I Will Not Live with My Tinnitus

Discussion in 'Support' started by foliefortuna, Jan 27, 2018.

    1. foliefortuna
      Sweet tooth

      foliefortuna Member

      Location:
      in the fiery depths of Hell
      Tinnitus Since:
      March 2017
      Cause of Tinnitus:
      TMJ Disorder
      I have been diagnosed TMJ disorder induced tinnitus. I am very sure this is what it is because my audiogram revealed no hearing loss and my jaw makes funny popping noises.

      My TMJ issues started when I was 13 and the tinnitus began when I was 15. I have been dealing with it for about a year now.

      I am going to a doctor to see what can be done about my TMJ disorder. If my tinnitus cannot be gone completely, I do not want to be alive.

      I cannot stand it, I don't want to die but I refuse to live with this ringing.
       
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    2. just1morething
      Benevolent

      just1morething Member Podcast Patron Benefactor Hall of Fame

      Location:
      U.S.
      Tinnitus Since:
      2008
      Cause of Tinnitus:
      TMJ disorder, airplane barotrauma, noise exposure.
      You are only 17 or so according to your timeline and TMJ disorder can be fixable, so see what a TMJ specialist has to say. My left jaw clicks too. Your tiny ear muscles/Eustachian tubes could be affected by TMD making it seem so loud. Do you have hissing or ringing or both?
      Here's a link:

      https://managebackpain.com/tmj-pain/tmj-tinnitus

      This is where I went:

      http://mncranio.com/
       
      Last edited: Jan 27, 2018
      • Agree Agree x 2
    3. AUTHOR
      AUTHOR
      foliefortuna
      Sweet tooth

      foliefortuna Member

      Location:
      in the fiery depths of Hell
      Tinnitus Since:
      March 2017
      Cause of Tinnitus:
      TMJ Disorder
      What do you mean?
       
      • Creative Creative x 1
    4. MBH

      MBH Member

      Location:
      Upstate NY
      Tinnitus Since:
      06/2017
      Cause of Tinnitus:
      Overloaded stress
      Threefirefour also has Tmj and is working on lowering T you can look at his posts he talks about his Tmj and how he deals with it.
       
      • Helpful Helpful x 1
    5. fishbone
      Shitfaced

      fishbone Member Hall of Fame

      Tinnitus Since:
      1988
      Cause of Tinnitus:
      loud noise and very bad sickness
      Your attitude determines how you will act/re-act and live. Tinnitus is not pleasant at all, but you can still live your life.

      We need to take caution when our ears ring, but we can still enjoy our lives. It just takes mental discipline and a positive attitude. It takes time to adjust to the tinnitus. It can be done. I have gone through the low hiss/horrible hyperacusis to now having it being VERY loud and I still live a life I can enjoy.

      Living a life we can enjoy, does not mean that we need to be around loud noises and places either. Do something safe (for your ears) and just distract yourself from the noise. Try not to listen for the noise and try not to focus if you hear the ringing or not. I have full empathy for all that suffer, because I am part of the club too. My mentality is just different and i lean on positivity.

      This forum will support you, don't ever give up :)
       
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    6. Bill Bauer
      No Mood

      Bill Bauer Member Hall of Fame

      Tinnitus Since:
      February, 2017
      Cause of Tinnitus:
      Acoustic Trauma
      • Agree Agree x 3
    7. Carlyi
      Blah

      Carlyi Member

      Location:
      Prague, Czech Republic
      Tinnitus Since:
      3/2017
      Cause of Tinnitus:
      TMJ
      I have also ringing due to TMJ, it truly is hard to live with and jaw pain and ringing in the ears. You are young and your TMJ can go away. What helps me is doing jaw exercises everyday.
       
      • Agree Agree x 2
    8. glynis
      Feminine

      glynis Member Benefactor Ambassador Hall of Fame

      Tinnitus Since:
      2004
      Cause of Tinnitus:
      Meniere's Disease
      Jaw exercises and wearing a mouth guard and cutting food up small and apples in half and no crunching sweets etc can help.
      We are all here to give round the clock support.
      Love glynis x
       
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    9. Billlf

      Billlf Member

      Tinnitus Since:
      January 2017
      Cause of Tinnitus:
      Exposure to loud noise
      Was in exact same place a year ago. Stopped sleeping, stopped eating. Thought I might have to end it myself. Chased after a hundred solutions. Time was all I needed. It will get better. im 99% better. Trust in time. Your brain is an incredible thing. Habituation will happen. You will be ok.
       
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    10. AUTHOR
      AUTHOR
      foliefortuna
      Sweet tooth

      foliefortuna Member

      Location:
      in the fiery depths of Hell
      Tinnitus Since:
      March 2017
      Cause of Tinnitus:
      TMJ Disorder
      But your ringing has not gone away?
       
    11. AUTHOR
      AUTHOR
      foliefortuna
      Sweet tooth

      foliefortuna Member

      Location:
      in the fiery depths of Hell
      Tinnitus Since:
      March 2017
      Cause of Tinnitus:
      TMJ Disorder
    12. threefirefour
      Peeping tom

      threefirefour Member Benefactor Hall of Fame

      Location:
      California
      Tinnitus Since:
      5/15/16
      Cause of Tinnitus:
      140dB B R U H moment
      >Says the fella who is still here
       
      • Like Like x 2
    13. AUTHOR
      AUTHOR
      foliefortuna
      Sweet tooth

      foliefortuna Member

      Location:
      in the fiery depths of Hell
      Tinnitus Since:
      March 2017
      Cause of Tinnitus:
      TMJ Disorder
      I can die but I do not want to. I would prefer death to living with it.
       
      • Agree Agree x 3
    14. Raphael7713
      Alone

      Raphael7713 Member

      Location:
      Stockholm, Sweden.
      Tinnitus Since:
      January 14, 2017.
      Cause of Tinnitus:
      Not sure
      When/if you get 100% habituated as I did (until my setback), trust me, u start living again as if you dont have T.
       
      • Agree Agree x 1
    15. Bill Bauer
      No Mood

      Bill Bauer Member Hall of Fame

      Tinnitus Since:
      February, 2017
      Cause of Tinnitus:
      Acoustic Trauma
      I was talking about suicide.

      As you weight the costs and benefits of a risky surgery, take into account the fact that your T might eventually (i.e., in one year) fade without any surgery.
       
      • Agree Agree x 3
    16. AUTHOR
      AUTHOR
      foliefortuna
      Sweet tooth

      foliefortuna Member

      Location:
      in the fiery depths of Hell
      Tinnitus Since:
      March 2017
      Cause of Tinnitus:
      TMJ Disorder
      I don't ever want to get used to this lower quality of life. It is worse than the chronic ache in my legs or any disease/disorder I have had. I would rather be dead. I will not accept hearing a ringing in my ears for the next 60 years of my life.
       
      • Agree Agree x 1
    17. dpdx
      Disappointed

      dpdx Member Benefactor Hall of Fame

      Location:
      Murica
      Tinnitus Since:
      Onset:09/23/2017 Worsened: 1/17/2018
      Cause of Tinnitus:
      Acoustic Trauma, worsened by caloric test/VEMP test 90db nhL
      When you open your jaw does it click? Do you have jaw pain?
       
      • Good Question Good Question x 1
    18. Dginobile

      Dginobile Member

      Tinnitus Since:
      12/2017
      Cause of Tinnitus:
      Unknown, Satan perhaps?
      @Raphael7713 what set you back if you don’t mind me asking
       
    19. Bill Bauer
      No Mood

      Bill Bauer Member Hall of Fame

      Tinnitus Since:
      February, 2017
      Cause of Tinnitus:
      Acoustic Trauma
      I think that everything depends on the volume and on one's personality. Some people are not bothered by sound. Others are more sensitive. I believe it is possible to habituate to moderately loud T and to quieter T.
       
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    20. AUTHOR
      AUTHOR
      foliefortuna
      Sweet tooth

      foliefortuna Member

      Location:
      in the fiery depths of Hell
      Tinnitus Since:
      March 2017
      Cause of Tinnitus:
      TMJ Disorder
      I have a clicking and crackling jaw and shots of pain through my ears.
       
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    21. attheedgeofscience
      No Mood

      attheedgeofscience Member Podcast Patron Mighty Benefactor Hall of Fame

      Location:
      Denmark
      Tinnitus Since:
      Resolved since 2016
      Cause of Tinnitus:
      Unknown (medication, head injury)
      The absence of hearing loss ‒ or even observable hearing loss ‒ has little value for determining the cause of tinnitus. Patient history (e.g. prior medication usage, a history of noise exposure, illnesses, etc.) is what can help you elucidate your etiology.

      By simple empirical observation among the population, noise exposure is likely your cause (simply because that is the case for as many as 90% of those who develop tinnitus...).

      Hope that helps.
       
      • Helpful Helpful x 1
    22. Bill Bauer
      No Mood

      Bill Bauer Member Hall of Fame

      Tinnitus Since:
      February, 2017
      Cause of Tinnitus:
      Acoustic Trauma
      T tends to change. Often, it fades. The sound you are being tormented by now is likely not the sound that you will be stuck with.
       
    23. Raphael7713
      Alone

      Raphael7713 Member

      Location:
      Stockholm, Sweden.
      Tinnitus Since:
      January 14, 2017.
      Cause of Tinnitus:
      Not sure
      Well I got my tinnitus in january last year. So more or less exactly a year ago. By november last year, approx 9-10 months after my T, I reached a point where it never bothered me at all, only sometimes in the mornings when I was newly awake. Even my friends said "hey you dont talk about your T anymore, is everything better?". I can honestly say I reached a point where I felt and lived exactly the way I did before T. This was until exactly 1 week ago when Im sitting at home and watching Black mirror at 03 in the morning. This sudden high pitched "peep" appears and I thought it would go away. One week later its still here and I can hear this one everywhere. Over tv, music, outdoors....from absolutely nowhere.
       
      • Hug Hug x 2
    24. dpdx
      Disappointed

      dpdx Member Benefactor Hall of Fame

      Location:
      Murica
      Tinnitus Since:
      Onset:09/23/2017 Worsened: 1/17/2018
      Cause of Tinnitus:
      Acoustic Trauma, worsened by caloric test/VEMP test 90db nhL
      this is true, my T sounds different every day
       
      • Agree Agree x 1
    25. Raphael7713
      Alone

      Raphael7713 Member

      Location:
      Stockholm, Sweden.
      Tinnitus Since:
      January 14, 2017.
      Cause of Tinnitus:
      Not sure
      Thats bullshit cause I'm a living proof of it existing, and so are many other. Like I've said a couple of times, if you would ask me before this setback, I would say Im feeling and living exactly the way I did before T. It took me 10 months, but I got there.
       
    26. just1morething
      Benevolent

      just1morething Member Podcast Patron Benefactor Hall of Fame

      Location:
      U.S.
      Tinnitus Since:
      2008
      Cause of Tinnitus:
      TMJ disorder, airplane barotrauma, noise exposure.
      • Agree Agree x 1
    27. threefirefour
      Peeping tom

      threefirefour Member Benefactor Hall of Fame

      Location:
      California
      Tinnitus Since:
      5/15/16
      Cause of Tinnitus:
      140dB B R U H moment
      Well I'm sure we can't wait for you to finish so you can go back to not being here -_-
       
    28. Raphael7713
      Alone

      Raphael7713 Member

      Location:
      Stockholm, Sweden.
      Tinnitus Since:
      January 14, 2017.
      Cause of Tinnitus:
      Not sure
      I actually didn't visit this site since october. But i've made a promise to myself that IF I someday reach 100% habituation or even get cured, I will still be around here to help others.
       
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    29. threefirefour
      Peeping tom

      threefirefour Member Benefactor Hall of Fame

      Location:
      California
      Tinnitus Since:
      5/15/16
      Cause of Tinnitus:
      140dB B R U H moment
      I think we have too many of those but thanks.
       
    30. Raphael7713
      Alone

      Raphael7713 Member

      Location:
      Stockholm, Sweden.
      Tinnitus Since:
      January 14, 2017.
      Cause of Tinnitus:
      Not sure
      You cant get too many of them. Everyone has something to come with, something the other guy maybe have no clue about etc.
       
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