LostinTX

Agreed. I have been trying so hard to not let it take top priority in my brain. Allowed myself to have a more normal day yesterday, but went to bed anxious about consequences of doing so, and then when you wake up to it every day, it’s the worst reminder and immediate downer.

I keep trying but it's hard. I even try to see the bright side that it has gone down in volume monumentally from the beginning. But I started out severe/catastrophic and now completely feel I have PTSD from it knowing how LOUD it can go.

It's like knowing you have a grenade in your head that can go off anytime the rest of your life. I was that person that slept in complete dark and silence every night and you grieve all the moments you took for granted.

curious about when this dates from.

Stress maybe? Anxious about what may be? Our brains are goofy goober for sure. Hope it recedes quickly for you.

I would really like to taper off ssri myself due to the possible ototoxic properties but due to my obsessive compulsive nature I'm afraid I would end up spiraling.

@BrOKeN_1 it's hard to get off SSRI's for sure. I've been on HRT (hormone replacement for several months but I've gained weight easily and thought I'd try being off it and see how it goes. I guess it helps the T too though, maybe? Thank God today was better but I've had 3 possible vestibular migraines in the 22 months of T and they are debilitating when they happen. Thankful they are rare.

How did you know ?

Oh my! Hopefully you continue that trend

@JPGL I reached out to the researcher. The study was unblinded and she was able to share with me what I got.

I haven’t seen it, but do like Oscar Issac (met him once), so will keep this on my radar. Movies are great. I watch them as a form of escapism. It always feels good when there’s something in the film that becomes relatable or resonating.

@ZFire Yes, I think he is a great actor! Haha we should start a positive/funny thread. "What celebrity have you met? " The only one I've met was Pauly Shore as a teenager hahaha. But my cousin's brother-in-law is Nick Turturro lol. I didn't go to the wedding otherwise would have met him. He took my cousin to the Oscars and a party at Elton John's. Lucky duck!

@LostinTX , honestly that’s a great idea..

Nice! Two mild days, a good flick, and crazy dreams to boot. Lots to be thankful for ;)

What kinda dreams

@Wrfortiscue Umm Eyes Wide Shut kind of dreams lmao!

I think several people have written here that Dr Shore stated it's likely it will, just that she isn't testing for it right now to keep parameters constrained.

Is it okay to ask what you think you may have been given?

@kingsfan i think i was given the drug but could be wrong. My T was loud over everything and i had horrible insomnia for a year no matter what i took! Ambien couldn't even knock me out for more than 2-3 hours. 2 weeks after the shot i started sleeping better and the volume went from severe to moderate over 2-3 months after

I'm in the same boat. Last 2 nights weren't good for me also, and I'm paying the price

@Joe Cuber I'm sorry and know how you feel. I had to take 3/4 of a .5mg klonipin today. It helped and I was then able to get outside and walk my dogs a mile which I haven't done in weeks due to catching covid and being sick 2 weeks. Hope your day gets better too!

That's great @LostinTX! That's a huge positive. I'm trying my best to stay distracted, doing a lot of family time with the kids

Hang in there.. the body aches were the worse for me. Like getting hit by a truck. I lay in bed for three days!

@ZFire yeah I’m guessing. Usually it’s the same story. Blows too hard, hears a pop then loud ringing

Barotrauma, @ZFire.

Ruptured the eardrum in my right ear when I was nine, doing it.

And like @Wrfortiscue said, far too many negative anecdotal accounts around, in relation to tinnitus, for it to be something I would recommend.

Yeah I read those stories and made a point to not blow too hard, but the pressure was so bad

Most viruses will decrease hearing + increase tinnitus (temporarily) = spikesville.

I recommend Quercetin to speed up recovery from the infection.

And try not to stress over the spike, as that's going to negatively impact your immune system.

@Damocles thank you. I think I have some in our medicine cabinet. Yeah this has made me spin out to a bad place today wondering how long I can continue with this loud shit and really not want to keep going. It also sounds like I have laryngitis from whatever this is.

How do you measure?

@Wrfortiscue an audiologist at UTSW here did. After the audiogram they play noises to mask. I guess they call it MML? where i've seen it mentioned before. My report showed 56db even though at that time I told them nothing masked during the exam? I know it's much lower than when i had that exam, but I still have horrible spikes!

Any treatment options they recommended?

only Widex hearing aids for sound therapy and the whole package with treatment expensive AF $5K after insurance

Same boat. I was actually sleeping well a week ago and now it's lucky if I can get a couple hours.

@martinberryhorse I feel ya. I was on that horrible rollercoaster no sleep for a year from T onset. Thankfully, I got 7 hours straight before waking last night. Hope it holds! But I do heavily medicate to sleep :(

I can totally relate to that. Do not fall into despair though. I have been through that countless times, but i always get back to the good sleep... though it may take som time.

Sucks huh

It's frustrating for sure.. takes me all day to adjust. Then overnight it ramps up just to start the whole process over agian

Yes. It would definitely be a huge help to the community (not to mention, yourself) . As long as you can tolerate a few MRIs (which they definitely will do). I think the MRI part is generally keeping most people away, though.

If its close why not try it