I Hate TRT (Tinnitus Retraining Therapy)

Discussion in 'Support' started by threefirefour, Aug 23, 2017.

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    1. dgray

      dgray Member Benefactor

      Location:
      Virginia
      Tinnitus Since:
      July 2016
      Cause of Tinnitus:
      Unknown, High Frequency Hearing Loss
      You are 100% correct in your statement however, how could the founder of TRT not deliver his own treatment correctly - that is what baffled me. I have no ill will towards Mr. Jastrebof at all. I just believe that time and the Lord helped me and that is it. You are a kind man sir and I truly believe that you just want to help. I just know how I feel and I still struggle but in time I will be better, I hope.
       
    2. Michael Leigh

      Michael Leigh Member Benefactor Hall of Fame

      Location:
      Brighton, UK
      Tinnitus Since:
      04/1996
      Cause of Tinnitus:
      Noise induced
      lol...you have made me laugh @threefirefour and I thank you for that and didn't know you were a clairvoyant! Seems you know when I'm going to show up here when no-one else does.. Great line, I guess we might become friends after all....:p
       
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    3. AUTHOR
      AUTHOR
      threefirefour
      Peeping tom

      threefirefour Member Benefactor Hall of Fame

      Location:
      California
      Tinnitus Since:
      5/15/16
      Cause of Tinnitus:
      140dB B R U H moment
      Not clairvoyance, predictability. You do it every time. I get that you think it helped you and that's fine, but the idea of TRT in the tinnitus community is dying. We don't want it. Defending it isn't going to stop that. Its just spitting in the wind.
       
      • Agree Agree x 1
    4. Michael Leigh

      Michael Leigh Member Benefactor Hall of Fame

      Location:
      Brighton, UK
      Tinnitus Since:
      04/1996
      Cause of Tinnitus:
      Noise induced
      TRT works....:D
       
    5. AUTHOR
      AUTHOR
      threefirefour
      Peeping tom

      threefirefour Member Benefactor Hall of Fame

      Location:
      California
      Tinnitus Since:
      5/15/16
      Cause of Tinnitus:
      140dB B R U H moment
      As well as a paper umbrella. There's just too many variables about it that are pseudo-scientific.
       
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    6. Michael Leigh

      Michael Leigh Member Benefactor Hall of Fame

      Location:
      Brighton, UK
      Tinnitus Since:
      04/1996
      Cause of Tinnitus:
      Noise induced
      Considering you've never tried TRT you make rather a lot of assumptions and of course all incorrect.
      Take care
      Michael
       
    7. AUTHOR
      AUTHOR
      threefirefour
      Peeping tom

      threefirefour Member Benefactor Hall of Fame

      Location:
      California
      Tinnitus Since:
      5/15/16
      Cause of Tinnitus:
      140dB B R U H moment
      Considering that I studied it and understand the difference between science and pseudo I can guarantee you TRT is a ton of garbage.
      Take care.
       
    8. Fabrikat

      Fabrikat Member

      Tinnitus Since:
      1973
      Cause of Tinnitus:
      Otosclerosis then volume then viral infection
      @Frédéric recently posted this TRT trial information:

      https://clinicaltrials.gov/ct2/show/NCT00578058

      The trial has been completed for some time, but results are yet to be published. Perhaps when they are, it might help settle the issue for everyone. Then we can all get some sleep!
       
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    9. AUTHOR
      AUTHOR
      threefirefour
      Peeping tom

      threefirefour Member Benefactor Hall of Fame

      Location:
      California
      Tinnitus Since:
      5/15/16
      Cause of Tinnitus:
      140dB B R U H moment
      Oh yeah I saw that. Here's hoping it fails.
       
    10. Lex
      Blah

      Lex Member Benefactor

      Tinnitus Since:
      07/2016
      Cause of Tinnitus:
      Bad decisions
      Well it has helped some people. That's what matters, right? But it does not help everyone, and that should also matter.
       
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    11. Michael Leigh

      Michael Leigh Member Benefactor Hall of Fame

      Location:
      Brighton, UK
      Tinnitus Since:
      04/1996
      Cause of Tinnitus:
      Noise induced
      Trials don't mean much in my opinion as each person will be different. I had TRT twice with good results but it may not work for someone else, especially if a person has a negative mindset from the outset, and many people do.
       
    12. Pleasure_Paulie

      Pleasure_Paulie Member

      Location:
      Australia
      Tinnitus Since:
      06/2016
      Cause of Tinnitus:
      Noise or maybe... unicorns!
      What a delightfully pointless thread. As per usual we have the internet google doctors out in full steam performing at their best. I'm going to guess out of the 130 posts and 5 pages later, 1-2 people here have actually used TRT. More so, asking if TRT works on a tinnitus suffers forums is about as useless as asking if Bill Gates needs more money. PS. He doesn't.

      Discussing the merits of TRT or another sound program should be done with your doctor and audiologist regardless of your opinion. Because unless you've studied these topics for years at university you don't deserve to have one. Then you can make an informed choice.
       
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    13. AUTHOR
      AUTHOR
      threefirefour
      Peeping tom

      threefirefour Member Benefactor Hall of Fame

      Location:
      California
      Tinnitus Since:
      5/15/16
      Cause of Tinnitus:
      140dB B R U H moment
      Opinion discarded.
       
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    14. AUTHOR
      AUTHOR
      threefirefour
      Peeping tom

      threefirefour Member Benefactor Hall of Fame

      Location:
      California
      Tinnitus Since:
      5/15/16
      Cause of Tinnitus:
      140dB B R U H moment
      They matter because they would show how well it helps people compared to not doing it, and seeing if it's statistically significant.
       
    15. glynis
      Feminine

      glynis Member Benefactor Ambassador Hall of Fame

      Tinnitus Since:
      2004
      Cause of Tinnitus:
      Meniere's Disease
      TRT always seems to get a negative reaction but unless you have tried it yourself you will never know! ;)
      Love glynis x
       
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    16. AUTHOR
      AUTHOR
      threefirefour
      Peeping tom

      threefirefour Member Benefactor Hall of Fame

      Location:
      California
      Tinnitus Since:
      5/15/16
      Cause of Tinnitus:
      140dB B R U H moment
      Didn't used to. Part of the problem of why it it still exists and celebrating 30 years of wasting people's time and money's because it initially got good reception from the tinnitus community, and continued to get it for years until recently. That's why the older people here like it and the younger people know what's up. Progress is made every generation I suppose :)
       
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    17. glynis
      Feminine

      glynis Member Benefactor Ambassador Hall of Fame

      Tinnitus Since:
      2004
      Cause of Tinnitus:
      Meniere's Disease
      TRT is counselling on tinnitus to help you adapt to your sound and emotionally get your head around the condition if struggling with the sound you hear and support wearing White Noise Generators.
      It's not a cure but any support can only be a good thing in my opinion .
      Love glynis x
       
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    18. AUTHOR
      AUTHOR
      threefirefour
      Peeping tom

      threefirefour Member Benefactor Hall of Fame

      Location:
      California
      Tinnitus Since:
      5/15/16
      Cause of Tinnitus:
      140dB B R U H moment
      I know what it is. We all do, which is why it's lost so much support over the years.

      Let's assume for a second the white noise generators are statistically significant in helping tinnitus. Then that's the generators but the therapy itself may not be. In fact that's why there's a study being done, because there's large skepticism about it after people noticed that those who underwent the therapy and not don't really show much difference in attitude.
       
    19. Michael Leigh

      Michael Leigh Member Benefactor Hall of Fame

      Location:
      Brighton, UK
      Tinnitus Since:
      04/1996
      Cause of Tinnitus:
      Noise induced
      Of course it will delight you when the trials report that TRT doesn't work when I know it does.....
       
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    20. glynis
      Feminine

      glynis Member Benefactor Ambassador Hall of Fame

      Tinnitus Since:
      2004
      Cause of Tinnitus:
      Meniere's Disease
      I think any counselling can help regarding depression and anxiety but if it came from a specialist who has tinnitus and knows all about tinnitus then they really understand about it and what your going through!

      Some people don't use the internet and have to rely on the health service and hospitals and specialist advice ....
      Im just open minded about it and its just one option available

      Love glynis x
       
    21. AUTHOR
      AUTHOR
      threefirefour
      Peeping tom

      threefirefour Member Benefactor Hall of Fame

      Location:
      California
      Tinnitus Since:
      5/15/16
      Cause of Tinnitus:
      140dB B R U H moment
      Most people (like, >95%) have Internet. That's a very very small demographic.

      Darn right.
       
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    22. glynis
      Feminine

      glynis Member Benefactor Ambassador Hall of Fame

      Tinnitus Since:
      2004
      Cause of Tinnitus:
      Meniere's Disease
      @threefirefour ,
      Aww! Us oldies have trouble with a tv remote never mind a computer....:ROFL::LOL::eek:...
      Apart from my elderly friend Michael......lol.
      Love glynis x
       
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    23. AUTHOR
      AUTHOR
      threefirefour
      Peeping tom

      threefirefour Member Benefactor Hall of Fame

      Location:
      California
      Tinnitus Since:
      5/15/16
      Cause of Tinnitus:
      140dB B R U H moment
      Rate me funny all you want. The fact you said "when the trials report that TRT doesn't work" which shows you're not very confident they actually do :^)
       
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    24. Michael Leigh

      Michael Leigh Member Benefactor Hall of Fame

      Location:
      Brighton, UK
      Tinnitus Since:
      04/1996
      Cause of Tinnitus:
      Noise induced
      On the contrary. My statement was in reference to your earlier post, where you told a member that you hope the trials report TRT doesn't work.
       
    25. AUTHOR
      AUTHOR
      threefirefour
      Peeping tom

      threefirefour Member Benefactor Hall of Fame

      Location:
      California
      Tinnitus Since:
      5/15/16
      Cause of Tinnitus:
      140dB B R U H moment
      Yeah I sure don't my statement is you said when, not if. We call that a Freudian slip ;)
       
    26. Michael Leigh

      Michael Leigh Member Benefactor Hall of Fame

      Location:
      Brighton, UK
      Tinnitus Since:
      04/1996
      Cause of Tinnitus:
      Noise induced
      As much as I like the banter I'm afraid it's not my thing. Please excuse me.
      Michael
       
    27. glynis
      Feminine

      glynis Member Benefactor Ambassador Hall of Fame

      Tinnitus Since:
      2004
      Cause of Tinnitus:
      Meniere's Disease
      I wonder if the UK are apart of the trial as its gold star treatment over here?
      Love glynis x
       
    28. AUTHOR
      AUTHOR
      threefirefour
      Peeping tom

      threefirefour Member Benefactor Hall of Fame

      Location:
      California
      Tinnitus Since:
      5/15/16
      Cause of Tinnitus:
      140dB B R U H moment
      Considering they're making the (smart) descision to phase it out of their socialized healthcare system, I'm thinking maybe not.
       
    29. glynis
      Feminine

      glynis Member Benefactor Ambassador Hall of Fame

      Tinnitus Since:
      2004
      Cause of Tinnitus:
      Meniere's Disease
      @threefirefour ,
      Lets hope for progress and affordable for everyone.......
      Love glynis x
       
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    30. Chris Holland
      Movie buff

      Chris Holland Member

      Location:
      Amsterdam
      Tinnitus Since:
      November 2017
      Cause of Tinnitus:
      Life
      Every post I've seen from you is negative and pessimistic, the worst part is that you make incredibly dumb statements and new people on the forum might see this and get even more stressed. I just finished reading the book by Jastreboff and TRT is a tool to speed up habituation, and yes this is a natural process and no it's not a cure in the strictest sense. However many people habituate to the point that they are never aware of their tinnitus anymore unless they are thinking about it:
      Comic con 2012 MTL - William Shatner speaks...


      And guess what, it is impossible to habituate to a stimulus that is perceived as a threat, keep this negativity up and you'll have a very difficult time habituating and spend a lot of energy better focussed elsewhere.
       
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