New University of Michigan Tinnitus Discovery — Signal Timing

Yeah I also get that effect. Mine changes so frequently anyways that I stopped doing that. I could be laying down at night and one ear gets high pitched, then staticy, then a very quiet white noise sound, and repeat, all within 30 minutes. It's weird.

 

Similar here. Did you try physical therapy for your neck? Reduced my sounds a great deal, including the one behaving as you guys describe.

 

Is the clinical trial listed a different phase, or is it a completely different study.

Thanks.

 

I haven't yet but looking into it, since no doubt my neck is always bad. I can't even use pillows because it hurts my neck at night. But that's encouraging that getting physical therapy for your neck relieved your tinnitus a lot. Gives me some hope to heal.

 

@FGG what is your hearing profile? Do you have low frequency hearing loss?

 

Pff end 2021, I have been way to optimistic, My hope was late 2020, start of 2021. Atleast we can almost see light shining at the end of the tunnel.

 

On audiogram, I have mild low frequency loss. At 250 Hz but severe to profound ultra high frequency loss (severe starting at 12000 Hz) as well as music distortion across all frequencies (they doesn't make voices etc distorted).

 

No. Not everyone has the ability to modulate their tinnitus.

 

Not me, body/facial movements have no impact on my tinnitus.

 

I could play the whole flight of the bumblebee with my tinnitus just moving my face.

 

If I clench my jaw it doesn’t do anything to my usual baseline hissing nor the ringing tones I have, but I do hear one high pitched tone a lot louder only when I clench. It doesn’t seem to be present otherwise.

So when you guys yawn or have one of those involuntary stretches you don’t hear your tinnitus louder?

 

Simply turning around in bed gives me another combination of sounds

Yawning does not do anything for me, but stretching can trigger some hisses for the duration of the stretch.

EDIT:
Spontaneously yawned a moment ago, and apparently one small tone is generated at my left ear during that time. Interesting that I never noticed it.

 

That sounds like residual inhibition.

 

When I met my tinnitus for the 1st time, there was NOTHING on the horizon really, other than habituation.

Another year, whilst suffering might seem like a long time, but at least there is some hope of a quieter life in the future.

 

So that's what the phenomena is called: I had no idea there was a term for it. Guess you learn something every day

 

Do make a video of that plz.

 

Nope, not for me, my tinnitus is always the same.

 

Including the bumblebee sound.

 

Unless it becomes 2022, 2023, 2024, etc...

 

You summed it up brilliantly, GlennS.

In fact, I believe that I referred to the Lucy / Football analogy in a previous post.
Ever since I got this I have kept that scenario perpetually in mind.
Ever since 2014 I have been reading about news items dated as far back as 2012 about "cures" on the verge of being released.

I also recall Dr. Rauscheker's Ted Talk dated 01/23/2017 wherein he confidently predicted some sort of treatment within the not-too-distant future.

Also, the huge question is - How effective will any of these when released (if ever) really be?

 

I agree with your assertion that academia tends to move slowly when it comes to research. The positive side of this is that it's about something far more valuable to her than the money. This is about her legacy. She won't allow anything to tarnish what she correctly views as her shot at immortality among her peers. You can bet that whenever this thing finally gets released we won't be hearing the wishy-washy reviews and apologist propaganda we've experienced elsewhere.

 

Neuromod gained credibility by conducting two studies far larger than hers, and not focused on "somatic" tinnitus. If something that promising turned out to be a head-fake then I think there's still reason for caution with this one.

Out of the three major Neuromodulation treatments in the pipeline, I'm currently most optimistic about Minnesota (thanks almost exclusively to @kelpiemsp's testimonial), then Shore, then Lenire.

 

The Minnesota device appears to be the most effective but I believe the Susan Shore device will be a close second. IMO the Neuromod trials are dubious because of:

1) The failure of MuteButton indicates a tendency towards a rush to market.

2) The fact that they had to bring in Hubert Lim specifically to help them complete the trials.

I believe that Susan Shore is too arrogant to allow her name to be sullied by an underperforming device. She would rather release nothing than risk being snubbed at faculty cocktail parties.

 

My cousin is a professor in the neuroscience dept. at U of M. He was in a meeting recently during which Susan Shore's name came up, and one of the other professors excitedly exclaimed "Susan's awesome. She's going to cure tinnitus!" At least her peers seem enthusiastic.

 

If my tinnitus is somatic but not noise induced, would this work for me? For what class of somatic tinnitus would this work for and not work for?

 

Has anyone emailed asking how COVID-19 is going to affect the trial?

 

She replied:

”We hope not”

 

We hope that the currently on-going 2nd trial will be the last one for Susan Shore device. I think it started in Autumn 2018 and is hoped to finish by the end of 2020. However, Susan Shore is said to publish the initial results of this clinical trial in a matter of weeks or few months.

I'm excited.

 

Where did you get that info? That would be exciting.

 

It's a speculation that Dr. Shore will publish the initial results in mid 2020s. I remember reading the below post in 2019. Here's the screenshot: