Acoustic CR® Neuromodulation: a New Treatment for Tinnitus

Why does T have to be such a prick to us?

You are about the 4th member,(like myself), who has had T for a long period of time, got used to it then had it increase in volume or pitch for fu@# all reason!

This is exactly why I don't believe we go to hell....we are already there!

Rich

 

That's too bad to hear Steve. They usually don't bother me much, and I don't mind them that much. However, it's not hard to see how they could be annoying.

 

I think they're not that different. ACRN seems to be poking around your T frequency and Notched is just stimulating all others that aren't your t-frequency. I don't think either are a long term cure but i'll tell you . The ACRN definitely gives me some serious RI even if it's just for 20 minutes. It helps and I'm begging to associate with relaxing and concentrating on other things.

 

Are you doing the ACRN yourself with the generalfuzz site? And how long are your sessions? I tried several for a few minutes and the sounds made my tinnitus louder. But I might not be matching the anyway since I have a narrowband noise and a tone. And the narrowband noise is not matchable but interferes with my ability to match my tone.

 

Yes I've using the general fuzz site. Wish I had the real thing but I'd have to go to the UK to get it and don't know if the trip would be worth it. Not to mention the cost.
I do any where between 15-90 minute sessions... About to try some Notched White noise. But not expecting anything real to come of it. LOL---T sucks but life is still good.

 

I have been trying to do 2 hours a day. but's it's tough. I also usually listen through speakers.
Any body else had success with ACRN here? Anyone?

 

Not great news from the trial, got an e-mail from them just before. They won't be publishing due to some deviations from the protocol. This is both good and bad; bad that we have to wait longer to know how effective it could be, good to see that the trial was fully reviewed and it is a robust process to make sure the results are completely accurate.

The official statement is:


“Acoustic CR® Neuromodulation is a treatment for chronic tonal tinnitus. In 2012, The Tinnitus Clinic Ltd funded a 100 participant Randomised Controlled Double Blind Trial to establish the efficacy of this treatment under independent controlled conditions.

The trial was undertaken at Nottingham Hearing Biomedical Research Unit and the Ear Institute at University College London and was sponsored by Nottingham University Hospitals NHS Trust.

The first results of the trial were expected in September 2013. Review of the trial has, however, concluded that there have been deviations from the trial protocol and that the results cannot be regarded as scientifically robust. It is therefore with regret that all the parties have concluded that the results of the trial cannot be published with confidence.

Nottingham University Hospitals NHS Trust and The Tinnitus Clinic are discussing a new trial on Acoustic CR Neuromodulation which they hope will commence in the near future. NHBRU, Nottingham University Hospitals NHS Trust and The Tinnitus Clinic are very grateful for the time and effort of the participants of the original trial”

 

I see ACRN is offered by The Tinnitus Clinic in the UK. I read some results from people who have gone for it, that it worked. Is the T clinic free for UK citizens and have u been there to try ACRN?

 

That's kind of crap. I thought maybe you could get treatment on the NHS there? That is expensive.

 

Would you pay that much for this treatment? I know general fuzz has his own ACRN on the web for free. But what do the T clinic do differently?

 

counceling i guess, and for older people or non tech savvy, it's usually easier for them to some help from professionals

 

I definitely wouldn't pay. I was on the trial and had to stop as it made me progressively worse.

From the letter they sent there seems to also be issue with the equipment and the CE mark. I did wonder if the headphones were the main issue for me, really didn't like them, the whole device was horrible sounding. So who knows if it will be slightly honed (now the Tinnitus Clinic own the company) and prove a better device.

As James said, counselling is a big part. They also can do a far better job of matching your t tone than you can do yourself, so it will be more precise than the DIY approach.

 

Thanks Steve. Very helpful to know you got worse from it. I agree with both you an Markkhu - not worth it right now. When they prove it for sure. T clinic buys the company... Hopefully they will hone it as you say. But def not worth the money just for counseling. What a pity.

 

Hi
I was on trials too & I definitely wouldn't pay for it. It ages for my T.to settle afterwards & I found nothing positive in it. I'm now taking amitriptyline, just at night & it's made a real difference for me; wish I tried it years ago, but I was too stubborn & didn't want to take drugs. Worth trying, if you haven't already done so.

 

I bet they have messed up the matching part,,,doubt if the trial appointments were long enough to get it right.


Ive got the T shirt from the Tinnitus clinic (an expensive T shirt) waste of time ... 3 hrs a day for a year went back 8 times for rematching.

 

Hi Deb, has it gone back to a normal level now for you now (define normal, ha)?

 

Yes it has. I don't regret doing the trials, anything is worth a shot & I'm thankful I didn't have to pay for it. The amitriptyline hasn't made the T. any quieter, it just helps me not to let it bother me so much.

 

Hi Steve, what do you think about this approach

experimental tinnitus sound treatment

 

I've seen this before. It's interesting and it does work as residual inhibition.

It's the sort of thing that would need to be researched a bit more, how it works with the brain, can it do more than RI etc.

I've played around with some similar techniques of making noise and they do help. White noise doesn't cut it for me any more so I need to be creative. I wouldn't know how to use the software that this guy uses though, it's more scientific and I'm music production based.

 

Thanks for the response.
White noise doesn't work for me either for quite some time, in most days Winds with higher frequencies work for me and from few days ago i start listening neuromodulation that you created(Acoustic Neuromodulation - descending 5ths). Neuromodulation I used when i'm going to sleep or when the tinnitus turn more into frequency. My tinnitus is most a buzzing sound.

 

Nope - no joy with the ACRN. I used the generalfuzz site a while back and sometimes it did make my t worse. But maybe i just had not found my t freq properly. I know it is somewhere around 8Khz. Also looked at t clinic. Very expensive in the UK. Although vids of people on there that got relief from it.

 

On the trial they told me that it sometimes made people's T worse temporarily before it started to get better. If you can be confident of your frequency to within a few hundred Hz then I might be tempted to persevere @SteveToHeal. Don't play the tones too loud though - they should be just over the threshold of hearing for each of the four tones generated. That needs a bit of experimenting.

 

Thanks Dan. I don't have that kind of money for a what if. Just looked on the website now. Looks like the prices have been taken off. Suspect... Earlier this year they were there. Hmmmm.... Copying from the post above tho - i think it was in this region for ACRN: £4,500
So, like i say, way too pricey for a maybe. Plus lots of negative results from posters on here.

 

Ahhhh, I thought you were discussing the General Fuzz DIY version. Which produces tones remarkably close to those made by the official device and seems to help some folks but not all (not me unfortunately). Of course, you know best what effect it has on you.

I'm Dave by the way.

 

I went for an initial consultation at the T Clinic back in March and was quoted £4,500 for ACRN. Bt the time I attended the consultation, I was already experimenting with the generalfuzz tone patterns on an MP3 player. I decided that the T Clinic's ACRN was far too expensive and I believed it would be possible to self-administer a course of ACRN-type treatment using freely available resources. Over a period of about 3 months, I listened regularly to ACRN tones for maybe an hour or two each day (which is less than recommended by the T-Clinic). I eventually became disillusioned with ACRN and reached the conclusion that the benefits are largely attributable to RI, therefore not helpful in the long term. Those who advocate ACRN do emphasise the importance of identifying the frequency of one's T as accurately as possible. I probably failed to devote sufficient attention to finding the correct frequency, therefore it would be unfair of me to dismiss ACRN. All I can say with any certainty is that my own T was not reduced by it except for the short-term effects of RI.

 

Shit sorry Dave. I don't know why i put Dan in there. Sorry man

Thanks for the info. Maybe i'll give it (the generalfuzz one) another trial of say 2hrs a day.

The one in the UK is expensive. I thought it maybe has some special tones or sequences on it that the generalfuzz one doesn't. However, reports i have read from members say that the ACRN trial (i assume hosted by the TC - tinnitus clinic) was not successful for them.

 

Thanks PhilB - i'll give it another go and try and match my tone closer. I did have a t match done at an audiologist here (again subjective) a while back. I'll put those tones into gfuzz and give the ACRN another go. One of the vids on the t clinic, the old guy with 20 yrs t, says to persevere. It does look like you did plenty of that! Tx again for the info!