New University of Michigan Tinnitus Discovery — Signal Timing

Discussion in 'Research News' started by Hudson, Jun 20, 2013.

    1. kelpiemsp
      Swamped

      kelpiemsp Member Benefactor Hall of Fame Advocate

      Tinnitus Since:
      birth/ recent spike 2/2018
      Cause of Tinnitus:
      Born with ETD, several acoustic traumas, most recently ETD
      I noticed spike resilience. My tinnitus quit being reactive, and still isn't anymore.
       
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    2. Mathew Gould

      Mathew Gould Member

      Tinnitus Since:
      6/2017
      Cause of Tinnitus:
      Neck/Jaw misalignment
      Thanks that's good news then. Over here waiting patiently most days. I'm glad I got hobbies.
       
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    3. Aklara319

      Aklara319 Member

      Tinnitus Since:
      09/2018
      Cause of Tinnitus:
      Noise
      I met with Larry Roberts. It's not a separate project. He's working with Susan Shore and the Michigan device. I was assessed, spoke with him for an hour, and am on standby for a future trial (my tinnitus is too new). Flies under the radar, but he basically founded this line of research. Also doing a study on spontaneous remission <1 year and young people. You can listen to his interview with the ATA on their podcast:
      https://www.ata.org/podcasts/episode-4-ringing-ears-and-neuroscience-tinnitus
       
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    4. Bambam0
      Cool

      Bambam0 Member Podcast Patron Benefactor

      Tinnitus Since:
      2/2018
      Cause of Tinnitus:
      Rock N Roll
      @kelpiemsp Did you have fullness before? If so did that dissipate or lessen post trial? Thanks!
       
      • Good Question Good Question x 2
    5. kelpiemsp
      Swamped

      kelpiemsp Member Benefactor Hall of Fame Advocate

      Tinnitus Since:
      birth/ recent spike 2/2018
      Cause of Tinnitus:
      Born with ETD, several acoustic traumas, most recently ETD
      I’ve had continuous, unrelenting fullness in both ears for 15 months now, unfortunately.
       
    6. Bambam0
      Cool

      Bambam0 Member Podcast Patron Benefactor

      Tinnitus Since:
      2/2018
      Cause of Tinnitus:
      Rock N Roll
      Do you think that’s more of an ETD issue? I guess fullness w lessened T is better than the other way around!
       
    7. jmasterj
      No Mood

      jmasterj Member Benefactor

      Tinnitus Since:
      2011
      Cause of Tinnitus:
      Acoustic?
      I found a Reddit thread that a user posted that he/she recently visited Susan Shore. Link
       
      • Informative Informative x 1
    8. Fabrikat

      Fabrikat Member

      Tinnitus Since:
      1973
      Cause of Tinnitus:
      Otosclerosis then volume then viral infection
      It's bizarre that they told this person that they've not heard of Neuromod in Ireland. I don't get it! Dr. Rauschecker says he's never heard of Susan Shore's device. Susan Shore's people say they've never heard of Neuromod. Yet they all work in the same field and go to the same conventions. Very strange!
       
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    9. spedgas
      Gloomy

      spedgas Member Benefactor

      Tinnitus Since:
      09/2018
      Cause of Tinnitus:
      Unknown
      I don’t believe them. There is no way they are this clueless about others in their research field. If they are then they are being irresponsible.
       
      • Agree Agree x 4
    10. Manny
      Dead

      Manny Member Benefactor Hall of Fame

      Location:
      United States
      Tinnitus Since:
      1/2018
      Cause of Tinnitus:
      central gain << NIHL
      Maybe the booths at the conventions only talk to the convention attendees, but not to one another...still weird!
       
      • Like Like x 1
    11. ee9892

      ee9892 Member

      Tinnitus Since:
      2015
      Cause of Tinnitus:
      Life
      Even with what was said in that reddit post... I highly doubt susan shore isnt aware of neuromod.
       
      • Agree Agree x 2
    12. GregCA
      Jaded

      GregCA Member Benefactor Hall of Fame

      Tinnitus Since:
      03/2016
      Cause of Tinnitus:
      Otosclerosis
      You don't need to attend conventions to know what's going on in the field. Perhaps this was required in the pre-internet era, but not anymore.
       
      • Agree Agree x 2
    13. Bndsmheowqhe

      Bndsmheowqhe Member

      Tinnitus Since:
      2016
      Cause of Tinnitus:
      Loud noise exposure
      It's laughably dishonest.
       
      • Agree Agree x 1
    14. Aklara319

      Aklara319 Member

      Tinnitus Since:
      09/2018
      Cause of Tinnitus:
      Noise
      That Reddit user didn't meet with Susan Shore. He/she met with Dr. Larry Roberts at McMaster University.
       
    15. urgentresearch
      Probing

      urgentresearch Member Benefactor

      Tinnitus Since:
      2017
      Cause of Tinnitus:
      Unknown (possibly withdrawal-induced)
      U-M just posted.
       
      • Like Like x 1
    16. annV
      Fine

      annV Member

      Tinnitus Since:
      2005
      Cause of Tinnitus:
      unknown - possibly hereditary
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    17. Contrast
      No Mood

      Contrast Member Benefactor Hall of Fame

      Location:
      Clown World
      Tinnitus Since:
      late 2017
      Cause of Tinnitus:
      noise injury
      If that's the case then I'm pretty sure they don't know about MPP either.

      Something's fishy.

      How do we know they go to the same conventions? What if it's just Jastreboffians spewing TRT and CBT dogma at the conventions.

      The important research from Susan Shore and the Neuromod team is obviously going to be neglected by those kinds of people.
       
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    18. Markku
      Inspired

      Markku Founder Staff Podcast Patron Benefactor Hall of Fame Advocate

      Tinnitus Since:
      04/2010
      Cause of Tinnitus:
      Syringing
      They do go to some of the same conventions. See for example Tinnitus Research Initiative's May 2019 conference in Taipei:
      https://2019.tri-conf.org/index.php/conference/tentative-program

      Keynote Speakers Topics:
      1. Prof. Nathan Weisz: Auditory prediction processes/Corticofugal processes as seen by MEG
      2. Prof. Belen Elgoyhen: Pharma treatment in Tinnitus
      3. Prof. Antonio Lopez-Escamez: Genetics of tinnitus and Meniere disease
      4. Prof. William Martin: Challenges facing tinnitus care in Asia
      5. Prof. Susan E. Shore: Brainstem mechanisms in tinnitus

      And from the Invited Speakers list you can find Berthold Langguth (consultant neuropsychiatrist of Neuromod), Dr. Josef Rauschecker, Richard Salvi, Richard Tyler and many others.
       
    19. Contrast
      No Mood

      Contrast Member Benefactor Hall of Fame

      Location:
      Clown World
      Tinnitus Since:
      late 2017
      Cause of Tinnitus:
      noise injury
      It boggles the mind to know some of them are not familiar with each other's research.
       
      • Agree Agree x 2
    20. kelpiemsp
      Swamped

      kelpiemsp Member Benefactor Hall of Fame Advocate

      Tinnitus Since:
      birth/ recent spike 2/2018
      Cause of Tinnitus:
      Born with ETD, several acoustic traumas, most recently ETD
      They are aware of the research, obviously. What they don't want to do is get into a situation where a layperson is asking them endless questions about research, publications, and devices. It would be hard to have a conversation with say, Dr. Shore. She has no idea what your area of knowledge is, what angle you are coming from, and how misinformed you are, or are not, about a certain topic. It just isn't worth their time.
       
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    21. Contrast
      No Mood

      Contrast Member Benefactor Hall of Fame

      Location:
      Clown World
      Tinnitus Since:
      late 2017
      Cause of Tinnitus:
      noise injury
      I didn't know they have an elitist mentality, or at least you are claiming they do.

      Can't they just politely decline questions from fans?
       
    22. kelpiemsp
      Swamped

      kelpiemsp Member Benefactor Hall of Fame Advocate

      Tinnitus Since:
      birth/ recent spike 2/2018
      Cause of Tinnitus:
      Born with ETD, several acoustic traumas, most recently ETD
      It’s not an elitist mentality. They just don’t have time for normies. And by time, I mean that literally. Would you rather her work for a cure or spend her time discussing information which is freely available for anyone to read.

      Also she did an episode on a podcast answering information and questions. If you have ever worked for a prestigious professor, you would know exactly how busy they are. In my department, when I was in grad school, the big names all had personal email secretaries, usually grad students. These emails from Lim or Shore that have been posted are not actually from Shore or Lim. That would be absurd.
       
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    23. Mathew Gould

      Mathew Gould Member

      Tinnitus Since:
      6/2017
      Cause of Tinnitus:
      Neck/Jaw misalignment
      @kelpiemsp I'm sure this was discussed, but I can't find it... When was the last time you used the device?? And tinnitus is still at or under 2.
       
      • Good Question Good Question x 1
    24. Jim51042

      Jim51042 Member

      Tinnitus Since:
      3/28/16
      Cause of Tinnitus:
      Headphone use
      While I understand them not talking to the avg joe I just don't buy that they have been using time effectively. They have delay trials for years simply because they couldn't garner the necessary funding. Between 2010-2019 there have investor flush with cash ready to bet on even long shot gambles. It malpractice to fail to get investors if you have a product that as decent odds of solving a untapped and financial lucrative medical problem.
       
    25. kelpiemsp
      Swamped

      kelpiemsp Member Benefactor Hall of Fame Advocate

      Tinnitus Since:
      birth/ recent spike 2/2018
      Cause of Tinnitus:
      Born with ETD, several acoustic traumas, most recently ETD
      Shore works for a University. Free market economics does not apply.
       
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    26. Jim51042

      Jim51042 Member

      Tinnitus Since:
      3/28/16
      Cause of Tinnitus:
      Headphone use
      Very well then the "University system" does not work full stop.
       
      • Agree Agree x 1
    27. Fabrikat

      Fabrikat Member

      Tinnitus Since:
      1973
      Cause of Tinnitus:
      Otosclerosis then volume then viral infection
      That may well be true @kelpiemsp, but I would've thought Universities also like money in their accounts.

      I'm dismayed that Prof. Susan Shore's work has not been grasped as a game changing technology and viewed as a huge potential money making enterprise for the University, much sooner.

      Her progress has crawled along at a snail's pace, needlessly really, when it could have been licensed long ago and facilitated into the commercial sphere. That's also what Universities do with their inventions.

      Sure, she and the University will get there eventually, but others may beat them to the marketplace, at a loss to the University. It's a pity it's taking such an unnecessarily long time.
       
      • Agree Agree x 2
    28. PDodge
      Cowboy

      PDodge Member Benefactor

      Location:
      Woods of Alberta
      Tinnitus Since:
      01/2017
      Cause of Tinnitus:
      Bear ate my Cochlea
      Are you in TO? If you don't mind me asking. Feel free to PM me as well. Thank you!
       
    29. dayma
      Frustrated

      dayma Member Benefactor

      Tinnitus Since:
      1/6/2018
      Cause of Tinnitus:
      UNKNOWN
      Having medical solutions produced and published by Universities is INCREDIBLY lucrative. You can Google how it works and see past success for universities like CASE and MIT.
       
      • Agree Agree x 1
    30. Pero1234

      Pero1234 Member

      Tinnitus Since:
      02/2018
      Cause of Tinnitus:
      home theatre system + high pressure washer
      799EDA62-CE49-499F-BA9B-4E410836722E.jpeg

      STAT Madness, is a bracket-style contest to find the best innovation in science and medicine. The winner gets a write-up about their research at STATNews.com.

      "The finalists were selected from a record 160 entries submitted by universities, medical schools, and research centers across the United States."

      Susan Shore’s device is in the top 4 right now! The semi-final!
      https://www.statnews.com/feature/stat-madness/bracket/

      Wouldn't it be great if Dr. Susan Shore's research / device was the winner!? This could probably get more funding for her tinnitus research and a whole lot of awareness!

      https://mmheadlines.org/2019/03/your-vote-could-help-michigan-medicine-scientists-win/

      This is a great way to create awareness for our cause. But competition is getting stronger! So we hope more of you will join us in voting.

      Just follow these voting instructions:

      Vote for University of Michigan


      PS: You can vote as many times as you want every 5 minutes.

      To keep this research thread clean, please refrain from writing your comments on this competition here, please use the dedicated awareness / fundraising thread instead:

      https://www.tinnitustalk.com/thread...ner-gets-a-write-up.34021/page-10#post-426973

      (Thanks @OnceUponaTime for taking the lead in the voting thread and writing most of this post)
       
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