New University of Michigan Tinnitus Discovery — Signal Timing

I was refused for travel as well... whether I was flying or driving from 6 hours away. I’m surprised that the study is 2/3 over already.

 

This is one of the greatest things about Tinnitus Talk imo. Nowhere else can you find as much consolidated information about research and trials. Nowhere else comes remotely close. I am so very glad this place exists.

 

If you don’t mind me asking, what do you mean by appointments with uni’s? Just like audiograms, or is there some local treatment or trial I haven’t heard about? (I’m also near NYC.) Thanks.

 

Yeah just normal evaluation appointments. I've already had a previous hearing test when my tinnitus first started and was told my hearing was perfectly fine. Hoping to do more testing now that I've had it for a while to see if there's any significant difference. my goal with doing this at university locations is to be closer to any potential news of trials or new treatments (potentially provided through said universities) sooner than the ENT down the block who says "learn to live with it have a nice day, next". May have the same results with said university doctors but hey, you never know.

With that said, you can sign up for the OTO trials in a clinic on long island.

 

I speculate that distribution is going to be a massive hurdle for Shore. Precisely calibrating the frequency and timing of the sound/shocks coupled with appropriate site application is not going to be easy information for UofMich to disseminate.

Hopefully she establishes that it 1) doesn’t lead to even temporary worsenings, 2) confirms it could be of use to even NIT folks and not just somatic, and 3) can be retrieved directly from UofMich through a waiting list. I trust the source way more than my ENT derping it up and fumbling to get caught up with the 21st century.

 

Dr. Shore mentions that loss of auditory input leads to engaging somatosensory nervous system to compensate. So in that way isn't she targeting NI tinnitus that has somatic features?

 

Yes, exactly.

 

I have had pulsatile tinnitus above my normak tinnitus for 1 week. Can Dr. Shore's device work on pulsatile tinnitus?

And, if we have several tinnitus sounds in one ear, how will this be programmed?

 

I could be wrong, but I would think not

 

It depends on what’s causing it. If it’s objective pulsatile, then no. But if it’s subjective then probably yeah.

 

@linearb how would you describe your tinnitus? Since yours was suppressed by Dr. Shore's device I wonder if yours is like mine.

I'm planning on being in Dr. Shore's clinical trial, just waiting for the call...

 

I've touched base with Dr. Shore again.

Whilst I'm not eligible for her trial, due to geography, she did say I would probably benefit from her device because:
. Hearing loss
. Somatosensory involvement because able to modulate tinnitus with facial / jaw movements
. Responsive to residual inhibition

Said the device, pending results and approval, will hopefully be ready for market at the end of 2021.

 

Mmm...I can´t modulate my tinnitus with facial / jaw movements and my residual inhibition is usually 2 or 3 seconds. I´m fried.

 

Where did you find the information on the market release date?

 

In an email I received from Dr. Shore recently; stating that whilst her team need to be cautious with dates, she is hopeful of good news at the end of 2021.

 

What does this "good news" actually consist of? Does this mean there is at least a two year wait? When will I actually have this device operational and on my head? How successful will it be?

I've had this now for over 6 years, and I feel confined within inside the stage set of "Waiting For Godot."
I've had one after another infuriatingly disappointing carrot dangled in my face for so long that I have become someone whose sneering cynicism I utterly resent.

 

Good information. I knew the end of 2020 was a far too optimistic estimate but seriously—another whole year? That is a damn shame. I don’t know if its basis in academia precludes her from partnering with private investors, but for everyone’s sake I hope that’s not the case. Another two years is just not okay.

 

2021 is great news.

 

What's residual inhibition?

 

Some of us can modulate our tinnitus with movements of face/neck.

 

What kind of face movements? I thought pretty much everyone can modify their tinnitus by clenching their jaw or yawning/stretching?

Does this only apply to the people who can actually “stop” their tinnitus by certain movements? Or make it louder?

 

Modulate... louder or softer.

 

Again I thought everyone’s tinnitus gets louder due to clenching their jaw or when you have a good stretch or something.

 

Hi Buzz. Residual Inhibition is common for many tinnitus sufferers. Try to mask your ringing during many seconds / few minutes. When you stop the external masking sound you can note that your tinnitus is not there (or the volume is really lower). That can last few seconds or even minutes.
Mine comes back really fast

 

Sorry. Misread your post.

Not everyone has somatic tinnitus.

Residual inhibition happens when you experience a temporary tinnitus suppression after listening to a noise that is around same frequency of hearing loss/tinnitus.

 

Didn't even know Residual Inhibition was the name for that effect. Mine can last for up to 10 minutes sometimes. But it only lasts that long if I've been doing something that took my attention completely away from tinnitus for a while.

 

Same here. I don't know if it's also residual inhibition.
Also, hearing certain high-frequency noises knocks my tinnitus out for about 10 seconds, then it comes back slowly over 20 more seconds (not very useful if you have multiple tones though...). I thought that this was considered residual inhibition.

 

Not always louder. One of my sounds is reduced when I turn my head to the right: if far enough, it completely disappears. The opposite is also true: turn my head to the left, thén it becomes louder.

Clenching my jaw does create another sound though.

 

Is this simply the next phase or is this a different study by Dr. Shore?

Bimodal auditory-somatosensory stimulation versus Burst- SCS.

Thanks.