LostinTX

@Wrfortiscue are you in TX too?

@LostinTX yup in Kyle

Thanks, guys! Now I have the " Dallas" theme song playing in my head on repeat :))

Struggling both ears but starting to try stuff cause it ain't going down naturally took turmeric last night no spike I notice .. I have hyperacusis noticed last week sore throat losing voice talking but it's like its nerves not the throat itself

Your really taking it head on! I like it. Keep kicking a!!

@Hottopic29 I'm sorry to hear that. It was pretty severe for me for over a year. You will get there with time and giving your body things to heal from inflammation.

I'm thinking you will be so distracted you won't notice it

Sounds lovely!

Happy you getting out doing stuff .. the beach will mask the T

after 2 days I stopped the thyroid med

@LostinTX mines so many tones dont even know there ecoish waa waa waa i want to go away and ear ache burning buzzs to fan ...

Sorry, I have been there. high pitch eeee, Electrical sounds, white noise machine, cicadas, air leak, hissing. It's fucking crazy our brains make up insane sounds! There needs to be a cure!

I cant even go to work anymore

I've tried. It won't happen to them is what they think

One time on the bus to school I passed by a local secondary and all the kids were filling in for class. At least 40% had earbuds in.

@Safari1999 that's sad. T has seriously impacted my life and now I won't let my 12 yr old son wear gaming headphones. He hasn't pushed back much because he saw me at my worst and suicidal at onset. They seriously need to run PSA's on TV about the impact on young people

I literally thought the same thing when I saw this yesterday

the researcher will give you a pamphlet about everything for informed consent. I read thru everything and then decided it was worth the risk as adverse events were minimal. I don't know why more people aren't sharing. I didn't want the study compromised so i shared because I thought recruiting was over from what the clinical trial site says

I know a story who I will not name who made his H worse

When my cat was a kitten I would hold it at night while I slept. Now, as an adult, it loves to be held.

@kingsfan my husband is a big guy that loves to bottle feed kittens and cuddle them falling asleep lol :)

@LostinTX aww that made me smile :) Your husband sounds great!

Good!

@LostinTX Hey friend.. was thinking about you was going to message about this and searched cyclobenzaprine and you showed up .. lol .. how did this experience go does It lower or help any

I think it does make it lower, at least that was my experience at onset and a friend of mine that also takes it for her T. It's not my script but my mom's so I try not to take much but it def helps sleep

Yes.

I am still concerned about side effects. I would like to have improvement in the loudness of the noise that I hear. My T is really severe 24/7.

the only side effect I had was slight pain in my ear and my ear canal itched inside for 2 days.

Interesting, I wasn't aware they were still recruiting as the clinical trials show that on the gov't trial site? You're doing OTO 313 and not FX 322? I would say you need to make your decision yourself knowing that you have a 50/50 chance of it being drug or placebo and being ok with the fact that you may never know which one you got.

My situation was so bad that I figured I had nothing else to lose, so in the words of Hamilton "I'm not throwin away my shot" was going through my head on replay lol

Sentinel can I ask you about your experience with OTO313, did you have severe t? Bilateral? Any hearing loss? And no side effects?

@A.H.M. refer to the OTO-313 thread from page 30 onward. My posts there from April 2021 will give you the full picture.

@A.H.M. refer to the OTO-313 thread from page 30 onward. My posts there from April 2021 will give you the full picture.

@Hottopic29 sorry missed this question! Pain Dr's can do them here in TX. I read in a parosmia group that one lady's T went and another guy it went down by 50%. Their T was caused by rona.

Let me know this shits caused all kinda pain in ears to jaw to neck for me nightmare i could definently use one

Hi LostinTX, I'm new here and found you because I searched the forum for Texas. Have you found anyone/anything helpful here in the D/FW area? Sorry for sort of hijacking this thread....Not really sure how to navigate the forum and feeling so desperate!

Allow more time and try to find ways to relax until then <3

@LostinTX yes, my T turned into a low static hiss and on some days, I wouldn’t hear it at all. You are right to be cautious though. I slipped up a few times and had a couple of noise traumas and now my T is back properly. So, I would say your T sounds like it’s on a great track! Keep positive and keep careful and you should be fine. :) x

@Steph1710 thank you for the encouragement! I am having more times if I'm out doing things I sometimes can't hear it and that's massive improvement. Just got back from Dr too and as I suspected I am in full force early menopause :( and will be starting creams/hrt to see how that goes before I jump to BioTE hormone pellets. I'm so hopeful the progesterone will help my sleep though!

@LostinTX well I’m wishing you all the best! Hopefully the hormone pellets will offer you some relief. <3

Nerve blocks

Nerve blocks forsure

Think you need to trial everything seperate so you know what works or causes spikes

@Hottopic29 I finally got the LDN filled. Well, 50 mg and diluted myself. Tried 1mg today and I think it got louder. Read up on one of my LDN forums and several people said made their T worse! So I've backed off piracetam and also this for now

@LostinTX yea i read that too causes a spike for some im unsure about @jhonnykarate if he had spike have to read his story

I remember having to attend my daughters 8th grade graduation at the football stadium. You'll make it through it okay. I made it with only foam earplugs that day.

I didn't wear earplugs, luckily we were on the quieter end of the building. I still got a db meter app and measured it was about 85 db where we were. Stayed about 2 hours. My T isn't noise induced so I don't get as nervous. In the beginning though I did have major reactivity and

wore earplugs for a bout 3 months blow drying my hair, walking my dogs (as they bark a lot) and vacuuming. I slowly got more and more used to it so I have no reactivity any more.

@makeyourownluck when I was getting my periods last year, yes it would get louder. Thankfully, I don't think menopause is impacting the T but it IS giving me more insomnia on top of it which is really breaking me! T has gradually been getting lower but I started out super severe. I didn't know everyone that gets it doesn't hear over the freeway and blaring inside stores etc. It was insane.

I am praying it continues to go down and I can enjoy TV and other stuff again. I never had an IUD but could never take BC made me crazy

@LostinTX insomnia on top of T insomnia sounds rough. I hope it all resolves quickly. I am not looking forward to going through it.

As far as the TV goes. Someone here suggested playing white noise on a speaker at the same time as watching TV. This tip has made it possible for me to enjoy films again. Almost like tricking my brain.

Mine is reactive to all sounds & I have to stay in silence pretty much. Was yours ever like that?

Like I can't even talk on a cell phone and my own voice seems to be agitating it and people talking.

@Travis Henry in the beginning it was reactive to a lot of things but not everything

Anyway,even though I struggled a lot back then it was a walk in the park comparing to what I have now. My T wasn't reactive and I didn't have H back then. Now I have around 6-7 tones.

@aura mines awful to its same both ears and wavering tones in silence fills my head

@Hottopic29 I also had a spike after ENT tests, but it got better after a time...

Ive heard people who got that under control with hormones there t went away