New University of Michigan Tinnitus Discovery — Signal Timing

Discussion in 'Research News' started by Hudson, Jun 20, 2013.

    1. ThomasC
      Lonely

      ThomasC Member Benefactor

      Location:
      France
      Tinnitus Since:
      2012
      Cause of Tinnitus:
      hearing loss
      I think you will have to use the device over and over to get permanents results. Lenire gives permanent results for those it works.

      However, I agree it's not a cure.

      Unless your tinnitus is mild, it won't disappear with this treatment but its severity may reduce.

      It also only works for those who can modulate their tinnitus with jaw and neck movements which comprises around 60% of tinnitus sufferers.
       
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    2. Lukee

      Lukee Member Podcast Patron Benefactor Ambassador

      Location:
      Toronto, Canada
      Tinnitus Since:
      01/2021
      Cause of Tinnitus:
      Wim Hof Breathing Exercises
      There are many similar types of units out there in testing as we speak. I think whether or not the treatments prove to be permanent is still open for discussion. My personal opinion is that the results will be permanent but living regular life will cause for further tinnitus/damage which will need to be treated. I think the maintenance sessions will he few and far apart but likely constantly needed.

      @linearb, did you have any other symptoms like pressure, TTTS, hyperacusis, etc? If so, how did they react to the treatment?
       
    3. AfroSnowman
      Balanced

      AfroSnowman Member Podcast Patron Benefactor

      Tinnitus Since:
      April 16 2019
      Cause of Tinnitus:
      Nonnatural energy source
      Thanks for your write up. With the disappointments over these last couple years of FX-322 and Lenire it is easy to imagine that nothing is ever going to work. But from reading about the science and solid scientific process behind this device I was already optimistic,and reading your first hand account that it does indeed do something really helps me be patient knowing that this could very well be publicly available in the near term.

      I don’t know about the rest of you but my tinnitus is the 24/7 can hear above everything, oftentimes quite loudly above everything sort of noise. Life goes on but it is definitely a daily challenge to a greater or lesser degree. That being said, every once in a great while I have a quiet day, still always there but all that stuff about habituation, pushing it off to the back ground, only noticing it when you look for it, it all seems so possible and if I could get that that would be enough. Thinking that something could actually help, something might finally lessen it a bit, man oh man, well that is like knowing that Christmas is coming even if it is a year away.

      Of course I don’t want to get too excited as I can’t afford to have my heart broken again (looking at you FX-322, Lenire, and the 1 year delay in this device due to COVID-19).
       
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    4. AmePerdue

      AmePerdue Member Benefactor

      Location:
      France
      Tinnitus Since:
      May 10, 2021
      Cause of Tinnitus:
      Unknown - Likely ear infection
      I know Dr. Shore's device is no cure but even a mere 50% volume reduction would be night and day for me and would probably allow me to sleep without meds again. If it does turn out to be effective on me I can see myself using the device permanently, or at least until a real cure is found (restoring hair cells / synapses). So in that aspect I would literally worship Dr. Shore as a life savior. I can't wait to fly to the USA to try it.

      One of my concerns is long-term effectiveness. Assuming the device is initially successful at suppressing the sound, could the brain somehow learn over time to find other ways to recreate again the missing frequency in a way that bypasses the initial patterns of the bimodal stimulation? So we would need to find new settings with different timings every once in a while? I'm not pretending to know about this stuff but I don't think I'm prepared to re-experience that emotional rollercoaster of returning to silence and thinking I'm cured only to be hit back with screaming T just a couple days later. The first time it happened was like being thrown back into a nightmare from which I can't wake up.

      Too bad about the COVID-19 delay. COVID-19 has fucked my life over in so many ways and for all I know could even be the cause of my tinnitus. Fuck COVID-19.
       
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    5. kingsfan
      Mellow

      kingsfan Member Benefactor

      Location:
      Southern California
      Tinnitus Since:
      9-17-20 / 10-20-20 / 3-31-21 / 5-23-21
      Cause of Tinnitus:
      turning everything up to 11
      Personally, the worst part of tinnitus, even worse than horrendous noise I am subjected to every waking moment, is the possibility and perhaps probability that it can and will get worse. Every day is like walking on eggshells, constantly trying to stay one step ahead of any dangerous sounds. Carefully planning each trip out of the house or even just to the kitchen. Gauging each environment. Checking its decibel level. Inserting and changing earplugs. Dreading that the motorcycle that passed by unexpectedly or that fork I accidentally dropped on the tile floor will mean a new tone or increase of the enumerable already present ones. The disconnection from the world around me is severe, lonely, and incredibly depressing.

      Having some form of treatment to lessen any worsening back down to a tolerable level would mean having those connections back, a life of so much less worry... an insurmountable amount of weight lifted off my shoulders.
       
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    6. Rb86

      Rb86 Member

      Tinnitus Since:
      5/31/19
      Cause of Tinnitus:
      Noise
      I've had noise induced tinnitus 2 years now. I understand what you're going through.

      Let me offer some experience though. I don't leave the house without earplugs in my pocket. I work a noisy job. I wear them when I'm working. I have encountered tens of situations exposed to unpredictable loud noises. None of them caused a permanent new tone. The worst was very loud, and my tinnitus was very loud the next day.

      The deal is, your emotional response makes the noise grow three fold, and it only makes it worse.

      Recognize it's there. Protect yourself. But no. There is no probability that it will get worse. Quite the contrary.

      If you continue to protect your ears and make smart choices, you will both get more used to it, lowering your emotional response, AND statistically there's a good chance you will also have somewhat of lessening of the noise as the months turn into a year, etc.

      Really easy to say and hard to know in your heart.

      Hell I'm up now at 2:30 because it's bothering me, but not in the hopeless way it used to. It's familiar now.

      I'm waiting on a cure too, and I think about it every day.

      My message is just, do NOT, under any circumstances operate emotionally under the guise that this is "probably going to get worse".

      I wish peace to you. Let's stay on topic from now on.
       
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    7. Mathew Gould

      Mathew Gould Member Benefactor

      Tinnitus Since:
      6/2017
      Cause of Tinnitus:
      Neck/Jaw misalignment
      I can modulate my tinnitus with secondary sounds, but not my main sound. I have been wondering if it would help me.
       
    8. Kam75

      Kam75 Member

      Location:
      FRANCE
      Tinnitus Since:
      2014
      Cause of Tinnitus:
      Noise induced trauma in 2014 and 2019+ototoxic drug in 2020
      Susan Shore's device has been tested on people with somatic tinnitus only, so it may help you in part.

      As for non-somatic tinnitus (which cannot be modulated), Shore does not know if it can be treated by her device.

      I too have tinnitus that I can "modulate" (in fact I can only make it worse if I open my mouth wide, but not reduce it). This is due to the aggravation of my tinnitus in 2020 due to the Naproxen.
       
    9. Mathew Gould

      Mathew Gould Member Benefactor

      Tinnitus Since:
      6/2017
      Cause of Tinnitus:
      Neck/Jaw misalignment
      I can modulate my tinnitus too, but like you it is made worse.
       
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    10. AfroSnowman
      Balanced

      AfroSnowman Member Podcast Patron Benefactor

      Tinnitus Since:
      April 16 2019
      Cause of Tinnitus:
      Nonnatural energy source
      The critical bit is that it changes, not whether it gets better or worse. As I understand it, this is taken as an indication that stretching/pulling specific nerves impacts your tinnitus and it therefore makes it more likely that electric stimulation on that nerve will be able to impact your tinnitus.
       
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    11. Mathew Gould

      Mathew Gould Member Benefactor

      Tinnitus Since:
      6/2017
      Cause of Tinnitus:
      Neck/Jaw misalignment
      I can never modulate my main sound, but only secondary sounds.
       
    12. AfroSnowman
      Balanced

      AfroSnowman Member Podcast Patron Benefactor

      Tinnitus Since:
      April 16 2019
      Cause of Tinnitus:
      Nonnatural energy source
      Well it is all just speculation twiddling our thumbs while waiting for a treatment right?

      That being said, she limited her study to folks with somatic tinnitus because she felt that was the best shot to see a clear response, she (I believe) has said clearly that she doesn’t know if it will work for non-somatic, not that it won’t. In any case unless you have to take out a mortgage for it, I’d think you’d want to try anyway.
       
    13. Piney

      Piney Member

      Tinnitus Since:
      March 2018
      Cause of Tinnitus:
      Shingles virus
      There should be an update on this tech considering people have donated and put valuable time into it. There are students who have worked on this, and it’s been over 20 years now. Somatic patients are the only ones in trial, due to what is the outdated system of honing in on isolated data, 2 decades worth. Meanwhile, Elon Musk is planning on a trial that puts computer chips in human brains; tapping into anticipated thought within a year. Removing barriers and taking risks sometimes works.
       
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    14. TomBradyGOAT

      TomBradyGOAT Member

      Tinnitus Since:
      2016
      Cause of Tinnitus:
      Who knows
      For anyone that is worried about Dr. Shore's age or why she is taking so long, you have to understand she studied under the great Neurosurgeon Carl Wainwright.

      World's Oldest Neurosurgeon Turns 100
       
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    15. Kam75

      Kam75 Member

      Location:
      FRANCE
      Tinnitus Since:
      2014
      Cause of Tinnitus:
      Noise induced trauma in 2014 and 2019+ototoxic drug in 2020
      It's not that encouraging; no one here wants to wait for Susan Shore to reach 100 years of age to finally bring her device to market :D
       
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    16. F-u-T

      F-u-T Member Podcast Patron Benefactor

      Location:
      AZ USA
      Tinnitus Since:
      10/2018
      Cause of Tinnitus:
      Acoustic Trama
      I sure wish we had some type of dates to look forward to. At this point it is anyone’s guess.
       
    17. Nobody19

      Nobody19 Member Podcast Patron Benefactor

      Tinnitus Since:
      2012
      Cause of Tinnitus:
      Clubbing
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