Losing It After Tinnitus Spike — Any Words of Encouragement? Any People with Meniere's Disease?

Discussion in 'Support' started by Sleep, Jan 22, 2019.

    1. Sleep

      Sleep Member

      Tinnitus Since:
      New Year's Day 2014
      Cause of Tinnitus:
      Meniere's Disease
      Hi all - another sufferer returning after a spike. I've been in this new mess for about 5 days and I don't think I can handle the sleeplessness, guilt, insanity, etc., again. I've been super stressed at work and gave into a few cigarettes last week, and bam! Spike. I blame myself.

      I haven't slept since Saturday night, and I can't return to my psychD until next week. I don't want to go through the med cycle again, but I find it so hard to handle my emotions. I'm so tired and just lay awake thinking about how nice it would be to slip away. Without getting into all my spiritual beliefs, hangups, I feel like I'm losing faith. Even if I get over this spike, another is just down the road.

      Ugh, writing this makes me feel pathetic, but I need to vent it somewhere. My partner is can't handle me during these spikes and I just feel so alone (especially at 4am).

      Any words of encouragement, people who have Meniere's, those that have habituated multiple times after spikes - the briefest response is appreciated. I feel like I'm dying.

      S
       
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    2. JohnAdams
      Starving

      JohnAdams Member Benefactor Hall of Fame

      Location:
      here
      Tinnitus Since:
      it started.
      Cause of Tinnitus:
      hearing loss
      I'm sorry to hear this. Just know you are not alone. You have friends here on this site that totally understand what you're going through. I too feel this way. Search your soul for strength to persevere and you will find it is there.
       
    3. AUTHOR
      AUTHOR
      Sleep

      Sleep Member

      Tinnitus Since:
      New Year's Day 2014
      Cause of Tinnitus:
      Meniere's Disease
      Thanks @JohnAdams I really appreciate it. As everyone knows here, it can be so hard to find sanity at times. I know I pushed through it before, and that's what I've got to remember.
       
    4. JohnAdams
      Starving

      JohnAdams Member Benefactor Hall of Fame

      Location:
      here
      Tinnitus Since:
      it started.
      Cause of Tinnitus:
      hearing loss
      this is true even for perfectly healthy people, so that just shows how much worse our plight is. just be strong and know we are a family of sorts. hopefully there will be a release for us sometime relatively soon. until then, it's one step at a time, one foot before the other. good luck to you.
       
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    5. Jack Straw
      Balanced

      Jack Straw Member Podcast Patron Benefactor Ambassador Hall of Fame Advocate

      Location:
      US
      Tinnitus Since:
      1990s
      Cause of Tinnitus:
      Infection, Acoustic Trauma
      I am pretty sure this spike will be temporary. I have never heard of someone getting a permanent spike from nicotine, only temporary. This is similar to caffeine and alcohol.
       
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    6. AUTHOR
      AUTHOR
      Sleep

      Sleep Member

      Tinnitus Since:
      New Year's Day 2014
      Cause of Tinnitus:
      Meniere's Disease
      @Jack Straw - thanks for this. It's always nice to hear that type of comment. Thank god for this board and all of you.
       
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    7. Jack Straw
      Balanced

      Jack Straw Member Podcast Patron Benefactor Ambassador Hall of Fame Advocate

      Location:
      US
      Tinnitus Since:
      1990s
      Cause of Tinnitus:
      Infection, Acoustic Trauma
      I know it is hard, but try to relax. I also see that you have meniere's disease so I am not sure if certain substances effect that specifically. @glynis also has menieres so she might be able to help.
       
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    8. glynis
      Feminine

      glynis Member Benefactor Ambassador Hall of Fame

      Location:
      England, Stoke-on-Trent
      Tinnitus Since:
      2004
      Cause of Tinnitus:
      Meniere's Disease
      @Sleep,
      I have had Meniere's for many years and know how bad it can get.
      For people with Menieres who have really bad tinnitus you can take Cinnarazine 15mg tablet up to two 3 or 4 times aday and the only medication that states can reduce Tinnitus.

      Also have your hearing tested if it drops after a Meniere's flairup.

      love glynis
       
    9. Stu1983
      Studious

      Stu1983 Member Benefactor

      Tinnitus Since:
      Around 2008/spiked Dec 2018
      Cause of Tinnitus:
      2008 sound?Meds?Not sure/Dec 20 2018 meds doubled the volume
      Im sorry that youre going through such a difficult time, A Nicotine spike should pass. Be hopefull. Are you planning on meeting your Dr this week?
       
    10. AUTHOR
      AUTHOR
      Sleep

      Sleep Member

      Tinnitus Since:
      New Year's Day 2014
      Cause of Tinnitus:
      Meniere's Disease
      @Stu1983 - I didn't see your message. Symptoms haven't improved, but I did see my doctor yesterday. Not much to say as always.
       
    11. AUTHOR
      AUTHOR
      Sleep

      Sleep Member

      Tinnitus Since:
      New Year's Day 2014
      Cause of Tinnitus:
      Meniere's Disease
      I did want to ask the board: my psychiatrist recommended medical marijuana for my anxiety since I've been looking to get off benzos for quite some time. She recommended it for at least a short course to supplement if there were any benzo withdrawal symptoms. I started that January 1, this spike started January 14. Does anyone have experience with tinnitus spiking because of THC?
       
    12. Betternow1

      Betternow1 Member

      Tinnitus Since:
      1997
      Cause of Tinnitus:
      Menieres
      @Sleep
      I am sorry to hear about the trouble you are having and I have had the same thing for 20 years. It was only recently that I got relief. I've been through all of the doctors and crazy medications.

      I had an endolymphatic shunt installed two years ago and have not had a single episode since. I've been able to return to a normal degree with sodium. I still avoid caffeine and alcohol for the most part but it was a life saver.

      It took a long while to find the right doctor but there is a great ear specialist that works in Fort Worth and Plano that knew what my issue was and took care of it.

      Just know that there is a chance of relief out there.
       
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    13. GregCA
      Jaded

      GregCA Member Benefactor Hall of Fame

      Tinnitus Since:
      03/2016
      Cause of Tinnitus:
      Otosclerosis
      Great news! Do you still have any symptoms at all? (any tinnitus? ear fullness?)
       
    14. Lane

      Lane Member

      Tinnitus Since:
      February, 2018
      Cause of Tinnitus:
      Ototoxic Drug
      Hi @Betternow1 -- That's some remarkable news. Could you share a few more details? -- Congratulations!
       

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