I Hate TRT (Tinnitus Retraining Therapy)

Discussion in 'Support' started by threefirefour, Aug 23, 2017.

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    1. GregCA
      Jaded

      GregCA Member Benefactor Hall of Fame

      Tinnitus Since:
      03/2016
      Cause of Tinnitus:
      Otosclerosis
      No I'm not talking earwax kind. I'd kindly suggest you learn more about T before making so many absolute statements about it.
      It's complicated and nobody holds much certainty about it. Not me, not you either.
       
    2. AUTHOR
      AUTHOR
      threefirefour
      Peeping tom

      threefirefour Member Benefactor Hall of Fame

      Location:
      California
      Tinnitus Since:
      5/15/16
      Cause of Tinnitus:
      140dB B R U H moment
      Alright, what kind of tinnitus are you talking about?
       
    3. GregCA
      Jaded

      GregCA Member Benefactor Hall of Fame

      Tinnitus Since:
      03/2016
      Cause of Tinnitus:
      Otosclerosis
      Tinnitus caused by otosclerosis, or by middle ear myoclonus, just to name 2 of the middle ear conditions that can cause T.
       
    4. AUTHOR
      AUTHOR
      threefirefour
      Peeping tom

      threefirefour Member Benefactor Hall of Fame

      Location:
      California
      Tinnitus Since:
      5/15/16
      Cause of Tinnitus:
      140dB B R U H moment
      Yeah, can they be fixed? And if so, if not treated for a year or so it very well may stick around.
       
    5. GregCA
      Jaded

      GregCA Member Benefactor Hall of Fame

      Tinnitus Since:
      03/2016
      Cause of Tinnitus:
      Otosclerosis
      Yes, they have reasonable success rates.

      That's not what the results of actual surgeries suggest. You know, these inconvenient things called facts. :whistle:
       
    6. AUTHOR
      AUTHOR
      threefirefour
      Peeping tom

      threefirefour Member Benefactor Hall of Fame

      Location:
      California
      Tinnitus Since:
      5/15/16
      Cause of Tinnitus:
      140dB B R U H moment
      Alright, assuming you're correct, then is the ear causing the sound in these cases? That's as much medical tinnitus as pulsatile objective. Tinnitus as we know is a result of maladaptive neuroplasticity. That means the brain already "corrected" itself. There's a little inconvenient fact for you.
       
    7. fishbone
      Shitfaced

      fishbone Member Hall of Fame

      Tinnitus Since:
      1988
      Cause of Tinnitus:
      loud noise and very bad sickness
      Tinnitus is a very difficult matter. No one for sure knows what causes it (there are MANY things that cause it). I am very positive and do hope they do find a cure for it. I am all for it and want all to be rid of this noise, that screws us over daily.

      On the other hand, I have used TRT over 20+ years ago and It DID get rid of my hyperacusis. Hyperacusis is a HORRIBLE thing and all that have it have my deepest sympathy. It's painful and can limit a person in their environment.

      I am not recommending anything here, this is just my view from an individual that has been dealing with tinnitus almost 30 years.
       
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    8. GregCA
      Jaded

      GregCA Member Benefactor Hall of Fame

      Tinnitus Since:
      03/2016
      Cause of Tinnitus:
      Otosclerosis
      Yup.

      Not always. I just gave you an example above.
       
    9. AUTHOR
      AUTHOR
      threefirefour
      Peeping tom

      threefirefour Member Benefactor Hall of Fame

      Location:
      California
      Tinnitus Since:
      5/15/16
      Cause of Tinnitus:
      140dB B R U H moment
      Not always but usually. This is why the real answer is to fix the brain; not the ear, and this is the new leading school of thought in tinnitus communities. The brain is the problem. Even if there's a problem with the ear, it's the brain making the sound. That's why there's some people with hearing loss but no tinnitus as well.
       
    10. GregCA
      Jaded

      GregCA Member Benefactor Hall of Fame

      Tinnitus Since:
      03/2016
      Cause of Tinnitus:
      Otosclerosis
      See, now you're getting it! :D
       
    11. AUTHOR
      AUTHOR
      threefirefour
      Peeping tom

      threefirefour Member Benefactor Hall of Fame

      Location:
      California
      Tinnitus Since:
      5/15/16
      Cause of Tinnitus:
      140dB B R U H moment
      Yes I am. I just showed how the brain group is right about tinnitus and fixing the ear and not the brain isn't the answer. Glad you agree :)

      You know what? I'm not even mad at you rating this funny because it kind of is :D
       
      • Funny Funny x 1
    12. AUTHOR
      AUTHOR
      threefirefour
      Peeping tom

      threefirefour Member Benefactor Hall of Fame

      Location:
      California
      Tinnitus Since:
      5/15/16
      Cause of Tinnitus:
      140dB B R U H moment
      @GregCA by the way if you think fixing the ears will solve tinnitus I don't want you to walk away thinking I'm belittling your opinion. Of course fixing the ears may work in some cases like acute ones and can only be beneficial. I'm just saying that fixing the brain is the main thing that will fix tinnitus.
       
    13. GregCA
      Jaded

      GregCA Member Benefactor Hall of Fame

      Tinnitus Since:
      03/2016
      Cause of Tinnitus:
      Otosclerosis
      I don't, since in many cases T is due to a brain maladaptive plasticity. I thought you knew that already... you seem really confused!
       
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    14. AUTHOR
      AUTHOR
      threefirefour
      Peeping tom

      threefirefour Member Benefactor Hall of Fame

      Location:
      California
      Tinnitus Since:
      5/15/16
      Cause of Tinnitus:
      140dB B R U H moment
      Now I am because you were arguing that they aren't wrong. Sorry if I misinterpreted what you thought. You're right about this though.
       
    15. GregCA
      Jaded

      GregCA Member Benefactor Hall of Fame

      Tinnitus Since:
      03/2016
      Cause of Tinnitus:
      Otosclerosis
      I agree! :ROFL:
       
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    16. Paulmanlike

      Paulmanlike Member Benefactor Hall of Fame

      Tinnitus Since:
      2008
      Cause of Tinnitus:
      Noise
      Fixing hearing loss may reverse tinnitus - the hope being is that it could reverse the maladaptive plasticity as the brain has increased input @threefirefour. Also when people receive a CI there are reports of t reducing and even going away and some success has been achieved in hearing aids. Just something for you to think about regarding your post you think it will not work. For those who have no measurable hearing loss, fixing the damaged ribbon synapases may also be beneficial to fixing tinnitus.

      We've also got experimental therapies with VNS, rTMS and advancements in deep brain stimulation as well as Susan Shores signal timing device ontop of rl-81 and sf003 to keep hope for, so my fellow sufferers, keep the faith.
       
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    17. Screamin Ears
      Crappy

      Screamin Ears Member

      Tinnitus Since:
      2007
      Cause of Tinnitus:
      .
      Yes, a bloke i spoke to about a month ago said when he had his implants put in his tinnitus went from bothering him a lot to barely noticeable.
       
      • Like Like x 1
    18. Screamin Ears
      Crappy

      Screamin Ears Member

      Tinnitus Since:
      2007
      Cause of Tinnitus:
      .
      That's what i told myself when my T started back then, and now 10 years later the only advancement has been in the volume of my T, mine used to be a 3/10 after habituating, now it is a 10/10 and after 6 months with this new level of T i'm not making any progress with habituating again, if anything it's still getting worse.
       
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    19. AUTHOR
      AUTHOR
      threefirefour
      Peeping tom

      threefirefour Member Benefactor Hall of Fame

      Location:
      California
      Tinnitus Since:
      5/15/16
      Cause of Tinnitus:
      140dB B R U H moment
      Aaaaand they won't publish the results of their effectiveness study. I was right again:whistle:
       
    20. dgray

      dgray Member Benefactor

      Location:
      Virginia
      Tinnitus Since:
      July 2016
      Cause of Tinnitus:
      Unknown, High Frequency Hearing Loss
      That is without a doubt the best description I have ever read regarding the theory that EVERY HEALTHCARE PROVIDER in the industry touts " I am sorry, but you'll just have to get used to the noise - don't think about it".

      So much easier said than done.

      I am over a year dealing with this issue and still have days whee I struggle horribly.

      Oh and by the way I did TRT with the founder of TRT - Mr. Pawel Jasterboff himself............................over $7,000 for hearing aides + $4,800 for the TRT and the ONLY thing that has helped me is My Lord, Jesus Christ and time. I will pray for the peace of every single member here. God Bless. - douglas

      P.S. - I love your analogy of the plumber and pooping in woods.
       
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    21. AUTHOR
      AUTHOR
      threefirefour
      Peeping tom

      threefirefour Member Benefactor Hall of Fame

      Location:
      California
      Tinnitus Since:
      5/15/16
      Cause of Tinnitus:
      140dB B R U H moment
      TRT is essentially a scam. There's a lot of people here who don't want to admit it but the fact anyone can do this on their own and in fact does without any help speaks volumes.
       
      • Agree Agree x 1
    22. dgray

      dgray Member Benefactor

      Location:
      Virginia
      Tinnitus Since:
      July 2016
      Cause of Tinnitus:
      Unknown, High Frequency Hearing Loss
      Trust me my friend, I feel much guilt for the money I shelled out for it. People prey on desperate folks. That is wrong
       
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    23. AUTHOR
      AUTHOR
      threefirefour
      Peeping tom

      threefirefour Member Benefactor Hall of Fame

      Location:
      California
      Tinnitus Since:
      5/15/16
      Cause of Tinnitus:
      140dB B R U H moment
      I'm sorry they took that much money from you wrongfully. Any scamming is unacceptable :(
       
    24. dgray

      dgray Member Benefactor

      Location:
      Virginia
      Tinnitus Since:
      July 2016
      Cause of Tinnitus:
      Unknown, High Frequency Hearing Loss
      Thank-you. However,I was a willing participant, just feel stupid now. Could have had a vacation of a lifetime with that money...................but when we are desperate we do desperate things. I don't understand why or how folks can really say TRT works and that time is not the driving factor. Makes no sense at all. If TRT was what helped me, I'd have no issue of saying that.
       
      • Like Like x 1
    25. Amiel

      Amiel Member

      Tinnitus Since:
      1995
      Cause of Tinnitus:
      noise
      Fuck I hope Pawel Jastreboff gets BAD tinnitus himself and suffers for eternity. What a prick scammer he is!!!
       
      • Agree Agree x 1
    26. AUTHOR
      AUTHOR
      threefirefour
      Peeping tom

      threefirefour Member Benefactor Hall of Fame

      Location:
      California
      Tinnitus Since:
      5/15/16
      Cause of Tinnitus:
      140dB B R U H moment
      Fully agreed. I wish there was a hell so that awful man could spend eternity there. Scammers are one thing, but scammers who benefit off the backs of people's misery deserve the worst fate they can get.
       
    27. dgray

      dgray Member Benefactor

      Location:
      Virginia
      Tinnitus Since:
      July 2016
      Cause of Tinnitus:
      Unknown, High Frequency Hearing Loss
      I know it is hard sometimes but the Lord will help you. I promise. He has helped me. He is my only hope. God Bless
       
    28. dgray

      dgray Member Benefactor

      Location:
      Virginia
      Tinnitus Since:
      July 2016
      Cause of Tinnitus:
      Unknown, High Frequency Hearing Loss
      You know, he actually told me he had tinnitus but he was used to it. Frankly, I never believed him at all. I think it is part of his TRT show.
       
      • Like Like x 1
    29. Michael Leigh

      Michael Leigh Member Benefactor Hall of Fame

      Location:
      Brighton, UK
      Tinnitus Since:
      04/1996
      Cause of Tinnitus:
      Noise induced
      Sorry to hear TRT did not work for you @dgray. However, TRT is not a scam as some people believe. I have corresponded with you by private messenger a while back. While I don't want to go into details, here in a public forum. I know the treatment plan that you were getting from Mr Jastrebof. In my opinion, it falls well short of what proper TRT is supposed to be. When you told me what it entailed you know I was very surprised.

      That's all I will say here.
      Once again sorry things didn't work out

      Michael
       
    30. AUTHOR
      AUTHOR
      threefirefour
      Peeping tom

      threefirefour Member Benefactor Hall of Fame

      Location:
      California
      Tinnitus Since:
      5/15/16
      Cause of Tinnitus:
      140dB B R U H moment
      You know what? I knew you would show up here because every time people start bashing (((TRT))) you come in to defend it. Shilling for TRT this much is pretty lame. Lemme guess all the failures of TRT are just some other variable and not the fact TRT is a very dodgy regime? You do this all the time and there's a reason people on this post agree it sucks; because it does.

      It's fine to support habituation but TRT sucks.
       
      • Agree Agree x 4
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