I’m at a Rave

Discussion in 'Success Stories' started by Djstarkiss, Feb 17, 2019.

    1. JohnAdams
      Starving

      JohnAdams Member Benefactor Hall of Fame

      Location:
      here
      Tinnitus Since:
      it started.
      Cause of Tinnitus:
      hearing loss
      why?
       
    2. JohnAdams
      Starving

      JohnAdams Member Benefactor Hall of Fame

      Location:
      here
      Tinnitus Since:
      it started.
      Cause of Tinnitus:
      hearing loss
      All of you making fun of Bill for protecting himself are ridiculous losers, like way bigger losers than even me. About 5 months into this monstrosity I went to a church, not a rave, a church, and got a spike that easily doubled my tinnitus level and increased my hyperacusis significantly. Before that happened, I could wake up to ZERO tinnitus sometimes, but after that it was always there. Now I've had near silence again but only after flying around the world and spending thousands of dollars and enduring a literal assload of pain getting PRP injected into my eardrums over and over and over and over and over.
       
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    3. GSC
      Owned

      GSC Member Hall of Fame

      Tinnitus Since:
      02/2019
      Cause of Tinnitus:
      Acoustic trauma.
      There's a thread bashing Bill Bauer on here and on reddit.
       
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    4. PureNoise

      PureNoise Member

      Tinnitus Since:
      10/2018
      Cause of Tinnitus:
      Unknown
      So it can go away or fade and I can safely go to bars and nightclubs with ear plugs without it getting worse?
       
    5. JohnAdams
      Starving

      JohnAdams Member Benefactor Hall of Fame

      Location:
      here
      Tinnitus Since:
      it started.
      Cause of Tinnitus:
      hearing loss
      There is not straight answer to that. You could be on the very edge of causing more damage and that one night out could push you over. None of us can see exactly what damage is in our inner ears and how many nerve fibers are just barely hanging on. I went to a bar about 1.5 months ago with ear plugs in and it wasnt very loud and I was ok. Nightclubs? I wouldnt.
       
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    6. JohnAdams
      Starving

      JohnAdams Member Benefactor Hall of Fame

      Location:
      here
      Tinnitus Since:
      it started.
      Cause of Tinnitus:
      hearing loss
      I've been on this site for about 9 months and I've seen nothing from him that I would consider egregious. I don't 100 million trillion trillion trillion billion% agree with every post he's made but what's the deal with his posts? He advocates being careful, which is actually the best possible position anyone in our condition can take.

      Even if fx-322 or the like comes out and restores some of our hearing and quiets our tinnitus, guess what? Our new connections WILL NOT be as strong as the ones we were born with and we will still have to be very careful, if not more careful.
       
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    7. BreachOfEuphoria
      In pain

      BreachOfEuphoria Member

      Tinnitus Since:
      07/2017
      Cause of Tinnitus:
      Unknown
      Bill Bauer is a good contribution to this site. He is constructive.

      It's funny how there is always a small poisonous army of small rodents on here that like to spread their vile.
       
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    8. Contrast

      Contrast Member Benefactor Hall of Fame

      Location:
      Retrovile
      Tinnitus Since:
      late 2017
      Cause of Tinnitus:
      injury from noxious noise
      yeah I have haters too. Some guy called me the guy who freaks out over a couple of dead synapses
       
    9. GSC
      Owned

      GSC Member Hall of Fame

      Tinnitus Since:
      02/2019
      Cause of Tinnitus:
      Acoustic trauma.
      Who wouldn't freak out over dead synapses when those dead synapses can be why you have Tinnitus and broken hearing. :rolleyes:
       
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    10. linearb
      Psychedelic

      linearb Member Hall of Fame

      Location:
      1
      Tinnitus Since:
      1999
      Cause of Tinnitus:
      karma
      I don't think these devices will cure anyone; they're a palliative aid.
       
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    11. PureNoise

      PureNoise Member

      Tinnitus Since:
      10/2018
      Cause of Tinnitus:
      Unknown
      Agreed. I’m hopeful my tinnitus can fade to silence. I personally know a doctor who had their tinnitus go away after 12-15 months.
       
    12. Digital Doc

      Digital Doc Member

      Tinnitus Since:
      2018
      Cause of Tinnitus:
      noise induced
      In short, no. We don't even know how loud the bar is, or how protective the earplugs are.
       
    13. Bill Bauer
      No Mood

      Bill Bauer Member Hall of Fame

      Tinnitus Since:
      February, 2017
      Cause of Tinnitus:
      Acoustic Trauma
       
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    14. AUTHOR
      AUTHOR
      Djstarkiss
      Alienated

      Djstarkiss Member

      Tinnitus Since:
      02/2018
      Cause of Tinnitus:
      Loud music
      DJing @ two shows back to back weekends in August. If any of you want to go, let me know!!!

      @Bill Bauer you down?
       
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    15. Mathieulh
      Busy

      Mathieulh Member Benefactor

      Location:
      Paris, France
      Tinnitus Since:
      05/24/2019
      Cause of Tinnitus:
      Chronic headphones use and acute noise induced trauma.
      There are less risks going to the grocery store without ear protections than going to a rave party with ear protections. Sometimes you have to understand you are part of a population that's more at risk and act accordingly, does that mean you have to give up a normal life? I certainly hope not.

      That said not protecting your ears at an early onset of T (6 months or earlier) while being exposed to loud noises (anything louder than 60-65db at this stage) and taking unnecessary risks during that time period is the epitome of stupidity.

      The ears (at least the parts that are only damaged and not dead) do heal, albeit very slowly, it can take up to 2 years, but if you don't give them the chance to and keep exposing them to loud noises, not only will the damaged cells never heal, but they (strongly) risk getting worse and die off (this causing further irreversible damage) and that's how you go from "manageable" mild or moderate tinnitus to a permanent, lifetime suffering of severe debilitating "please kill me!!" level of tinnitus.

      I personally wouldn't take the risk. Would you?

      Once you are past the acute trauma period, then you can stop being overprotective and start being careful, which you will have to be, unfortunately, for the rest of your days. That probably means no Rave for you either (or other T afflicted subjects), but you can most likely get to enjoy going at a pub without wearing ear protections.

      Remember, you only have one pair of ears, you'll regret them once they are gone.
       
      Last edited: Jun 23, 2019
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    16. Mathieulh
      Busy

      Mathieulh Member Benefactor

      Location:
      Paris, France
      Tinnitus Since:
      05/24/2019
      Cause of Tinnitus:
      Chronic headphones use and acute noise induced trauma.
      ENTs know as much about Tinnitus today as 14th century healers knew about the Bubonic plague.
       
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    17. AUTHOR
      AUTHOR
      Djstarkiss
      Alienated

      Djstarkiss Member

      Tinnitus Since:
      02/2018
      Cause of Tinnitus:
      Loud music
      Here’s the reality. I can either have fun now and suffer later or skip everything I love and suffer now and probably later also.

      I’d rather continue DJing / raving / playing airsoft / riding my motorcycle / shooting guns / wearing headphones... Than sit in my house and feel sorry for myself because I got a little hum in my drum...

      Maybe later I’ll regret it but fuk it... one thing I won’t regret is not missing out on shit I enjoy.

      If that makes you jealous or salty I’m taking this approach to my tinnitus sorry but this my journey and I’m being kind enough to share it with you.

      BBL got loud music to listen too...
       
    18. Mymlan

      Mymlan Member

      Location:
      Sweden
      Tinnitus Since:
      04/2019
      Cause of Tinnitus:
      Noise induced
      @Djstarkiss You know what, you should do anything that you are comfortable doing. It’s your life and we are all different. I mean it. I’m super anxious about my tinnitus and my hyperacusis, but not everybody have to be.

      But infact. I agree with JohnAdams. Stop making fun of people in here. That’s not ok. We are all here for some support!

      Otherwise, live life! You only got one! Cheers.
       
      Last edited: Jun 29, 2019
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    19. Autumnly
      Wishful

      Autumnly Member Podcast Patron Benefactor Hall of Fame Advocate

      Location:
      Germany
      Tinnitus Since:
      July/August 2013
      Cause of Tinnitus:
      Noise induced
      I don't think people have so much of an issue with how you're living your life but that it seems like you're looking down on people who are not coping with tinnitus the way you can. For example you saying you don't want to stay at home and feel sorry for yourself but for many people with severe tinnitus and severe pain-hyperacusis there's no other option currently. There are also many people who can't even work anymore because of tinnitus or pain-hyperacusis, they're not just whiny and feeling sorry for themselves, they are debilitated by a severe, physical condition.
       
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    20. Jack Straw
      Balanced

      Jack Straw Member Podcast Patron Benefactor Ambassador Hall of Fame Advocate

      Location:
      US
      Tinnitus Since:
      1990s
      Cause of Tinnitus:
      Infection, Acoustic Trauma
      I’m not going to tell you what to do and not to do.

      But we have had people with that attitude here before, and it didn’t end well.....

      If you are going to do these things. Please at least protect your ears.
       
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    21. Mathieulh
      Busy

      Mathieulh Member Benefactor

      Location:
      Paris, France
      Tinnitus Since:
      05/24/2019
      Cause of Tinnitus:
      Chronic headphones use and acute noise induced trauma.
      It's not about jealousy, I am not jealous in any way shape or form, there are however better ways to enjoy, and keep enjoying life, than putting your ears further at risk, because, once you get a severe Tinnitus (which I hope you won't, because I wouldn't wish this on anybody), then you will be the one that's jealous, because others won't be living a life of hell.

      If you call what you have "suffering", think again, once you have such a debilitating tinnitus that you can't even focus enough to read our posts, then you will know what suffering can truly be like, because, yes, that, unfortunately, can happen.
       
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    22. Ken219
      Frustrated

      Ken219 Member

      Location:
      New York Area
      Tinnitus Since:
      Summer of 1990
      Cause of Tinnitus:
      Noise exposure?
      I can do that! A second chance.
       
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    23. Digital Doc

      Digital Doc Member

      Tinnitus Since:
      2018
      Cause of Tinnitus:
      noise induced
      All I know is that I had quite loud T which woke me up from sleep every few minutes, and then H that felt like a knitting needle was going through my brain every time the microwave beeped.

      Thankfully, that has all faded into the background, but you could not pay me enough to go to a rock concert even with my choice of hearing prevention.

      Let's just say, been there, done that, and not going back.

      Then again, life is full of choices, and everyone gets to make their choices, for themselves.
       
    24. RaZaH
      Cheeky

      RaZaH Member Podcast Patron Benefactor Hall of Fame

      Location:
      Reykjavík, Iceland
      Tinnitus Since:
      2012/04
      Cause of Tinnitus:
      Benzo + loud noise
      OK... good luck with that.
       
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    25. Fabrikat

      Fabrikat Member

      Tinnitus Since:
      1973
      Cause of Tinnitus:
      Otosclerosis then volume then viral infection
      Tinnitus will indeed be forever, even after it's been successfully treated, because we will always have the propensity for it to reoccur.

      The real future of tinnitus research is, as with all other medical conditions, prevention.

      For some reason, unlike the majority of the rest of the population exposed to the same auditory insults, we develop tinnitus. Why is that?

      If the answer lay within our genes, as is quite possible, then only a re-engineering of these genes will ensure that tinnitus and its potential is eliminated forever.
       
      • Good Question Good Question x 1
    26. Snake
      Scared

      Snake Member

      Tinnitus Since:
      08/2011
      Cause of Tinnitus:
      Long term playing computer games on headphones.
      I think that Palliative is bad kind of word, if Lenire works then it's something that could hold us over to survive longer. And maybe if we're lucky then survive as long as we have to see new treatments, or cure or something.

      Anything that will reduce the actual volume and disrupt the tinnitus behaviour will probably change our mood instantly and help us to be more optimistic about the future. We just desperately need this first thing. I don't know if it's Lenire and bi-modal stimulation as a whole but we're gonna see this summer. If it is then i hope that they will ramp up production of the devices and create a clinic in the central Europe to avoid flight :p (With my luck i would probably harm myself by flying somehow. Barotrauma, noise or something else)

      If not, then i don't want to think what... I need something to help me now. It's 8 years and I'm losing it.
       
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