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  1. S

    @L along the way Understand the sentiment but uh, I don't think I'll need to worry about "going...

    @L along the way Understand the sentiment but uh, I don't think I'll need to worry about "going through life" with any additional issues is my point. Ain't rushing to the finish line, but when the time comes, I've made my peace with it, so I'm enjoying my last few years as best I can. Plus with...
    • Scruffiey
    • Profile post comment
  2. Ken219

    Neurosoft Bioelectronics: Implantable Electrodes to Treat Tinnitus

    Completely agree. But the more the merrier? Maybe research will move faster?
  3. N

    Introducing Tinnitus Quest

    I will 2nd that. This requires great commitment from all patients. If you're reading, come join us. X https://tinnitusquest.com/quiet/
  4. kingsfan

    Reactive Tinnitus, Hyperacusis, and Noxacusis: Staying Below Sound Tolerance Is Key

    Be careful with wind at high speeds. It is a broadband sound, covering a wide range of frequencies all at once.
  5. Jammer

    2024 US Presidential Election

  6. Sevv

    Reverted Severe Pain Hyperacusis Back to Milder Loudness Hyperacusis

    Hey everyone, For a while, I wanted to post about my habituation to living with tinnitus, but these days, I think it’s more interesting to share that I’m one of those people who managed to get their pain hyperacusis back to a milder variant of loudness hyperacusis. My tinnitus story isn’t all...
  7. H

    Neurosoft Bioelectronics: Implantable Electrodes to Treat Tinnitus

    I just read the Tinnitus Hackathon report and thought it was great. When I read the names of attendees at the bottom, I saw Nicolas Gninenko's name, who is the CEO of Neurosoft. Was there any update regarding their clinical trial? Have they hit any roadblocks, or are they still on schedule to...
  8. El BUZZ

    Listening to Loud Music on Headphones Caused My Tinnitus to Flare Up

    My tinnitus onset was back in late 2015. I haven't dared to use earbuds, headphones, or anything like that since then. Despite that, my tinnitus has kept worsening. If I had to give a piece of advice to anyone with tinnitus, it would be: Never use headphones again.
  9. El BUZZ

    Severe Tinnitus Spike After Concert Despite Hearing Protection

    Hi Paulie! We share that same feeling of failing our dearest ones. This condition can be that debilitating. I’ve dealt with tinnitus for 10 years, having some long spikes here and there but still remaining functional and generally upbeat, despite it being very intrusive and harsh. Somehow...
  10. S

    25F New to the Club (Unfortunately): Begging for Advice and Support

    Hi, thank you so much for asking. It depends on the day. Some days when I’m really busy with work and whatnot, I am able to forget about it. I still always remember it at nighttime, though, when it’s really quiet, and the tinnitus is really loud. But some days, I grieve the days without...
  11. J

    Sound Pharmaceuticals (SPI-5557 & SPI-1005)

    It might be possible -- or even likely that it helps Meniére's patients who also suffer from tinnitus... a niche group I freely admit. I seem to recall reading that tinnitus can accompany Meniére's. But I wouldn't bet the farm on it.
  12. mandyc

    Severe Tinnitus, Noxacusis, and ETD Flare After Thunder Exposure — Should I Take Prednisone?

    @starlight, did you take the Prednisone after all, and how are you now?
  13. jdgey

    My Experience with Severe Hyperacusis, Ear Infections, and Dexamethasone Treatment

    Hi all, I wanted to post an update here because I’m dealing with extreme hyperacusis, which my doctor has labelled as otitis. This started in February this year. I caught a virus and developed intense tinnitus. I tried to push through it, but it became extremely painful. The tinnitus eased...
  14. mandyc

    Recovery from Severe Tinnitus and Insomnia Through Peptide and Immune Therapy

    Yes, and taking low-dose Naltrexone opens up a whole load of pain and other issues.
  15. mandyc

    Six Years Later: My Journey Through Tinnitus and Hyperacusis Recovery

    Thank you, @Nes and @SafeMusicFan, for giving me hope. I'm only 7 and a half months in and expecting my hyperacusis to be better, as so many people on here seem to notice improvements by month 7. I was getting pretty despondent about it all.
  16. cjbhab

    Introducing Tinnitus Quest

    I am looking forward to seeing the info regarding the 2025 grants that will come soon. I urge you all to donate whenever you can, no matter how small the amount. I will continue to donate here and there whenever possible. I am grateful to Tinnitus Quest for helping raise awareness of the issue...
  17. object16

    Severe Tinnitus Spike After Car Ride and Struggling to Cope

    @Nick47, I normally wear just a noise-cancelling headset. Since I was unfamiliar with the car, I thought I should wear double protection. Sometimes double seems to be worse, though. What @tobyharrixon said, sometimes the low frequency seems to get trapped and actually makes it louder. I didn't...
  18. mandyc

    Reactive Tinnitus, Hyperacusis, and Noxacusis: Staying Below Sound Tolerance Is Key

    It’s just so unfair that what should have been a pleasant experience has turned into something that caused a spike. I’m 7 and a half months in and I feel like I’m getting worse. I seem less able to tolerate sounds now than I could in the beginning. I’m frightened that my sound tolerance seems to...
  19. E

    Hello there, hope you’re doing fine. Been taking Mirtazapine again, 4 days in a row, I have a...

    Hello there, hope you’re doing fine. Been taking Mirtazapine again, 4 days in a row, I have a slight spike but not a new sound; not sure if it’s coincidence or not. How are you doing?
    • ErnieRo
    • Profile post comment
  20. E

    Did it help you sleep better, Ernie ?

    Did it help you sleep better, Ernie ?
    • Escalado
    • Profile post comment
  21. L along the way

    @Scruffiey i mean, i would try to balance it out a bit. Just imagine, whilst having t, for...

    @Scruffiey i mean, i would try to balance it out a bit. Just imagine, whilst having t, for example, also go through life in a wheelchair, or some other issue. It wouldn't be better at all. I hope and pray things can get better in time
  22. MrConall

    Viltrumite smart DNA would prevent the onset of T

    Viltrumite smart DNA would prevent the onset of T
    • MrConall
    • Profile post
  23. Mirador

    Clonazepam (Klonopin, Rivotril)

    Hi @Luman, just FYI, 0.5 mg of Clonazepam is not a particularly small dose. It's equivalent to about 10 mg of Valium. I took 0.5 mg of Clonazepam once a day for four months, came off it quickly, and developed horrendous tinnitus. I have since met plenty of people online who have tinnitus caused...
  24. grate_biff

    2024 US Presidential Election

    Here, he looks comfortable. 8-year-olds, dude!
  25. Nes

    @in_the_shadows the setback subsided ! It was very unstable for 2 weeks, almost 3. I shielded...

    @in_the_shadows the setback subsided ! It was very unstable for 2 weeks, almost 3. I shielded myself from sounds and took clonazepam. I believe the clonazepam nuked the crisis because I took one on last Thursday and a few hours after the spike was gone and has been gone for a week. Unfortunately...
    • Nes
    • Profile post comment
  26. billie48

    9 Days into Tinnitus and Searching for Answers

    Welcome to the forum. You haven’t mentioned what might have caused your tinnitus, but it’s a good sign that you already have periods with no tinnitus. Your tinnitus is still quite new, and it may take some time for it to fade or stabilise. Try reading the success stories to give yourself some...
  27. billie48

    First Time Caller: Tinnitus from Volleyball Impact, Now Worsened by Plane Pressure

    Welcome to the forum. Your symptoms seem to suggest barotrauma, which happens when the eardrums do not adjust to changes in barometric pressure during takeoff or descent. Sometimes wearing earplugs can prevent the ears from sensing these pressure changes, and they may fail to adjust properly...
  28. billie48

    Hearing Loss and Tinnitus After Indoor Shooting Incident

    Welcome to the forum. I’m sorry to hear about your struggle with tinnitus. But 8 weeks means your tinnitus is still relatively new. You’re dealing with acoustic trauma, which often makes the ears quite unstable. Hyperacusis or sound sensitivity, and even sound distortions, are quite common for...
  29. Paulie87

    Severe Hyperacusis and Reactive Tinnitus: How to Treat & Cope?

    Hi, I just thought I’d give an update after thankfully having a much better last few days. I actually left the psychiatric hospital because being stuck indoors was depressing me. My psychiatrist prescribed 0.5 mg of Clonazepam, which has done wonders. I don’t believe it has lowered the noise...
  30. Zigs

    From Breakdown to Recovery: Healing Tinnitus, Hyperacusis, and Trauma Through Nervous System Work

    Hey @Meinz89, I hope you’re doing okay. If wearing earplugs when your baby is screaming helps you feel calmer, then definitely do it! I still do that now. One thing I’ve noticed from my two severe tinnitus episodes is that things calmed down when I calmed down. Easier said than done, I know, but...
  31. Luman

    2024 US Presidential Election

    Epstein was not a convicted sex offender at that point. He knew everybody who was anybody. Clinton had him as a White House visitor a staggering 18 times. Trump will likely go down in history as a good, if not great, president who served two terms. The only thing people with TDS can do is...
  32. object16

    Severe Tinnitus Spike After Car Ride and Struggling to Cope

    I’m hoping the same, that it’s about time rather than intensity. My noise-canceling headset is rather good for low frequency, except the driver was lugging the engine, which was horrible. I kept thinking, “I hope this is over quickly.” As soon as I arrived at my destination, I called my wife to...
  33. R

    2024 US Presidential Election

    Donald Trump with convicted pedophile and sex trafficker, Jeffrey Epstein, 1997.
  34. Luman

    2024 US Presidential Election

    I understand that people from outside the United States prefer weak U.S. presidents, such as Biden. They are our competitors, so this is only natural. Trump took on the political establishment in Palm Beach after he established his private Mar-a-Lago residence as a country club in 1995 and...
  35. Tanager

    Sensorineural Hearing Loss / Idiopathic Sudden Hearing Loss

    ...tinnitus - at least, not in my long experience - but in learning how to cope with it. I experienced SSNHL at the age of 29, back in 1997, and it *started* with tinnitus. I went around my apartment unplugging things because I thought an electronic device was emitting the high-pitched sound I...
  36. F

    Sound Pharmaceuticals (SPI-5557 & SPI-1005)

    You seem to be confused about the job description of a CEO.
  37. MrConall

    25F New to the Club (Unfortunately): Begging for Advice and Support

    @stickynotes, it's been a month, how are you feeling now?
  38. N

    Transcranial Ultrasound Stimulation (TUS)

    @hey, I will not comment too much on this, other than to say I agree, this could be a way forward!
  39. N

    Sound Pharmaceuticals (SPI-5557 & SPI-1005)

    @Vincent R, I'm all for more treatments as the Otology specialism has been stagnant for decades. I just think it's worth being practical about things. You've been here longer than I and seen the hype, then the crash. For Meniere's disease, it is a breakthrough.
  40. Pen Walker

    Hearing Loss and Tinnitus After Indoor Shooting Incident

    The ultimate life lesson is that life is dangerous. Stuff is just bound to happen, and we were dealt some bad cards when it comes to this. How are you doing, @rugman46?
  41. Pen Walker

    Three Months After Tyre Pop Incident: Will the Ringing Fade?

    Even if it clears up eventually, you should get used to it since it's not going to leave you tomorrow. Life can go so many ways. I was set back by a second incident, and it was unforeseeable. Really, no point in worrying about it since you can't control it (easier said than done).
  42. Pen Walker

    First Time Caller: Tinnitus from Volleyball Impact, Now Worsened by Plane Pressure

    I'm no professional, but it sounds like Eustachian tube dysfunction or something similar. Go to a doctor, sooner rather than later. And don't force your ears to open up by force; that can go very wrong.
  43. Vincent R

    Sound Pharmaceuticals (SPI-5557 & SPI-1005)

    I do. You nave noise-induced tinnitus and you have tension-induced tinnitus. Different things. But even if your tinnitus is mostly caused by noise, it can be worsened by tensions. (I am not good at the scientific stuff, so I simply choose to believe anecdotic experiences from people here at...
  44. Sannush

    Det är bra med mig. Allt bra med dig ? :)

    Det är bra med mig. Allt bra med dig ? :)
    • Sannush
    • Profile post comment
  45. kingsfan

    Severe Tinnitus Spike After Car Ride and Struggling to Cope

    I hate getting rides in unfamiliar cars. One time I broke down on the highway and had to sit in the tow truck to fill out paperwork since it was dark and cold out. Just the idle engine rumble was too much for me, even with earplugs and earmuffs. I ended up calling for a different ride home.
  46. tobyharrixon

    First Time Caller: Tinnitus from Volleyball Impact, Now Worsened by Plane Pressure

    Try not to do the Valsalva manoeuvre. Here are some safer alternatives - https://dan.org/health-medicine/health-resource/smart-guides/beat-the-squeeze-equalize-like-a-pro/6-methods-to-equalize-your-ears/ Try chewing a lot of gum/continuously sucking on a sweet.
  47. tobyharrixon

    Severe Tinnitus Spike After Car Ride and Struggling to Cope

    Are you thinking the car engine's low frequencies were to blame for the spike? Car/vehicle low frequencies are tricky, as you mention, sometimes overprotecting is worse, as you trap all the vibration in your ears. I've made that mistake myself a number of times. Overall, I don't imagine 10...
  48. N

    Severe Tinnitus Spike After Car Ride and Struggling to Cope

    Woah, woah, woah. That is a lot of medication. Is cannabis necessary with all that? Wouldn't the Carbamazepine and upping the Clonazepam to 1 mg be sufficient? Not sure about all those hormones.
  49. UKBloke

    I really like this sentiment. The other morning in a local retail car park, a guy asked me if...

    I really like this sentiment. The other morning in a local retail car park, a guy asked me if the trolley I'd just unloaded was available for him to take. I replied that it was, and on his way he turned back and said, "Thanks mate, have the best day you can." That's a really unusual use of...
    • UKBloke
    • Profile post comment
  50. tobyharrixon

    do you mean you don’t wanna live like posting/checking on the forum all the time or do you mean...

    do you mean you don’t wanna live like posting/checking on the forum all the time or do you mean giving up completely aka deleting yourself?
  51. H

    Transcranial Ultrasound Stimulation (TUS)

    @Nick47, I believe this has one of the best chances of helping us find relief. Tinnitus is heavily influenced by plasticity, so I think repeated treatments might lead to permanent improvement. In this paper, 40 seconds gave them up to 2 hours of change, so why wouldn’t 30 minutes to 1 hour...
  52. H

    Sound Pharmaceuticals (SPI-5557 & SPI-1005)

    @Alberte, some people feel like this can help tinnitus or, at the very least, keep it from getting worse. The company's CEO also believes it can help with tinnitus. The FDA hasn't approved it, but they gave it the fastest track, so hopefully it will be on the market sooner rather than later.
  53. Jammer

    2024 US Presidential Election

    Dozy Don sleeping during cabinet meeting.
  54. H

    Introducing Tinnitus Quest

    I saw the video with Jeff Teräväinen. I thought it was amazing, and it's great to see Tinnitus Quest growing. We as a community have always had a hard time getting celebs to talk about tinnitus, but that seems to be changing. I'm sure Tinnitus Quest will only get bigger and bigger with time.
  55. grate_biff

    2024 US Presidential Election

    So this must be before he decided to bronze-up then? He looks very uncomfortable!
  56. Vincent R

    Sound Pharmaceuticals (SPI-5557 & SPI-1005)

    The effects on tinnitus, if any, are uncertain. FDA has decided to give the drug a special treatment, but no approval yet.
  57. Josh NH USA

    Sound Pharmaceuticals (SPI-5557 & SPI-1005)

    I am no FDA process expert (several on Tinnitus Talk are, I believe), but the press release mentions the pharmaceutical company next needing to prepare and file an “NDA”, or New Drug Application, meaning they have some procedures/approvals still to come before the new drug is approved for patients.
  58. UKBloke

    Sound Machines and Tinnitus

    Glad to hear you're doing well. And yes, a little age drop from the local pharmacist is always nice!
  59. N

    Sound Pharmaceuticals (SPI-5557 & SPI-1005)

    Just to clear this up. This can reduce tinnitus only in those with Meniere's disease. Tinnitus caused by Meniere's is exacerbated by sudden bouts of hearing loss and vertigo. It is not effective in chronic tinnitus without Meniere's. As I understand it, it has been designated some sort of fast...
  60. Jupiterman

    Severe Tinnitus Spike After Car Ride and Struggling to Cope

    Do you normally use this combination of protection?
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