[Danny Boy Memorial Fund] In Loving Memory of Danny Boy

@Jazzer I so get it.

I remember years ago sitting in an ATA board meeting and following the meeting a nice presentation dinner.
I was seated with a then wonderful staff and Jack Veron who made me a special hand carved totem pole. When a speaker was finished the staff group at my table knew my sound sensitivity. Instead of loud clapping as I headed to the head stage area they raised their hands and shook them. A sign of clapping. I was really taken aback.

So to bring this back to Danny's fund with @Ed209 we are those people understanding our needs. And we will raise money for a long time and it will all be in Danny's memory. Never forgotten.

And sometimes we have to address the darkness. The tricky part is not dwelling on it at the same time. It is a delicate situation.

And not going away - or returning to the tinnitus community with a greater inner strength. I hope to continue to get stronger and louder for the needs of tinnitus sufferers.

 

The trouble is of course, that Tinnitus is totally unimaginable.
It is not just the noise, is it?
It is what the constant neuronal activity is doing to what would normally be our peace, our calm, our equanimity.

“NOBODY CAN POSSIBLY IMAGINE THIS !!”

 

Anyone whom would like to send me a short video clip of themselves telling what it's really like I would gladly put it up on my Twitter page that is full of ENTs, Audiologists, hearing specialists and doctors and ask them to RT them.

YOU CAN make a difference.

love glynis

 

As far as I am concerned, the only bad smell here is the odour of all the self-deceit that circulates on a daily basis. Perhaps the problem is not really me but the fact that a not insignificant number of members cannot seem to handle the truth. Kind of like those parents who won't let their children watch the evening news because it might feature a war segment (or some other world problem). Essentially that behaviour boils down to: let's pretend the problems don't exist and sweep it all underneath the carpet. So sad that such people exist...

Maybe you should think about that...

Well, like any member here, I do believe I am allowed to offer my opinion (even if it happens to be the least popular). Again, the real problem here is that quite a few folks get upset over "the simple truth". That's not really my fault; I am just the messenger.

But... if you really feel that you need to keep an eye on me, I have an even better deal to offer you. Feel free to delete my account! Unlike a few other folks on TinnitusTalk who claim to be habituated, then state they leave, only to return like... five minutes later, I truly don't care whether my account gets deleted or not. Because... I just don't need it (I am not a tinnitus sufferer). So feel free to do just that. I promise I won't get offended.

All the best.

 

@attheedgeofscience,

You have been a great member on here and do follow you and I have respected your posts and know you have your own views and that's fine as we should accommodate everyone.

Help say a farewell to Danny.

I know you can help members.

Why?

Because you have been through everything tinnitus can bring and you can support members.

love glynis

I'm here to keep the forum a nice place to come...

 

This type of argument should be placed in a different thread. This is @Ed209's Danny's fund.

I suggest coping ATEOS post #274 and placing it in a new thread and delete the post here. We can continue that there - if necessary.

 

I usually stay away from posting to threads like this but I can't help but sharing my 2 cents. I feel saying x number of people viewed this thread and only y number donated is kinda unfair. One should be looking at how similar sized communities are doing with fundraising online. I'd say almost 3k in a short amount of time with this sized community is really good. It's just the nature of the game I'm afraid, most people are not going to donate. I was instantly surprised by how many people were benefactors in this forum, when I first joined.

The only other community I've been a part of recently online is the schizophrenia forums (I have the disorder). I once saw a thread about members asking how they could donate, I was interested in it myself. Somebody brought up the donate button was removed years ago. When the forum admin chimed in he said that the donate button was removed because nobody had donated for months and keeping up the PayPal donate button was costing more money than it was bringing in. 1% of people end up with schizophrenia and the forum is bigger than this one.

I must add though that the average schizophrenic is probably lower functioning than the average tinnitus sufferer, but still, many people on there say they're able to work and/or live alone.

 

If you’re referring to me, then yes, I’m habituated and decided to hang around to help others who are suicidal and desperate. Why you’re so obsessed with this fascinates me; you’re a pretty strange guy. I returned because I was informed about the tragic death of Danny; it’s pretty simple really, Jakob, and can’t believe you’re still beating the same drum. It’s boring and pointless, and is attention seeking of the highest order. If it were down to me I’d have deleted your account years ago because your an arsehole. Simple as that.

The idolisation of yourself is pretty cringeworthy and this example is one of your better moments, but still representive of the type of person you are:

I have been doing a lot of behind-the-scenes initiatives over the past year. A lot! And I have shared more detail about that in the off-line workgroups - and as a consequence, here are a brief couple of anonymous one-liners people have said in relation to information I have provided:

•but this is freaking amazing news
•@Jakob Wow. Bombshell.
•Great work Jakob, really! Thank you so much...

And another one of your highlights:

As with anything in this world, influence is key. And influence can be obtained in several ways. One way could be to raise funding for the site. Money has a tendency to attract attention. Suppose TT was able to raise - who knows - $10,000 and hand out a research grant to a professor pursuing tinnitus research, that professor could probably be convinced to join the forum and provide insights on some of the research taking place (on an ad-hoc basis). Right now, the site does not have any researchers - and I have tried several times to lure professors onto TT, but for them, that would just mean more work, so... it is not really an attractive option (from their perspective).​

Hmmmm £7,690 you say , it’s a bit meagre isn’t it!

Anyway, I never resort to this kind of childish behaviour, but then this is exactly how you behave on a regular basis.

And cheers for derailing this thread with your pointless nonsense.

 

Can we all please return to remembering @Danny Boy.

Let's leave arguments outside of this thread - it's also read by his family members.

 

Yea sorry. I shouldn’t have replied in hindsight but the guy does my head in. I don’t want this to taint what this thread is really all about, and that’s remembering Danny, and raising money in his name.

Onwards and upwards, folks.

 

I still shed a tear when I look at Danny's face on the Memorial Fund for research.

He looks so sad and withdrawn and alone and his spark gone from his eyes.

I hope every member whom might feel this way reaches out to us and help them push for the support and care needed because you're not alone.

Danny Boy needed to know we care but kept quiet so I hope we can try help reach out to members whom are struggling and prioritise the response when they post needing help.

I hope through his Memorial Fund Danny will live on through us all and Tinnitus Talk and the British Tinnitus Association as we work together to support members and raise funds towards research that Danny was well known for understanding all the technical side of our brain responses.

I wish I had saved the lovely photo with his baby in his arms to show you where he was happy and smiling.

love glynis

 

I have not visited Tinnitus Talk in a long time, I just came to say that I am very sorry for Danny.

I was not his friend, I did not question him much on Tinnitus Talk but he had respectable opinions and above all his attitude was hopeful.

I hope you've found peace Danny.

 

Hell, if I can donate $5 a month to a girl on Patreon who makes shitty robots, I think I can do the same for organized action towards tinnitus. I think that's the only way to get anywhere. To continue this fight every... single... month.

Otherwise this one time deal is just spitting in the wind. Call it the "Silence" fund.

If half the members of Tinnitus Talk donated $5 a month, that's $64,215 a month. I think then we can make a dent.

Either for awareness or help targeted research.

Is $5 a month worth getting in the fight in a very real way against tinnitus? I think so.

 

@another sean
That's a great attitude, we need more people like that.
Unfortunately money makes the world go around and that's what it's going to take to make some inroads into understanding and treating tinnitus.

 

Exactly my point! It’s important to get an insight into how other communities do things, not just in terms of member donations but awareness and government funding.

 

@Ed209

This is by no means a personal attack but you mention Zug being some famous person (I didn’t know that and it really means nothing to me!).

Is it a valid question to ask what has this famous person done for tinnitus community?

Few years ago we also had some, apparently, famous actor who despite all our efforts stayed inferior and didn’t want to help.

I guess he was just happy to suffer in his LA mansion until he habituated and returned to making millions!

We also have an ENT specialist here if I’m not wrong? What has he done?

If we have some celebrities here and we all know the exposure they have on social media why aren’t they helping? Even people like medical doctors could do so much more.

Sure they have a network of contacts that could be used.

But I guess this is back to square one question: how to get people involved?

 

Let’s not go down this road again. It all came down to the amount of followers Zug has which went to ATEOS’s head. He assumed it was a celebrity interacting with him. Anyway, this has been put to bed now and I’m really annoyed at the impact all of this pointless arguing has had on this thread. There was no need for any of it, so let’s not allow this to happen again.

What can he do? Or what do you want him to do? He didn’t have to sign up here, and he has helped answer some questions (via PM) for me which was very useful, and I really appreciated it. He has a pretty severe case of tinnitus too, so he may ask you the same question: what are you doing to help him? You seem very preoccupied with what everybody else is doing, and again this is not personal, just an observation. I know how this condition can frustrate, and crush ones spirit, so I’m not blaming you for being like this.

I have many close friends who are Drs, consultants, dentists, etc, and they have donated and shared the campaign. There isn’t much more they can do, but again, I was really appreciative. Their network reach has exposed this campaign to many more Drs around the U.K. In reality, it’s unlikely that many in their network will donate (because human nature requires a personal association to give, usually) but this has markedly raised the profile of this campaign. More eyes equals more awareness.

I think we need to get more people sharing this on their social media and also asking for it to be shared again. Let everyone know what a great person Danny was, and how raising money in his name can help raise not only awareness for this condition, but also money to help research it.

It’s a 100% team effort, and if we don’t all get behind it, then we cannot maximise its effectiveness. Like I said above, it doesn’t mean we all have to donate (if we can’t afford to, or if other reasons stop us), but nothing should stop everyone from sharing it far and wide.

I apologise for yesterday, but when you’ve spent hours upon hours contacting all kinds of organisations, and people, trying to raise the profile on this, to then have someone question you unnecessarily, I found it to be highly disrespectful and incredibly rude. And for no reason at all. Nothing was gained from it whatsoever.

We’ve turned a page now so I hope we can unite on this and honour Danny like he deserves.

 

There is too often very little sympathy or understanding out there.

A couple of years ago I was feeling frustrated with my wife's lack of understanding. Rather than talk... I went to my computer, turned on YouTube, found a clip of a high frequency noise, similar to what I hear, and turned it on.

My wife came out from the back room and said "What is that awful noise?"

I answered "That is what I hear in my head! And can't switch it off like I can YouTube"

I didn't have to try and explain again.

 

RIP Daniel, may you find peace man.

 

He was a child, 23 years old, and he was taken by tinnitus. I got it at 39 and it's been a struggle. Danny stood his ground and fought it as best he could.

May he rest in peace and may no one say a single syllable against his struggle.

Let him rest and leave him alone.

Thank you Danny for your help and your compassion

Rob Dublin Ireland

 

Being like what?

Being somebody totally unimportant who spent countless hours doing the very same thing you are doing now (except fundraising) and asking a valid question: what have people with influence done to help?

What sort of a person does that make me in your eyes?

But if this is your personal observation of me and how you see me than there’s no need for me to, in any way, participate not only in this thread but on this board in general when it comes to this topic.

Wishing you every luck with what you’ve started!

Valerie....OUT!!!!

 

Argumentitive and unhelpful.

I’m really glad that you got involved and helped people, and I honestly mean that. In this case though, you seem angry in every post since this thread began and I’m not sure why. We can only try our best by uniting and donating towards research. Everybody has influence, that’s the point. You seem really preoccupied with what everybody else should be doing for the cause, that’s all I’m trying to say. When you said what’s (I assume you meant, brown bear) doing to help, I thought that was really unfair to him after what he’s been through, and he has helped.

Were you ever in?

 

I need to interject.

I just want to say that I am deeply disappointed in some of the members on this thread for the way that you have chosen to conduct yourselves. This is a time of grieving for Danny's family and loved ones. And yet, some of you seem to have forgotten this.

It is quite possible Danny's family are reading this thread, and would rightfully be mortified at some of the comments made.

I commend Ed on his proactiveness and efforts to create a thread that honours Danny.

I have read other's comments too, and feel touched by the sense of community here, along with the love and respect that so many of us felt for Danny. I echo most the comments here about Danny's good nature, willingness to help others in distress. He helped me a few times when we talked about my tinnitus. He was clearly experiencing his own issues with visual snow at the time, but still availed himself to me. That reflects (in my books) a truly inspirational and selfless human being. I will never forget him.

Please also be mindful that newbies are quite possibly reading this thread, and I think the tone that this thread has taken, reflects very poorly on our community.

Let's honour Danny's memory the right way, as intended with this fund raiser.

 

In Loving Memory of Daniel ❤️❤️❤️

 

So anyone know what actually happened to @Danny Boy? His tinnitus was actually getting better though.

 

Logged in to pay my respects. Danny Boy and I got our tinnitus very close together and arrived on the board at the same time. When I was really down he offered a meetup so we could both have a good rage at our misfortune together. That support struck me as a really kind thing to do and I've not forgotten it.

Miss you geezer. Peace bro.

 

@tomm,

FYI, if you haven't already seen it, there's another thread for those of us, like yourself, who personally knew and cared about Danny:

https://www.tinnitustalk.com/threads/emotional-over-danny-boy-—-support-for-members.30328/

 

I also donated. Danny would be proud of all of you, his friends included. Now at least he is resting.

We cannot lose hope.

My best wishes for all from my heart.