LostinTX
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LostinTX

Member, Female, from Arlington, TX

Bad spike today. Didn't take cyclobenzaprine to sleep last night, is that why? or that thunderstorms all night and barometric pressure? May 25, 2022 at 1:03 PM

    1. LostinTX
      LostinTX
      Bad spike today. Didn't take cyclobenzaprine to sleep last night, is that why? or that thunderstorms all night and barometric pressure?
      1. Wrfortiscue and JPGL like this.
      2. View previous comments...
      3. LostinTX
        LostinTX
        May 25, 2022 at 5:01 PM
        Wrfortiscue likes this.
      4. Wrfortiscue
        Wrfortiscue
        May 25, 2022 at 8:48 PM
        LostinTX likes this.
      5. aura
        aura
        Thanks, guys! Now I have the " Dallas" theme song playing in my head on repeat :))
        May 25, 2022 at 9:51 PM
        Rockman, Wrfortiscue and LostinTX like this.
    2. Hottopic29
      Hottopic29
      @LostinTX what are you taking now ? Anyhing help a bit ?
      1. JPGL and Rockman like this.
      2. View previous comments...
      3. Hottopic29
        Hottopic29
        Struggling both ears but starting to try stuff cause it ain't going down naturally took turmeric last night no spike I notice .. I have hyperacusis noticed last week sore throat losing voice talking but it's like its nerves not the throat itself
        May 24, 2022 at 8:57 PM
        JPGL likes this.
      4. Rockman
        Rockman
        Your really taking it head on! I like it. Keep kicking a!!
        May 24, 2022 at 9:28 PM
        JPGL and LostinTX like this.
      5. LostinTX
        LostinTX
        @Hottopic29 I'm sorry to hear that. It was pretty severe for me for over a year. You will get there with time and giving your body things to heal from inflammation.
        May 24, 2022 at 10:24 PM
        JPGL likes this.
    3. LostinTX
      LostinTX
      finally booked a vacation at the beach with kids/grandkids for next month. Didn't go last year! 5 hour drive we'll see how things go
      1. JPGL, NYCGuy, Leila and 4 others like this.
      2. View previous comments...
      3. Rockman
        Rockman
        I'm thinking you will be so distracted you won't notice it
        May 21, 2022
        JPGL and LostinTX like this.
      4. Leila
        Leila
        Sounds lovely!
        May 21, 2022
        JPGL, LostinTX and Rockman like this.
      5. Hottopic29
        Hottopic29
        Happy you getting out doing stuff .. the beach will mask the T
        May 24, 2022 at 4:08 AM
        JPGL and LostinTX like this.
    4. LostinTX
      LostinTX
      Having a shitty spike day. I just started Armour thyroid lowest dose possible (day 2). Is this why?? Drs been trying to get me on it a year
      1. JPGL likes this.
      2. LostinTX
        LostinTX
        after 2 days I stopped the thyroid med
        May 24, 2022 at 10:59 PM
    5. LostinTX
      LostinTX
      Anyone else here besides me work on the phone for a living? The last 18 months trying to get better and keep my job has been exhausting.
      1. LilSass, ThomasF and Wrfortiscue like this.
      2. View previous comments...
      3. Hottopic29
        Hottopic29
        @LostinTX mines so many tones dont even know there ecoish waa waa waa i want to go away and ear ache burning buzzs to fan ...
        May 18, 2022
        LostinTX likes this.
      4. LostinTX
        LostinTX
        Sorry, I have been there. high pitch eeee, Electrical sounds, white noise machine, cicadas, air leak, hissing. It's fucking crazy our brains make up insane sounds! There needs to be a cure!
        May 18, 2022
        Rockman likes this.
      5. Hottopic29
        Hottopic29
        I cant even go to work anymore
        May 20, 2022
    6. LostinTX
      LostinTX
      When I see people and kids with Bluetooth earbuds walking around all day I seriously want to knock them out of their head!
      1. View previous comments...
      2. Rockman
        Rockman
        I've tried. It won't happen to them is what they think
        May 12, 2022
        LostinTX and Steph1710 like this.
      3. Safari1999
        Safari1999
        One time on the bus to school I passed by a local secondary and all the kids were filling in for class. At least 40% had earbuds in.
        May 12, 2022
        Steph1710 likes this.
      4. LostinTX
        LostinTX
        @Safari1999 that's sad. T has seriously impacted my life and now I won't let my 12 yr old son wear gaming headphones. He hasn't pushed back much because he saw me at my worst and suicidal at onset. They seriously need to run PSA's on TV about the impact on young people
        May 15, 2022
        Safari1999 and Marshall like this.
    7. LostinTX
      LostinTX
      1. Marshall likes this.
      2. Marshall
        Marshall
        I literally thought the same thing when I saw this yesterday
        May 11, 2022
        LostinTX likes this.
    8. A.H.M.
      A.H.M.
      Why do you think that there are not more people who have done the OTO313 clinical study that have shared their experience whether it be good or bad? I find it odd that more participants have not come out and said what the results were for them? I am really leery of the intratympanic injection and not sure that I want to go through with it? Can it potentially cause deafness or make T and H worse? Just curious...
      1. JPGL, Marshall and NYCGuy like this.
      2. LostinTX
        LostinTX
        the researcher will give you a pamphlet about everything for informed consent. I read thru everything and then decided it was worth the risk as adverse events were minimal. I don't know why more people aren't sharing. I didn't want the study compromised so i shared because I thought recruiting was over from what the clinical trial site says
        May 10, 2022
        JPGL likes this.
      3. Marshall
        Marshall
        I know a story who I will not name who made his H worse
        May 10, 2022
    9. LostinTX
      LostinTX
      Got a baby kitten rescued yesterday and husband says it screams". He picked it up and slept with it in his arm all night. I didn't hear jack
      1. JPGL, LilSass, NYCGuy and 4 others like this.
      2. kingsfan
        kingsfan
        When my cat was a kitten I would hold it at night while I slept. Now, as an adult, it loves to be held.
        May 8, 2022
        JPGL, Rockman, NYCGuy and 2 others like this.
      3. LostinTX
        LostinTX
        @kingsfan my husband is a big guy that loves to bottle feed kittens and cuddle them falling asleep lol :)
        May 8, 2022
        JPGL, Steph1710, kingsfan and 2 others like this.
      4. Steph1710
        Steph1710
        @LostinTX aww that made me smile :) Your husband sounds great!
        May 10, 2022
        JPGL likes this.
    10. LostinTX
      LostinTX
      The past 2 nights I've taken gabapentin and cyclobenzaprine and it knocked me the F out! Got 7 hours straight last night :)
      1. Steph1710
        Steph1710
        Good!
        May 8, 2022
        JPGL and LostinTX like this.
      2. Hottopic29
        Hottopic29
        @LostinTX Hey friend.. was thinking about you was going to message about this and searched cyclobenzaprine and you showed up .. lol .. how did this experience go does It lower or help any
        May 24, 2022 at 4:07 AM
      3. LostinTX
        LostinTX
        I think it does make it lower, at least that was my experience at onset and a friend of mine that also takes it for her T. It's not my script but my mom's so I try not to take much but it def helps sleep
        May 24, 2022 at 11:02 PM
    11. A.H.M.
      A.H.M.
      Would you say that it was worth it to you that you had it done? You did not have any bad side effects from it?
      1. JPGL likes this.
      2. LostinTX
        LostinTX
        Yes.
        May 8, 2022
      3. A.H.M.
        A.H.M.
        I am still concerned about side effects. I would like to have improvement in the loudness of the noise that I hear. My T is really severe 24/7.
        May 8, 2022
      4. LostinTX
        LostinTX
        the only side effect I had was slight pain in my ear and my ear canal itched inside for 2 days.
        May 8, 2022
    12. A.H.M.
      A.H.M.
      Thanks for your response. May I ask you some other questions?
      I am actually going for my screening next week and I have severe high frequency hearing loss with severe tinnitus in both ears.
      Do you think from your own experience that if I do in fact get the actual OTO313 that it will help in my volume (which is incredibly loud and shrill) being reduced to a more tolerable level?
      Thanks.
      1. JPGL and NYCGuy like this.
      2. LostinTX
        LostinTX
        Interesting, I wasn't aware they were still recruiting as the clinical trials show that on the gov't trial site? You're doing OTO 313 and not FX 322? I would say you need to make your decision yourself knowing that you have a 50/50 chance of it being drug or placebo and being ok with the fact that you may never know which one you got.
        May 8, 2022
      3. LostinTX
        LostinTX
        My situation was so bad that I figured I had nothing else to lose, so in the words of Hamilton "I'm not throwin away my shot" was going through my head on replay lol
        May 8, 2022
        JPGL likes this.
    13. A.H.M.
      A.H.M.
      Hi,
      I am a new member here today and am interested in your experience with OTO313.
      Is it a temporary or permanent solution to the volume/loudness of the ringing that you hear?
      Thanks
      1. JPGL likes this.
      2. View previous comments...
      3. A.H.M.
        A.H.M.
        Sentinel can I ask you about your experience with OTO313, did you have severe t? Bilateral? Any hearing loss? And no side effects?
        May 8, 2022
        JPGL likes this.
      4. Sentinel
        Sentinel
        @A.H.M. refer to the OTO-313 thread from page 30 onward. My posts there from April 2021 will give you the full picture.
        May 9, 2022
      5. Sentinel
        Sentinel
        @A.H.M. refer to the OTO-313 thread from page 30 onward. My posts there from April 2021 will give you the full picture.
        May 9, 2022
    14. LostinTX
      LostinTX
      Looking into getting SGB, not necessarily for T but for my insomnia and hot flashes. Would be an added plus if it helped T!
      1. JPGL and Wrfortiscue like this.
      2. View previous comments...
      3. LostinTX
        LostinTX
        @Hottopic29 sorry missed this question! Pain Dr's can do them here in TX. I read in a parosmia group that one lady's T went and another guy it went down by 50%. Their T was caused by rona.
        May 20, 2022
      4. Hottopic29
        Hottopic29
        Let me know this shits caused all kinda pain in ears to jaw to neck for me nightmare i could definently use one
        May 20, 2022
      5. KaleeTX
        KaleeTX
        Hi LostinTX, I'm new here and found you because I searched the forum for Texas. Have you found anyone/anything helpful here in the D/FW area? Sorry for sort of hijacking this thread....Not really sure how to navigate the forum and feeling so desperate!
        May 20, 2022
    15. LostinTX
      LostinTX
      Awake every 2 hours last night! SMH T and early Menopause is kicking my ass and making me feel crazy! Something has to give.
      1. JPGL, NYCGuy and Wrfortiscue like this.
      2. Wrfortiscue
        Wrfortiscue
        Allow more time and try to find ways to relax until then <3
        May 6, 2022
    16. LostinTX
      LostinTX
      Has anyone got silence after their T turned into a low level static "fuzz"? I am at 17 months now.
      1. NYCGuy, Guywithapug and JPGL like this.
      2. View previous comments...
      3. Steph1710
        Steph1710
        @LostinTX yes, my T turned into a low static hiss and on some days, I wouldn’t hear it at all. You are right to be cautious though. I slipped up a few times and had a couple of noise traumas and now my T is back properly. So, I would say your T sounds like it’s on a great track! Keep positive and keep careful and you should be fine. :) x
        May 2, 2022
      4. LostinTX
        LostinTX
        @Steph1710 thank you for the encouragement! I am having more times if I'm out doing things I sometimes can't hear it and that's massive improvement. Just got back from Dr too and as I suspected I am in full force early menopause :( and will be starting creams/hrt to see how that goes before I jump to BioTE hormone pellets. I'm so hopeful the progesterone will help my sleep though!
        May 2, 2022
        Steph1710 likes this.
      5. Steph1710
        Steph1710
        @LostinTX well I’m wishing you all the best! Hopefully the hormone pellets will offer you some relief. <3
        May 2, 2022
        LostinTX likes this.
    17. LostinTX
      LostinTX
      Please baby Jesus, let one of these treatments get out and work! I need it to go down more or GONE. Messed up sleep over a week now
      1. JPGL, Marshall, NYCGuy and 6 others like this.
    18. LostinTX
      LostinTX
      If you had the opportunity which would you try out? Lenire or the Facial and Auriculotemporal Nerve Blocks currently being discussed?
      1. JPGL, Steph1710 and Wrfortiscue like this.
      2. Rockman
        Rockman
        Nerve blocks
        Apr 26, 2022
      3. Orions Pain
        Orions Pain
        Nerve blocks forsure
        Apr 27, 2022
        JPGL and LostinTX like this.
    19. LostinTX
      LostinTX
      Things I have been trying- microdosing mushrooms, trying low dose piracetam, HD turmeric -night time to sleep- melatonin, gabapentin & CBN
      1. View previous comments...
      2. Hottopic29
        Hottopic29
        Think you need to trial everything seperate so you know what works or causes spikes
        Apr 28, 2022
        JPGL likes this.
      3. LostinTX
        LostinTX
        @Hottopic29 I finally got the LDN filled. Well, 50 mg and diluted myself. Tried 1mg today and I think it got louder. Read up on one of my LDN forums and several people said made their T worse! So I've backed off piracetam and also this for now
        May 2, 2022
      4. Hottopic29
        Hottopic29
        @LostinTX yea i read that too causes a spike for some im unsure about @jhonnykarate if he had spike have to read his story
        May 2, 2022
    20. LostinTX
      LostinTX
      2 nights in a row no night sweats. Yay! I did get my emergency klonipin out the past 2 nights because sleep had been so shitty fr menopause
      1. JPGL, Wrfortiscue and Rockman like this.
    21. LostinTX
      LostinTX
      I have to pull myself together for my granddaughter's 6th bday party at a trampoline park :/. Had to benzo myself hard last night, so groggy
      1. JPGL, Steph1710 and Wrfortiscue like this.
      2. kingsfan
        kingsfan
        I remember having to attend my daughters 8th grade graduation at the football stadium. You'll make it through it okay. I made it with only foam earplugs that day.
        Apr 23, 2022
        JPGL, LostinTX and Steph1710 like this.
      3. LostinTX
        LostinTX
        I didn't wear earplugs, luckily we were on the quieter end of the building. I still got a db meter app and measured it was about 85 db where we were. Stayed about 2 hours. My T isn't noise induced so I don't get as nervous. In the beginning though I did have major reactivity and
        Apr 24, 2022
      4. LostinTX
        LostinTX
        wore earplugs for a bout 3 months blow drying my hair, walking my dogs (as they bark a lot) and vacuuming. I slowly got more and more used to it so I have no reactivity any more.
        Apr 24, 2022
    22. LostinTX
      LostinTX
      T and early menopause with night sweats galore now is truly fucking my sleep. God hates women. Periods, childbirth and menopause are proof.
      1. View previous comments...
      2. LostinTX
        LostinTX
        @makeyourownluck when I was getting my periods last year, yes it would get louder. Thankfully, I don't think menopause is impacting the T but it IS giving me more insomnia on top of it which is really breaking me! T has gradually been getting lower but I started out super severe. I didn't know everyone that gets it doesn't hear over the freeway and blaring inside stores etc. It was insane.
        Apr 22, 2022
      3. LostinTX
        LostinTX
        I am praying it continues to go down and I can enjoy TV and other stuff again. I never had an IUD but could never take BC made me crazy
        Apr 22, 2022
      4. makeyourownluck
        makeyourownluck
        @LostinTX insomnia on top of T insomnia sounds rough. I hope it all resolves quickly. I am not looking forward to going through it.

        As far as the TV goes. Someone here suggested playing white noise on a speaker at the same time as watching TV. This tip has made it possible for me to enjoy films again. Almost like tricking my brain.
        Apr 23, 2022
        LostinTX and Steph1710 like this.
    23. LostinTX
      LostinTX
      Having a low T day with random beeps? Made me feel about 60% normal today. Had to sit with my kid in tiny dr's exam room and it wasn't hell
    24. Travis Henry
      Travis Henry
      I live in Dallas Texas and I am in a living hell with extremely loud tinnitus. I am about 7 months in and losing hope that my tinnitus will fade at all. It's driving me crazy. I hope yours goes down soon. Mine is noise induced I believe and I stupidly got only the first vac in September of last year and then started noticing tinnitus in Oct.
      1. View previous comments...
      2. Travis Henry
        Travis Henry
        Mine is reactive to all sounds & I have to stay in silence pretty much. Was yours ever like that?
        May 12, 2022
      3. Travis Henry
        Travis Henry
        Like I can't even talk on a cell phone and my own voice seems to be agitating it and people talking.
        May 12, 2022
      4. LostinTX
        LostinTX
        @Travis Henry in the beginning it was reactive to a lot of things but not everything
        May 12, 2022
    25. LostinTX
      LostinTX
      Who can watch TV without hearing T? I can't and it frustrates me so much! Constant high pitch hissing! I just want to relax again!
      1. David S, Barry098 and Wrfortiscue like this.
      2. View previous comments...
      3. aura
        aura
        Anyway,even though I struggled a lot back then it was a walk in the park comparing to what I have now. My T wasn't reactive and I didn't have H back then. Now I have around 6-7 tones.
        Apr 23, 2022
        Hottopic29 likes this.
      4. Hottopic29
        Hottopic29
        @aura mines awful to its same both ears and wavering tones in silence fills my head
        Apr 23, 2022
      5. aura
        aura
        @Hottopic29 I also had a spike after ENT tests, but it got better after a time...
        Apr 23, 2022
    26. LostinTX
      LostinTX
      Sleep is still not normal but I wonder if it's also early menopause causing havoc along with T. It completely sucks having double whammy ;(
      1. Hottopic29
        Hottopic29
        Ive heard people who got that under control with hormones there t went away
        Apr 19, 2022
        LostinTX likes this.
    27. LostinTX
      LostinTX
      17 months in. I have been having periods when I am upright or outside can't hear it. That's huge improvement over where I was 6 months ago.
    28. LostinTX
      LostinTX
      I don't feel like digging through threads. Someone update when Susan Shore results will be out? What does that mean for a timeline 2 market
      1. Travis Henry likes this.
    29. LostinTX
      LostinTX
      In 100 years people will look back and shake their heads and laugh at how barbaric tinnitus treatment was with hearing therapy and maskers
    30. LostinTX
      LostinTX
      Finally posted my OTO 313 experience
      1. Steph1710, Leila, Rockman and 3 others like this.
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  • About

    Gender:
    Female
    Location:
    Arlington, TX
    Tinnitus Since:
    11/2020
    Cause of Tinnitus:
    poss ototoxicity/unknown/BVVP diagnosed first then tinnitus