MiaVIL

hi how do you know if its draining?

@SumGuy the mucous comes out of my ears

It's never close to being over for me, but some days are less intense, which makes it easier.

i get stretches where i think i am going to manage and then i get kicked right back down.

Unfortunately. Not for me. From the moment I wake until I fall back asleep it's stun grenade time!

Mucous in the ears causes signals from the cochlea. I'm sorry, but how?

@Pinhead causes bones to vibrate and signal something is wrong. Ear space is normally filled with air. Mucous signals a problem.

The pinging he describes for sure. Could that be a sign of reduced T?

It would have been nice if when they found the fluid and removed it if it helped? I guess it did nothing.

@4Grace they can’t remove it manually. The treatment is tubes, which I’ve had since September. It’s thick, snot like sticky mucous that was trapped in my ears. It’s not even liquid. It’s still coming out and it’s in the back of my middle ears and mastoids where they can’t reach

loved Al Lipschitz
More than I can possibly say
He was a real artistic guy
Sensitive, a painter

are you the Lipschitz from Cell Block Tango?

@gameover I am not hopeful because the fluid sometimes cannot be seen. The majority of it is seen on a CT scan… they can’t do anything about it or won’t do anything about it.. they told me to deal with it

Assholes. Seek other doctors help. Maybe some PCP or even naturopath one. ENT are pompous assholes. Entirely Not Treating.

@gameover once I get this ENT to go over my results I will go from there and maybe see if I can get a referral to a clinic in another city or in Michigan since it’s only an hour and a half drive from where I live in CAN. My mom calls the ENT profession the armpit of the medical world- truly incompetent, dumb, assholes

Just shows what a tool he is. He knows everything based on his own experience. It is best to ignore him.

IDK. If someone tells me their T went away, I don't think I would argue with that. When I had my concert T for a few(?) days, it completely faded into silence for 10 years before current T came out. I 2000%+ experience complete silence.

@MiaVIL A lot of people who experience T remission don't write success stories, they just leave this website without saying anything.

The people you spoke to on the phone are likely telling the truth. Tinnitus plays out differently for everyone. It gets quieter for some people, and for others, it doesn't. There's no logical reason to believe that everyone who claims their T reduced/resolved are lying.

That's not what "Jason C" wrote. So one of them is lying. Gotta say Mr. Leigh never struck me as someone trustworthy with his robotic and annoying manners.

I recall reading about that before. It seems like there were some conflicting statements IIRC.

The conflicting statements were solely made by Leigh. @Jason C was unequivocal his T went away and stayed away, confirming that years later.

Musical genius forsure. Wish he hadn't passed so young, I felt he was just entering his songwriting prime. Every album was an improvement over the last. TSOP is already so damn good, to think he could've written something even better makes me sad. I was 5 when he passed.

I used to go to backyard shows when i was a teen. There was a band that always covered Evil Dead and Pull the Plug. The energy was always electrifying when they played those two songs. It was a garaunteed moshpit lol I can imagine how much better it would have been to hear Death play those live.

I think at the time around his death he just wanted be on guitar for Control Denied and focus on that. Yeah being old enough in the 90s to see Death would be out of this world. I watched the Death documentary recently on Youtube but it mostly just ex band members talking crap.

Yeah not arguing. Is she making money off books or something? I saw a reference she made to TRT helping with habituation, then added that the tinnitus is low. I think you see little reference on Tinnitus Talk because most don't think it was worth the cost for little to no benefit. But if you try it, let us know how it goes.

@RunningMan She told me she never made any money off her books and has tons at her house still not wanted. She is old now like early 80s. Back in the 90s she had bad hyperacusis and “12 tones which were louder than all of San Francisco”. She is fully recovered now after wearing the generators for 4 years. Anyways that’s a condensed version her story.

It's always possible, keep that hope alive. It's what gets us through this. Just be cautious because there are alot of people trying to scam T sufferers.

I never think of my tinnitus as a threat, just distracting and annoying, but it still kicks in the sympathetic nervous system and causes anxiety, plus I can't sleep with all the "noise" even when my anxiety is under control.

Sorry for the rant

@4Grace my profile is a safe space for ranting.

I cannot believe what happened to my life. If I could only be healed and go on living knowing what I know now. Everything I ever worried outside the health of my family was BS! Pure 100 percent BS. Any time I see people complain … I sadly always think … you don’t have T, you will be fine. You can work it out. You can make the best of it. I know I’m always negative. I still try.

I would often bounce my head and dance a little when doing bbq. I took in nature. Loved walking, biking. Time with friends. Have a group of 20 friends from elementary school. Always planning things. Exercised. Great family. Most of it lost!!! Even had to step away from my job of over 20 plus years. Financially still okay but mentally - who can endure that much loss all at ounce.

@4Grace I grieve myself every day. I loved music and long walks even in winter months. I loved working in silence. I loved weddings and costume parties, theme parks, vacations. I miss feeling comfortable. I used to bless people with good health. I used to pray for others. I was helpful to people. I took joy in little things like a flower or rabbit in the backyard.

How come you can’t ever leave the house?

@snizzleberry because of my T

Doesn’t it get worse if you just stay home? I have to get out of the house to distract myself because I’ll just hear it at home. When I’m outside I can’t hear it. It sucks though, this condition.

No more pain and tears. No more of anything really.

It's a way to habituation. It works for some.

TRT looks ineffective. See: https://www.tinnitustalk.com/threads/tinnitus-retraining-therapy-is-ineffective-latest-study-finds.35055/

@Tryn2BHopeful some said “I don’t have the ringing anymore”, “to all avail it’s gone away” and “it’s gone from a 10 down to a 2 and we’re going to eliminate it within the next 6 months”. That doesn’t sound like habituation.

I can relate :(

does it sound like a high pitch electrical spark? @MiaVIL

Brain zaps are a feeling not T, in to which I believe MiaVIL is referring to. Brain Zaps are due to the malfunction of neurotransmitters as they try equalizing into homeostasis after ceasing AD's. I've had them before for months after quitting Zoloft way before I developed Tinnitus. @Tryn2BHopeful

@Marshall it’s more in my ears not the head. My ringing pure tone changed into this after a sinus infection. What is going on with me?? Will these ever go away? I hardly ever get a pure tone ring.