MuteButton

As an inventor, Edison made 1,000 unsuccessful attempts at inventing the light bulb.
When a reporter asked, "How did it feel to fail 1,000 times?" Edison replied, "I didn't fail 1,000 times. The light bulb was an invention with 1,000 steps."

Well said.

If it helps 30 people, I'm happy it helps those 30 people from this hell.
Once...

 

If this works at least to diminish the fluctuations, I am more than satisfied. If I can keep my tinnitus at the level of the last 2 days (not today) I will be fine!

 

I would say that this thread is rather more informative than a "whole bit of hype" and Sir, with all due respect, I'll travel any place in the world if anything helps me with my tinnitus, even for a bit... I travel every weekend for my job anyway

People can spend their time and money the way they decide to, I don't have a car but I might have a MuteButton.

I agree we cannot jump on every new device or marketing product designed to only empty our wallets, I never did... that's why I'll wait to hear the Q&A and check real good what they have to say about the clinical trials.

In 15 years I saw countless ENTs and nothing good came out from it... not even one had heard about somatic tinnitus, only 5 years ago I found one who was aware of it... Really?? Yes it's that slow, 15 years ago they didn't have a clue.

When I talked about it being pulsatile they just told me it would go away... take rivotril and go to sleep... keep your earplugs when you play and everything will be alright!! My god, bunch of amateurs who didn't know crap...

I feel science is getting closer and closer to understanding of how the brain is feeding/responding to our tinnitus and that even if MuteButton isn't the cure, it's a step forward.

Again, even for small results I would do the trip.

I agree with @Steve when he says that we have to play our own part in the search for a cure.

Science won't move without people asking for it... in other words, paying for it.

 

Well said pochito. The amount of negativity in this thread is disheartening.

I agree that we don't know everything about this device yet and it may not work for everyone, but from Steve's comments and the knowing that Neuromod had hired researchers from the University of Minnesota study where kelpiemsp has had success we know that there is a pretty good chance that this can help us.

If a bunch of us here want to go to Ireland and try this out I would be willing to go. If I can get any relief it is truly worth it.

 

This thread is so bipolar about this device it’s insane. Lol.

@Steve you mention that your hearing loss is between two frequencies. Did they mention whether certain frequencies will not benefit from the device or is your situation unique for other reasons?

 

Yes. And it always leaves me with a very strange mixture of emotions. I should not be influenced so much by what I read.

I wonder what will be said about this device in 6 months.

 

No it's set to the audiogram so it shouldn't matter.

I wondered about the dip that I have because it is a very narrow one, you'd think I would have asked about that when I was there for several hours

 

A full audiogram or up to 8 kHz?

 

@kelpiemsp mentioned above the audiogram is up to 16kHz.

 

Hey you MuteButton guys, Glynis posted over in General Chat. She's having a difficult time and needs some hugs. Can you all go over there and deliver some? -- TC

 

Many of us go completely deaf at some point between 8 and 16 kHz (or lower). Personally I completely fade out at about 14 kHz. Critically, my tinnitus is at about that frequency as well.
This seems common to many of us, that our tinnitus frequency is centered where our hearing sharply drops.
I wonder if that would pose a problem for this treatment, as I am effectively profoundly deaf at my tinnitus frequency.

 

Thank you @Markku!!!!!

 

Thanks @Markku! Waiting is not easy of course

 

How can this possibly help with hyperacusis?

Can we see some data?

 

Wondering that too. I had absolutely no interest in this MuteButton thing at all until they (Neuromod) mentioned that they had success in treating hyperacusis with this. It doesn't make any sense at all so I'm still very skeptic.

 

Do you have the source? I remember reading it somewhere, but cannot find it now...

 

When are we getting the Q&A @Steve and @Markku? Sorry if I sound inpatient, I’ve been waiting years for something

 

Source is Steve's update from the BTA conference in this thread some 20 pages back:
https://www.tinnitustalk.com/threads/mutebutton.124/page-20#post-369079

 

I remember last year thinking MuteButton was a commercial scam, looking back, I’m starting to think I was wrong for once in my life.

 

It doesn’t treat hyperacusis. The effect that was observed was that in hyperacusis patients the reduction of their tinnitus was much greater than in other groups.

 

"The results presented by Berthold Langguth showed that it performed particularly well for hyperacusis" is pretty easy to misinterpret I guess.

That's a bummer of course. My interest in this went back to zero

 

WHAT?! That turned everything I thought I knew, upside down Many people with tinnitus also have hyperacusis and those people can't use this device then, cause if it doesn't treat hyperacusis, there is a (great?) risk it could worsen it, and who would want that?

Who cares about lower tinnitus, if you get worse hyperacusis instead :/

 

I won't say it has gone to zero for me... but my hope for this has gone down quite a bit :/

 

One thing the finding does is open up a new research question.

If patients with hyperacusis have an especially significant reduction in their tinnitus, what is the mechanism at play? Could that mechanism give us a greater understanding of how to maximise the tinnitus treatment, and could discovery of the effect lead to the development of a new hyperacusis treatment?

 

I felt a bit crushed when I read your previous post but... this is a good point.

Did they only use it on patients with mild hyperacusis? Or how low can the sound be? I guess my LDL are around 50 to 60 nowadays.

I'd do anything to get rid of my hyperacusis, but if this thing improves my tinnitus that would be something.

 

I'm so excited for the Q&A.

 

I wonder what kind of hyperacusis those people testing this device had? I am very sceptic of them having pain hyperacusis, because that kind would make it seem very difficult, if not impossible to even be able to listen to sounds through headphones...

I suspect they maybe only have a milder discomfort hyperacusis.

 

Fair point.

 

Looking forward to the Q&A and more importantly looking forward to trying out the device in a few short weeks... 42% reduction would be a nice Xmas present.