MuteButton

This just makes a lot of sense to me and explains my tinnitus in relation to my audiogram perfectly. The efferent nerve thing is new to me and this mechanism maybe explains hyperacusis more than tinnitus though.

So what is the connection between the Superior Olivary Complex and the Dorsal Cochlear Nucleus then?

 

@kelpiemsp I’ve never slept with earbuds or headphones on. I have been exposed to loud music in the past such as clubs and concerts and listening to loud music in the car but audiologist says my hearing is excellent.

Here’s my audiogram from about a month ago.

 

That’s some good hearing right there!

 

I was quoting Tinnitus Talk user @Karl there as mentioned. I will start another thread on this tomorrow as it's getting a bit off the MuteButton topic.

 

Some loss at 18 kHz but definitely audiogram envy !!

 

Is anyone on the forum going to the Annual Scientific and Technology Conference? I was thinking about hopping on a flight to AZ but not sure if it would be worth it.

If I do not go to the AZ one I may go to the Columbus conference.

I am curious if the forum is interested in having a member attend.

EDIT: This is for the MuteButton test results.

 

I am!

 

OK, got my months screwed up on my last post. LOL.

I am looking at going Friday to Columbus if they are accepting general public. I will have a call into the registrar. Hopefully I can go and will have something to report back.

 

Good luck, keep us updated!

 

Sorry to cut in... no news from Neuromod I guess? No whispers?

I do subscribe to their newsletter.

 

I've read a lot but have not seen a mention of otosclerosis. Need your opinion!

Might Neuromod help with tinnitus caused by otosclerosis?

 

On 29th of March there will be a conference where Neuromod talks. Maybe some news will come out.

 

I think it depends on the type of tinnitus that you suffer from, as otosclerosis can induce tinnitus of various types. One type is due to an impedance mismatch at the stapes interface with the inner ear, and that often resolves after surgery. I doubt that the device would help with that type given its "fluid mechanics" nature.

Another type is due to the SNHL that otosclerosis can bring on, which could be similar in nature to the tinnitus resulting from any other type of SNHL, with genesis in the DCN. I would hope the device can help with this kind of tinnitus.

 

What other treatments? :-/

I acknowledge your points on the rest.

 

Things like CBT to manage tinnitus - nothing is on the market to address tinnitus directly. Neuromod will be the first treatment that claims to directly address the tinnitus (actual volume reduction). If you’ll ignore the ACRN that hasn’t really kicked off.

 

ACRN?

I knew what you meant. I was being cynical. TRT and the other standard masking ones aren't really treatments to me. It's like, if you went to a nurse after cutting or wounding yourself, instead of addressing the injury, the nurse just gave you a bandaid and that was it.

 

Isn’t it true that all the different tinnitus sounds have different pathology in the brain? I think I read many times that hissing is created in a different way than a pure tone tinnitus or intermittent tinnitus.

There shall be different brain mechanism for all these.

So how Neuromod can claim that the quality / type of the tinnitus sound itself doesn’t matter for the treatment? Any thoughts?

 

@EDDTEKK,

@kelpiemsp said something earlier in this thread (I think) about shrinking your brain map. No idea what that means. If he's got the time maybe he can shed some light on that for us

 

Just a thought for everyone keenly awaiting Neuromod's Lenire.

I saw my fourth audiologist yesterday, this one NHS. She hadn't heard of either Neuromod or Susan Shore. She told me there were many companies in the UK who operate in this field and none of them have proven any success in large studies, but hearing aids have.

The fact that four local audiologists haven't even heard of Neuromod means I'll in all likelihood have to travel, either internationally or domestically, to get one. This will probably be the case for a lot of people who want to be early adopters. Based on the Q&A, it's not like you can rock up to Neuromod's offices and buy one. As they'll be working directly with audiologists, you'll need to get one via one of their partners, who I assume will need to do some sort of screening to see if you're suitable.

 

With my most recent audiologist (also NHS), I didn't ask about specific companies/people but I did ask if they'd heard of bimodal stimulation. He said it was too early for him to be able to comment on whether he thinks it will work or not but he is aware of it.

He also made the case that when he first started working at my hospital's tinnitus clinic they'd only run one session a month but now they run two every week and he believes that a large number of labs across the country are actively looking at tinnitus due to how much visibility the condition has gotten recently.

I'll be trying some TRT with him as apparently my clinic is one of the few left where I don't have to pay anything for it.

Reassuring to meet someone who at least seemed to be aware/keep up to date with new treatments and have at least a cursory understanding of new research.

 

Good to hear that tinnitus is getting more recognition and that some audiologists are at least aware of the technology. I'd expect nothing but a healthy skepticism from them, but also an awareness. We can't be the only people who have done a bit of research online and have read something about potential cures.

Hopefully this increased recognition is due to the patients seeking treatment and not an increase in people who get tinnitus.

 

Audiologists, like other health professionals who deal with hard to treat conditions, will have seen hyped treatments come and go and may be cynical about new research and therefore some will not bother to keep up with it much. Ditto ENTs. They might be more impressed if they read one trial alone has 500 patients. I’d be surprised if Neuromod don’t find at least one or two audiologists in the UK to sell this thing via though.

 

Agree. That’s why I’m hoping they release this data ASAP so we can talk about it.

 

I am not surprised about the audiologists. I went to a tinnitus clinic and mentioned Neuromod to them and they hadn't heard of it and stated it wouldn't work for everyone (probably true), but instead insisted their CR Neuromodulation works for everyone. I never went back.

 

I saw an audiologist/TRT clinician in early September 2018. When I brought up Minnesota/Michigan studies, she also seemed to be aware of one that stimulates the tongue, so there must be some out there who are familiar with it.

 

Will neurofeedback possibly interfere with Neuromod results? Since both deal with brainwaves, I'm wondering if doing neurofeedback may adversely impact Neuromod results.

 

Forgive my ignorance, what is CR Neuromodulation?
Again, I don't know what it is, but why didn't you go back? Elaborate a little please.

 

It's just odd that the people who will supposedly administer these treatments are so out to lunch and clueless compared to the 'patients' PLUS they have never heard of the researchers (or their science studies) who have brought them the tools.

 

You find that in a lot of situations. e.g. I've been to see my GP before about sports injuries and a lot of advice is basically don't train for 6 months. I've found much better advice from other people who have had the same injury on how to manage and speed up recovery properly for the long term. I'd rather listen to Paulmanlike or Ed209 than the disinterested douche I met yesterday.

 

Basically, a very expensive habituation device with not great research and studies behind it. It is possible it may work for some but I believe your tinnitus/hearing loss has to be below 10 kHz for it to be worthwhile.

You can take a look at Dr. Hobbs video on it here:

Is CR Neuromodulation Effective for Tinnitus?

Also a thread here at Tinnitus Talk: https://www.tinnitustalk.com/threads/acoustic-cr®-neuromodulation-a-new-treatment-for-tinnitus.219/

We should probably get this thread back on topic...HURRY UP NEUROMOD!!!