MuteButton

Discussion in 'Treatments' started by Jim, Jun 7, 2011.

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    1. Manny
      Dead

      Manny Member Benefactor Hall of Fame

      Location:
      United States
      Tinnitus Since:
      1/2018
      Cause of Tinnitus:
      central gain << NIHL
      I'm not rich but buying it immediately tempts me just because I'm so darn desperate. But I'll hold myself back until (if) there's good evidence for it. Else I could just spend my money now on bogus treatments, no need to wait... :LOL::banghead:
       
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    2. kelpiemsp
      Swamped

      kelpiemsp Member Benefactor Hall of Fame Advocate

      Tinnitus Since:
      birth/ recent spike 2/2018
      Cause of Tinnitus:
      Born with ETD, several acoustic traumas, most recently ETD
      The ignorance here... come on people. The research, methodology, and design between these devices are identical. It is all based on the original guinea pig study done by the University of Minnesota. Y'all know that Shore had to redo her device as well? It's not surprising.

      Has anyone followed the link of events?
      1. The University of Minnesota did the original study.
      2. Shore picked up on it and moved it forward.
      3. Neuromod then picked up on it and moved it forward.
      4. Both Shore and Neuromod fumbled initially.
      5. Neuromod then brought in the lead researchers from the University of Minnesota to help understand why they failed.
      6. Shore announces the preliminary success.
      7. Neuromod announces success and races to put the device on the market (industry first funding).
      8. Shore wraps up her trial, plans to release device if successful (academic first funding).
      9. The University of Minnesota moves to phase 3 of a smaller trial of all three but holds the keys to the original experiments and data (just might know something the other two don't).

      It's the same tech. It's just a race.

      And here we are sooo confused we can't tell our right foot from our left foot. It is laughable. In one sentence you complain that the device isn't released, next you complain you don't have peer-reviewed results. Then you say release the device if it works, then you say you don't want a device released unless you see peer review results. THIS IS NOT LOGIC.

      I've tried so hard to help you all understand but apparently, people don't bother reading. Uggh.
       
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    3. Don Tinny

      Don Tinny Member

      Location:
      Argentina
      Tinnitus Since:
      2017 (worsening)
      Cause of Tinnitus:
      Loud concert with ear plugs
      I just ask for a tool that eliminates my "bad days". With that I would be happy. There are certain days when my left ear "turns on" and a very invasive tinnitus appears. If I could eliminate them, my life would be almost normal.

      I wonder if any of these bimodulation devices can achieve this in my non-somatic tinnitus.
       
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    4. Paulmanlike

      Paulmanlike Member Hall of Fame

      Tinnitus Since:
      2008
      Cause of Tinnitus:
      Noise
      Aren’t you the member who has been involved in the clinical trials? What information will you give us? Something? Anything?

      Also, I was researching ACRN last night and came across the DeSyncra website, looks updated from when I viewed it last year. Appears more and more clinics are offering this treatment and now there have been 4,000 as opposed to 3,000 as I recall last year ‘successfully’ treated with it. It even states that many people have completely ALLEVIATED their tinnitus with treatment.

      From what I understand, these new techniques as @kelpiemsp mentions is building on this ACRN and using somatosensory input to achieve greater or quicker success to changing maladaptive plasticity.
       
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    5. EDDTEKK

      EDDTEKK Member

      Location:
      Belgium
      Tinnitus Since:
      1999
      Cause of Tinnitus:
      Infection
      Perhaps @Steve might ask for such procedure. Not 100 units but 10 seems reasonable for reporting any effects?
       
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    6. GregCA
      Jaded

      GregCA Member Benefactor Hall of Fame

      Tinnitus Since:
      03/2016
      Cause of Tinnitus:
      Otosclerosis
      Are you thinking "for free"? If so, why would they give away any units for free? I don't think they will have an issue with demand.

      And if it's not for free, I don't know that @Steve has that kind of budget...
       
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    7. Don Tinny

      Don Tinny Member

      Location:
      Argentina
      Tinnitus Since:
      2017 (worsening)
      Cause of Tinnitus:
      Loud concert with ear plugs
      Is this supposed to be available in January? (At least for most of you in the USA or UK).
       
    8. Paulmanlike

      Paulmanlike Member Hall of Fame

      Tinnitus Since:
      2008
      Cause of Tinnitus:
      Noise
      @Steve, come on Steve when are they gonna do a Q&A?

      I was also having a little look through their website.

      @kelpiemsp was not wrong about the Asian dude coming from Minnesota to Ireland to work for Neuromod. Dr Lim - appears professional enough.

      Beats Dave from Nevada anyway selling magic pills that is the secret cure for tinnitus. What was it called again, T-Gone.
       
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    9. Paulmanlike

      Paulmanlike Member Hall of Fame

      Tinnitus Since:
      2008
      Cause of Tinnitus:
      Noise
      According to somebody here it will be available in Ireland from January - however - I would highly recommend people waiting for the evidence base to build up. Products like this with logical science to the usual common man is a selling point, for example, look at Brainsway on Facebook. Lots of likes and 5 star ratings for TMS for treating depression and recently OCD.

      A quick search on Wikipedia shows no robust evidence on this working.

      What we have here in England is something called NICE (National-institute-Centre-Excellence).

      Now if NICE recommended MuteButton or Neuromodulation, I would purchase it without hesitation.
       
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    10. Markku
      Inspired

      Markku Founder Staff Podcast Patron Benefactor Hall of Fame Advocate

      Tinnitus Since:
      04/2010
      Cause of Tinnitus:
      Syringing
      Ireland launch apparently in January. UK/rest of EU to follow later. They are also working to get it approved via FDA so they can sell it in the USA.

      Little birdie tells me @Steve might be heading over to Ireland for the Q&A as soon as November 28/29, so in a couple of weeks. Once we have the date confirmed, we will announce it, along with creating a new thread where members can submit their questions.
       
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    11. Soren

      Soren Member Benefactor

      Location:
      Denmark
      Tinnitus Since:
      12/2017
      Cause of Tinnitus:
      Loud sound
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    12. Paulmanlike

      Paulmanlike Member Hall of Fame

      Tinnitus Since:
      2008
      Cause of Tinnitus:
      Noise
      @Markku Thank you for the reply!!

      Seems exciting. I will have lots of questions @Steve and I will work on them so that tinnitus sufferers around the world will have some insight into this new method. Thank you both for your continued work representing the tinnitus community.

      If there is ever anything I can do to help I will be happy to do what I can.

      I got asked by a new sufferer the other week about the current state of research and what’s going on, after about 40 minutes of telling him about what’s going on around the world I realised I actually enjoy being kept up to date with the research.

      I’ve followed tinnitus research for the last 10 years lightly from a layman’s point anyway.
       
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    13. Deamon22

      Deamon22 Member Podcast Patron Benefactor Ambassador

      Tinnitus Since:
      06/2018
      Cause of Tinnitus:
      Head Trauma/Cold?
      @Steve & @Markku awesome, thank you for all the work you guys put in :)

      If someone still doesn't know why they should donate to Tinnitus Talk, here they have another reason. So maybe everyone could help a bit ;)
       
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    14. Paulmanlike

      Paulmanlike Member Hall of Fame

      Tinnitus Since:
      2008
      Cause of Tinnitus:
      Noise
      Yes and this was from last year so this study has been concluded. Somebody mentioned early on in the thread that they achieved another round of promising results from this, although not released so not to interfere with the peer review. Anyway, we will not know anymore until that is released and until @Steve gets to do a Q&A with them hopefully by the end of this month.

      @attheedgeofscience I know you said you were more intrigued by Susan Shore's work but what do you make of the above poster's comment about them all working on more or less the same mechanism of action and thereby just being a race towards the market?

      @Aaron123 I hope you are still around as your input into the research section has been invaluable over the years. Any input?
       
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    15. Soren

      Soren Member Benefactor

      Location:
      Denmark
      Tinnitus Since:
      12/2017
      Cause of Tinnitus:
      Loud sound
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    16. EDDTEKK

      EDDTEKK Member

      Location:
      Belgium
      Tinnitus Since:
      1999
      Cause of Tinnitus:
      Infection
      What is the problem of Neuromod offering it for free? This would be the biggest advertisement opportunity for them. Marketing at its best.
       
    17. spedgas
      Gloomy

      spedgas Member Benefactor

      Tinnitus Since:
      09/2018
      Cause of Tinnitus:
      Unknown
      I’m intrigued that Dr. Lim does appear to have ties to the University of Minnesota prior to Neuromod.
       
    18. ee9892

      ee9892 Member

      Tinnitus Since:
      2015
      Cause of Tinnitus:
      Life
      That's actually very comforting if he was part of both devices.
       
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    19. juliob
      Confused

      juliob Member

      Location:
      Brazil
      Tinnitus Since:
      03/2018
      Cause of Tinnitus:
      Antidepressants / Loud Sound Exposure
      I am hyped for this.
       
    20. GregCA
      Jaded

      GregCA Member Benefactor Hall of Fame

      Tinnitus Since:
      03/2016
      Cause of Tinnitus:
      Otosclerosis
      I don't think they need any marketing at this point. I imagine there's already a line of people who will happily rid them of their initial batch of units. Some are in this very forum!

      I see no reason why they would want to leave money on the table.
       
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    21. spedgas
      Gloomy

      spedgas Member Benefactor

      Tinnitus Since:
      09/2018
      Cause of Tinnitus:
      Unknown
      Me too. I’m really trying to quell my expectations though so I don’t get too depressed if this turns out not to be the answer. I believe this type of device is the only thing in the foreseeable future than can help me. I’m only two months in and struggling to accept that this may be forever.
       
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    22. Don Tinny

      Don Tinny Member

      Location:
      Argentina
      Tinnitus Since:
      2017 (worsening)
      Cause of Tinnitus:
      Loud concert with ear plugs
      I understand your feeling but your tinnitus is very new. Have hope. Natural improvements may occur.

      I try to have expectations on this because FX-322 is still very distant. On the other hand, my tinnitus is not somatic. I do not know if I should be excited. Maybe not.
       
    23. JRC1

      JRC1 Member Benefactor

      Tinnitus Since:
      2016
      Cause of Tinnitus:
      medication
      @kelpiemsp

      Thank you for your post over the weekend.

      I am just wondering if/what you know about the devices/technologies from Neuromod/Michigan/Minnesota?

      Are they exactly the same or are there minor differences?

      Do you know if they work on the same nerve?
       
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    24. Paulmanlike

      Paulmanlike Member Hall of Fame

      Tinnitus Since:
      2008
      Cause of Tinnitus:
      Noise
      So MuteButton is seeking FDA approval!?

      What does this mean?

      Well, a little bit of digging round on the net, all it basically means is that they have to prove the product won’t hurt you.

      Anybody up to date with FDA regulations and medical devices?!

      Read an article on one of those ion bracelets (that claims all sorts of health benefits) that has FDA approval class 1. The average intelligent person will know it's snake oil.
       
    25. Contrast
      No Mood

      Contrast Member Benefactor Hall of Fame

      Location:
      Clown World
      Tinnitus Since:
      late 2017
      Cause of Tinnitus:
      noise injury
      I heard rumors that this device has positive effect on hyperacusis?
       
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    26. Deamon22

      Deamon22 Member Podcast Patron Benefactor Ambassador

      Tinnitus Since:
      06/2018
      Cause of Tinnitus:
      Head Trauma/Cold?
      Yes, @Steve mentioned it in the video from the Tinnitus Expo.

      Also in a post from the MuteButton thread he said that the device should work particularly well for hyperacusis.
       
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    27. Paulmanlike

      Paulmanlike Member Hall of Fame

      Tinnitus Since:
      2008
      Cause of Tinnitus:
      Noise
    28. Steve
      Creative

      Steve Member Benefactor Hall of Fame Advocate

      Location:
      Sheffield, UK
      Tinnitus Since:
      2003
      Cause of Tinnitus:
      Flu, Noise-induced, Jaw trauma
      Hi all,

      Q&A date has been set for 3rd December.

      Markku is going to set up a thread for questions. I imagine there will be a few :)
       
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    29. Markku
      Inspired

      Markku Founder Staff Podcast Patron Benefactor Hall of Fame Advocate

      Tinnitus Since:
      04/2010
      Cause of Tinnitus:
      Syringing
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    30. Jack Straw
      Balanced

      Jack Straw Member Podcast Patron Benefactor Ambassador Hall of Fame Advocate

      Location:
      US
      Tinnitus Since:
      1990s
      Cause of Tinnitus:
      Infection, Acoustic Trauma
      Wanted to post this here since it shows that stimulation of certain parts of the brain def reduces tinnitus!

       
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