My Posting Place

Discussion in 'General Chat' started by threefirefour, Sep 2, 2017.

    1. eagerUser

      eagerUser Member

      Tinnitus Since:
      09/2018
      Cause of Tinnitus:
      Stress, Pressure
      Hi guys, I'm just curious to know what would happen if someone with a healthy auditory system get FX-322 or other regenerative drugs? Would they end up with too many hair cells and possibly become super humans? :woot:

      I mean what would they do if they couldn't find any hearing loss with the current tests like PTA? But the patient still has tinnitus.
       
      Last edited: Jul 5, 2019
    2. Artazanasss
      Suicidal

      Artazanasss Member

      Location:
      Lithuania
      Tinnitus Since:
      2016/09
      Cause of Tinnitus:
      Noise induced hidden hearing loss and acoustic trauma
      Sorry for bothering you good people all over again, but I need advice from MPP members once again. I am really close to suicide today and considering doing it fast so I think it's a good time to write to you all a message. My situation just keeps getting worse. My sister lied and slandered me to my other sister who lives in London to the point I don't know if my other sister and her kids will want to have anything to do with me. Also, my sisters' kids have written me horrible messages calling me a pig, a fat loser and similar insults. Also, my mother was not only verbally saying that she wished I would die, but has used physical violence against me. What to do in this situation, my mother lives in the same house as I do so I can't get away from it or escape especially now that I am financially dependent on her. I can and have separated from my sister, but it doesn't seem to be enough since she continues to mock and terrorize me.

      I honestly just don't see any other way out of my situation, but suicide. I never thought that at my darkest hour of need then I am in the weakest position I ever been in my family would treat me this way it's just so cruel and inhumane. I used to be a happy, confident, healthy and strong person then I was all of that my family at least respected me a little as a person and as a provider that gives them income, now that I am a broken shell of my former self unemployed and living on disability all of that seems to be gone.

      As far as my hearing problems go my hyperacusis is entirely gone for some time now so that is not a big problem for me. My tinnitus has gone from moderate to mild in the last few years so I can live with it. But my hidden hearing loss (cochlear synaptopathy) is just horrible, I can't hear anything then there is background noise, music sounds distorted, I can't hear the dialog on my favorite TV shows and movies, I barely hear a person sitting next to me in a silent room so basically I can't function like a normal person add a psychological problems of mine and yes I am suffering and having a hard time.

      News about my NR experiment it does seem to somewhat help my tinnitus and makes it, even more, milder, I now only hear it at night in complete silence but I see no improvement in my hearing so far maybe it's still too early for any effect to take place since most of the forum that did get improvement from it said that they took it at least a month.
       
      • Hug Hug x 12
    3. Daniel Lion
      Ape-like

      Daniel Lion Member Benefactor

      Location:
      SE Asia
      Tinnitus Since:
      2017
      Cause of Tinnitus:
      Noise trauma, hearing loss
      Man, I'm so sorry to hear about your situation.

      We need our families support, and it sounds clearly like they are not on your side and are destructive.

      Few ideas...

      Have your mom and sisters watch the Gaby Olthuis, Dutch suicide lady video. Have them watch Jazzer's video and a few others in the awareness section. Maybe they can get educated.

      If you have a sympathetic extended family member or friends who have a spare room... move out.
      Try and be polite and loving... but walk away from fights... the stress is a killer and will ramp up your tinnitus and hyperacusis.

      I wish I was near you man, I’d have a word with your family... but I am not.

      You need to take care of your physical and mental health now... avoid confrontation... lie if you have to... and slowly plan an exit strategy.

      Really sympathize and am sorry you have to deal with such cruelty... life is truly unfair.
      Be strong... be calculating... avoid fighting... and be smarter than everyone around you and universe willing you will find a way out.

      Don’t do the suicide thing... it’s natural to contemplate... everybody here does... I do far too often...

      Hang tight... get physically strong, eat right... and plan your escape....

      May the force be with you.
       
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    4. eagerUser

      eagerUser Member

      Tinnitus Since:
      09/2018
      Cause of Tinnitus:
      Stress, Pressure
      Dude, I don't know what to say, I don't really know, due to some problems right now I'm as suicidal as I've never been before but hang in there man.

      I know that there are lots of things I haven't done in my life, when I think about suicide deeply and it's methods I really cry because I don't wanna die. I want to play and experience more. I try to stay positive that if there is only 1% possibility that things will get better they will definitely get better.

      I'm sure that there is still things or people in life which mean a lot to you.

      A bright day will come just hang in there.
       
      • Hug Hug x 2
    5. Bill Bauer
      No Mood

      Bill Bauer Member Hall of Fame

      Tinnitus Since:
      February, 2017
      Cause of Tinnitus:
      Acoustic Trauma
      "Suicide is a permanent solution to a temporary problem" Often those words are not true, as the problem is a permanent one. However, it seems to me that in your case the above is actually true - your problem is temporary. You have had a serious fight with your close relatives, but people change. Also surely in the long run you don't have to be around those people. Right?

      Even your hearing loss might be reversible - there are possible treatments on the horizon now.

      I sincerely hope that you don't do anything under the influence of the sadness you have experienced as a result of a fight (the kind that happen in most relationships).

      Consider giving it a year. If you still feel that way in a year, then it would make more sense to do it...

      What's that?
       
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    6. Jack Straw
      Balanced

      Jack Straw Member Podcast Patron Benefactor Ambassador Hall of Fame Advocate

      Location:
      US
      Tinnitus Since:
      1990s
      Cause of Tinnitus:
      Infection, Acoustic Trauma
      Please, Please, Please, don't commit suicide!
      Especially because your hyperacusis is gone and your tinnitus is now mild! That would be god sent for some people on here. I don't know your whole situation, but it seems like your hearing overall is not the best. Have you tried reaching out to organizations that help deaf people? They may be able to help you figure out what you need to do to get back on your feet.

      Are you getting help for your psychological problem?
       
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    7. Contrast

      Contrast Member Benefactor Hall of Fame

      Location:
      Retrovile
      Tinnitus Since:
      late 2017
      Cause of Tinnitus:
      injury from noxious noise
      He told me his hearing test shows little to no damage, and his hearing loss is exclusive to background noise.

      His doctors think he is crazy. This is so unfair.
       
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    8. Jack Straw
      Balanced

      Jack Straw Member Podcast Patron Benefactor Ambassador Hall of Fame Advocate

      Location:
      US
      Tinnitus Since:
      1990s
      Cause of Tinnitus:
      Infection, Acoustic Trauma
      Has he seen a psychiatrist about his psychological issue? This should be addressed.
       
    9. Agatha

      Agatha Member

      Tinnitus Since:
      04/2014
      Cause of Tinnitus:
      Not sure
      Honestly it seems a little crazy, never heard of anyone having problems with speech in noise with a normal hearing test.

      SSRIs should be tried on him.
       
      • Agree Agree x 1
    10. Contrast

      Contrast Member Benefactor Hall of Fame

      Location:
      Retrovile
      Tinnitus Since:
      late 2017
      Cause of Tinnitus:
      injury from noxious noise
      After Ron Paul had dropped out of the 2012 election and before Donald Trump was the top republican running for president (2012-2015) during the second Obama term. Many conservative and libertarian blogs, and social media platforms featured very nihilistic memes.

      These memes implied society was over runned by radical leftist. Both real and f̶a̶k̶e̶(real) Ben Garrison cartoons played a huge role in critiqueing the left while admitting they had a foothold of authority over the United States.

      The viewer of the memes would be put in a mindset that all hope in society is lost, and to find humor from their own ethinic, religious and cultural decay brought on by radical leftism.



      Screen-Shot-2015-11-24-at-10.38.00-AM-1024x750.jpg
       
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    11. Bill Bauer
      No Mood

      Bill Bauer Member Hall of Fame

      Tinnitus Since:
      February, 2017
      Cause of Tinnitus:
      Acoustic Trauma
      Are you saying that this wasn't actually true during 2012-2015 period and isn't actually true now?
       
      • Good Question Good Question x 3
    12. IAmCalifornia
      Wishful

      IAmCalifornia Member Benefactor

      Location:
      Pennsylvania
      Tinnitus Since:
      this year
      Cause of Tinnitus:
      i wish i knew
      353i10.jpg
       
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    13. Artazanasss
      Suicidal

      Artazanasss Member

      Location:
      Lithuania
      Tinnitus Since:
      2016/09
      Cause of Tinnitus:
      Noise induced hidden hearing loss and acoustic trauma
      Thank you so much for all the replies and encouraging compassionate posts knowing that there are so many good-hearted people like you who suffer themselves, but still find time to help and care about the fellow human being and sufferer they don't know makes it a lot more bearable to deal with all my life problems I have nothing,but love and respect for you all.
      That is really sound and solid advice I admit that now that I learned about all of your perspectives and look at it with a calm cold mind and critical thinking I see that I shouldn't make a permanent impulsive decision that is irreversible. I will try to fight my psychological problems and live with all of my hearing loss for as long as I can with a hope that biological regenerative treatments will help me in the future.

      The progress of regenerative medicine is honestly what gives me the most hope I follow the work of Frequency Therapeutics, Decibel, Otonomy, Hough Ear(bomb blast pill that restores nerve endings), REGAIN,Affichem(auditory neuron regeneration), etc.very closely and believe that in 5-10 years we should probably have if not a complete treatment at least a way to improve our hearing.

      And I can't wait for biological medicine to do their miracles tinnitus and hidden hearing loss is a deathly and dangerous disease that doesn't kill you, but sure as fuck makes sure you wish you were dead. Habituation techniques like TRT and CBT are useless for many people whose tinnitus is severe and does nothing to address the underlying problem of hearing loss. I personally am very lucky that my tinnitus has gone from moderate to mild due to natural recovery, but I know a lot of cases that were the complete opposite and gone from mild to severe. Tinnitus is a mysterious and dangerous beast that can only be tamed by science.

      Also, my experiment with NR is pretty much me using True Niagen Nicotinamide Riboside based on the positive feedback of this community it got and hoping that I will see improvement in my hearing and tinnitus.I am almost two weeks on it and so far I do notice a positive effect on my tinnitus not so much of my hearing though if this doesn't work i will try 7-8 DHF that mimics the activity of brain-derived neurotrophic factor (BDNF), and has potent neuroprotective and nootropic properties.
      Don't get me wrong I am really thankful and happy that my tinnitus is mild and my hyperacusis is gone the first year that I got tinnitus, hyperacusis and hearing loss it was a hell on earth I couldn't watch a simple video on youtube without my ears hurting like hell I lost my well-paying job I lost communication with an outside world, my friends and my family, because everyday sounds hurt. I am really glad that with natural spontaneous recovery it is gone now I feel so much empathy for people that have severe tinnitus and severe hyperacusis as a person who once was in the very similar condition I think every person that lives with severe tinnitus and hyperacusis is a strong warrior who deserves nothing, but admiration.

      Also, I am getting help about my psychological condition schizotypal personality disorder I am seeing a psychologist and I am on SSRIs for three years now I am on Paroxetine once a day and also using Risperidone 2 tablets a day I also use Somnol for sleep once before the night. But honestly, so far antidepressants haven't helped me at all I lost all faith on them I still experience mood swings very often, I still feel extreme anxiety that eats me up inside I still have suicidal thoughts daily.

      I think it's either my doctors don't prescribe me the right medication and don't find the right combination of drugs for them to work properly or lost too much and am too broken and hurt for antidepressants to help. Honestly, my depression started way back then I lost my father suddenly due to blood infection back in 2011 and got noticeably worse then I lost my dog and then my sister's husband who I knew since childhood committed suicide tragedy after tragedy has hurt my mental state.
      Also, I didn't contact any deaf community so far I have only this forum to thank for being able to connect me with people who have similar or even worse problems.
      Sorry i don't mean to sound like an asshole,but i have to call bullshit on that there are millions upon millions of people who pass the standart hearing test,but still have problems hearing in background noise or complex hearing enviroments i really urge you to read Charles Liberman work on cochlear synapthopathy as well as this research:
      https://hyperacusisfocus.org/innerear/
      "First, common hearing tests only test to 8kHz as these frequencies are the most useful for common activities and speech and are less subject to variation from person to person. However the frequencies from 8 kHz to 20 kHz are the most susceptible to damage and it is common for people even in their 20s to show hearing loss in these regions. Second, it has been shown that hearing tests can still be normal even with the loss of 80% of inner hair cells (IHCs) as long as outer hair cells (OHCs) are still intact. Third, each IHC is connected to roughly 10 nerve fibers that react to different loudness levels. Loss of these fibers would not show up on a hearing test as long as lower loudness level fibers remained intact. Thus cochlear output will have decreased while hearing tests would look normal. All three of these examples of hidden hearing loss are thought to have the potential to initiate hyperacusis."

      "Several animal studies have shown that temporary hearing loss can result in rapid loss of synapses and slow death of these nerve fibers. Studies also suggest that higher loudness level nerves are more susceptible to damage than the lower loudness level nerves. Hearing sensitivity can recover to normal levels while damage to higher loudness level nerves may remain. Thus the cochlear output will have decreased while hearing tests would look normal."
      What's crazy to me is that people still think an outdated tonal audiogram that doesn't test half of the frequencies a person can hear and doesn't show synapse or nerve fiber damage is still considered the holy grail of audiology. I do have severe hidden hearing loss I am not just some crazy person ranting about problem I don't have I used loud gaming headphones on max volume for two whole years before I got tinnitus and hidden hearing loss so I abused my ears extremely and now suffer consequences from that.

      So sorry for the TLDR post, but I had to answer as many of you so once again thanks to all of you and have a great day and long productive life. :)
       
      Last edited: Jul 7, 2019
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    14. Daniel Lion
      Ape-like

      Daniel Lion Member Benefactor

      Location:
      SE Asia
      Tinnitus Since:
      2017
      Cause of Tinnitus:
      Noise trauma, hearing loss
      Artazanasss
      You're one cool guy, I am glad your feeling calmer.

      The SSRIs are funny things, and you need a good doctor who can adjust accordingly if they are not working. Be pro active on that. Make sure to do fitness and drink lots of water.
      We all suffer in our own ways sadly, I am sorry you lost your pop and brother in-law.
      One thing that keeps me going is my kids, I just can’t bear the idea of them suffering because I died to soon.

      My great aunt who was an angel came from Lithuania, but I have never been, maybe one day.
      Stay strong, reach out to any support groups that exist in your country.

      We are all pulling for you and sending you love over the the net.
      Be well young brother
       
      • Friendly Friendly x 2
    15. Jack Straw
      Balanced

      Jack Straw Member Podcast Patron Benefactor Ambassador Hall of Fame Advocate

      Location:
      US
      Tinnitus Since:
      1990s
      Cause of Tinnitus:
      Infection, Acoustic Trauma
      Do you have the ability to change doctors?
       
    16. Contrast

      Contrast Member Benefactor Hall of Fame

      Location:
      Retrovile
      Tinnitus Since:
      late 2017
      Cause of Tinnitus:
      injury from noxious noise
      Sorry I did not reply to your earlier post, I haven't been checking the forum as much lately.

      You inspire me to keep going, just hang in there while I bring down the scammers.
      Eventually things might really work out of us, and we can't call it quits until we atleast try to change the status quo.
       
      • Friendly Friendly x 1
    17. Contrast

      Contrast Member Benefactor Hall of Fame

      Location:
      Retrovile
      Tinnitus Since:
      late 2017
      Cause of Tinnitus:
      injury from noxious noise
      He lives in a shitty country where "hidden hearing loss" isn't recognized.

      I was diagnosed with hidden hearing loss by a good ENT, but the previous three ENT's I visited from late 2017 to early 2018 told me I had normal/perfect hearing back when I was experiencing hyperacusis and noise induced pain.

      I asked a ENT about hyperacusis back in late 2017, she told me hyperacusis will go away but the tinnitus probably won't, and that was before I knew hyperacusis and noxacusis were not the same thing.
       
      • Like Like x 1
    18. Contrast

      Contrast Member Benefactor Hall of Fame

      Location:
      Retrovile
      Tinnitus Since:
      late 2017
      Cause of Tinnitus:
      injury from noxious noise
      • Like Like x 2
    19. Manny
      Dead

      Manny Member Benefactor Hall of Fame

      Location:
      United States
      Tinnitus Since:
      1/2018
      Cause of Tinnitus:
      central gain << NIHL
      Not to detract from the discussion, but this is not so much a "shitty country" thing, more of a "1900s medical field" thing, presumably globally.
      I (and others in so-called advanced countries as well) was told that my hearing was "fine" or even "excellent" by AUDs/ENTs when in fact I have hidden + UHF hearing loss.
      @Artazanasss I read your post, sorry man I know it's real shit. I wish and hope that things will improve for all of us, and I hope you end up doing whatever is truly best for you. Hugs.
       
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    20. GSC
      Wishful

      GSC Member Hall of Fame

      Tinnitus Since:
      02/2019
      Cause of Tinnitus:
      Acoustic trauma.
      fx is gonna work for synapses MARK MY WORDS AGAIN
       
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    21. GSC
      Wishful

      GSC Member Hall of Fame

      Tinnitus Since:
      02/2019
      Cause of Tinnitus:
      Acoustic trauma.
    22. JohnAdams
      Murderous

      JohnAdams Member Benefactor Hall of Fame

      Location:
      here
      Tinnitus Since:
      it started.
      Cause of Tinnitus:
      hearing loss
      Really? I'm not so sure about that. I hope you're right.
       
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    23. Kain
      Disappointed

      Kain Member

      Location:
      California
      Tinnitus Since:
      March, 2018
      Cause of Tinnitus:
      earbuds
      D3a6mppUwAAAWHe.jpg

      hey there im gonna have to ask you to not doubt fx at the moment
       
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    24. JohnAdams
      Murderous

      JohnAdams Member Benefactor Hall of Fame

      Location:
      here
      Tinnitus Since:
      it started.
      Cause of Tinnitus:
      hearing loss
      this click bait:::::::

      upload_2019-7-7_19-41-42.png
       
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    25. JohnAdams
      Murderous

      JohnAdams Member Benefactor Hall of Fame

      Location:
      here
      Tinnitus Since:
      it started.
      Cause of Tinnitus:
      hearing loss
      If the hair cell is intact and the dysfunction originates at the synapse, I see zero reason why fx-322 would help that.
       
    26. Contrast

      Contrast Member Benefactor Hall of Fame

      Location:
      Retrovile
      Tinnitus Since:
      late 2017
      Cause of Tinnitus:
      injury from noxious noise
      • Funny Funny x 2
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    27. Manny
      Dead

      Manny Member Benefactor Hall of Fame

      Location:
      United States
      Tinnitus Since:
      1/2018
      Cause of Tinnitus:
      central gain << NIHL
    28. Daniel Lion
      Ape-like

      Daniel Lion Member Benefactor

      Location:
      SE Asia
      Tinnitus Since:
      2017
      Cause of Tinnitus:
      Noise trauma, hearing loss
      Your optimism sustains me...thank you
       
      • Hug Hug x 1
    29. Kain
      Disappointed

      Kain Member

      Location:
      California
      Tinnitus Since:
      March, 2018
      Cause of Tinnitus:
      earbuds
      0BE09818-45C5-406C-8C3D-28472179EF47.jpeg
       
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    30. Agrajag364

      Agrajag364 Member Benefactor

      Tinnitus Since:
      09/2017
      Cause of Tinnitus:
      Unknown
      You are so young and there is so much time for things to turn around for you. When the people around us who are supposed to love us don’t understand about health issues and blame it on us rather than a natural reaction to the problem it can be incredibly difficult and make you feel very alone. Having proper mental health issues on top of tinnitus is not easy either. Please show yourself the kindness your family may not just be able to do right now and just say things are hard for me right now but they are going to get better
       
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