New University of Michigan Tinnitus Discovery — Signal Timing

Discussion in 'Research News' started by Hudson, Jun 20, 2013.

    1. HootOwl

      HootOwl Member Podcast Patron Benefactor Advocate

      Location:
      California
      Tinnitus Since:
      2009
      Cause of Tinnitus:
      Explanation in About You
      You can’t say that and then not give more info! lol

      If you can we would love to see the correspondence.
       
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    2. Sironketchup

      Sironketchup Member

      Tinnitus Since:
      11/2018
      Cause of Tinnitus:
      SSHL / Stress
      I don't want to be the killjoy guys but don't count on this treatment being more effective than Lenire. It's basically the same... But sure I hope I'm wrong!
       
    3. brokensoul

      brokensoul Member

      Location:
      Belgium
      Tinnitus Since:
      02/05/2019
      Cause of Tinnitus:
      unknown:medication,cannabis,stress,sleep deprivation
      In principle yes, but it could be a more effective design.

      I don’t know though.

      The design seems so simple and tinnitus is such a complex animal. Could it really work that well? If it did, surely she would have been able to get massive funding support to speed everything up, right?

      Then again the published results showed 12dB improvement. I don’t think she faked that number. I trust her a lot more than Neuromod’s responder statements.
       
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    4. ThomasC
      Lonely

      ThomasC Member Benefactor

      Location:
      France
      Tinnitus Since:
      2012
      Cause of Tinnitus:
      hearing loss
      Not exactly. Based on my understanding, the audio stimuli is calibrated with your tinnitus pitch/frequency while Lenire sweeps the 0-8 kHz frequency range, and the pitch doesn't matter (which I don't understand why).

      Lenire sends electrical stimulation to the trigeminal nerve through your tongue. The Michigan device can send electrical stimulation through different parts of the head/neck depending on the movements that make you tinnitus change.
      The Michigan device seems to be better since it is more tailored to your tinnitus.

      However you must have enough hearing left at your tinnitus frequency.
       
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    5. F-u-T

      F-u-T Member

      Location:
      AZ USA
      Tinnitus Since:
      10/2018
      Cause of Tinnitus:
      Acoustic Trama
      The two devices also seem to have totally different timings of the sound and shock stimulations. I think that will be the biggest reason the Shore device is more successful than Lenire.
       
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    6. mrbrightside614

      mrbrightside614 Member Podcast Patron Benefactor Advocate

      Location:
      NE Ohio, USA
      Tinnitus Since:
      July 2019
      Cause of Tinnitus:
      Acoustic trauma
      @linearb how would you characterize the sounds the Shore device emitted? Were they similar to your tinnitus frequencies?
       
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    7. Monte Castleman

      Monte Castleman Member

      Tinnitus Since:
      2008
      Cause of Tinnitus:
      Noise Exposure
      Given a lot of people have a drop-off in hearing at their tinnitus frequency, are they better candidates for the Lenire device or can the Shore device work if it's somewhat close? *My tinnitus is around 10 kHz, I have some hearing up to around 8-9 kHz or so.
       
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    8. FGG
      No Mood

      FGG Member Podcast Patron Benefactor Hall of Fame Advocate

      Tinnitus Since:
      01/2019
      Cause of Tinnitus:
      Multi-factorial
      This is my issue as well. The only time I can hear any frequency around my tinnitus is listening to my tinnitus tone because I am very hearing impaired at those frequencies. I can hear the tones 2000 Hz lower, though. Does that mean I would or would not be a bimodal candidate?
       
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    9. BBakkers
      Wishful

      BBakkers Member Podcast Patron Benefactor

      Location:
      Netherlands
      Tinnitus Since:
      2011, Spike 2019
      Cause of Tinnitus:
      1e Loud Music, 2e Combi of music/earwax/stress
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    10. threefirefour
      Peeping tom

      threefirefour Member Benefactor Hall of Fame

      Location:
      California
      Tinnitus Since:
      5/15/16
      Cause of Tinnitus:
      140dB B R U H moment
      Usually those are deadlines or dates in the latest range. Someone emailed Dr. Shore and she confirmed this.
       
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    11. BBakkers
      Wishful

      BBakkers Member Podcast Patron Benefactor

      Location:
      Netherlands
      Tinnitus Since:
      2011, Spike 2019
      Cause of Tinnitus:
      1e Loud Music, 2e Combi of music/earwax/stress
      @threefirefour . Oke good to hear that! Thanks a lot :).
       
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    12. Bartoli

      Bartoli Member

      Tinnitus Since:
      2009,worsened 2019
      Cause of Tinnitus:
      Noise
      I haven't really seen this thread in a while. Yesterday I emailed Dr. Shore and received a couple of hours later which I've pasted below:

      Thank you for the interest in our work. We are still in clinical trial. We hope to have an update on this at the end of the summer.

      I am adding your name to our mailing list for updates at that time.

      best wishes,

      Dr. Shore
       
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    13. BBakkers
      Wishful

      BBakkers Member Podcast Patron Benefactor

      Location:
      Netherlands
      Tinnitus Since:
      2011, Spike 2019
      Cause of Tinnitus:
      1e Loud Music, 2e Combi of music/earwax/stress

      I want to be added to the mailing list as well. Have had the same reaction. Lets hope we know more this summer.
       
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    14. Bartoli

      Bartoli Member

      Tinnitus Since:
      2009,worsened 2019
      Cause of Tinnitus:
      Noise
      I think you can also subscribe without mailing to Dr. Shore.
       
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    15. BBakkers
      Wishful

      BBakkers Member Podcast Patron Benefactor

      Location:
      Netherlands
      Tinnitus Since:
      2011, Spike 2019
      Cause of Tinnitus:
      1e Loud Music, 2e Combi of music/earwax/stress
      Lol. I already felt embarresed to email her directly xD. Don't want to waste her time.
       
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    16. mark998

      mark998 Member

      Tinnitus Since:
      12/2019
      Cause of Tinnitus:
      loud music
      I thought I'd mention this. I just had an appointment with the head of the dept. that deals with tinnitus at one of the best hospitals in the world (would rather not mention where). Anyway I asked about what treatments might be helpful in the future, and he brought up the work that Michigan is doing. I mentioned Susan Shore and his eyes lit up, he knew all about the research. So ... I know theres no question that the work is legit and everyone reading this already knows that, but still, its one thing to read something in a forum, and its another to hear about it and have it confirmed by a top doctor. So I found it hopeful.
       
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    17. MRItechssuck
      Disappointed

      MRItechssuck Member

      Location:
      USA
      Tinnitus Since:
      Mild 2000-2018 sev 10/17/2019
      Cause of Tinnitus:
      Loud noise, MRI
      @mark998 were you in Michigan at the time? Just curious how far and wide Dr. Shore’s work has been heard of.

      Thanks.
       
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    18. mark998

      mark998 Member

      Tinnitus Since:
      12/2019
      Cause of Tinnitus:
      loud music
      Actually it was not in the US.
       
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    19. F-u-T

      F-u-T Member

      Location:
      AZ USA
      Tinnitus Since:
      10/2018
      Cause of Tinnitus:
      Acoustic Trama
      I wish we knew some type of date when the Shore device would be available commercially. I think her device is going to be a very effective treatment.
       
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    20. Momme

      Momme Member

      Tinnitus Since:
      2018
      Cause of Tinnitus:
      Loud noise?
    21. MRItechssuck
      Disappointed

      MRItechssuck Member

      Location:
      USA
      Tinnitus Since:
      Mild 2000-2018 sev 10/17/2019
      Cause of Tinnitus:
      Loud noise, MRI
    22. AfroSnowman
      Balanced

      AfroSnowman Member Podcast Patron Benefactor

      Tinnitus Since:
      April 16 2019
      Cause of Tinnitus:
      Unknown, viral?
      I don’t know that anything has been updated. The linked pdf showing the pathway to commercialization has a 08/2018 date stamp on it.
       
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    23. AnnawithaT

      AnnawithaT Member

      Tinnitus Since:
      2019
      Cause of Tinnitus:
      TMJ, ETD, Neck, Noise?
      I contacted her directly at the start of this month.

      "We are currently 2/3 of the way through our clinical trial.
      Pending positive outcome we will move forward with approvals etc.
      I can't really say exactly how long that will take but I have added your name to our mailing list for updates later this year."
       
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    24. GlennS

      GlennS Member Podcast Patron

      Tinnitus Since:
      1992
      Cause of Tinnitus:
      Loud music
      That's about as promising as one can expect on this front I guess.
       
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    25. F-u-T

      F-u-T Member

      Location:
      AZ USA
      Tinnitus Since:
      10/2018
      Cause of Tinnitus:
      Acoustic Trama
      Would be so awesome if their device came out sometime next year.
       
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    26. KyleM
      Sleepy

      KyleM Member

      Tinnitus Since:
      Aug 2018
      Cause of Tinnitus:
      Undetermined/Hearing Loss
      I was contacted by the University of Michigan back in November about participating in their latest trial. However since I do not live near University of Michigan and the trial would require weekly visits I was understandably turned down. They did add me to their mailing list, however I have not seen any update since then. I assume perhaps I will see something when their current trial is over.
       
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    27. mrbrightside614

      mrbrightside614 Member Podcast Patron Benefactor Advocate

      Location:
      NE Ohio, USA
      Tinnitus Since:
      July 2019
      Cause of Tinnitus:
      Acoustic trauma
      Can I get some of your luck?
       
    28. KyleM
      Sleepy

      KyleM Member

      Tinnitus Since:
      Aug 2018
      Cause of Tinnitus:
      Undetermined/Hearing Loss
      Hah it's not much luck when you get told you don't qualify. All I did was sign up for any clinical trials through the UoM website. Since I am in the NYC area I've actually scheduled a few appointments with closer universities. Hoping if anything maybe they will have the connections to offer things like the UoM device sooner? Who knows, seemed like a good idea. Appointments are out by 1-2 months.

      However I wish I had lied and said I lived right next door! But they were expecting weekly visits so that would've been one long extended vacation for me haha. Was definitely a punch to the gut when they said "Oh you have to live within x miles of the facility"

      If I gotta wait for the final product then so be it. The sooner the better but hey, plenty of people been suffering and waiting way longer than me.
       
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    29. mrbrightside614

      mrbrightside614 Member Podcast Patron Benefactor Advocate

      Location:
      NE Ohio, USA
      Tinnitus Since:
      July 2019
      Cause of Tinnitus:
      Acoustic trauma
      Ooooh, okay yeah. That’s totally infeasible. I was under the impression you got admitted to both OTO-413 and UofMich. Shore had planned for commercialization by late 2020 but I don’t see that happening. Probably mid 2021 would be a fair guess.
       
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    30. KyleM
      Sleepy

      KyleM Member

      Tinnitus Since:
      Aug 2018
      Cause of Tinnitus:
      Undetermined/Hearing Loss
      Not to bad of a wait in the grand scheme of things. I am happy we are getting so many options in the next 5-10 years tops. Hopefully a combination of these treatments on the horizon can help many of us.

      But yeah no, I was turned away with only one phone call from UofMich. OTO-413 I could've pursued further but yeah pulled the plug on that myself. I've been a long time lurker and just wanted to share my interactions with these various trials and such as I wouldn't even know about any of it without Tinnitus Talk.
       
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