SarahMLFlemmer

SarahMLFlemmer

Member 37 From Central California
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  • SarahMLFlemmer
    Can anyone feel their T? I can't tell if it's the sound or if I'm actually feeling the vibrations in my ear.
    View previous comments…
    ErikaS
    Yep, many can feel the sound(s). I feel like this is linked to very sensitive and/or partially damaged inner ear nerves. I completely envy those who just have a sound but no feeling to it.
    S
    I can feel the vibration in my right ear when I lie down but the others i don't. I think the brain is adding sensations to the noises.
    sakrt
    Mine is unilateral, nearly 24/7 sensation, tormenting aggressive, with low-bass rumbling sound, however it's primarily pulsatile which may be the factor behind it all. I've described this to ALL my Drs. in loop-cycle :(
    SarahMLFlemmer
    My T has been extra loud last night and this morning. Maybe I had a little too much caffeine yesterday?
    View previous comments…
    S
    I think I notice things more this time around is because I'm on this forum. With my old T I didn't think anything but headphones would make it worse and nothing seemed to make it spike. Now I'm worrying about teabags haha.
    Ryan Scott
    I would love to enjoy a nice coffee lol. But a month or so after I got T I was having a coffee in the morning every so often for work, then one day out of nowhere an hour after a cup of coffee the loudest T ever. Since then, I have been terrified to try and have another cup lol.
    S
    Not a coffee drinker myself but have you tried a decaff version of coffee? You can still enjoy your beverage without the T spike haha.
    SarahMLFlemmer
    It's normal to hear T over the TV, right? I just want to enjoy a movie with my Husband. I'm the most miserable when I'm sitting still.
    SarahMLFlemmer
    I didn't even know that tinnitus was even a thing until I got it. So many people I know/know of have tinnitus.
    SarahMLFlemmer
    Thinking of you all! How did everyone do today?
    SarahMLFlemmer
    I want to know! What do you do to help relieve your Tinnitus? I have found out that a long bath helps me.
    SarahMLFlemmer
    Getting ready to school my littles. This is hard but I trust God when He says, "I can do all things through Christ who gives me strength."
    Ryan Scott
    SarahMLFlemmer
    @Ryan Scott Yes, we homeschool. =) I developed T 11/20/22 and it's been really hard to focus since. I just want to sleep in to avoid hearing the T so we start school late & our normal schedule is just out of whack & really messing with both me & the kids. =/
    SarahMLFlemmer
    Anyone else have T plus chronic migraines? Accutane is the devil. =[
    S
    i get tension headaches where it feels like my head is full of pressure. Another annoying thing to be dealing with.
    SarahMLFlemmer
    @Strawberryblonde I think I get that too from Accutane. I'm not taking it anymore, but it caused my T and migraines that haven't stopped yet. I am 4 months post-Accutane. =(
    S
    I use olbas oil when I get a tension headache I feel it helps relieve it ever so slightly. I do that before either reach for a headache tablet :(
    SarahMLFlemmer
    What medication is best to take for sleep? I'm looking for something less ototoxic if there is such a thing. Natural stuff doesn't cut it.=(
    SarahMLFlemmer
    I am 3 hours away from Stanford Hospital. I called & asked ?s but I'm waiting for a call back. Any new news on Stanford or their research?
    SarahMLFlemmer
    I took sleep medication last night that usually works, but nope, no sleep for me. I tried again for a nap and still no sleep. =(
    SarahMLFlemmer
    So... What kind of treatments are being explored for tinnitus right now, medication and Shore's device, correct?
    SarahMLFlemmer
    Had a good day with T yesterday, I could barely hear it! I was also extremely busy all day and out and about, but still. =)
    GeorgeLG
    This is the process of lowering the priority of T and getting back to your life. Now that you have experienced this process this is what you should build on.
    SarahMLFlemmer
    @GeorgeLG I am a stay at home homeschool Mom and my house is very quiet and it just makes it so hard to ignore. I love the sound of fans so I might need to run one in every room or just put waterfall sounds on all the TVs or something until I am okay with my T in Silent places.
    GeorgeLG
    In the beginning I would look for activities that had just the right amount of background sounds to distract me. Then every time I had an exposure and spike I would go do something that ended in an accomplishment so every bad event became something positive and satisfying. Eventually I did not care about it anymore.
    KoolKat
    Right now google "whats the number 1 disability in the UNITED STATES military"... The answer will blow your MIND. Now are you ready for another shocker that'll make you go mad, Go look up all the CELEBRITIES/MUSICIANS WITH THIS.. I wanted to punch a wall when i saw the names.
    They overnight with a single tweet or promo shoot could've made Tinnitus go VIRAL years ago and gave it the much attention it needs
    View previous comments…
    KoolKat
    @SarahMLFlemmer sorry if its too much i kinda dont want to scare you cause your new
    KoolKat
    @SarahMLFlemmer Also i want to say they do have some interesting discoveries and new things that are suppose to KNOCK ON WOOD be coming out. so hang on, try to be positive etc etc. and the reason im telling you all this is because i want u 2 see how the powers that be are almost intentionally failing us.
    SarahMLFlemmer
    @KoolKat I don't have time to respond at the moment but... #GodWins

    PS: I don't think there's much you could say that would scare me. No worries, man!
    SarahMLFlemmer
    Wishing you all a good night's sleep. Prayers up for a better tomorrow. Goodnight and God bless.
    View previous comments…
    S
    I used to take different antidepressants over the years but don't anymore.
    You will wake up one day and you won't be scared or anxious or think about your T. It really is a long process and does take some damn hard mental strength to get through it, but you will get there. When? Only you will know that :) @SarahMLFlemmer
    Supersix
    @SarahMLFlemmer "Hi Sarah, I hope everything is going well for you. How is the Amitriptyline medication working out for you? im curious why you chose that one vs. 30 others out there. Thank you
    SarahMLFlemmer
    @Supersix Hey! I'm doing alright, I guess. Everyday is different. Amitriptyline 25mg works great for me for sleep. And IDK, it's just something my primary doc suggested. I tried other things like Hydroxyzine, Benadryl, and one other anti-depressant that I can't remember the name right now, but they didn't work, and the other AD tripped me out.
    SarahMLFlemmer
    Frantically looking for "a cure"...
    SarahMLFlemmer
    I have a family and I feel so bad. They can't comprehend what I am going through. They are supportive, but I hate the person I am today. :(
    SarahMLFlemmer
    I know things could be worse, much worse... But how is there absolutely no cure for this thing? It's very depressing.
    SarahMLFlemmer
    Are there any fellow believers in this forum currently?
    View previous comments…
    ErikaS
    @SarahMLFlemmer Amen sis. I take my baby dose of Ativan a day which has SO gotten me through this, and I started with a good functional medicine doc who is detoxing/clearing out inflammation organ by organ which will ultimately help me heal. Currently looking into stem cell treatment but that is SOLELY given my specific case of how I got T…
    ErikaS
    @SarahMLFlemmer i am so so sorry you deal with other health issues. I have Hoshimotos hypothyroid but it is well controlled with my med and from working with functional med doc. Have you worked with functional med doc ??
    ErikaS
    Also, read @Marin 's thread about being alive and 75% better. Her story got me through and still does, she is amazing and what she shares that helped heal her, I feel, could benefit many with T.
    SarahMLFlemmer
    This is torture. How are we supposed to live like this?
    View previous comments…
    MindOverMatter
    Yes @SarahMLFlemmer - through all these years many of us have taken too much for granted. In many ways I've never been more grateful than I am now - because this journey is, and have been, an eye opener. Those little things I thought less about before, means so much more now. I notice them. And they are anything but little. That cup of coffee, that hug, a bird singing, fishing, or whatever you may enjoy...
    SarahMLFlemmer
    SarahMLFlemmer
    @MindOverMatter this has def. been an eye opener for me too, for sure. Yeah, it doesn't look like a feasible cure (in my opinion) is coming anytime soon. No choice but to accept what is & trust God.
    SarahMLFlemmer
    When I am out & about my T feels like it's in my ear. When I am someplace quiet my T feels like it's in my whole head. Is that normal?
    Ryan Scott
    I think its pretty normal. In a quiet room my T only sounds like its coming from my left ear, but when I put my right ear on a pillow I still hear my T.
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