I Have Un-Habituated

Some days ago, I made a post claiming that I had finally habituated. However, as of this morning, I appear to have either a new tone or a massive spike in an already existing one, which means it is essentially back to square one.

Which means it is once again time for one of my angry rants. Today I feel I will focus on just how useless ENTs are to tinnitus sufferers in 90% of cases. Last August, I saw a second ENT for my tinnitus, an appointment I waited two months for. The ENT's resident came in to meet me first, and reviewed my symptoms and went over a hearing test I had done a few weeks prior. Then, the ENT came in and repeated almost word for word what his resident told and me and proceeded to read (again, word for word) off a "treatment" and recommendations list that he later handed to me.

In other words, he (like most professionals in his field) are completely worthless. I wish I had yelled at him, told him he was worthless, and embarrassed him in front of his colleagues. I mean, seriously, how worthless do you have to be to charge $200 and have a two month wait to simply read off a fucking print out you could have just emailed to me with a "good luck" message to accompany it. I'm so fucking sick and tired of these people. And what relief do these people push? Why, worthless ones like CBT, which they claim will "decrease stress, help me relax, and have sound drug-free sleep at night". I already do behavior therapy like that and it fails to do that. And no, that isn't an "attitude" problem, and an ineffective treatment problem.

I suppose I'm lucky I didn't see an audiologist, who would readily prescribe an expensive pair of hearing aids that would cost $3000 out of pocket, fail to decrease tinnitus, and improve quality of life by 5-10%. I hate those people. I want to make those grades of hearing aids available without prescription so I can buy a brand they will NOT get a kickback from. I want them to make less money so they and their families are not better off. Fuck those people.

And the worst part is the top says "If you are thinking of hurting yourself because of the tinnitus, call 911 or go immediately to the hospital", where the power-obsessed psychiatrists will hold you against your will and force sedating medication on you so you comply with their wishes. Of course, they offer no real solutions to this permanent problem other than "well just cope and live a good life despite it". I thought that was possible, but today I was reminded of how wrong I was. They simply don't care if you suffer, they just don't want you dead so they cannot be sued.

I'm fucking done with this site. I'm not going to spread anymore of my misery around. Nor am I going to put up with this goddamn noise forever. Sure, I'll put up with it for now, but my treatment from now on will be how to stop the brain from generating the signal, rather than so-called "treatments" to boost mood promote sleep and relaxation rather than targeting the noise.

If you are an ENT who is reading this and you have done anything similar to what I have mentioned above, screw you! Seriously, if you don't have tinnitus I hope you get it and I hope it ruins your life, increases stress, increases anxiety, makes you depressed, ruins you sleep, prevents you from relaxing, and ruins your will to live.

With that, I am off the site.

 

@Gl0w0ut,
Aww no !
So sad to hear your back to square one and so angry inside.
Your battle is hard but your strength will get you through this wobble with a spike and added sound.

We are always here for you but understand if you need time away or need to move on and welcome you back with open arms...
love glynis x

 

The cake is a lie

 

for a second I thought you sold out to Jastreboff welcome back to the cool kids club

instead of leaving you should join MPP

 

@Gl0w0ut

I don’t understand your complaint. ENTs can help only for a few issues: cholesteoma, acoustic neuroma, infections, otosclerosis, etc..... Sensorineural hearing loss and its close cousin tinnitus can not be treated by any doctor at this time. The tinnitus treatments around are mostly garbage and they all will be seen in the future like primitive approaches. You know there is nothing.... why are you blaming doctors? Tinnitus is really more of a brain problem, ENTs can not help in any way.

 

Once ENT know there is nothing wrong needing an operation it is then down to Audiology for tinnitus and hearingloss support.
love glynis

 

It's because they glad-handingly take your money just to tell you "Welp, nothing we can do about it". I was set on smooth sailing until this morning, then everything changed and my life is falling apart again.

 

I never promoted TRT, I have been a staunch opponent of it for some time. I don't know why, but one tone in my ears is especially annoying today. I fucking hate this, it was one step forward and now one hundred steps back.

 

You've got an ENT here reading this who is fully afflicted so that's a start for you. Hope that helps. Hope you habituate again soon. Best wishes

 

I hope your new tone/spike is temporary.

 

There's cake?

 

I cant habituate to severe tinnitus, no way no how. I also have Severe H so when I flip pages of the book it hurts my ears or when I urinate. It has been since Jan and I see no improvement. I think habitation is possible with somewone who has mild tinnitus, otherwise anything beyond that is going to be very hard to habituate to. I have very intrusive tinntius and let me tell you I cant just tune it out, it is a high pitched dentist drill that makes my jaw hurt.

 

Whether you habituate or not, there is no need to give a negative stigma towards this site. All this site has ever done was to support you and motivate you to carry on with your life. This site doesn't owe anyone anything, it's a privilege to have members come here and support each other.

 

I didnt give negative stigma to the site. This is an amazing website. I am just saying that habituating to very intrusive tinnitus is simply not possible. I had to quit my job because I was not able to focus or concentrate anymore. Maybe some people can habituate with severe T but I cant. When my T gets so loud I cant even type on the computer how bad it is.

 

I am talking to the person who created the thread, not you buddy

 

I feel sorry for him. We dont know through what he is going through. Not everyone is strong to endure Tinnitus. I amaze myself how I am able to function throughout the day with Severe H and T. I have HOPE that it will get better ,it must get better. There are also treatments that will help me.

 

Where did I claim this site owes me anything?

 

If you succeed you will win the Nobel Prize.

 

Well antagonizing Nitric Oxide or NMDA receptors is a start

 

I don't understand your anger towards ENTs, audiologists and psychiatrists. There is nothing they can do for some types of T with an unknown cause. There are good and bad doctors just like every single other job in the world.

Personally I have spent time off work doing IOP where I learned CBT and DBT. It helped but by no means a perfect solution. It's an ongoing struggle and the coping mechanisms have helped me.

@Glowout I hope you find a way to funnel your anger into finding some peace.

 

"Tinnitus is a symptom"

"Symptom of what?"

"I dunno"

They didn't even try to find out what this was a "symptom" of outside of a standard hearing test

What a joke

 

People that constantly blame others and constantly complain are limited in their lives. This is not just for those that have tinnitus. This is for everyone. Instead of constantly complaining and blaming, we need to come up with a game plan that helps us address our issues. I'm done complaining about my tinnitus. it's super loud, super annoying but it is - what it is. Instead using that energy to constantly complain, I can use that same energy for something that can take my mind of the noise. My tinnitus is impossible to not hear, but things can still be done to not focus on that loud/intrusive noise.

 

Why blame the site?
What did they ever do to you
other than wish you well....?

 

People need to be able to vent their frustrations instead of bottling them up and putting a fake smile on their faces. I don't like it when I see people get criticized because they express anger. Anger is normal. Expecting people to act "positive" all the time is unrealistic, unfair, and unhealthy. It only encourages people to hide their true feelings to avoid disapproval.

I say: vent, complain, yell, whatever, and just get it out of your system when you need to. You wouldn't swallow your vomit back down when it needs to get out of your system. So don't swallow your feelings either.

 

Anger is normal. How you direct the anger is another story. Venting is also not something that is found to have positive effects.

....Nobody said people need to be positive all the time, I just don't agree with the hate spewed.

 

SugarMagnolia, I fully agree with you. In fact, to act positive all the time is not normal and if they disapprove, they are already showing a negative feeling in relation to the other.

 

Ah, I see I poorly worded that. I meant more that I'm done being here as I'm just going to be more salty.

 

Nobody said to act positive all the time.

 

Yes, To some degree I agree. But this thread poster seems to constantly create threads like this and spew negativity. That's fine be negative or positive, that's his/her choice. To say "I'm done with this site or F this site" is not acceptable. I don't care how good or bad someone feels, but to insult the VERY SAME site that supports and comments to him and tries to comforts him is NOT acceptable...

No one owes the poster anything, we come here to help and to have someone say F you and this site is not acceptable. To you maybe it might be, but to a normal person it is not....

Even with our difficult lives, we come here to support each other....

 

I pray you get better soon and the spike calms down. Give it sometime and try to relax. Are you sleeping???