024
      5. Juliane
        Juliane
        Apr 28, 2024
        gameover likes this.
    28. Utdmad89
      Utdmad89
      Thanks
      1. Juliane
        Juliane
        For what?
        Apr 14, 2024
    29. Juliane
      Juliane
      I told a friend with another (treatable) disease that she should be happy it's not chronic and consider herself lucky. Think I lost a friend
      1. gameover and Kiyomi like this.
      2. View previous comments...
      3. Varda
        Varda
        You're spending too much time on this forum. Real friends in the real world don't gaslight each other that they have a "mild case" like they do here.
        Apr 14, 2024
        Tryn2BHopeful likes this.
      4. Juliane
        Juliane
        @Varda; while I do believe all things are relative, I also know for a fact that it helped me in the past when I suffered from mild T to learn from others who objectively had it a lot worse than I to come out of my depression. Tough love can also be love. And helpful. Today, I would be so happy if I had mild T. Not saying you or anyone else here has mild T. But I know I did, before it became worse
        Apr 14, 2024
        ECP, RunningMan, tpj and 1 other person like this.
      5. Juliane
        Juliane
        And while I would never minimize anyone's pain or suffering, I honestly believe that having treatment available that WORKS or even gives temporary relief means being in a much better place than tinnitus sufferers for whom there is no treatment, not even temporarily. My friend who I referred to will be given treatment for something that is temporary. I don't think that is the same level of tragedy as chronic tinnitus
        Apr 14, 2024
    30. Juliane
      Juliane
      2/2 And then I think of course not. Our conditions ARE our lives. I am fucked.
      1. weehiru
        weehiru
        I empathise, so much. It's why I have reframed my mind in considering life being the experiences, the connections and the memories I'm making alone, rather than the conditions I'm facing. Turning it away from just myself as a means to cope. But it's hard. Extremely. Giving you strength today and tomorrow Juliane.
        Apr 13, 2024
        gameover, Juliane, tpj and 1 other person like this.
      2. Tryn2BHopeful
        Tryn2BHopeful
        I said those words to myself today... but then will turn around and say I can do this. I think I am T bipolar...
        Apr 13, 2024
        gameover, Juliane and L along the way like this.
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  • About

    Gender:
    Female
    Birthday:
    February 28
    Tinnitus Since:
    2003
    Cause of Tinnitus:
    Noise /acoustic trauma
    Tinnitus and hearing loss. New damage made my "old" T so much worse. Life is forever changed. I am still struggling with the trauma of it all. I have become indifferent to so many things. And for that I feel guilty. I don't see a possible happy future anymore. I am sorry.