Search results for query: TTTS

...and even within the same day, both high-frequency and low-frequency tinnitus. But simply having mild tinnitus turn severe is enough to dishabituate, but the variability of it makes it worse. And worsening TTTS and hyperacusis over time is also a factor. Best wishes that it will go better for...

This is very comforting to read. I’m experiencing hyperacusis myself. I’m 8 months in, along with tinnitus, & it’s driving me potty! But persevering, one day, it’ll get better.

...as it tends to fade over time, perhaps a year, for most people. I had hyperacusis twice, and both times it lasted for about 9 months to a year. TTTS also tends to fade, especially if you keep away from extreme anxiety about it. You can search the forum about TTTS as it is quite often reported...

...this paper states just the opening of the channels inhibits the intracellular Ca++ release, meaning that they still might bring relief to TTTS. I'll try to find that paper again. What's even more idiotic is that nobody is testing XEN1101, Retigabine, or some other potassium channel opener...

Also, Flupirtine has in all likelihood a greater affinity for Kv7.4 channels than XEN1101: (Source) In my opinion, it was a great mistake of Dirk de Ridder to use only 2 x 100 mg of Flupirtine in his trial for the treatment of tinnitus. Does anyone else think that was just plain idiotic, and...

Hey guys, I’m in a world of hell at the moment. Here’s my story for those who care to read. At the start of January I got sick with some sort of viral infection, nothing too serious. A couple of days later, I was sitting in the truck at work (I’m a piano removalist), and I felt my left ear fill...

I believe the TTTS bothers me more than the tinnitus and is the source of my hyperacusis. I remembered that Flupirtine has muscle relaxant properties that Retigabine didn't have, at least to my knowledge. While searching for the reason, this paper popped up: Also: Sounds similar to...

...for my mild tinnitus doesn't work for the severe variable tinnitus that I have now, which is combined with moderate hearing loss, hyperacusis, TTTS, insomnia, anxiety, and other chronic pain. There's an automatic response by the sympathetic nervous system to the loud tinnitus, even when my...

I sympathize with you, as this is where I've been as well for the past eight years. My reactive tinnitus and hyperacusis dictate my life. My high-frequency, multi-tonal, discordant tinnitus is a nightmare that is only getting worse the older I get. I've accepted that this is my tinnitus and am...

...system. I have more bad days and fewer bad days. Time has not given me any benefit over the last 2+ years of severe tinnitus. Hyperacusis and TTTS started in 2023 and don't seem to have improved, either. One odd thing with reactive tinnitus is that I don't seem to have that with my...

TTTS, aural fullness and reactive T makes it impossible to habituate. I can somehow deal with the normal T and H, but this is too much.

I just can't do it anymore. The TTTS is so bad, it's like a pulling sensation in my ears. If I pull on my earlobe my hearing enhances also

...have had a chance at getting better. Now, my mental health is deteriorating and has caused (I assume) my recent hyperacusis/phonophobia and MEM/TTTS situation. I’m trying many of the recommended treatments, like CBT, deep breathing, mindfulness, journaling, etc., but my anxiety is so severe...

...they can’t really see inside the middle ear without some kind of invasive procedure. But he did, at least, seem pretty knowledgeable about MEM & TTTS. It seems a lot of people on here have seen ENTs who are not. I’m kind of hoping it’s TTTS, as it sounds like stapedial MEM is the worse of the...

It sounds like he didn't really determine anything from testing and is just speculating. From your descriptions earlier, it sounds like TTTS (which is a type of MEM). Do some sounds sound louder than they used to, or do you just fear sounds? With hyperacusis, they sound amplified. If you see...

...last week. He basically confirmed what I already thought, unfortunately. However, he said it is highly likely to be stapedial MEM and not TTTS, based on my description of my symptoms and his experience. Actually, this seems like worse news since, based on what I’ve read, that is more...

This doesn’t sound like dysacusis. Your symptoms are more in line with TTTS or Middle Ear Myoclonus. Dysacusis, or sound distortions, messes with how we perceive natural sounds or sounds in general. Simply put, it's like hearing things in a totally different way than most people are used to.

My ear has these random muscle spasms, and they make like a grinding noise. Not sure if that's related to TTTS. I do notice I shy away from noise a bit, but I'm not sure if that's my fear of it or actual pain. I hope you find some relief soon.

How long did you have distortions for?

...say such a thing. Many of us have severe tinnitus that just gets worse, not to mention other issues such as hyperacusis, noxacusis, reactivity, TTTS, anxiety, insomnia, etc. Life definitely isn't even a fraction as enjoyable as it used to be when I had mild tinnitus that you could habituate to.

...as a "common" (1-10%) side effect on Drugs.com. I can't afford to risk having my tinnitus get any worse than it is. Part of my catch-22 is that almost all of my treatment options for either my mental health or tinnitus/TTTS situation have tinnitus as a side effect. What a twisted nightmare...

Testimonials mean nothing. Where's your scientific study? Where's your placebo control? Even if it was "3500" people you say you've "helped," this is all 100% unscientific and anecdotal without the science to back it up! I played it for two minutes and said it doesn't work? How about doing it...

...reduce MANY phantom sounds, such as tinnitus (not reactive tinnitus, as no sound therapy will help that) and it helps voices, clicking sounds, TTTS, and hyperacusis. It helps about 40% of those that follow instructions. If you play it for 2 minutes and say it doesn't work, you did not follow...

Have you looked into Clomipramine? It's an old TCA mainly used for OCD, but there have been some anecdotal reports popping up recently that it has helped cure/greatly reduce hyperacusis and noxacusis in some people. From what I've read, you have to get up to a dose of 125-150 mg, but then it...

...depression, and I am nowhere near the person I used to be. I have also developed a more constant tinnitus as well as sound sensitivity & TTTS. There’s no underlying reason or cause for the sensitivity & TTTS, other than this severe anxiety. On the one hand, I know I need to be on medication...

This was indeed almost a good report... I am much worse now. I wrote it 5 days after the door slam incident I noted in the post - I got so angry and frustrated that I slammed a door. It was an interior and lightweight door, but loud enough. There was no impact on my tinnitus or hyperacusis, but...

Yes, everything I've seen says symptoms return upon stopping the medicine.

I’ve been taking 100 mg per day for just two weeks now. I haven’t noticed any changes in my tinnitus. I take L-Theanine at night, I’ve been noticing that I’m feeling more relaxed and chill. My tinnitus fluctuates greatly, so it’s hard for me to tell if I’m spiking or not from these things. If...

Does Carbamazepine need to be taken permanently for TTTS? Does it only help with the spasms? I have this constant tugging feeling which gets worse when I raise my eyebrows. Does it help with that too?

It could be tensor tympani. When it stays contracted, stuff like this can happen. I have no ETD, but I had this for the longest time. The TTTS is still there, but the clicking only happens when I vigorously shake my head. Doing a search on Tinnitus Talk, you will find posts by others saying...

...to have? By the way, I read your success story, and it gave me some hope for my own situation. I've only been dealing with hyperacusis and TTTS for a couple of months, so I'm still on a very high anxiety alert about it. I'm trying not to obsess and deal with everyday sounds (primarily in...

Low hum is more prevalent than ever for some reason. My normal methods for getting it to stop are not working. Its doesnt seem like TTTS.

Yes, all you write is very familiar (pretty much spot on) for me and many others who have it. It's TTTS. For me, this comes and goes. I can have it for 1 week to 2-3 months nonstop if I've had more sound exposure than usual combined with high stress. It is very stressful to have this physical...

...that could make my tinnitus worse, even to the point of not even taking just one Advil for a headache. I think I’ve also developed a case of TTTS, which really has my anxiety amped up to a new level that is not fun at all. It’s a never-ending cycle of self-fulfilling prophecy when it comes...

...refer to them often, because they are a form of counseling. Over time, they will help to reinforce positive thinking. You may or may not have TTTS. If you have it, then please do not despair because it can be treated. A patient with TTTS is usually examined at ENT and then referred to...

...since then. I am praying that if I can get my anxiety under control, that will have a ripple effect on my tinnitus, hyperacusis and TTTS. Regarding TTTS, I seem to have all of the classic symptoms, and based on everything I’ve read, I think there is little to no chance that it is not TTTS. I...

...control, and I was in so much shock and fear I needed a sledgehammer to knock me out. I have to admit the Valium helped with my hyperacusis and TTTS but is no longer needed, thankfully. Don't worry about a "boring" life. What is important is that you keep healing, coping, and reinventing...

Yes, it sounds like TTTS. I experience that with fluttering or thumping of the eardrum in one ear at a time, sometimes to sounds like voices and typing, sometimes spontaneous thumps without a sound stimulus. There's some discussion about TTTS in this newer thread: My Journey from Tinnitus to...

I feel the same way, even after more than two years into my worsening of tinnitus, which later included hyperacusis and TTTS. I already had moderate hearing loss. The severe tinnitus is the worst of those for me, which causes anxiety and insomnia. There's never a good age to be hit with these...

The tension can be tonic tensor tympani syndrome (TTTS). Unchecked tension can lead to a whole host of nasty symptoms like the fullness you describe. You can try a muscle relaxer or a high dose of Magnesium Glycinate and see if that gives you some relief.

That sounds a little like my situation. That's TTTS. There is no plugged/full feeling for me, but each ear is different with TTTS in my case. My right ear has the repetitive random thumping episodes that aren't triggered by external sounds, and my left ear occasionally flutters to voices. But...

Well, I'm not sure if your biggest obstacle at the moment is TTTS or hyperacusis (sensitivity to noise)? What I refered to in my post was mainly TTTS. Fullness and rumbling noise (a vibrating feeling) are very common with TTTS. And the more those muscles in the ear contract and tense up, the...

Thank you so much for your response and words of encouragement. Without question, this is the most stressful thing I have ever dealt with. It is really causing me a severe level of anxiety and fear, not only about what it is now but about how much worse it could get and possibly remain for life...

...no cure. While tests continue to rule things out, I am just at a point where maybe I need to accept my fate. I have bad tinnitus, ETD, possible TTTS, and a bit of sound sensitivity. It may get better, but it more than likely will worsen with time. I am struggling to accept that just half a...

Yes, it actually might be a good thing to stay off the internet for some time if this is your wrap-up of what you have been reading about TTTS. I don't know which stories you've read, but most people I know, including myself, do get better, especially regarding TTTS. Flare-ups may happen...

...thing I advise, which I have mentioned in my previous post, is to stop reading information online about tinnitus. I do not believe you have TTTS, although I could be wrong. It is quite easy to self diagnose from reading information online and be completely wrong. Such practice can cause all...

...curious that someone would suggest fleeting tinnitus is the tensor tympani muscle spasming. These are very different from my experience. I have TTTS (tonic tensor tympani syndrome), which is from the tensor tympani muscle contracting and fluttering intermittently to noises from voices and...

...maybe had an asymptomatic infection). But my tinnitus kept getting slowly but surely worse. Now I have some hyperacusis, and I’m pretty sure TTTS, too. So now I am over-the-top anxious and fearful about this and the prospect that the rest of my life (upcoming retirement) is ruined. Anyway...

Ah, I get SBUTTs quite a lot! (I do have tons of other ear issues - MEM/TTTS, many tinnitus tones - high pitch variants, crickets chirping, deep revving/humming I can hear and feel & pulsatile tinnitus, slight hearing loss, patulous Eustachian tubes, and sinus issues / ETD at the same time...

...of 25 mg Hydroxyzine at bedtime has been a dry mouth, and it makes me a little tired, but I still wake up and have trouble sleeping. I only had TTTS flutters once in my first 1 1/3 years since my tinnitus increased to severe, but the TTTS symptoms became more regular after that, and having...

...time, not all (but most) related to my auditory system dysfunction. I’ve seemed to attract the Big 4; tinnitus, reactivity, hyperacusis, and now TTTS. You didn’t say whether or not you also had TTTS (I did get that you had tinnitus and hyperacusis). Can you clarify that, and if you had it...

...conditions and diagnosing them. Please click the link below and read my thread: Keeping Things Simple with Tinnitus. You may or may not have TTTS, so it's best to wait until you get a confirmation from your ENT doctor. For now, I suggest that you try to reduce or stop reading information...

Welcome to the forum. Sorry to hear about your struggle with tinnitus, hyperacusis, and TTTS. Is the hyperacusis pretty recent? Hyperacusis usually fades in a year or so. I had it twice, and both times it just faded away in about a year. I don't have TTTS, but calming techniques can...